im 22 years old i have edwards syndrome i am one of the lucky ones bc unlike most people born with edwards syndrom i look normal i have some things wrong with me yes but i look just like everyone else and im ALIVE which when i was in my moms stomach doctors thought i wouldnt live but here i am alive.
To all the people that say that u will put your baby In abortion if this would of happen sadly if u choose abortion and u decide to have a baby one day u would have to deal with a baby with problems but even though u can put it up for adoption so a person can care and take care of your baby ~rozy
I was born with edwards syndrome, I have bilateral club foot disorder. i had to wear braces like forest gump until i was 6. I had surgury in which dr honestly didnt think i could walk again. Statistics say half die in utero, 50 percent die before 2 months, and 5 to 10 percent survive past a year. I am in that 5 to 10 percent. Im 22. the torment from school was almost unbearable but i survived. but why? Thanks to God, the most high
Im in medical school and we just learned that most Edward's syndrome patients die within a year. so i guess most of the pictures you have here are actually not ES
@fallenfromfear. You sick person all that is happening and you laugh at that! Do you know the feelling of having a child like that? My sister unborn sister has edwards syndrome and i have to go through so much pain every single day while her healthy twin is lead next to her, think about things like that! And this video isnt true anyway cos they cant live past 4 days old
I would abort if my child was gonna be born like this. I would not bring my child into the world when they would experience that much pain, only to die after a few years of being alone. I dont fully aprove of abortion, but for this i would. Its awful and i wouldnt put my child through that.
i would never say i would or wouldn't abort a pregnancy. I've been there and choose not to abort my pregnancy and my daughter was born without any birth defects. But it's your choice just don't hate . Abortion is against my faith. I don't judge anyone that chooses that path nor do I don't judge people that choose to give live not matter the quality. It's a very hard situation and it's like removing a love one from live support. It's just not EASY!!! But it's a choice.
im really sorry to her about your child. I've had that experience on Oct 29th 1996 i had a baby boy Justin douglas and he passed away on nov1 1996 from edwards syndrome. one of the hardest things you'll ever go thorugh. we still think about him every day.
My baby "Kawainani" passed at 9 days old. Born 10-20-2010 and passed on the 29th. I was 32 1/2 at time of conception. I didn't really understand how serious T18 was. She's on YouTube too if you type on her name. Y couldn't they just do heart surgery to help her. It's like the doctors just don't understand unless it happens to their baby. I miss her and I cry often.…
I agree with buddzoo, many children and surviving and thriving with T18. Sadly because of where I live (UK) my son died from T18 as he was treated as a genetic label and not a baby, neonatal care was refused as I was diagnosed prenatally. I would never have agreed to amnio had I had any idea there were some results which allow doctors to legally refuse neonatal care.
Both of my daughters were born with birth defects. My oldest was sent imediately to icu at 7 days old. She came so close to death before they found the problem. Then it was a matter of getting enough formula in her to survive. My youngest was 11. She suddenly started haveing sever pain. After 2 months of agony they found her defect and has underwent 2 major operations. They are both well now and I thank God for that but my heart breaks for theese mothers. God be with them.
i am in college and i am studying this if you dont mine can i show this to my class plez i had i child with trisomy 18 i loved her than and now she lived for 2 hr
the last girl in the vidoe is my little sister ellen,she wil be 14 at the end of this month!she is the second oldest living person with trisomy 18 in ireland!:D
This video sends the wrong message. There ARE children that survive and thrive. The recommendation should be to treat each one as an individual, not as a label. I have a beautiful t18 child and she deserves a chance.
@mardisaurus I face the truth every day...did you hear me say I HAVE a living trisomy 18 child? And I am in an online community with hundreds of beautiful living children. They are living because we didn't abort when we heard 'trisomy 18' or 'Edwards Syndrome'. They are living because we demanded medical care for them. And they are loving members of many many families who wouldn't have people, especially the medical community, make a decision for them that only God should make.
Wow, many of these pictures are not even symptoms of Edwards Syndrome, or Trisomy 18, such as the one with cyclopia and a probiscus over the eye, that is a symptom of the Patau Syndrome, Trisomy 13, and "High muscle tone"? That's a good thing, the baby should be very strong. Get your facts straight before making a video, and don't take every ugly looking photo of a disorder off the internet, get the right ones, from the right sources...
Myself and my partner have had to do the test today..they done a sonogram and found some systoms of "trissomia 18".. My heart is breaking, but it out of our hands
You did a good job on your project. I have been reading so many blogs on blogspot of parents of children with trisomy 18. I find myself feeling there pain and happiness while reading there intimate stories. You may enjoy reading there stories too, how these children not all but some are older than a year, and with these parents there faith is so strong and even through the struggles they find joy.
