Hi Kezzcass, Have all of you heard about the international CCSVI conference that starts Monday 21st Australian Time. Have not worked out the exact time yet. It runs over a couple of days and has Zamboni (sp) himself speaking
Well done folks. Good to see you out there spreading the word. I had no idea this is happening to people in our own country. We should have choice in health care not just what big pharma stuffs down our throats.
@NJSMKMMS Thanks :) This was a year ago and we are still pushing on to get this recognised. Everyone should have access to accurate information and the freedom to choose between treatments. When information is withheld (such as risks of pharmaceuticals) or info of other non drug treatments we cannot make the best decisions for our future health. It's complicated... but we have to advocate for ourselves and cast a critical eye on what we are prescribed. Thanks for your comment. Kerri
The technique is referred to as a bone marrow harvest and is performed under a general anesthesia. The incidence of patients experiencing rejection is rare due to the donor and recipient being the same individual. This remains the only approved method of the SCT therapy. Log on to ccsviclinic. ca for more information.
Autologous stem cell transplantation is a procedure by which blood-forming stem cells are removed, and later injected back into the patient. All stem cells are taken from the patient themselves and cultured for later injection. In the case of a bone marrow transplant, the HSC are typically removed from the Pelvis through a large needle that can reach into the bone. Log on to ccsviclinic. ca for more information.
Dr. Hemangi of Noble continues: “These are early days and certainly all evidence that the combination of liberation and stem cell therapies working together at this point is anecdotal. However I am not aware of other medical facilities in the world that offer the synthesis of both to MS patients on an approved basis and it is indeed a rare opportunity for MS patients to take advantage of a treatment that is quite possibly unique in the world”. Log on to ccsviclinic. ca for more information.
With regard to MS patients, “We are cautious, but nevertheless excited by what patients are telling us. Suffice to say that the few patients who have had the therapy through us are noticing recovery of neuro deficits beyond what the venous angioplasty alone should account for”. Log on to ccsviclinic. ca for more information.
Dr.Avneesh Gupte, the Neurosurgeon at Noble Hospital performing the procedure has been encouraged by results in Cerebral Palsy patients as well. “We are fortunate to be able to offer the treatment because not every hospital is able to perform these types of transplants.You must have the specialized medical equipment and specially trained doctors and nurses”. Log on to ccsviclinic.ca for more information.
Other recent MS patients who have had Autologous Stem Cell Transplantation (ASCT), or stem cell therapy have posted videos and comments on YouTube v=jFQr2eqm3Cg. Log on to ccsviclinic. ca for more information.
A universal benefit reported by every patient has been the recovery of bladder control. Most MS patients have various bladder control symptoms that include urinary urgency, incontinence, nocturia, or urinary hesitancy as a result of the disruption of electrical impulses from the brain to the nerves and muscles that are involved in emptying the bladder (pudenal nerve, urethral sphincter, detrusor muscle). Log on to ccsviclinic. ca for more information.
A group of Canadian patients just back from Noble have reported similar results. “I can actually see what I thought were long-dead muscles forming in my feet” said Larry Vermeersch of Kenora, Ontario. “My balance is back and I’m walking without a cane. I’m a pretty hard guy to convince, but getting these two procedures together has made me a believer. I’m looking forward to the physio ahead because I can feel everything coming back.” Log on to ccsviclinic. ca for more information.
“I feel I am completely cured” says Ms. Gianopoulos, “my symptoms have disappeared and I have a recovery of many functions, notably my balance and my muscle strength is all coming (back). Even after six months, I feel like there are good changes happening almost every day. Before, my biggest fear was that the changes wouldn’t (hold). I don’t even worry about having a relapse anymore”. Log on to ccsviclinic. ca for more information.
After 6 months of offering stem cell therapy in combination with the venous angioplasty liberation procedure, patients of CCSVI Clinic have reported excellent health outcomes. Ms. Kasma Gianopoulos of Athens Greece, who was diagnosed with the Relapsing/Remitting form of MS in 1997 called the combination of treatments a “cure”. Log on to ccsviclinic. ca for more information.
