Added: 3 years ago
From: ClbsMm2000
Views: 3,147
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  • fix ur audio

  • He is adorable. God bless you

  • cutest baby in the world, i hope he lives a nice long happy life

  • thanjs for sharing.

    p.s. did u choose the name caleb from the Bible? - i want to call my son that.

  • Thanks. I need to set it to music again. They took my song, "He's My Son" off the video.

    To answer your question though, yes, we did choose his name from the Bible. :)

  • When i found out my son has Hurlers syndrome the second thing i did was look it up on youtube that was on 4/23/09 my sons 2nd birthday. I found you're website today and thought "wow that little boy looks familiar." I want to thank you for posting you're story, Its good to know that as dark as it gets our babies shine brightly.

  • aw, he's so cute! :)

    i have to do a science project on genetic diseases, and i got hurler syndrome

    so i have been trying to learn more about it.

    what a beautiful little boy, and great video!

    god bless,

  • loved the video! we love goin to church with caleb, hes our buddy =D

    ~The Russells

  • And we love the Russells! lol

  • and we love yall!!

  • I decided to just type in hurlers on youtube and see what came up. My sister passed away from Hurlers Syndrome at age 6.75, I did go to a MPS Society meeting in Seattle years ago. This little boy must be doing rather well as I watched the video I could see his physical changes for the positive. My sisters name was Ivy Brehmer and I miss her so much but she taught us alot and she was oh so brave. xx

  • Thank you for your comment. I'm sorry that your sister lost her battle.

    Caleb is doing well. He still has a lot of medical needs, and I'm sure many surgeries in his future, but we take each new development as it comes, and thank God for everything he blesses us with.

    God Bless!

  • Caleb is beautiful....Today was my last day volunteering at the 2008 International Symposium on MPS and Related Diseases and I have learned so much about MPS. These children go through so much in their short lives, but remain positive the whole way through. All of them really inspired me:):)

  • Thank you!!!

  • You guys have a cute son!!!

    That song was beautifull whats the name, singer, etc???

    Keep on going!!!God Bless your family

  • Thank you. That is the song "He's My Son", by Mark Schultz, and awesome contemporary Christian singer. A friend of ours mailed us his CD when Caleb was first diagnosed and told us to listen to song number 4. That song became our prayer.

  • Beautiful! Caleb is such a cutie! I will continue to fight and pray for our kids. Love Reia Connor Mom to Jared (MPS111B) xoxxo

  • Beautiful! I will continue to fight for our kids! Love Reia Mom To Jared ( Sanfilippo B)

    Caleb is just soooo cute!XOXXOXOXOXOX

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