TO THE PERSON WHO SAID ABORT THEM ALL IM A SURVIVOR IM ALIVE WITH EDWARDS SYNDROM NO SHOULD ABORT EVER!!!!!!!!!!!!!!!!
angeldoodlebug 4 weeks ago
im 22 years old i have edwards syndrome i am one of the lucky ones bc unlike most people born with edwards syndrom i look normal i have some things wrong with me yes but i look just like everyone else and im ALIVE which when i was in my moms stomach doctors thought i wouldnt live but here i am alive.
angeldoodlebug 1 month ago
To all the people that say that u will put your baby In abortion if this would of happen sadly if u choose abortion and u decide to have a baby one day u would have to deal with a baby with problems but even though u can put it up for adoption so a person can care and take care of your baby ~rozy
rozy1058 2 months ago
so sad :( I am studying genetic disorders for biology...just breaks my heart, poor babies
MonaRocks09 3 months ago
I was born with edwards syndrome, I have bilateral club foot disorder. i had to wear braces like forest gump until i was 6. I had surgury in which dr honestly didnt think i could walk again. Statistics say half die in utero, 50 percent die before 2 months, and 5 to 10 percent survive past a year. I am in that 5 to 10 percent. Im 22. the torment from school was almost unbearable but i survived. but why? Thanks to God, the most high
claptonstratgreen1 3 months ago 5
@claptonstratgreen1 may god bless you, you are in inspiration.
MonaRocks09 3 months ago
@claptonstratgreen1 God bless you
ellysuax3 1 month ago
habt ihr Toll gemacht!!!
MsEvchen 3 months ago
Im in medical school and we just learned that most Edward's syndrome patients die within a year. so i guess most of the pictures you have here are actually not ES
bferd001 7 months ago
@fallenfromfear. You sick person all that is happening and you laugh at that! Do you know the feelling of having a child like that? My sister unborn sister has edwards syndrome and i have to go through so much pain every single day while her healthy twin is lead next to her, think about things like that! And this video isnt true anyway cos they cant live past 4 days old
xCampers10x 7 months ago
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HAHAHA THE FACES ARE SO SILLY
FallenFromFear 1 year ago
@FallenFromFear Da will ich mal dein gesicht sehen...blödmann
MsEvchen 3 months ago
Just stop mixing god in everything, get some responsibility in life
SvrbiMeNos 1 year ago
I would abort if my child was gonna be born like this. I would not bring my child into the world when they would experience that much pain, only to die after a few years of being alone. I dont fully aprove of abortion, but for this i would. Its awful and i wouldnt put my child through that.
jordanmaddox12 1 year ago
@jordanmaddox12
i would never say i would or wouldn't abort a pregnancy. I've been there and choose not to abort my pregnancy and my daughter was born without any birth defects. But it's your choice just don't hate . Abortion is against my faith. I don't judge anyone that chooses that path nor do I don't judge people that choose to give live not matter the quality. It's a very hard situation and it's like removing a love one from live support. It's just not EASY!!! But it's a choice.
BayouBoggie 1 year ago
I couldn't finish watching. I saw three pictures and had to stop. This is so sad :(
Megan10Zorn 1 year ago
im really sorry to her about your child. I've had that experience on Oct 29th 1996 i had a baby boy Justin douglas and he passed away on nov1 1996 from edwards syndrome. one of the hardest things you'll ever go thorugh. we still think about him every day.
horseloverws 1 year ago
My baby "Kawainani" passed at 9 days old. Born 10-20-2010 and passed on the 29th. I was 32 1/2 at time of conception. I didn't really understand how serious T18 was. She's on YouTube too if you type on her name. Y couldn't they just do heart surgery to help her. It's like the doctors just don't understand unless it happens to their baby. I miss her and I cry often.…
leilani718 1 year ago
@leilani718
Dear- God bless your heart! Be praying for you and your family. Everything will be ok,
CRAZYPAL69 1 year ago
I agree with buddzoo, many children and surviving and thriving with T18. Sadly because of where I live (UK) my son died from T18 as he was treated as a genetic label and not a baby, neonatal care was refused as I was diagnosed prenatally. I would never have agreed to amnio had I had any idea there were some results which allow doctors to legally refuse neonatal care.
cerys38 1 year ago
I lost my neice to Edwards Syndrome back in June, she lived 7 weeks and 6 days, but her memory will last forever x
dabestkat 1 year ago
pobres niños quisiera ser jesus para curarlos
liloruiz 1 year ago
Thanks for the information.