Ever wanted to be part of a flash mob? One is planned for July 6th in Melbourne. To join search 'Flash Mob Melbourne - Get Virgin Laid' on Facebook to help get Richard Branson's attention for charity.
A new CCSVI clinic it is available in Bucharest, Doctors team from Bucharest are certified by DR.ZAMBONI in Ferrara and by Dr. Simka in Poland to perform the CCSVI treatment/procedures.
The price of the treatment INCLUDING Travel Expenses(flight ticket,accomodation,transfers,all exams,angioplasty) is 8200 USD for USA/CANADA patients and for europe patients 5100 Euro Incl. Travel expenses.
CCSVI Clinic Receives Joint IRB Approval for Aftercare Protocol Study.
The joint application between Noble Hospital and CCSVI Clinic has been approved through the IEC Institutional Review Board (IRB) that will allow researchers to use patient data to study their new extended and enhanced aftercare treatment protocol. Please Call 888-419-6855 to know more about participating in the study. Log on to ccsviclinic. ca for more information. Email apply -at- ccsviclinic. ca
Hi Kerri, Great Flash Mob. Did it make the Melbourne Papers or media. I hope so. :)... Saw you dancing. Are you walking without your cane now?? Kindest Regards, Lou
@LouLou3078 Hi Lou, we had a journo and photographer (freelancer) so hoping to see it and the broader story coming out as a feature health article in a major paper. (not sure if I'm meant to tell everyone that!) No cane for me - I don't think anyone watching me would notice that I walk differently, I only have a vague stiffness in my step now.
Wonderful to see such a turn out. Love the message.. we all know it works and we all know how unfair it is not to receive this treatment when so many others are treated for similar conditions.
FANTASTIC! The immediacy & importance of CCSVI can't be underestimated, many with MS have had their health & independence restored!!
Don't stop at CCSVI, don't accept anything less than the ur full birthright "ABUNDANT HEALTH"! People of the likes of BILL CLINTON, HUGH JACKMAN, MIKE TYSON, OLIVIA NEWTON JOHN, GREG CHAPPEL have awakened to the next evolutionary milestone for well-being a PLANT BASED DIET! (Vegetarian, Vegan or Raw)
/watch?v=z3xOU2tLl7g (another inspirational video with a mob)
So sad to see this turning into a forum of "one against the other" statements. Getting CCSVI available is a good thing whether it works or not. But to accuse people on here of not being compassionate is not helpful in any way. Vern is one of the most compassionate people I have met on here. I don't take Tysabri; he does not say I am wrong. CCSVI did not work for my friend, nor did Tysabri; I just support her. We are all in this "Let's find WAYS to rid us of the MonSter!"
@bvalerieaThis is not a debate between Tysabri and CCSVI. 2.5 million people have MS, only about 70,000 have ever taken Tysabri, only about 1000 in Australia. In terms of the big picture Tysabri is barely in it for the vast majority. We want to see investment into finding out whether CCSVI could get rid of this MonSter.There have been zero dollars spent on it in Australia to date and our video is about getting it on the agenda here. Vern's comment could be viewed as opposing our effort.
Kerri and the rest of CCSVI Australia BRAVO!!!!!!!! What a great way to show the world :-) Love the song choice and seeing some faces I know! So proud of our MS Famliy!
I am somewhat confused by your comment. I made the comment on the flash mob video based on MY experience and MY thoughts about MS and the drugs or procedures involved. Tysabri has worked, and IS working for me, so why the vitriol regarding my decision to continue taking a drug that has gotten me out of a wheelchair and off of crutches? I just asked prudent and logical questions and, by Kerri’s response, she agreed.
Please tell me—if you would—how my comments lacked compassion.
