What annoys me about life, is that things like this always happen to people who deserve them least. Why do good people have health problems, and bad people get to live in perfect health? Such as the injustice of life I suppose.
This could have been a video of my life with MS. It was eerily similar. I'm 29, been on C for 6 years. I had several disabling attacks during my early years including the right arm (5 year old hand writing at best). Today most of my symptoms are invisible so thanks for explaining MS life with a sharable video.
My fiance just released an album dedicated to his mother who has MS. Half of the proceeds will go straight to the MS society. Support good music for a great cause! Please!
Hi cracking video, i have had a spinal problem and nerve damage for 14 years now. yet within the last six months i have developed constant tingling/pins and needles in both hands and forearms along with crawling ant feeling over most of my body, im constantly tierd and lose vision though not for long. Parts of my face go numb and tops of my thighs go numb tingle cold and lose strength. pins and needles in patches down my lower leg also short term memory loss and at times slurred speech. HELP!!!
I would like to thank you for sharing this video so I can learn what's it like to live with the disease. I wish a cure will be found in the very very near future so you and others will look back and forget that you ever had it.
I fear I may be diagnosed with MS soon as I seem to have a neurological problem that the doctors have not been able to sort out yet. I am due for am MRI scan soon and im suffering alot of weird symptoms including unexplained pins and needles. Should I be worried you think?
@GiRTheDuck Hey no problems, whatever happens in life happens but worrying never solved anything and to be honest worrying/stress just seems to make stuff worse. So take it in your stride, there are worse things out there than MS and i really do feel it will be cured within our lifetimes. My advice is don't let it change you, or define who you are.
@GiRTheDuck hi GiRTheDuck I don't the that you have to be afraid too much if you don't understandn your problem very will. buecous if yo did you may have it as long as your brain is saying I have MS it may happened even if you don't realy have it .And I know alot of people whom happend to them the same as this ,I mean to believe that they have a kind of disease while thay are not and then it happend.
and sorry for my bad explanation and writing becaose I don't know english very will
Jessica, this was an amazing video. You portrayed those feelings and symptoms so accurately. Great audio, too, by the way. I'm sending one giant high five your way!
Can't agree more about the fatigue. It is a BITCH and a half. Luckily my MS hasn't been as bad. Few diplopias and slight loss of strength in one side but ive been pushing ok otherwise. It's just the damn fatigue that really weighs you down. And it's embarassing to explain to people because they'll just think you're being a lazy fart. Even worse in my case because growing up i have been known to be a procrastinator. Feel like the boy who cried wolf.
Thank you for making this video! I think your attitude is the right one to have, it's better not to dwell onwhat could be, but enjoy the present to the max!
Very well done! I might use this to help friends understand why I do some of the things I do, like sleeping in or droping things. I'm glad they were able to diagnose you within 6 months mine took 8 years and much damaged was caused because of going untreated. Keep strong and don't give up!!
CCSVI Clinic Receives Joint IRB Approval for Aftercare Protocol Study.
The joint application between Noble Hospital and CCSVI Clinic has been approved through the IEC Institutional Review Board (IRB) that will allow researchers to use patient data to study their new extended and enhanced aftercare treatment protocol. Please Call 888-419-6855 to know more about participating in the study. Log on to ccsviclinic. ca for more information. Email apply -at- ccsviclinic. ca
My friend just informed me today that they found more leasions in her brain, but luckily they aren't growing. She does get tired very easily though and takes naps during the day but she can still walk and has a son to take care of. Thank God for her hubby.
You are great, please continue to keep up the good work. Thanks for sharing and giving us your unique awareness and reality of this disease. God bless you and please keep in touch.
You don't drink diet soda do you? Because women, including a male Olympic swimmer had their diagnoses reversed when they stopped consuming Aspartame sweetened products.
@TheMegazapcat Ignorant person, the Aspartame theory has long been disproved. Multiple Sclerosis is an idiopathic Autoimmune disease, and that means it has NO known cause- even the worlds best and brightest neurologists are still stumped as to why some people develop M.S over others, and still can't seem to find one common link between person to person . its called a fluke.
@Counterbrilliance You are a lap dog idiot. It has no known cause and cure, yet hundreds of people have cured themselves. I take that over your ignorant, pill popping ass. It's not a fluke, and this is why in the last 30 years every degenerative disease known to man has been accelerated. You can't touch me because I'm interested in the solution not the problem. Go sit in a closet and die because big pharma told you so. You are nothing, and your reply is less useful than kitty litter.
@TheMegazapcat You sound American. I don't take medication at all, there you go with your silly assumptions. Nobody has ever cured them selves of M.S, unless of course their symptoms were actually Lyme disease in disguise which could easily be reversed, but for those who have legitimate M.S they take it with them to the grave. And the rise of the incidence of degenerative disease in the last 30 years has a lot to do with aging population and better diagnostic technology, not conspiracy.
@wierdbill Thanks... getting it to that professional level was a crazy amount of work... i made this for my yr2 exhibition at university. Currently planning a short film for 3rd year... but haven't even started filming yet... will hopefully be a success
@wierdbill Thanks for sharing... it's unfortunate... this debilitating disease. My sis has an autoimmune disorder. It's sad in a way. It's difficult to be positive but I think it's a requirement for a better quality of life. My prayers are with you Ms. 21.
