Duchenne Muscular Dystrophy danielle b

[xxxgirlswithguns]

My little sister had DMD. She was part of the 1% of girls with this disease, caused by a genetic mutation. I am not a carrier. She passed away 1 year ago today from cardiac arrest caused by Duchenne muscular dystrophy. I miss her so much.

[retr0llz]

There have been many cancer cures and cures to many different illness, but they all have been systematically suppressed by the cancer establishment, because they can't make much money off them.

Nutrition can cure cancer and loads of other illnesses like Muscular Dystrophy.

Look up some cancer cure documentaries for more info on this stuff. A nice one is "The Beautiful Truth".

watch?v=wvzDHGLEUyw

God Bless, Jesus is Lord!

[Rasverix82]

@jubinjibin it does if a girl inherits 2 copies of the diseased chromosome but this is rare only 1% are female

[jubinjibin]

@Rasverix82 BUT ITS VERY RARE FOR GIRLS RIGHT

[Rasverix82]

@jubinjibin yes

[RemedyMD]

Wow, what a touching video, we too are trying our hardest to help rare disease researchers find cures for DMD and many other rare diseases. In conjunction with the Children's Rare Disease Network we are giving away a $50,000 rare disease research system to the winner of a video contest and the organization of their choice. You should enter your video. For more info, visit RemedyMD's website and click on the "About" section then look under "Press Releases".

[jerzeytpke]

My sons best friend since they were 7 has this. He never walked. To see what he goes thru kills me. God bless us all.

[DefyingDystrophy]

Check out my channel for a treatment that has been working for BMD and DMD. I am 21 with BMD and my walking has improved tremendously.

[MrNikolaos09]

i know someone that is 46 that got that disease and NOT dead

[davidthefrogman]

@MrNikolaos09 What kinds of medicines does he take? I ask because I have to take tons of medicines everyday for DMD. side note: I am still walking almost perfectly at the age of 15 * knocks on wood *

[greenhorns99]

this video is just so inhuman, i'm SICK OF ITTT!!!

[greenhorns99]

thats not true, before 20?! People need to start writing more up-tp-date books, I don't see this as a valid startstic now days for duchenne, now with better and increased care in many areas. Just like healthy individuals life expectancy has increased, it also has for those with duchenne. Who determins these statistics anyways, these statistics haven't changed for 20 years! I'd say most die before 30. Many die before 25 but unsure if most. Shouldn't this statistic be scientificly redetermined?

[JADE244U]

While it's true that we need to create awareness for DMD this video it's not the right way to do it.The way the information it's presented it's very offensive for patients and us parents of children with a DMD diagnosis.

[greenhorns99]

@JADE244U agreed

[bondgirlie007]

Do you think it's right to use someone's story and video images no doubt without permission?? To a back drop of miserable music? perhaps if you knew Stuart or anyone else with DMD you wouldn't be so heartless

[channisipod]

Great video girls

[MsCarebearbaby]

MY SON HAS THIS HE IS ONLY 5 AND HE ALLSO HAS CMT HE HAS A VERY HARD LIFE ITS SO SAD IM TRYING TO GET ALL OF US PEOPLE TO BEND TOGETHER AND HALP PEOPLE WITH THIS AND BRING MORE AWEARNESS

[Clairren]

Im 33 years old from Philippines and has a limbgirdle dystrophy. Hope and pray that they find a cure as soon as possible.

[mysterious88]

my husband has dmd were from norway and he is 35 years old still in good health it. very funny man, nice loving ang were very much happy and i think he can last a long time based on his condition. and we dont think about it each and everyday of our life. we live our life the most of it

[lachavadechavo]

i have a brother w dmd his 37 years of age and a nefui 18 years of age my brothe uses a ventilater but his in good health althoug my nefui doesnt use a ventilater but he dmd has affected his heart i now what it is living w/fam members w dmd ver give up dont believe you will die in your 20 my bro is 37 keep on praying

[tatzmzfrk2u]

i'm 23 wit a 2yr old son and i have MD i live day by day and it get harder everyday but i'm doin very well... i learned to live wit this stupid disease

[davinder1818]

i am 23 year old i have mascular dystrophy and my 2 sisters also have mascular dystrophy my elder sister is 26 year old when she was 5 year old she was sit..

[TheMikhal123]

When you say most people die at 20 that's not true under 13 years old and still walking and I know someone who lived in till 50 unsorted which are looking at all the bad stuff and it's really making me upset because I have muscular dystrophy and I know that's not true and whoever would muscular dystrophy reads this and can still walk don't stop until you really can't walk anymore give it all you've got and don't listen to what the media has to say it's all not true

[wahidsafi]

hey i was wondering if anyone has gone through spine surgery due to scoliosis with DMD....the reason why is because my brother has DMD and were considering whether we should or not go on with this operation due to all the side effects and his age 17....please if you have went through the surgery tell me how your doing and if you regret it or not thanks

[1953lzbth]

Women who are carriers of DMD are also affected by this disease. Not all but many female carriers of DMD have a slower progression of DMD. It is therefore inaccurate to state it only effects boys. Look up Symptomatic Carriers of DMD and you will see.

[DarksideSnowboardsVt]

my cousin has this disease, but dont think you are unable to do things if you have this. he still play guitar in a band and is 25 years old.

[jt021293]

the boy at 0:46 is HOT!!!!

[cooldit1]

in very rare cases, girls can have duchenne.

[BUBLUHASSAN]

just want to share, I have my two boys age 9 & 10 yr have Duchenne appeared after one month of their birth, we have no such evidence in our family members but now really both my wife and myself as well as all family members are wondering and are anxious about the future of our effected boys. the effected boys are at number two and three, where as our 1st babay boy was OK and is healthy. we have girl at 4th number and she is also normal.

[vetnet2000]

my brother died with this disease

i miss him sooooooooooo much

Allah bless him

[iangriff2007]

Very good video. I have DMD and have produced my own vid. Just a few small points, patients may be able to avoid feeding tubes when swallowing becomes difficult by using liquid supplements and eating blended and pureed foods. I myself was unable to have a feeding tube inserted but after these supplementary drinks I went from 6stone to 9stone. I will stress that this may not be suitable for every boy, so pease contact your dr. or dietician. Only a few men survive past their 20's with proper care.

[14sadgirl]

I have muscular dystrophy it sucks /:

[gallykemi]

Exusee mee this was no appropriatee, becausee duchenne children live longer than 20, thiss is out of order rubish video my brother has duchennee, who lot off rubishh !

[andtuigeanntu]

Ok I have to say something here. Not all DMD boys live longer than 20 yrs and many of them don't. The reason is geographical, meaning, it depends on where they live and what level of care their government is willing to help provide. My nephew has DMD, he is only 6yrs and 30% of his heart has already wasted away. Do you really think he will even make it to 20? I know of one boy in the UK who died at 13 yrs!

[andtuigeanntu]

Boys in Denmark recieve "gold class" care and can live to around 27yrs, here in Australia the boys average lifespan is 16yrs. Why?...Denmark looks after their DMD boys better than what Australia does. All all comes down to the level of care they recieve (and the individual boys progression).

[quiggm]

very negative!

[danlydiate123]

oh great i never knew that THIS is how i will look. oh great this videos upset me

ive got duchennes

[landygurl]

I lost a friend I have known fifteen from this nasty progressive disease.

my fruien on the 21/2/2008 at the tender age of 25 and his brother at the age of 18.

And heard through other old school friends of other lost to DMD. It really gets you down.

I could watch this video for months afer his demise.

[christopherinsc1981]

Very nice video!! My little cuz and friend and many family members have Duchenne.