Awsome Kerri you look great by the way all Liberated and all.......... I agree world wide CCSVI World Event!......... My beautiful wife gets Liberated Jan12/2011. We are both disabled me with spine her with MS and we have been fundraising since June. We deserve treatment at home with care and compassion like any other person. Stand for Liberation until everyone is Liberated. DJ
@gypsy1701 Thank you :) All the very best to your wife. You are right, this is not a complicated or dangerous procedure - it should be done at home where you can get follow up. For those who say that Neuros are not providing barriers to this treatment... why are people having to travel abroad from countries that are well equipped to do it? It is appalling and a waste of money that few can afford. We are all grateful tho for every person who can do this - it adds to the 'anecdotal evidence' :)
I'm really impressed Kerri. Especially with you're dancing & that Bill was there. Was that an intentional pun on your part that he came "out of the blue", & into a sea of blue people. Lol.
Hi Vern, you have to admit that if the majority of neuros agreed to allow their patients to have this everyone knows patients could have it now. Even1 of their colleagues, Dr Hubbard, agrees from personal experience that neuros are the main reason this is being blocked & he is ashamed & disillusioned by this
@rickileeway Haha - no pun intended - it just worked out well :) Bill has great compassion and openess. We are very grateful for his support of us as people with MS. This was his day off yet he came to show he cared. What a statement! Hope you are doing ok RIck. Kerri
Wow!!!!!!! now this is what i call taking action , fantastic.....the energy, the intention, the power and all done in a joyful way, You are a great example Kerri, and your team. WELL DONE and my best wishes.
@3caroladams Yes you are right - taking action. It seems we've spent hours trying to get this in the media, given a fair hearing from MS Researchers and Neurologists and it is largely falling on deaf ears. This is not a flash in the pan. We need to expect more from those entrusted to care for us and let them know. Thanks for your comment. Kerri
Kerri you are awesome. :) maybe we could do an international video like this to promote CCSVI awareness. I just LOVE this theme and what you've done using this song. :) (i had to post again so you know how much this is appreciated by a lot of people. :)
@QuickQuix Haha - nah we ALL rock! Could never have done it without the people who were there. It is amazing how people mobilse for a good cause and this was a huge team effort. Also there are so many talented and clever PwMS - imagine what we could all do in the world if we didn't have to have this fight? K
Hey Tiny Dancer! You're ace - well done for pulling this all off so successfully. The rain even stopped for it! (thanks God ;-) It was such fun, and great to catch up with Sara again - so nice to see how well she's doing since having the procedure too. I feel like such an activist! How on earth did you get the CEO of the MS society, or should i say your mate Bill, to show up??
@missalgernon Haha - I am totally insane! You are an activist! And also on your own channel with all your diet stuff which is important too. I mentioned to Bill a couple of weeks back and he showed up out of the blue. What a bloke - he understands his role is to support and help PwMS and that includes us - we are not rebellious patients, but PwMS with a legitimate request. I appreciate his willingness to engage in this conversation about MS & CCSVI. Thanks for coming x
Dearest Kerri, thank you for helping me to "be there". I so wished it. :) Freedom is a song that has always inspired me. You've taken it and given it a whole new meaning. I love this video SO much. Thank you thank you thank you :) I'm singing this with you. Love you, Judy
@donotconcede :) Yes well it is true to say we are all 'here.' Leanne picked this song (I was not even going to go with a tune but so glad she insisted just a couple of days before) and it really reflected our statement. Thanks, K
The flash mob was a great way to raise awareness for CCSVI, but I disagree with some blanket statements made in the video. Not ALL neurologists are blocking people from getting the angioplasty (mine isn't for example) and not everyone with MS has narrowed veins. Just like not everyone with narrowed veins has MS.
I am ALL for anything that offers relief for those who suffer from MS but blanket statements that have been shown to be "not true" tend to muddy the debate.
@vbeachy I don't disagree about the comment about 'MS people have blocked veins.' It is true to say a majority do but I did not specify. In many ways our softly softly approach is not working so it was meant to have some punch to it. As for the Neuros, again I never said all, but locally the fact is that it is near impossible to get the procedure done in a public hospital in Melbourne at the moment. This is due to the hospital Neurologists - fact. Sadly this debate is already filthy. Kerri
Maybe you should leave your (Tysabri Advocate) comments on your back door! If your Neuro is for CCSVI ? Then WHY? VERN... not get this treatment for yourself?