Thanks for sharing! One of my best friends from my previous job just diagnosed with this so I'm doing alot of research so I can better understand what she's going through and will go through as this progresses. Thanks for sharing! :)
@GeminiAuntie Just let her know that its not the end of the world ... be stubborn... don't let the MS interfere with any plans you have in life, even if those plans become more difficult or take longer..keep at it, she will become all the stronger for persevering
@pinkjessuk85 Definatly! She has the same attitude about it that you do which I think is a good thing. We can't take everything seriously and everyone has their own way of coping and this is how you guys cope which is cool by me.
@pinkjessuk85 Thank you and I love your outlook on this situation. I don't think you're being too light about this at all. I love the way you're handling it. My friend's handling it the same and is also critised for not taking it seriously, but she's also got a sense of humor and is a fun loving person. Everyone has their different way of coping and if it makes you feel better I'm cool with it. You're both stronger than this. :)
Thanks for putting up this video! I was recently diagnosed with MS and your video has made it easier for me to show others what it's like somewhat to live with it. I had the same thing at the start where my hand just wouldn't want to work with me and yeah it made for some great notes lol. Oh and the double vision is a real pain. I had an old pair of glasses I taped cardboard over one lens so that it wasn't as bad. So irritating sometimes! Loved the video and I hope for the best in the future!
Thank you for posting this. I had all the fatigue you talk about...and dropping things...omg! lol Same here. Stamina issues too. I'm 30 now, and I had the first major symptoms at 21 as well. The worst is the cognitive effects...not being able to processes as quickly as others. I've lost my ability to read for a short (that was interesting), and it made studying and school quite the challenge. And what people don't realize is the depression...another video in and of itself.
I had MS for 15years my hope is you get Liberated like I did on the 15th of October my MS is gone! only a couple of faint symptoms left, my wife has had MS for 22 years she was liberated the same day she is getting better and stronger now get checked for CCSVI!
You just rendered my screen name obsolete, you moved me greatly. Secretly, from this point forward between you and I and anyone reading this. My screen name really means... Im_movable1. You really have talent at filmmaking.
Hey! I'm making an academic poster for my Psychobiology module. Thank you very much for your video, it is very informative and personal. I admire your strength :) Take care
is there any way I could get a copy of this film to show a group of people who want to know about ms
because it tells how it
Im not very skilled so I am asking if somehow I could get a copy before october 3rd -- I could send you a copy of the norwich film the group of young people I worked with made so please email me there wont be a computer at the meeting
just a dvd player I just watched your cromer norwich film and saw you have family links with this area norwich
I think your film is really helpful and imaginative -I have just finished making with a group of young people at BBC Voices in Norwich funded by dept of children, schools and families. I have MS too heres the link to the film as its 15mins couldn't fit it onto you tube- all the things you talk about you have shown in a clever way . like your stylish way of presenting data hope you will look and leave a comment ofr the group that made this
@gloriamorrisfilms Thanks for checking out my video, i accepted your video response and checked out your film, glad it had a more positive ending as far too much information on MS/and the medias view is quite grim. My film was a backlash against that really, i wanted to show that even though having MS might suck, its not the end of the world
What a great video! Thank you so much for posting it. I have been recently diagnosed and its good to know I'm not the only 20-something year old out there who has to deal with this. Btw. you have definitely picked the right career!
@ProjectBrooke well as you can see... MS can result in a number of weird symptoms..and it's different for everyone who suffers from it. At the beginning this was a really pain to sort out as Doctors can't really diagnose MS very quickly. To be sure you need an MRI scan and a Lumber Puncture (spinal tap) ..well at least that was the 2 procedures that confirmed my MS
@pinkjessuk85 Well i actually had a diabetes and other blood tests a few months back and it came back negative. I still feel like a vegtable though and i feel embarrassed because i dont know whether am just really lazy and i dont want to seem like a fussy pesimistic douche lol
Hey love your vid it reminds me of me lol.. I have ms had it since i was 23 which has been three years now.. I have random thoughts,, that i seem to for get.. hehe anyway I have been through a whole lot of crap.. anyway I just wanted to say that your vid has made me feel better.. well thats kinda me.. i am evil i need to stop writing .. ehhhhhhhhh Ok i lost my thought. see how much i hate this grrrrrrrrrr.. anyway it good to know that i am not the only one out there... now off to bed with me.
I loved this video. Multiple Sclerosis sucks so very much. I was diagnosed at 21 as well, been living with it for a lil over a year now. It's hard and frustrating and it sucks. and of course getting frustrated just makes life even harder. Today's been one of those crap ms days when everything just sucks and I'm having such a hard time finding a smile to put on my face. It's comforting to know someone is sharing this boat with me, so thanks :o)
Love the video, will share it with others. You have covered MS well and I especially like your film style. Oh, and of course, your music is by far the best choice of all. ;)
@TheGothicRosie I noticed you were subscribed to NIN, their music seemed to fit perfectly with what i wanted to convey... i did try and contact them for permission... funnily enough i haven't heard back yet ...*fingers crossed* maybe one day
@pinkjessuk85 Ah, nice connection. They can't give you permission. I believe that music belongs to the record company. I could be wrong but that is why they are independent now. That is why on a couple of their videos they have "blocked for copyright blah balh". Trent would rather show the stupidity of the record companies than deal with the legal fight of music and content that is rightfully his.
