When i found out my son has Hurlers syndrome the second thing i did was look it up on youtube that was on 4/23/09 my sons 2nd birthday. I found you're website today and thought "wow that little boy looks familiar." I want to thank you for posting you're story, Its good to know that as dark as it gets our babies shine brightly.
I decided to just type in hurlers on youtube and see what came up. My sister passed away from Hurlers Syndrome at age 6.75, I did go to a MPS Society meeting in Seattle years ago. This little boy must be doing rather well as I watched the video I could see his physical changes for the positive. My sisters name was Ivy Brehmer and I miss her so much but she taught us alot and she was oh so brave. xx
Thank you for your comment. I'm sorry that your sister lost her battle.
Caleb is doing well. He still has a lot of medical needs, and I'm sure many surgeries in his future, but we take each new development as it comes, and thank God for everything he blesses us with.
Caleb is beautiful....Today was my last day volunteering at the 2008 International Symposium on MPS and Related Diseases and I have learned so much about MPS. These children go through so much in their short lives, but remain positive the whole way through. All of them really inspired me:):)
Thank you. That is the song "He's My Son", by Mark Schultz, and awesome contemporary Christian singer. A friend of ours mailed us his CD when Caleb was first diagnosed and told us to listen to song number 4. That song became our prayer.
fix ur audio
kaylovshim 1 year ago
He is adorable. God bless you
KimRaabjerg 1 year ago
cutest baby in the world, i hope he lives a nice long happy life
TheBrennabob 1 year ago
thanjs for sharing.
p.s. did u choose the name caleb from the Bible? - i want to call my son that.
ShujiGangsta 2 years ago
Thanks. I need to set it to music again. They took my song, "He's My Son" off the video.
To answer your question though, yes, we did choose his name from the Bible. :)
ClbsMm2000 2 years ago
When i found out my son has Hurlers syndrome the second thing i did was look it up on youtube that was on 4/23/09 my sons 2nd birthday. I found you're website today and thought "wow that little boy looks familiar." I want to thank you for posting you're story, Its good to know that as dark as it gets our babies shine brightly.
kimberlyvess 2 years ago
aw, he's so cute! :)
i have to do a science project on genetic diseases, and i got hurler syndrome
so i have been trying to learn more about it.
what a beautiful little boy, and great video!
god bless,
MissAshleyy14 3 years ago
loved the video! we love goin to church with caleb, hes our buddy =D
~The Russells
beautifulsunset15 3 years ago
And we love the Russells! lol
ClbsMm2000 3 years ago
and we love yall!!
beautifulsunset15 3 years ago
I decided to just type in hurlers on youtube and see what came up. My sister passed away from Hurlers Syndrome at age 6.75, I did go to a MPS Society meeting in Seattle years ago. This little boy must be doing rather well as I watched the video I could see his physical changes for the positive. My sisters name was Ivy Brehmer and I miss her so much but she taught us alot and she was oh so brave. xx
shadowwolfe11 3 years ago
Thank you for your comment. I'm sorry that your sister lost her battle.
Caleb is doing well. He still has a lot of medical needs, and I'm sure many surgeries in his future, but we take each new development as it comes, and thank God for everything he blesses us with.
God Bless!
ClbsMm2000 3 years ago
Caleb is beautiful....Today was my last day volunteering at the 2008 International Symposium on MPS and Related Diseases and I have learned so much about MPS. These children go through so much in their short lives, but remain positive the whole way through. All of them really inspired me:):)
hafiza123 3 years ago
Thank you!!!
ClbsMm2000 3 years ago
You guys have a cute son!!!
That song was beautifull whats the name, singer, etc???
Keep on going!!!God Bless your family
peque1978 3 years ago
Thank you. That is the song "He's My Son", by Mark Schultz, and awesome contemporary Christian singer. A friend of ours mailed us his CD when Caleb was first diagnosed and told us to listen to song number 4. That song became our prayer.
ClbsMm2000 3 years ago
Beautiful! Caleb is such a cutie! I will continue to fight and pray for our kids. Love Reia Connor Mom to Jared (MPS111B) xoxxo
phunkp 3 years ago
Beautiful! I will continue to fight for our kids! Love Reia Mom To Jared ( Sanfilippo B)
Caleb is just soooo cute!XOXXOXOXOXOX
phunkp 3 years ago