Don't throw backwash ! your (patient advocate) comments! on a good pointed video that brings hope! To those of us that failed all the CRAB drugs! we have no choices! WHAT THE HELL WHERE IS YOUR COMPASSION????
Hi Kezzcass, Have all of you heard about the international CCSVI conference that starts Monday 21st Australian Time. Have not worked out the exact time yet. It runs over a couple of days and has Zamboni (sp) himself speaking
NJSMKMMS 3 months ago
Well done folks. Good to see you out there spreading the word. I had no idea this is happening to people in our own country. We should have choice in health care not just what big pharma stuffs down our throats.
NJSMKMMS 3 months ago
@NJSMKMMS Thanks :) This was a year ago and we are still pushing on to get this recognised. Everyone should have access to accurate information and the freedom to choose between treatments. When information is withheld (such as risks of pharmaceuticals) or info of other non drug treatments we cannot make the best decisions for our future health. It's complicated... but we have to advocate for ourselves and cast a critical eye on what we are prescribed. Thanks for your comment. Kerri
kezzcass 3 months ago
@NJSMKMMS Yes, we had a segment about 12 hours ago. Hope you caught it. :)
kezzcass 3 months ago
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The technique is referred to as a bone marrow harvest and is performed under a general anesthesia. The incidence of patients experiencing rejection is rare due to the donor and recipient being the same individual. This remains the only approved method of the SCT therapy. Log on to ccsviclinic. ca for more information.
Jessica1963Forester 7 months ago
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Autologous stem cell transplantation is a procedure by which blood-forming stem cells are removed, and later injected back into the patient. All stem cells are taken from the patient themselves and cultured for later injection. In the case of a bone marrow transplant, the HSC are typically removed from the Pelvis through a large needle that can reach into the bone. Log on to ccsviclinic. ca for more information.
Jessica1963Forester 7 months ago
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Dr. Hemangi of Noble continues: “These are early days and certainly all evidence that the combination of liberation and stem cell therapies working together at this point is anecdotal. However I am not aware of other medical facilities in the world that offer the synthesis of both to MS patients on an approved basis and it is indeed a rare opportunity for MS patients to take advantage of a treatment that is quite possibly unique in the world”. Log on to ccsviclinic. ca for more information.
Jessica1963Forester 7 months ago
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With regard to MS patients, “We are cautious, but nevertheless excited by what patients are telling us. Suffice to say that the few patients who have had the therapy through us are noticing recovery of neuro deficits beyond what the venous angioplasty alone should account for”. Log on to ccsviclinic. ca for more information.
Jessica1963Forester 7 months ago
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Dr.Avneesh Gupte, the Neurosurgeon at Noble Hospital performing the procedure has been encouraged by results in Cerebral Palsy patients as well. “We are fortunate to be able to offer the treatment because not every hospital is able to perform these types of transplants.You must have the specialized medical equipment and specially trained doctors and nurses”. Log on to ccsviclinic.ca for more information.
Jessica1963Forester 7 months ago
This has been flagged as spam show
Other recent MS patients who have had Autologous Stem Cell Transplantation (ASCT), or stem cell therapy have posted videos and comments on YouTube v=jFQr2eqm3Cg. Log on to ccsviclinic. ca for more information.
Jessica1963Forester 7 months ago
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A universal benefit reported by every patient has been the recovery of bladder control. Most MS patients have various bladder control symptoms that include urinary urgency, incontinence, nocturia, or urinary hesitancy as a result of the disruption of electrical impulses from the brain to the nerves and muscles that are involved in emptying the bladder (pudenal nerve, urethral sphincter, detrusor muscle). Log on to ccsviclinic. ca for more information.
Jessica1963Forester 7 months ago
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A group of Canadian patients just back from Noble have reported similar results. “I can actually see what I thought were long-dead muscles forming in my feet” said Larry Vermeersch of Kenora, Ontario. “My balance is back and I’m walking without a cane. I’m a pretty hard guy to convince, but getting these two procedures together has made me a believer. I’m looking forward to the physio ahead because I can feel everything coming back.” Log on to ccsviclinic. ca for more information.