He can make more money now and be happier providing the content directly to us. :)
@tokyocooney I'm trying to think of something witty to write back... but all i can think is OMG tokyocooney commented on one of my videos, followed by boo yah!
so all i can say is thanks, i made this for my first ever university exhibition and i felt it belonged on YouTube where my passion for video editing began, even though it would shock a few subscribers into thinking "oh she's gone all serious"
@pinkjessuk85 Oh please! This video humbles me. Its one thing to give tourist advice. Its another thing to dig this deep and personal. Its a really well put together video, and I found it riveting. So again kudos to you. This is a fantastic vid. As yours all are. Keep rocking! :)
also i got diagnosed March of last year after all the test and stuff, 2 weeks in hospital bad! this vid was posted this march. marks my one year with it.
Always stay postive, show love to everyone, appreciate the simple things in life. always be confident, always give and be generous. stay positive about ur future! try exercise and live well. With Ms u have to live alot more positive, and healthy, just try to be as good as u can, as a person.
@Prissie28 i was so worried about how people may react to the dropping bit, i was sure i'd annoy some people.. who'd say "this is no laughing matter" but i'm really glad i put it in, everyone seems to enjoy it.
man you have an awesome perspective jessica, its very encouraging and pushing to see this and see how positive and upbeat you still are, its not naive, its looking at things in a brighter light! keep the bad ass attitude up!
This was my life starting at about 19 years of age,...and still is with a few things thrown into the mix. I am now 51 years of age...and yet here I am. It's not been easy but it could always have been worse. You are a very talented young lady...keep the faith and above all please keep your sense of humor!! It will get you through the tuff times. Thank-you for the giggles and the perspective!
I had something similar to that about a month ago. I couldn't left anything and at my job I need to lift heavy things, felt really weak with no motivation to do anything. But it went away after about a week and a half. Didn't take anything it just went away. But good luck and I hope it goes all well for you. :-D Also this video has become really popular! You be making it! Video is crazy cool!
Thank you 4 the video, Ive been living with M.s since I was an infant,Ms,has been a Monster,tried every interferon now im triing Ampyra,I have fatigue symptom's,plus fibromyalgia,I try to live life to the fullest and stay posative I probably mispell'd some word's,my apollogie's ,The hardest part 4 me was and is the Ms hug,geesh!..., my walking abillity,and putting my sock's on at the moment,,and again such a desriptive video on Ms.
Loved the video Jess. I agree with all the comment I have read. Yours presented much like mine. Mine was gaming for a couple of hours thinking I was pinching a 'mouse' nerve. hehe.
'fraid not, I particularly like your sense of humor. May it stay with you for the rest of this journey.
Great vid @pinkjessuk85. I've lived with this beast over 10 years and all you describe is Very true. MS brain fog is another dandy one. And the weird pain for which there is no suitable description. No one gets it unless they live with it. Bravo!
Anyone living with MS, or not, needs to see this video. It is an incrediblely honest and accurate account of what it is like to be living with the disease. It's about as close as you will get to being on the inside. I have posted it to my facebook group 'in appreciation and support of dr. paolo zamboni'. People have to see this.
Haha!! That was like stepping back in time ... waking with pins and needles, double vision, finding it hilarious ... 20 years ago. Brilliant, thankyou :o)
@pinkjessuk85 Maybe enjoyed isn't the right word, but yes. I definitely liked it. And the pins and needles in your hand/ arm thinking it was a pinched nerve? Yep. That's exactly how it hit me back in 2005. Tests, MRI, and a spinal tap later and it was official; RRMS.
Definitely wish you the best, beautiful. Oh, and I snaked this to put on my facebook. Making people aware and what have you. ;)
WOW awesome work .. this is so so so true . i have pin & needles mostly every day in my right arm & legs they hurt like a MF. sometimes if feels like freddy kruegrer is in my legs :(
i have RRMS now that is RELAPSING /REMITTING/MULTIPLE SCLEROSIS was dx IN 204 . but like i say to myself all the time I HAVE MS BUT MS DON'T HAVE ME :)
@HAPPYONE344 thats a great way to view it, i wanted to make sure this video strongly conveyed a sense of myself and my personality rather than just being about MS, i never want it to be like "Hi i'm Jess i have MS"... preferably i want people to know me for ME..and i just happen to have MS aswell
@pinkjessuk85 hey jess my friends call me cami cuz they cant remember camille lol i have over 45 friends who has ms &we crack up &make fun of ms. cuz that is the best way to fight it or not make us cry about the pain.
oh yeah jess this video really did that . u say most 70 your old beats me up stairs lmao u got that right .shoot even my cat will bet me lmao. but really .omg the 1st time i dropped something i was so pissed &saying why me why so i stop saying that & say to myself i will bet this
hi jess my ms friends call me cami cuz they can't remember camille .. and we blame the ms for that one too lmao . we all the time blame the ms for everything . well jess you did just that .. your video is right on the button .
Excellent video. It is so true what you say and express. Thanks for the video. Our story is similar except for me taking Avonex once a week. Keep strong, Bill
Absolutely fabulous video. Sometimes I find it so hard to explain how I'm feeling to loved ones and you've captured so much of it here. I'm going to make my husband watch this with me tonight!! Thanks for sharing.
you explained what MS is so well! You did a wonderful job explaining what people with MS have to live with every single day. Thank you for doing what you do and for making this video. It will help people understand what we are going through living with Multiple Sclerosis. I wanted to let you know that there is a lot of hope out there for people like us and our future might be a little brighter...
This was very well done, the bird bobbing to the music being an example. I'd like to get a dozen of those 10 lb ankle weights and let people put 6 on each leg and walk around. Then they'll know what some of our days are like. UK is as grey as Washington. Ugh.
