Added: 4 years ago
From: smfoundation
Views: 10,245
Sort by time | Sort by thread (beta)

Link to this comment:

Share to:

All Comments (12)

Sign In or Sign Up now to post a comment!
  • The NS I consulted with ASSURED me that SM does not cause pain. I can't imagine what is causing me this monster that lives in my spine every minute of the day. I have SM in my thoracic. T3-T8. I have a large cyst that they finally found on MRI's done with contrast this past November. Absolutely no one will operate, they all say it is too damn risky.

  • i have SM also...had surgery 3 years ago and live in horrible, chronic pain. any ideas anyone can share to ease the pain? or share your expereinces? blessings to us all..this is a horrible disorder

  • i really wish I can find a doctor to Give me someting for thispain!!!!!!! This is ridiculous. How lucky we are to have this!! :-)

  • I have SM and live with chronic pain. I have a syrinx in my neck and the larger one in my mid-back. I had problems with back pain since I was a kid but was only diagnosed in 2001. It has totally ruined my life. Nobody understands what I'm going through, the public and doctors need to be better educated about this condition. I am totally frustrated.

  • im recovering from a car crash where i was rearended by a cement truck, i too am showing signs of sm. the constant pain is unbearable , ann

  • I've had this since a car wreck in 1998, diagn, in 2000, surgery in 2000 .. TERRIBLE pain .. ugh

  • Thanks for this Video. I've lived with this disease for 32 years and the pain is just unbearable.

  • You can pray for your suffering to end. It may work. I prayed for there to be an end to suffering a few months back and after that the public has been nicer. God bless you and God please make your suffering end. I love you.

  • I know what your going threw with SM.

  • Thanks for this. I am just now becoming familiar with this word Syringomyelia as a recent MRI is suggesting i have this.

  • I have this.

    It sucks so much. >__>

Loading...
Alert icon
0 / 00Unsaved Playlist Return to active list
    1. Your queue is empty. Add videos to your queue using this button:
      or sign in to load a different list.
    Loading...Loading...Saving...
    • Clear all videos from this list
    • Learn more