Jessica1963Forester 7 months ago
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“I feel I am completely cured” says Ms. Gianopoulos, “my symptoms have disappeared and I have a recovery of many functions, notably my balance and my muscle strength is all coming (back). Even after six months, I feel like there are good changes happening almost every day. Before, my biggest fear was that the changes wouldn’t (hold). I don’t even worry about having a relapse anymore”. Log on to ccsviclinic. ca for more information.
Jessica1963Forester 7 months ago
This has been flagged as spam show
After 6 months of offering stem cell therapy in combination with the venous angioplasty liberation procedure, patients of CCSVI Clinic have reported excellent health outcomes. Ms. Kasma Gianopoulos of Athens Greece, who was diagnosed with the Relapsing/Remitting form of MS in 1997 called the combination of treatments a “cure”. Log on to ccsviclinic. ca for more information.
Jessica1963Forester 7 months ago
This has been flagged as spam show
Ever wanted to be part of a flash mob? One is planned for July 6th in Melbourne. To join search 'Flash Mob Melbourne - Get Virgin Laid' on Facebook to help get Richard Branson's attention for charity.
1egg1world 8 months ago
This has been flagged as spam show
A new CCSVI clinic it is available in Bucharest, Doctors team from Bucharest are certified by DR.ZAMBONI in Ferrara and by Dr. Simka in Poland to perform the CCSVI treatment/procedures.
The price of the treatment INCLUDING Travel Expenses(flight ticket,accomodation,transfers,all exams,angioplasty) is 8200 USD for USA/CANADA patients and for europe patients 5100 Euro Incl. Travel expenses.
CCSVIROMANIA 9 months ago
This has been flagged as spam show
CCSVI Clinic Receives Joint IRB Approval for Aftercare Protocol Study.
The joint application between Noble Hospital and CCSVI Clinic has been approved through the IEC Institutional Review Board (IRB) that will allow researchers to use patient data to study their new extended and enhanced aftercare treatment protocol. Please Call 888-419-6855 to know more about participating in the study. Log on to ccsviclinic. ca for more information. Email apply -at- ccsviclinic. ca
Gregmills007 11 months ago
Congratulations to all of you guys and girls who took part in this FLASH MOB.
Thank you to you all for getting this out there in the public domain for all of us with MS.
Keep up the good work and i will do what i can from my end.
Merry Christmas and a Very Happy New Year to all :-) x x x
sharpyangel 1 year ago
@sharpyangel Thank you - how's things in Perth going? Have a great Christmas :o)
kezzcass 1 year ago
Hi Kerri, Great Flash Mob. Did it make the Melbourne Papers or media. I hope so. :)... Saw you dancing. Are you walking without your cane now?? Kindest Regards, Lou
LouLou3078 1 year ago
@LouLou3078 Hi Lou, we had a journo and photographer (freelancer) so hoping to see it and the broader story coming out as a feature health article in a major paper. (not sure if I'm meant to tell everyone that!) No cane for me - I don't think anyone watching me would notice that I walk differently, I only have a vague stiffness in my step now.
kezzcass 1 year ago
Great vid, good choice of the music!
☆☆☆☆☆
Zzozze 1 year ago
@Zzozze Thanks :o)
kezzcass 1 year ago
GREAT VIDEO! GREAT FLASH MOB!
Prissie28 1 year ago
@Prissie28 Aw thanks Astrid.
kezzcass 1 year ago
Wonderful to see such a turn out. Love the message.. we all know it works and we all know how unfair it is not to receive this treatment when so many others are treated for similar conditions.
Doviedove 1 year ago 3
@Doviedove Thanks. You are so right. :)
kezzcass 1 year ago
FANTASTIC! The immediacy & importance of CCSVI can't be underestimated, many with MS have had their health & independence restored!!