@gphx well since shooting this video it has become sunnier... Spring is finally arriving, which is good, winter can be so depressing, glad you liked the video, i was a little concerned that my light hearted way of dealing with my MS might offend other Ms sufferers, i thought i might get told off for not taking it seriously.
@pinkjessuk85 We only live once, might as well do it in the happiest way you know how. Spring is springing up here too. Gotta make sure we enjoy it as much as we can before it gets hot and puts the brakes on.
Beautiful video.
MrMusicomposer 3 weeks ago
What annoys me about life, is that things like this always happen to people who deserve them least. Why do good people have health problems, and bad people get to live in perfect health? Such as the injustice of life I suppose.
ColoriProductions 3 weeks ago
BRAVA!!!!!! SO WELL DONE. THE DROPPING THINGS PART MADE ME LAUGH SO HARD. WE HAVE A LOT IN COMMON. ALL THE BEST FOR 2012. :)
teslagirlM 1 month ago
This could have been a video of my life with MS. It was eerily similar. I'm 29, been on C for 6 years. I had several disabling attacks during my early years including the right arm (5 year old hand writing at best). Today most of my symptoms are invisible so thanks for explaining MS life with a sharable video.
RaeDarrable 1 month ago
This has been flagged as spam show
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JessicaSunshineMusic 1 month ago
Hi cracking video, i have had a spinal problem and nerve damage for 14 years now. yet within the last six months i have developed constant tingling/pins and needles in both hands and forearms along with crawling ant feeling over most of my body, im constantly tierd and lose vision though not for long. Parts of my face go numb and tops of my thighs go numb tingle cold and lose strength. pins and needles in patches down my lower leg also short term memory loss and at times slurred speech. HELP!!!
dunkycraig 1 month ago
Very well put-together video. I have MS 16 years, now SPMS - more mobility problems than you, and I can relate.
heavenlydove1920 1 month ago
good job! that was some work for an ms gal. hope you are doing well
sleekcartim 1 month ago
how are you now jessica
amreenmalhotra 1 month ago
I would like to thank you for sharing this video so I can learn what's it like to live with the disease. I wish a cure will be found in the very very near future so you and others will look back and forget that you ever had it.
nelliemuller 1 month ago
@nelliemuller i think there will def be a cure within our lifetime.. i just hope they speed things up a little
pinkjessuk85 1 month ago
I fear I may be diagnosed with MS soon as I seem to have a neurological problem that the doctors have not been able to sort out yet. I am due for am MRI scan soon and im suffering alot of weird symptoms including unexplained pins and needles. Should I be worried you think?
GiRTheDuck 2 months ago
@GiRTheDuck Hey no problems, whatever happens in life happens but worrying never solved anything and to be honest worrying/stress just seems to make stuff worse. So take it in your stride, there are worse things out there than MS and i really do feel it will be cured within our lifetimes. My advice is don't let it change you, or define who you are.
pinkjessuk85 2 months ago
@GiRTheDuck hi GiRTheDuck I don't the that you have to be afraid too much if you don't understandn your problem very will. buecous if yo did you may have it as long as your brain is saying I have MS it may happened even if you don't realy have it .And I know alot of people whom happend to them the same as this ,I mean to believe that they have a kind of disease while thay are not and then it happend.
and sorry for my bad explanation and writing becaose I don't know english very will
highdreems 1 month ago
Very nice video, I wish you the best of luck from the U.S.! My heart is with you.
TheSenseixx 3 months ago
This has been flagged as spam show
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He fully cured his MS by removing all his silver fillings.
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vancouverislandbass 3 months ago
my mom has MS but hers is much worse shes in a wheelchair cause she can't hold herself up. If she can she has to be leaning against something
katyamaya123456789 4 months ago
Jessica, this was an amazing video. You portrayed those feelings and symptoms so accurately. Great audio, too, by the way. I'm sending one giant high five your way!
xxxJewBoyxxx 4 months ago
@CounterBrilliance - please do your research on Lyme disease. In some cases, it is just as debilitating as MS.
xxxJewBoyxxx 4 months ago
thanks for the vid xD now that i look at it I find it kind of humerous. This video helped me a bit in coping with MS thanks.
abyroj 6 months ago
thanks for sharing your story Jess, it's very informative for student nurses like myself to understand MS from a suffers perspective.
julief511 7 months ago
Can't agree more about the fatigue. It is a BITCH and a half. Luckily my MS hasn't been as bad. Few diplopias and slight loss of strength in one side but ive been pushing ok otherwise. It's just the damn fatigue that really weighs you down. And it's embarassing to explain to people because they'll just think you're being a lazy fart. Even worse in my case because growing up i have been known to be a procrastinator. Feel like the boy who cried wolf.
fizzgum 7 months ago
Wow...thank you for sharing your strength.
jcarh 8 months ago
Really nice video, thank you for sharing your experiences.
unknownpleasures100 9 months ago
Thank you for making this video! I think your attitude is the right one to have, it's better not to dwell onwhat could be, but enjoy the present to the max!
Leopardskinny 9 months ago
Very well done! I might use this to help friends understand why I do some of the things I do, like sleeping in or droping things. I'm glad they were able to diagnose you within 6 months mine took 8 years and much damaged was caused because of going untreated. Keep strong and don't give up!!
reppiksjd 10 months ago
buen video
montalbanocamilleri 11 months ago
Im so sorry about your condition i will pray you get better
silverstar61 11 months ago
Good video!
