The NS I consulted with ASSURED me that SM does not cause pain. I can't imagine what is causing me this monster that lives in my spine every minute of the day. I have SM in my thoracic. T3-T8. I have a large cyst that they finally found on MRI's done with contrast this past November. Absolutely no one will operate, they all say it is too damn risky.
i have SM also...had surgery 3 years ago and live in horrible, chronic pain. any ideas anyone can share to ease the pain? or share your expereinces? blessings to us all..this is a horrible disorder
I have SM and live with chronic pain. I have a syrinx in my neck and the larger one in my mid-back. I had problems with back pain since I was a kid but was only diagnosed in 2001. It has totally ruined my life. Nobody understands what I'm going through, the public and doctors need to be better educated about this condition. I am totally frustrated.
You can pray for your suffering to end. It may work. I prayed for there to be an end to suffering a few months back and after that the public has been nicer. God bless you and God please make your suffering end. I love you.
The NS I consulted with ASSURED me that SM does not cause pain. I can't imagine what is causing me this monster that lives in my spine every minute of the day. I have SM in my thoracic. T3-T8. I have a large cyst that they finally found on MRI's done with contrast this past November. Absolutely no one will operate, they all say it is too damn risky.
blackberrybunny 1 year ago
i have SM also...had surgery 3 years ago and live in horrible, chronic pain. any ideas anyone can share to ease the pain? or share your expereinces? blessings to us all..this is a horrible disorder
missamelie17 2 years ago
i really wish I can find a doctor to Give me someting for thispain!!!!!!! This is ridiculous. How lucky we are to have this!! :-)
paloelote1 2 years ago
I have SM and live with chronic pain. I have a syrinx in my neck and the larger one in my mid-back. I had problems with back pain since I was a kid but was only diagnosed in 2001. It has totally ruined my life. Nobody understands what I'm going through, the public and doctors need to be better educated about this condition. I am totally frustrated.
PoKeRpLaYa71 2 years ago
im recovering from a car crash where i was rearended by a cement truck, i too am showing signs of sm. the constant pain is unbearable , ann
gregtraynor 3 years ago
I've had this since a car wreck in 1998, diagn, in 2000, surgery in 2000 .. TERRIBLE pain .. ugh
MOMMYT65 3 years ago
Thanks for this Video. I've lived with this disease for 32 years and the pain is just unbearable.
Piscopa 3 years ago
You can pray for your suffering to end. It may work. I prayed for there to be an end to suffering a few months back and after that the public has been nicer. God bless you and God please make your suffering end. I love you.
TaraZatara 2 years ago
I know what your going threw with SM.
LynnSMfeb2205 3 years ago
Thanks for this. I am just now becoming familiar with this word Syringomyelia as a recent MRI is suggesting i have this.
twohassles43 4 years ago
I have this.
It sucks so much. >__>
ammisan 4 years ago