Don't stop at CCSVI, don't accept anything less than the ur full birthright "ABUNDANT HEALTH"! People of the likes of BILL CLINTON, HUGH JACKMAN, MIKE TYSON, OLIVIA NEWTON JOHN, GREG CHAPPEL have awakened to the next evolutionary milestone for well-being a PLANT BASED DIET! (Vegetarian, Vegan or Raw)
/watch?v=z3xOU2tLl7g (another inspirational video with a mob)
veganath 1 year ago
@veganath :o) Thanks,
kezzcass 1 year ago
So sad to see this turning into a forum of "one against the other" statements. Getting CCSVI available is a good thing whether it works or not. But to accuse people on here of not being compassionate is not helpful in any way. Vern is one of the most compassionate people I have met on here. I don't take Tysabri; he does not say I am wrong. CCSVI did not work for my friend, nor did Tysabri; I just support her. We are all in this "Let's find WAYS to rid us of the MonSter!"
bvaleriea 1 year ago
@bvalerieaThis is not a debate between Tysabri and CCSVI. 2.5 million people have MS, only about 70,000 have ever taken Tysabri, only about 1000 in Australia. In terms of the big picture Tysabri is barely in it for the vast majority. We want to see investment into finding out whether CCSVI could get rid of this MonSter.There have been zero dollars spent on it in Australia to date and our video is about getting it on the agenda here. Vern's comment could be viewed as opposing our effort.
kezzcass 1 year ago
Kerri and the rest of CCSVI Australia BRAVO!!!!!!!! What a great way to show the world :-) Love the song choice and seeing some faces I know! So proud of our MS Famliy!
Hugs,
Andrea
MSVlogSupport 1 year ago
@MSVlogSupport Thanks Andrea. So fun to get together with others (glad you picked out some familiar faces). I am proud of us all too. Kerri x
kezzcass 1 year ago
Well done Kerri and all of you there in Australia...so proud of you. From MS CCSVI EIRE...
swalshable 1 year ago
@swalshable Thanks :)
kezzcass 1 year ago
Susan;
I am somewhat confused by your comment. I made the comment on the flash mob video based on MY experience and MY thoughts about MS and the drugs or procedures involved. Tysabri has worked, and IS working for me, so why the vitriol regarding my decision to continue taking a drug that has gotten me out of a wheelchair and off of crutches? I just asked prudent and logical questions and, by Kerri’s response, she agreed.
Please tell me—if you would—how my comments lacked compassion.
vbeachy 1 year ago
Awsome Kerri you look great by the way all Liberated and all.......... I agree world wide CCSVI World Event!......... My beautiful wife gets Liberated Jan12/2011. We are both disabled me with spine her with MS and we have been fundraising since June. We deserve treatment at home with care and compassion like any other person. Stand for Liberation until everyone is Liberated. DJ
gypsy1701 1 year ago
@gypsy1701 Thank you :) All the very best to your wife. You are right, this is not a complicated or dangerous procedure - it should be done at home where you can get follow up. For those who say that Neuros are not providing barriers to this treatment... why are people having to travel abroad from countries that are well equipped to do it? It is appalling and a waste of money that few can afford. We are all grateful tho for every person who can do this - it adds to the 'anecdotal evidence' :)
kezzcass 1 year ago
I'm really impressed Kerri. Especially with you're dancing & that Bill was there. Was that an intentional pun on your part that he came "out of the blue", & into a sea of blue people. Lol.
Hi Vern, you have to admit that if the majority of neuros agreed to allow their patients to have this everyone knows patients could have it now. Even1 of their colleagues, Dr Hubbard, agrees from personal experience that neuros are the main reason this is being blocked & he is ashamed & disillusioned by this
rickileeway 1 year ago
@rickileeway Haha - no pun intended - it just worked out well :) Bill has great compassion and openess. We are very grateful for his support of us as people with MS. This was his day off yet he came to show he cared. What a statement! Hope you are doing ok RIck. Kerri
kezzcass 1 year ago
great
watzgoodinthe711 1 year ago
@watzgoodinthe711 :)
kezzcass 1 year ago
Wow!!!!!!! now this is what i call taking action , fantastic.....the energy, the intention, the power and all done in a joyful way, You are a great example Kerri, and your team. WELL DONE and my best wishes.