Ranma16ful 11 months ago
This has been flagged as spam show
CCSVI Clinic Receives Joint IRB Approval for Aftercare Protocol Study.
The joint application between Noble Hospital and CCSVI Clinic has been approved through the IEC Institutional Review Board (IRB) that will allow researchers to use patient data to study their new extended and enhanced aftercare treatment protocol. Please Call 888-419-6855 to know more about participating in the study. Log on to ccsviclinic. ca for more information. Email apply -at- ccsviclinic. ca
Gregmills007 11 months ago
1 dislike? You must truly be a dispicable person for dislikeing something truly beautiful. :(
wierdbill 1 year ago 7
MONKEY SCROTUM LOLOLOLOLOLOL
Sublime570 1 year ago
@Sublime570 indeed lol... something i struggle with every day lol
pinkjessuk85 1 year ago
@Sublime570 WTF?
wierdbill 1 year ago
@wierdbill its from family guy
pinkjessuk85 1 year ago
@pinkjessuk85 Oh yeah. Peter, the animated version of me.
wierdbill 1 year ago 5
Nice video. It made me cry, but I really liked it. :)
Dawsomeville 1 year ago 13
this is a good video. i subbed. keep the great content
Haliqhamal 1 year ago
My friend just informed me today that they found more leasions in her brain, but luckily they aren't growing. She does get tired very easily though and takes naps during the day but she can still walk and has a son to take care of. Thank God for her hubby.
GeminiAuntie 1 year ago
what's the song at the end?
PizzaSuperCool 1 year ago
You are great, please continue to keep up the good work. Thanks for sharing and giving us your unique awareness and reality of this disease. God bless you and please keep in touch.
mygodisable2 1 year ago
I WILL ALWAYS PRAY FOR YOU
5O2O8O 1 year ago
You don't drink diet soda do you? Because women, including a male Olympic swimmer had their diagnoses reversed when they stopped consuming Aspartame sweetened products.
TheMegazapcat 1 year ago
@TheMegazapcat nope.. cuz i think diet drinks taste horrid
pinkjessuk85 1 year ago 2
@TheMegazapcat Ignorant person, the Aspartame theory has long been disproved. Multiple Sclerosis is an idiopathic Autoimmune disease, and that means it has NO known cause- even the worlds best and brightest neurologists are still stumped as to why some people develop M.S over others, and still can't seem to find one common link between person to person . its called a fluke.
Counterbrilliance 7 months ago 2
@Counterbrilliance You are a lap dog idiot. It has no known cause and cure, yet hundreds of people have cured themselves. I take that over your ignorant, pill popping ass. It's not a fluke, and this is why in the last 30 years every degenerative disease known to man has been accelerated. You can't touch me because I'm interested in the solution not the problem. Go sit in a closet and die because big pharma told you so. You are nothing, and your reply is less useful than kitty litter.
TheMegazapcat 7 months ago
@TheMegazapcat You sound American. I don't take medication at all, there you go with your silly assumptions. Nobody has ever cured them selves of M.S, unless of course their symptoms were actually Lyme disease in disguise which could easily be reversed, but for those who have legitimate M.S they take it with them to the grave. And the rise of the incidence of degenerative disease in the last 30 years has a lot to do with aging population and better diagnostic technology, not conspiracy.
Counterbrilliance 7 months ago
Great video. Good job Thanks for sharing
Torino2 1 year ago
WOW that was very good. You should enter this into Sundance or Canns. I hope you can turn this into a good documentory. I hate needles BTW
chicagofrank2010 1 year ago
Comment removed
wierdbill 1 year ago 3
@wierdbill Thanks... getting it to that professional level was a crazy amount of work... i made this for my yr2 exhibition at university. Currently planning a short film for 3rd year... but haven't even started filming yet... will hopefully be a success
pinkjessuk85 1 year ago
Comment removed
wierdbill 1 year ago
@wierdbill Thanks for sharing... it's unfortunate... this debilitating disease. My sis has an autoimmune disorder. It's sad in a way. It's difficult to be positive but I think it's a requirement for a better quality of life. My prayers are with you Ms. 21.
EveAngela 1 year ago
Comment removed
wierdbill 1 year ago 2
Thanks for sharing! One of my best friends from my previous job just diagnosed with this so I'm doing alot of research so I can better understand what she's going through and will go through as this progresses. Thanks for sharing! :)
GeminiAuntie 1 year ago
@GeminiAuntie Just let her know that its not the end of the world ... be stubborn... don't let the MS interfere with any plans you have in life, even if those plans become more difficult or take longer..keep at it, she will become all the stronger for persevering
pinkjessuk85 1 year ago 3
@pinkjessuk85 Definatly! She has the same attitude about it that you do which I think is a good thing. We can't take everything seriously and everyone has their own way of coping and this is how you guys cope which is cool by me.
GeminiAuntie 1 year ago
@pinkjessuk85 Thank you and I love your outlook on this situation. I don't think you're being too light about this at all. I love the way you're handling it. My friend's handling it the same and is also critised for not taking it seriously, but she's also got a sense of humor and is a fun loving person. Everyone has their different way of coping and if it makes you feel better I'm cool with it. You're both stronger than this. :)
GeminiAuntie 1 year ago
Comment removed
wierdbill 1 year ago
cool video!!!
leonora0210 1 year ago
I applaud your positive attitude towards life.
dd8721 1 year ago
Thanks for putting up this video! I was recently diagnosed with MS and your video has made it easier for me to show others what it's like somewhat to live with it. I had the same thing at the start where my hand just wouldn't want to work with me and yeah it made for some great notes lol. Oh and the double vision is a real pain. I had an old pair of glasses I taped cardboard over one lens so that it wasn't as bad. So irritating sometimes! Loved the video and I hope for the best in the future!
chadp78canada 1 year ago
Thank you for posting this. I had all the fatigue you talk about...and dropping things...omg! lol Same here. Stamina issues too. I'm 30 now, and I had the first major symptoms at 21 as well. The worst is the cognitive effects...not being able to processes as quickly as others. I've lost my ability to read for a short (that was interesting), and it made studying and school quite the challenge. And what people don't realize is the depression...another video in and of itself.
