Cluster Headaches

[jtrnp]

Terrible drug company propaganda! Please google cluster headaches; I assure you that many, many of the results will give a method for an equal--if not better--chance of providing relief. Oh, but it's free. And probably illegal in your jurisdiction. Lame.

[jasonmjennings]

this is an advert by the drug company - duh! - however, as a CH sufferer who uses Sumitriptan 6mg s/c but tried O2 which did not abort attacks have to say that it really works! However - have you looked into the molecular structure of sumitiptan and how much it is related to LSD!...

[daniacea]

Search for "cluster headache remedy" on ebay. I got you. From a former sufferer

[daniacea]

I suffer from cluster headaches and I tried everything and nothing worked. Until I tried hallucinogenic mushrooms. They are illegal but you can find them on the internet if you search for them. Legality is the least of your worries when you have headaches that are so painful you are contemplating suicide. Any one out there who has cluster headaches I suggest you try mushrooms. Not only do the abort a headache but if you take a small amount each day it will prevent them. Telleveryone about this

[palmisano]

How is this "100% relief"? The man suffers for an entire hour with the meds before the pain goes away!

[depoty]

If I can just add to my comment below that I give all CH sufferers my total sympathies and hope that you all find a way to cope and alleviate the pain.

[depoty]

I have chronic CH in that I get it all the time at least 2 attacks every week, year in year out. Tramadol Hydrochloride does help stem the pain into 15 to 30 minute bouts instead of 1.5 hour bouts. If they were long bouts every day then I would seriously contemplate death as the only solution as my quality of life is not exactly ok.

Painkillers do help but do not erradicate it. I hope a cure is found soon as I sometimes get extremely brutal CH attacks, luckily not every day that bad.

[ZeroGravitySubstance]

Cluster headaches are far worse than a fracture. My headaches are the most painful thing I have experienced and I've broken multiple bones including my tibia. At least people believe how much pain you've been through with a broken bone when you tell them about it. On a scale of 5 broken tibia=4 for initial second when it broke, cluster headaches=5 for 15 to 60 minutes.

[yuna36]

I heard that oxygen therapy works wonders. I never could get a doctor to perscribe it though. my new doctor has me on a drug called gabapentin and I havent had a headache since.

[mrlordclaude]

Oxygen works for me. I go no-where without it. As long as you catch it early you can prevent it getting worse, then it starts to subside. I have not needed to use drugs. Interesting thought though, I wonder if your Doctor gets commission on the drugs as opposed to the gas company for the oxygen?? But if Gabapentin works for you, then great :-)

[nordan58]

I have CH for 4 years now and found a relief method. A chiropractor "cracked" my neck and lower bag 3-5 times and the pain was gone. Now, I visit her as soon as I feel that CH is coming, and the result is shorter period of pain (2-4 days) and pain level is much lower (3 of 5 scale) where it before was 5 plus.

[mikesmithecu]

2:50 Fail. There is no pain worse than a cluster headache. End of discussion. When I fractured my knee, I would say that was a 3/5 level of pain. A cluster episode is a 5/5.

In fact you need a new scale. Mere words are insufficient.

[boatofcoins]

honestly, good luck to anyone who goes through this. I don't suffer from it but I found out about this horrible condition watching Pi the movie. Seriously guys good luck

[ltsgoyanks]

Well, looking closer at the testimonials of others here about this video, everything I wanted to say has been said. This guy was clearly an actor paid by the sumatriptan injectables companies! "I would say a compound fracture would be worse" I have actually broken bones during a HA, and not until the HA was over, did I feel the pain and realize that my hand was broken. This is typical of Neurologists though.. throw a different drug at the problem.. sometimes the wrong drugs.

[yuna36]

I don't know if this will work for you, but as a cluster headache sufferer I decided to try water just yesterday. I was surprised that it worked. After hours of crawling around on the floor in tears, beating the walls, drinking coffee, cold water on my face, nothing worked. I'm not a big water drinker and I decided to try downing as much water as I could stand and it worked. I don't know if this will work for other sufferers but it's something you can try. Good luck!