Carol
3caroladams 1 year ago
@3caroladams Yes you are right - taking action. It seems we've spent hours trying to get this in the media, given a fair hearing from MS Researchers and Neurologists and it is largely falling on deaf ears. This is not a flash in the pan. We need to expect more from those entrusted to care for us and let them know. Thanks for your comment. Kerri
kezzcass 1 year ago
Check you all out!! How awesome. It's so great to see this.
shawn1430 1 year ago
@shawn1430 Thanks Shawn :) So happy we can share it in this way.
kezzcass 1 year ago
Great video! Very inspiring!
karirokker 1 year ago
@karirokker Thanks :)
kezzcass 1 year ago
Kerri you are awesome. :) maybe we could do an international video like this to promote CCSVI awareness. I just LOVE this theme and what you've done using this song. :) (i had to post again so you know how much this is appreciated by a lot of people. :)
donotconcede 1 year ago
@donotconcede Thanks Jude. Hey an international video - sounds like fun. :)
kezzcass 1 year ago
wow, you did a great job.. proud of all of you!
FREEDOM!!!!
omexmc80 1 year ago
@omexmc80 Thanks Omar. I feel real proud of all of us too. Kerri x
kezzcass 1 year ago
Awesome.
I am very proud.
What a great video!
irishbear76 1 year ago
@irishbear76 Thanks Mark, makes me smile to think of you looking at me with a proud face :) Kerri x
kezzcass 1 year ago
Brilliant, brilliant, brilliant! Kerri: you. So. Totally. ROCK!
QuickQuix 1 year ago
@QuickQuix Haha - nah we ALL rock! Could never have done it without the people who were there. It is amazing how people mobilse for a good cause and this was a huge team effort. Also there are so many talented and clever PwMS - imagine what we could all do in the world if we didn't have to have this fight? K
kezzcass 1 year ago
Great stuff........ Thanks Kerri.
boatjohn1 1 year ago
@boatjohn1 Thanks John :)
kezzcass 1 year ago
Kerri, YOU ROCK!! This is so incredibly awesome and I will be sharing it w/ viral speed! ;) I'm proud of you, girl.
xo handipeep
handipeep 1 year ago
@handipeep Thanks for sharing the post :) We really appreciate it. Thanks for your encouragement too. Kerri xo
kezzcass 1 year ago
I am speech less which is hard for me to be LOL just ask Judy :)
Impressive job hats off to all, we should all be dancing!
Hugs to you girls, susan
ThePennygirl 1 year ago
@ThePennygirl Ahaha speechless you reckon? Well I'll take that ;o) Yes we should all be dancing - I pray one day we all will. Kerri xoxo
kezzcass 1 year ago
Hey Tiny Dancer! You're ace - well done for pulling this all off so successfully. The rain even stopped for it! (thanks God ;-) It was such fun, and great to catch up with Sara again - so nice to see how well she's doing since having the procedure too. I feel like such an activist! How on earth did you get the CEO of the MS society, or should i say your mate Bill, to show up??
missalgernon 1 year ago
@missalgernon Haha - I am totally insane! You are an activist! And also on your own channel with all your diet stuff which is important too. I mentioned to Bill a couple of weeks back and he showed up out of the blue. What a bloke - he understands his role is to support and help PwMS and that includes us - we are not rebellious patients, but PwMS with a legitimate request. I appreciate his willingness to engage in this conversation about MS & CCSVI. Thanks for coming x
kezzcass 1 year ago
Dearest Kerri, thank you for helping me to "be there". I so wished it. :) Freedom is a song that has always inspired me. You've taken it and given it a whole new meaning. I love this video SO much. Thank you thank you thank you :) I'm singing this with you. Love you, Judy
donotconcede 1 year ago
@donotconcede :) Yes well it is true to say we are all 'here.' Leanne picked this song (I was not even going to go with a tune but so glad she insisted just a couple of days before) and it really reflected our statement. Thanks, K
kezzcass 1 year ago
LOL This is fantastic! I love it, thank you!