Noveleffect 1 year ago
I had MS for 15years my hope is you get Liberated like I did on the 15th of October my MS is gone! only a couple of faint symptoms left, my wife has had MS for 22 years she was liberated the same day she is getting better and stronger now get checked for CCSVI!
gekiryudojo 1 year ago
You just rendered my screen name obsolete, you moved me greatly. Secretly, from this point forward between you and I and anyone reading this. My screen name really means... Im_movable1. You really have talent at filmmaking.
immovable1 1 year ago
Hey! I'm making an academic poster for my Psychobiology module. Thank you very much for your video, it is very informative and personal. I admire your strength :) Take care
Chrizmooo 1 year ago
Thanx a lot!!! very good job. I love your hirony and style. take care.
giapponerosso 1 year ago
is there any way I could get a copy of this film to show a group of people who want to know about ms
because it tells how it
Im not very skilled so I am asking if somehow I could get a copy before october 3rd -- I could send you a copy of the norwich film the group of young people I worked with made so please email me there wont be a computer at the meeting
just a dvd player I just watched your cromer norwich film and saw you have family links with this area norwich
gloriamorrisfilms 1 year ago
keep trying to leave you a message because I thought your film is really good
gloriamorrisfilms 1 year ago
I think your film is really helpful and imaginative -I have just finished making with a group of young people at BBC Voices in Norwich funded by dept of children, schools and families. I have MS too heres the link to the film as its 15mins couldn't fit it onto you tube- all the things you talk about you have shown in a clever way . like your stylish way of presenting data hope you will look and leave a comment ofr the group that made this
gloriamorrisfilms 1 year ago
@gloriamorrisfilms Thanks for checking out my video, i accepted your video response and checked out your film, glad it had a more positive ending as far too much information on MS/and the medias view is quite grim. My film was a backlash against that really, i wanted to show that even though having MS might suck, its not the end of the world
pinkjessuk85 1 year ago
have you checked out the paleo diet to reduce symptoms?
wordey123 1 year ago
love the video i have had ms for 10 years an i am comedian an comedy helps ms a lot thanks for the video .
illwillcomedy 1 year ago
What a great video! Thank you so much for posting it. I have been recently diagnosed and its good to know I'm not the only 20-something year old out there who has to deal with this. Btw. you have definitely picked the right career!
PDX2TXL 1 year ago
This is new to me, though after watching this i think i might have MS aswel... how do i know if i have it?
ProjectBrooke 1 year ago
@ProjectBrooke well as you can see... MS can result in a number of weird symptoms..and it's different for everyone who suffers from it. At the beginning this was a really pain to sort out as Doctors can't really diagnose MS very quickly. To be sure you need an MRI scan and a Lumber Puncture (spinal tap) ..well at least that was the 2 procedures that confirmed my MS
pinkjessuk85 1 year ago
@pinkjessuk85 Well i actually had a diabetes and other blood tests a few months back and it came back negative. I still feel like a vegtable though and i feel embarrassed because i dont know whether am just really lazy and i dont want to seem like a fussy pesimistic douche lol
ProjectBrooke 1 year ago
I really enjoyed this video. Your film style is very good.
The video was educational, interesting and some parts funny (dropping everything).
Good job!
jaydel13 1 year ago 3
Hey love your vid it reminds me of me lol.. I have ms had it since i was 23 which has been three years now.. I have random thoughts,, that i seem to for get.. hehe anyway I have been through a whole lot of crap.. anyway I just wanted to say that your vid has made me feel better.. well thats kinda me.. i am evil i need to stop writing .. ehhhhhhhhh Ok i lost my thought. see how much i hate this grrrrrrrrrr.. anyway it good to know that i am not the only one out there... now off to bed with me.
gatesg1sgu 1 year ago
Brilliant filmmaking
Hendopolis 1 year ago
ありがと
rimembro 1 year ago
Stay strong sister ;-))
scottishbadboytracks 1 year ago
I loved this video. Multiple Sclerosis sucks so very much. I was diagnosed at 21 as well, been living with it for a lil over a year now. It's hard and frustrating and it sucks. and of course getting frustrated just makes life even harder. Today's been one of those crap ms days when everything just sucks and I'm having such a hard time finding a smile to put on my face. It's comforting to know someone is sharing this boat with me, so thanks :o)
aynadee 1 year ago
Love the video, will share it with others. You have covered MS well and I especially like your film style. Oh, and of course, your music is by far the best choice of all. ;)
Look forward to you next production.
Best,
Rosie
TheGothicRosie 1 year ago
@TheGothicRosie I noticed you were subscribed to NIN, their music seemed to fit perfectly with what i wanted to convey... i did try and contact them for permission... funnily enough i haven't heard back yet ...*fingers crossed* maybe one day
pinkjessuk85 1 year ago
@pinkjessuk85 Ah, nice connection. They can't give you permission. I believe that music belongs to the record company. I could be wrong but that is why they are independent now. That is why on a couple of their videos they have "blocked for copyright blah balh". Trent would rather show the stupidity of the record companies than deal with the legal fight of music and content that is rightfully his.
