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Online Community for VHL patients created by VHL patient organizations can be found by Googling Rare Disease Communities.
This website is available in 5 languages with human translators working across all 5 languages. Come check it out today and post your experience with VHL.
eurordis 8 months ago
My son and I have VHL. I am 40 in the New Year. I intend to be around for some time yet. Your videos a great one...:)
Galeschin 2 years ago