thepasture 1 year ago
@thepasture Thanks, it was a heap of fun and hopefully raises some awareness. K
kezzcass 1 year ago
LOVE IT!!!! Well done everyone! Thank you Kerri.....freedom!
andie221 1 year ago
@andie221 Andie - thanks for the dance! You are one awesome woman. So proud to be walking alongside the likes of you. Kerri xx
kezzcass 1 year ago
@kezzcass Dear Kerri, with these wonderful videos and the efforts you go to for the benefit of all........I am proud of you! xxx
andie221 1 year ago
@andie221 Thanks lovely lady :)
kezzcass 1 year ago
Awesome and I just love the presence of the police!! We are such rebels! LOLOLOL
SHIRLEYRENSHAW 1 year ago
@SHIRLEYRENSHAW Hahaha - I have never even had a speeding fine. Getting arrested would have been hilarious! LOL Thanks, Kerri
kezzcass 1 year ago
@sandyCanada56
Absolutely Sandy...the enthusiasm is just fantastic. Good luck Tuesday!
vbeachy 1 year ago
BRAVI!!!!
elisabettatronconi 1 year ago
@elisabettatronconi Thanks :)
kezzcass 1 year ago
YES!!! Very inspirational! Hope your message spreads like wild fire. ~Nancy
cowboystew 1 year ago
@cowboystew Me too. Goodness knows it has been moving at snails pace so far. Kerri
kezzcass 1 year ago
Well done!
h0mer37 1 year ago
@h0mer37 Thanks :)
kezzcass 1 year ago
great job, this is the right way
dummyRK 1 year ago
Way to Go Aussies. Very inspirational. Thanks Kerri. We need this in Canada.!!!
Foxette1955 1 year ago
@Foxette1955 Well it is a small something that we hope gets big :) Go Canada!!
kezzcass 1 year ago
Yayayayay!! go Oz! Gonna share this on my FB - Thanx Kerri :o) x
jaydee1508 1 year ago
@jaydee1508 Thanks for posting. Appreciate it very much. Kerri
kezzcass 1 year ago
Go Aussies! x
STINGOALI 1 year ago
@STINGOALI Thanks :) Will pass it on.
kezzcass 1 year ago
AWESOME! Thank you Kerri
Andrea0414D 1 year ago
@Andrea0414D Our pleasure ;)
kezzcass 1 year ago
Kerri;
The flash mob was a great way to raise awareness for CCSVI, but I disagree with some blanket statements made in the video. Not ALL neurologists are blocking people from getting the angioplasty (mine isn't for example) and not everyone with MS has narrowed veins. Just like not everyone with narrowed veins has MS.
I am ALL for anything that offers relief for those who suffer from MS but blanket statements that have been shown to be "not true" tend to muddy the debate.
vbeachy 1 year ago
@vbeachy Good comment Vern. I have another tysabri infusion this Monday. Jon K Sayers
zekest 1 year ago
@vbeachy I don't disagree about the comment about 'MS people have blocked veins.' It is true to say a majority do but I did not specify. In many ways our softly softly approach is not working so it was meant to have some punch to it. As for the Neuros, again I never said all, but locally the fact is that it is near impossible to get the procedure done in a public hospital in Melbourne at the moment. This is due to the hospital Neurologists - fact. Sadly this debate is already filthy. Kerri
kezzcass 1 year ago 2
@vbeachy
Maybe you should leave your (Tysabri Advocate) comments on your back door! If your Neuro is for CCSVI ? Then WHY? VERN... not get this treatment for yourself?
Don't throw backwash ! your (patient advocate) comments! on a good pointed video that brings hope! To those of us that failed all the CRAB drugs! we have no choices! WHAT THE HELL WHERE IS YOUR COMPASSION????
ThePennygirl 1 year ago 8
@ThePennygirl Thanks Susan xx
kezzcass 1 year ago
Inspirational!! Great Job
MsLogicJock 1 year ago
@MsLogicJock Thanks :)
kezzcass 1 year ago
Awesome!!
SRainbolt 1 year ago
@SRainbolt Thanks Sarah - everyone who was there certainly are!
kezzcass 1 year ago