He can make more money now and be happier providing the content directly to us. :)
TheGothicRosie 1 year ago
You're an inspiration. Don't let this damn illness get you down from what we're meant to do, and that's enjoying life.
cereals11111 1 year ago
This is a fantastic video. Truly... this type of thing is youtube at its best. Sharing stories of us with the world. Kudos to you for making this.
tokyocooney 1 year ago 7
@tokyocooney I'm trying to think of something witty to write back... but all i can think is OMG tokyocooney commented on one of my videos, followed by boo yah!
so all i can say is thanks, i made this for my first ever university exhibition and i felt it belonged on YouTube where my passion for video editing began, even though it would shock a few subscribers into thinking "oh she's gone all serious"
pinkjessuk85 1 year ago
@pinkjessuk85 Oh please! This video humbles me. Its one thing to give tourist advice. Its another thing to dig this deep and personal. Its a really well put together video, and I found it riveting. So again kudos to you. This is a fantastic vid. As yours all are. Keep rocking! :)
tokyocooney 1 year ago
That was great. You're a talented film maker. May I also add you're a stunner. Grrrrr.
lesmcluffalot 1 year ago
well done! i would love to make a production like this so thankyou for the influence :)
UnderwoodLiam 1 year ago
also i got diagnosed March of last year after all the test and stuff, 2 weeks in hospital bad! this vid was posted this march. marks my one year with it.
RealBudSmokinKilla 1 year ago
Always stay postive, show love to everyone, appreciate the simple things in life. always be confident, always give and be generous. stay positive about ur future! try exercise and live well. With Ms u have to live alot more positive, and healthy, just try to be as good as u can, as a person.
much love, take care
RealBudSmokinKilla 1 year ago
Reminds me how we both seemed to become ill at the same time.
Great video though. Hopin' you're doin' good x
gavcantrellofficial 1 year ago
Just to say, wow, its almost like a professional production. The editting and the music are superb.............BEST to You, Steve
7mumfred7 1 year ago
Great video!!!! Really well done.. And I laughed so much on the dropping part. I always do that too.
Hope you are doing well.
Hugs, Prissie28
Prissie28 1 year ago
@Prissie28 i was so worried about how people may react to the dropping bit, i was sure i'd annoy some people.. who'd say "this is no laughing matter" but i'm really glad i put it in, everyone seems to enjoy it.
Thanks for the lovely comment!
pinkjessuk85 1 year ago
Thanks for Posting!
Have you heard? Hope springs eternal! : )
MSers please search for CCSVI chronic cerebrospinal venous insufficiency
a
kkkkkkatherine 1 year ago
@kkkkkkatherine >>>>>>>>>>>>>>
Oops MS moment..
Please Research CCSVI ~ chronic cerebrospinal venous insufficiency ~
AND 'the Liberation' by Dr Paolo Zamboni
kkkkkkatherine 1 year ago
Amazing video, thanx for sharing..
Omar
omexmc80 1 year ago
good video. I was Dxd in October of 2001 and found it very informative.
silvergate905 1 year ago
BE STRONG SISTA!
strongerthanallgtr 1 year ago
man you have an awesome perspective jessica, its very encouraging and pushing to see this and see how positive and upbeat you still are, its not naive, its looking at things in a brighter light! keep the bad ass attitude up!
strongerthanallgtr 1 year ago
This was my life starting at about 19 years of age,...and still is with a few things thrown into the mix. I am now 51 years of age...and yet here I am. It's not been easy but it could always have been worse. You are a very talented young lady...keep the faith and above all please keep your sense of humor!! It will get you through the tuff times. Thank-you for the giggles and the perspective!
Ohuprettythings 1 year ago
I had something similar to that about a month ago. I couldn't left anything and at my job I need to lift heavy things, felt really weak with no motivation to do anything. But it went away after about a week and a half. Didn't take anything it just went away. But good luck and I hope it goes all well for you. :-D Also this video has become really popular! You be making it! Video is crazy cool!
TonyRevenge 1 year ago
Thank you 4 the video, Ive been living with M.s since I was an infant,Ms,has been a Monster,tried every interferon now im triing Ampyra,I have fatigue symptom's,plus fibromyalgia,I try to live life to the fullest and stay posative I probably mispell'd some word's,my apollogie's ,The hardest part 4 me was and is the Ms hug,geesh!..., my walking abillity,and putting my sock's on at the moment,,and again such a desriptive video on Ms.
thatsyobabydaddy69 1 year ago
thank you for sharing this video. Too true!
JOGAU1 1 year ago
beautiful video and im sorry to hear about the MS. I honestly hope it does not get worse.
gabrielbelmont 1 year ago
A great video! I will lets others see this one to point out exactly how I feel and experience my MS. All the best to you!
Janine
NienOnline 1 year ago
Very moving video. Everyone should watch it, to better understand the impact of MS on day to day living.
gehinator 1 year ago
This is an excellent video and portrayal of what it's like to live with MS. Seriously, well done. Thank you for making and posting this video.
Desinie 1 year ago
thanks for posting and being strong, this is a real help to have your perspective and strength, thanks you!
discoverbluestar 1 year ago
Loved the video Jess. I agree with all the comment I have read. Yours presented much like mine. Mine was gaming for a couple of hours thinking I was pinching a 'mouse' nerve. hehe.