buddzoo, I have a t18 baby on life support,,,,feeling sad and do not know what to do. .
cksoon68 1 year ago
Both of my daughters were born with birth defects. My oldest was sent imediately to icu at 7 days old. She came so close to death before they found the problem. Then it was a matter of getting enough formula in her to survive. My youngest was 11. She suddenly started haveing sever pain. After 2 months of agony they found her defect and has underwent 2 major operations. They are both well now and I thank God for that but my heart breaks for theese mothers. God be with them.
jhartist123 1 year ago
some pictures realy disturbed me. please dont get me wrong, but i never saw something like this. this type of videos make u realize how lucky u are
xpaupx 1 year ago
i am in college and i am studying this if you dont mine can i show this to my class plez i had i child with trisomy 18 i loved her than and now she lived for 2 hr
emberhighlife 1 year ago
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good work on the video.thanks :)
missmassywassy 1 year ago
good work on the video.thanks :)
missmassywassy 1 year ago
the last girl in the vidoe is my little sister ellen,she wil be 14 at the end of this month!she is the second oldest living person with trisomy 18 in ireland!:D
LukeMat92 1 year ago
@LukeMat92 good for her! :)))
acdc601234 1 year ago
I'm glad I am now educated.
AmandaSimm 1 year ago
you have pictures of S Patau.(13 trisomy) not only 18 trisomy
alexut576 1 year ago
I hope you both got good marks for this. It appears well researched and put together. Very informative.
sassikatt 1 year ago
If you've had a bad day, think twice.....life is just too unfair.....
beithead 1 year ago
Is Edwards syndrome the same as Trisomy 18 or are they just similar?
Hans021220 1 year ago
@Hans021220 Yes they are the same.
nimmalareddy 1 year ago
This video sends the wrong message. There ARE children that survive and thrive. The recommendation should be to treat each one as an individual, not as a label. I have a beautiful t18 child and she deserves a chance.
buddzoo 1 year ago 26
@buddzoo Not with this disease though.
It is so hard to face the truth but this disease is horrible.
It is very very rare for a person to live past 2 - 3 weeks if they are born with it.
Only a few cases have lived to become a teenager.
mardisaurus 1 year ago
@mardisaurus I face the truth every day...did you hear me say I HAVE a living trisomy 18 child? And I am in an online community with hundreds of beautiful living children. They are living because we didn't abort when we heard 'trisomy 18' or 'Edwards Syndrome'. They are living because we demanded medical care for them. And they are loving members of many many families who wouldn't have people, especially the medical community, make a decision for them that only God should make.
buddzoo 1 year ago
@buddzoo boze cuvaj nas ove muke
MiKiCa456 1 year ago
@buddzoo ABORT THEM ALL
satisfiction 6 months ago
I love the song you chose for this video!
May God bless every family with a child born with Edwards Syndrome!
BabyLosi 2 years ago
Wow, many of these pictures are not even symptoms of Edwards Syndrome, or Trisomy 18, such as the one with cyclopia and a probiscus over the eye, that is a symptom of the Patau Syndrome, Trisomy 13, and "High muscle tone"? That's a good thing, the baby should be very strong. Get your facts straight before making a video, and don't take every ugly looking photo of a disorder off the internet, get the right ones, from the right sources...
TheHeinzerich 2 years ago 2
Myself and my partner have had to do the test today..they done a sonogram and found some systoms of "trissomia 18".. My heart is breaking, but it out of our hands
jamieholliday71 2 years ago
I myself had a baby boy born with edwards syndrome in 1991 he was born sleeping xxxx
geraghty42 2 years ago
0:43
really makes you think about how fortunate you are
we should be more appreciative of the things we have
Alternativesketchist 2 years ago 3
very nice but there are some pictures from patau sindrome . ppl may get confused.
danielgomezcadavid01 2 years ago 13
well done! very informative. Thank you
Sassy8528 2 years ago
323145 i love the song we picked it fits it so well
1893bella 2 years ago
You did a good job on your project. I have been reading so many blogs on blogspot of parents of children with trisomy 18. I find myself feeling there pain and happiness while reading there intimate stories. You may enjoy reading there stories too, how these children not all but some are older than a year, and with these parents there faith is so strong and even through the struggles they find joy.
aaisme2000 2 years ago
This has been flagged as spam show
Haha, The only Edwards Syndrome on here?
Whoa
323145 2 years ago
very nice man
you are the only one Edward syndrome i can find in you tube!
suwarat1234 2 years ago