I won't take drugs for my jerks and RLS but the thing that seems to help the most is folding both legs under my seat while lying on my back , then arching my back a bit to stretch the quads. Sometimes it takes 4 or 5 tries when my hamstring cramps. Sometimes I fall asleep like that and wake up with numb legs but at least I can get to sleep. I also have MS and do not take drugs.
I hope you are still monitoring comments. I saw this when looking up "POTS" Dysautonomia, a condition I am dx'd with. I too have these weird neuro symptoms..., different types of twitches. I haven't received any help, so have labeled the different types of symptoms myself. I have "sparks"...little electrical zaps that hit different muscles in rapid succession, "twitches" a series of neuro/muscle pulses in one place over and over,& "zaps" huge electrocution sensations which make the muscle jump
@justthemom3 continued... the huge "zaps" can hit my core...like in my spine or diaphram and make my body convulse once, (although they continue to happen over a period of time, just not actual convulsions) or they can hit inside my head, or a large muscle group like my legs or arms. I do have POTS dysautonomia, but docs just look at me like I have 2 heads when I tell them about these symptoms. No relief.
@justthemom3 Sweet person I know your frustration. a year and 7 months and finally I am getting a med change. Its only been a couple of days but my Requip has been upped to three times a day and now I am on primidone once a day. There is one other I take to reduce the shakes and the migraines from all this crap. And yes I know the zaps and twinges too. My favorite are the poings its like someone grabbed a rubber band and poinged it in your arm or leg. evil
@BethRosePizana I'd be interested to know how you do on your new meds. While the neuro symptoms are no longer my main concern, they were at first. Now that I have a dx of POTS, I know that some of these weird things just seem to go with the syndrome and they don't know enough about it to really help. I have been on Requip in the past, but I've never heard of primidone. Take care, keep us updated and be well :)
@mrlaa1 Nope they have no idea why. Go to your GP maybe you can find some ideas for me lol. I got another referral to another neurologist and I had spine xrays.
@rwh05251968 I am on a medication for Parkinson's Disease or Restless Leg Syndrome. I have had them for over a year and a half now. When they come I just let them go off because holding them in hurts too much. And holding them does not stop them I still shake.
Thanks for posting. This is the very same leg movements that I have. It's been driving me crazy. It's been hard to describe buy your video illustrates it perfectly. If you do not mind I would like to show this to my doctor.
@sroebuck117 As far as I know no. All the neurologist did was put me on some meds. I am going around wiht my insurance to get my follow up cause well I am still shaking thanks.
I think those are myoclonus jerks not tremors. So many things can cause that. Ms,Lyme, dystonia,and all sorts of nuero disorders, caffiene, stimulants,Metal poisoning, mental disorders, sometimes they go away on their own. If you have a bunch of other transient neurological symptoms that come and go then I'd look up ms or Lyme on google.
@Oozingmachismo24 well I am on some medication for restless leg syndrome or parkinsons disease. I also have tremors this is the leg movements. Yes some of the movements I am experiencing are myclonic movements.
I am currently trying to get back into the doctor to discuss the fact that my movements have not gone away so we need to discuss alternate treatment/change in medication.
beautiful figure
mjoraid 3 days ago
I won't take drugs for my jerks and RLS but the thing that seems to help the most is folding both legs under my seat while lying on my back , then arching my back a bit to stretch the quads. Sometimes it takes 4 or 5 tries when my hamstring cramps. Sometimes I fall asleep like that and wake up with numb legs but at least I can get to sleep. I also have MS and do not take drugs.
missionmountains 1 month ago
May God Bless you. I wish the best of health for you.
harmagician1 1 month ago
I hope you are still monitoring comments. I saw this when looking up "POTS" Dysautonomia, a condition I am dx'd with. I too have these weird neuro symptoms..., different types of twitches. I haven't received any help, so have labeled the different types of symptoms myself. I have "sparks"...little electrical zaps that hit different muscles in rapid succession, "twitches" a series of neuro/muscle pulses in one place over and over,& "zaps" huge electrocution sensations which make the muscle jump
justthemom3 3 months ago
@justthemom3 continued... the huge "zaps" can hit my core...like in my spine or diaphram and make my body convulse once, (although they continue to happen over a period of time, just not actual convulsions) or they can hit inside my head, or a large muscle group like my legs or arms. I do have POTS dysautonomia, but docs just look at me like I have 2 heads when I tell them about these symptoms. No relief.
justthemom3 3 months ago
@justthemom3 Sweet person I know your frustration. a year and 7 months and finally I am getting a med change. Its only been a couple of days but my Requip has been upped to three times a day and now I am on primidone once a day. There is one other I take to reduce the shakes and the migraines from all this crap. And yes I know the zaps and twinges too. My favorite are the poings its like someone grabbed a rubber band and poinged it in your arm or leg. evil
BethRosePizana 3 months ago
@BethRosePizana I'd be interested to know how you do on your new meds. While the neuro symptoms are no longer my main concern, they were at first. Now that I have a dx of POTS, I know that some of these weird things just seem to go with the syndrome and they don't know enough about it to really help. I have been on Requip in the past, but I've never heard of primidone. Take care, keep us updated and be well :)
justthemom3 3 months ago
Hello, I have been experiencing similar symptoms - did you receive any kind of diagnosis? Should I go to my GP?
mrlaa1 5 months ago
@mrlaa1 Nope they have no idea why. Go to your GP maybe you can find some ideas for me lol. I got another referral to another neurologist and I had spine xrays.
BethRosePizana 5 months ago
@BethRosePizana I experienced simmilar temporarily following withdrawal from downers. I am curious if you had a simmilar experience?
Allsop4 2 months ago
I have family member that has leg tremors similar to yours. How do you deal with yours? By the way I think that your sexy despite your leg tremors.
rwh05251968 5 months ago
@rwh05251968 I am on a medication for Parkinson's Disease or Restless Leg Syndrome. I have had them for over a year and a half now. When they come I just let them go off because holding them in hurts too much. And holding them does not stop them I still shake.
Has your family member been diagnosed?
BethRosePizana 5 months ago
@bodeker99. Feel free glad my symptoms can help. If you get any answers let me know
BethRosePizana 5 months ago
Thanks for posting. This is the very same leg movements that I have. It's been driving me crazy. It's been hard to describe buy your video illustrates it perfectly. If you do not mind I would like to show this to my doctor.
bodeker99 5 months ago
Um Thanks I think.
BethRosePizana 1 year ago
tremours or not you've got wonderful wrinkled scrunching soles and it's a pleasure to watch them
lowlive 1 year ago
Do you have a seizure disorder? Since you say that other muscles and body parts act up as well...
sroebuck117 1 year ago
@sroebuck117 As far as I know no. All the neurologist did was put me on some meds. I am going around wiht my insurance to get my follow up cause well I am still shaking thanks.
BethRosePizana 1 year ago
I think those are myoclonus jerks not tremors. So many things can cause that. Ms,Lyme, dystonia,and all sorts of nuero disorders, caffiene, stimulants,Metal poisoning, mental disorders, sometimes they go away on their own. If you have a bunch of other transient neurological symptoms that come and go then I'd look up ms or Lyme on google.
Oozingmachismo24 1 year ago
@Oozingmachismo24 well I am on some medication for restless leg syndrome or parkinsons disease. I also have tremors this is the leg movements. Yes some of the movements I am experiencing are myclonic movements.
I am currently trying to get back into the doctor to discuss the fact that my movements have not gone away so we need to discuss alternate treatment/change in medication.
BethRosePizana 1 year ago