'fraid not, I particularly like your sense of humor. May it stay with you for the rest of this journey.
worktosser 1 year ago
Great vid, well done Jess. :)
michaelsaundersTV 1 year ago
@mikeborlaceguitar Thanks ^-^
pinkjessuk85 1 year ago
Great vid @pinkjessuk85. I've lived with this beast over 10 years and all you describe is Very true. MS brain fog is another dandy one. And the weird pain for which there is no suitable description. No one gets it unless they live with it. Bravo!
Keetcha100 1 year ago
very good job on the video!
9gabbycats 1 year ago
Anyone living with MS, or not, needs to see this video. It is an incrediblely honest and accurate account of what it is like to be living with the disease. It's about as close as you will get to being on the inside. I have posted it to my facebook group 'in appreciation and support of dr. paolo zamboni'. People have to see this.
herdeshiner 1 year ago
Thanks for sharing.
I relate to all that too.
Power and peace and strength and health to you, and all who have this strange & scary thang. :)
alaphize 1 year ago
Haha!! That was like stepping back in time ... waking with pins and needles, double vision, finding it hilarious ... 20 years ago. Brilliant, thankyou :o)
megthefoot 1 year ago
@megthefoot Glad i could help..and glad to see others can laugh at it too. Can't let the MS change us
pinkjessuk85 1 year ago
Man alive! God bless you for sharing this. Definitely hits close to home as your symptoms were/ are very close to mine.
I wish you the absolute best.
---Tim Harvey (and I am)
The MonSter that MS fears.
mooseasaurusrex 1 year ago
@mooseasaurusrex lol 'Man Alive" thats gotta be one of the best responses yet, i'm glad my video is being enjoyed
pinkjessuk85 1 year ago
@pinkjessuk85 Maybe enjoyed isn't the right word, but yes. I definitely liked it. And the pins and needles in your hand/ arm thinking it was a pinched nerve? Yep. That's exactly how it hit me back in 2005. Tests, MRI, and a spinal tap later and it was official; RRMS.
Definitely wish you the best, beautiful. Oh, and I snaked this to put on my facebook. Making people aware and what have you. ;)
mooseasaurusrex 1 year ago
Wow, very good video Jessica! And so familiar.....
margreet0 1 year ago
WOW awesome work .. this is so so so true . i have pin & needles mostly every day in my right arm & legs they hurt like a MF. sometimes if feels like freddy kruegrer is in my legs :(
i have RRMS now that is RELAPSING /REMITTING/MULTIPLE SCLEROSIS was dx IN 204 . but like i say to myself all the time I HAVE MS BUT MS DON'T HAVE ME :)
HAPPYONE344 1 year ago
@HAPPYONE344 thats a great way to view it, i wanted to make sure this video strongly conveyed a sense of myself and my personality rather than just being about MS, i never want it to be like "Hi i'm Jess i have MS"... preferably i want people to know me for ME..and i just happen to have MS aswell
pinkjessuk85 1 year ago
@pinkjessuk85 hey jess my friends call me cami cuz they cant remember camille lol i have over 45 friends who has ms &we crack up &make fun of ms. cuz that is the best way to fight it or not make us cry about the pain.
oh yeah jess this video really did that . u say most 70 your old beats me up stairs lmao u got that right .shoot even my cat will bet me lmao. but really .omg the 1st time i dropped something i was so pissed &saying why me why so i stop saying that & say to myself i will bet this
HAPPYONE344 1 year ago
hi jess my ms friends call me cami cuz they can't remember camille .. and we blame the ms for that one too lmao . we all the time blame the ms for everything . well jess you did just that .. your video is right on the button .
& when were u DX with MS ?? .
HAPPYONE344 1 year ago
Nicely edited, a good description of the view from the Merry-go-round.
Alexknobsob 1 year ago
Excellent video. It is so true what you say and express. Thanks for the video. Our story is similar except for me taking Avonex once a week. Keep strong, Bill
tazscott14 1 year ago
I know just how you feel! (Or don't feel, as the case may be!) ;)
haiqin 1 year ago
Absolutely fabulous video. Sometimes I find it so hard to explain how I'm feeling to loved ones and you've captured so much of it here. I'm going to make my husband watch this with me tonight!! Thanks for sharing.
starmuse97 1 year ago
Dear Jessica,
you explained what MS is so well! You did a wonderful job explaining what people with MS have to live with every single day. Thank you for doing what you do and for making this video. It will help people understand what we are going through living with Multiple Sclerosis. I wanted to let you know that there is a lot of hope out there for people like us and our future might be a little brighter...
Please, take good care and have a good night,
hugs
Angela
angelusa73 1 year ago
This was very well done, the bird bobbing to the music being an example. I'd like to get a dozen of those 10 lb ankle weights and let people put 6 on each leg and walk around. Then they'll know what some of our days are like. UK is as grey as Washington. Ugh.
gphx 1 year ago
@gphx well since shooting this video it has become sunnier... Spring is finally arriving, which is good, winter can be so depressing, glad you liked the video, i was a little concerned that my light hearted way of dealing with my MS might offend other Ms sufferers, i thought i might get told off for not taking it seriously.
pinkjessuk85 1 year ago
@pinkjessuk85 We only live once, might as well do it in the happiest way you know how. Spring is springing up here too. Gotta make sure we enjoy it as much as we can before it gets hot and puts the brakes on.
gphx 1 year ago