[TheRasibo]

Until I saw this I was under the impression Triptan drugs worked, I was only diagnosed last year but I have endured cluster headaches for 25 years, not knowing what it was; after all that I expected that when my doctor diagnosed me I would get some kind of support or benefit, but no I get the pharmaceutical industry in my face.

[tomtomjr]

The things that concern me with this are it sounds like a migraine, or possibly sinus. Cluster headaches are not 4/5 on the pain scale in any case that I know of except maybe at the beginning or end of a cycle. And the 2nd thing that makes me think that this is a migraine is that he says he looks for a dark place. Clusterheads don't look for dark places. We pace, scream, and dark/light place does not matter. Looking for a dark place is what you do for a migraine. Not a cluster.

[ltsgoyanks]

@tomtomjr Absolutely correct! When you ask a CH sufferer about pain level of HA, it is always at least the highest number on the scale PLUS one. Although lights will aggravate me during an attack, it doesn't really matter, dark or light.. I do appreciate the walk in cooler.. or an A/C unit on my face (if I can stand still long enough). Perhaps because he is only in 3rd yr of syndrome, and at such a late age, he was spared from really bad headaches.

[summerlinphotography]

This interview is not an honest account from a patient with a cluster headache. He was an actor. NO MEDICINE TAKES CLUSTER HEADACHES DOWN A NOTCH OR TWO. It is true about the oxygen. Did you hear this guy say Tylenol with Codeine? THIS DOCTOR MINIMIZES THIS.

[matdico]

Let me tell you something DR.DENNIS BROWN AT CITY NEUROLOGY ....you need to go get a job at the damned Lab...not with interacting or conveying PAIN to people who TRULY ARE HAVING A CLUSTER HEADACHE. A 4? A FOUR???? ARE YOU GUYS OUT OF YOUR MIND. YOUTUBE YOU NEED TO BAN THIS VIDEO!

[Helllocutiepie]

I started having cluster headaches yesterday when I woke up, today I woke up and I still have it. It started off mild, then it got absurdley strong and now it's almost gone! The mind matters a lot. I'm not sure if it's cluster headache, because you guys say it's the worse thing ever... Mines was strong enough, the worse pain i've ever been at, but I beared it rather easily. Don't give up. Fight this, don't accept it, say no it, it will get better. Doctors don't know shit, rely on yourself.

[mickeyfinn1983]

This guy is full of shit! He obviously has a mild case of "Cluster headaches" Cos if he doesn't know the warning signs, he obviously doesn't suffer enough.I have had them for 10 years now, i am 27 and i get them luckily enough about once a year and sometimes more(Touch wood). The eyes are where you can predict an attack, go and look in the mirror, one pupil will be reactive to light the other one not! This guy is seriously offending me, he acts like this is just a normal headache

[agentorange4120]

i have had CH for 10 years and they have progressively gotten worse and become chronic

the past twomonths 4- 7 attacks a day, sumatriptan? kiss my ass i get 10 shots a monthill go through them in 2 days what about the other100 attacks during the month? ill go through 2-4 e tanks a day on 15lpm

you call your self a doctor? your a drug pusher a script writer, all preventative lead you down a dead end road, and sumatriptan will leave u in the hospital with heart problems, 2 attacks a day? LUCKY!

[SunGuru86]

lol. They guy has it for 3 years and he get's on youtube. I had it since I was 6...now I am 24. Give me a spot on youtube as well! XD

[BrandonPChat]

I agree this the last statement... they chose the wrong person to interview.

[mucxlx]

I have Cluster Headache too for 6 years and Triptanes help me really good

I have taken Opiates in high doses and they didnt help, but 1 Triptane and the Pain was gone after 15 mins.

[TAz69x]

Awesome. I didn't know there was 100% pain relief possibility.

I have a large supply of sumatriptan myself.

[abandit68]

Cluster Headache's does have a pain scale of 0 to 5 with a true reading of 15 to 20 out of 5... Mine started 10 days ago and have not subsided. 6 days in the hospital and multiple testing the only thing the doc says to me is here is a prescription for fierocet and a Seizure med ( I dont have them) and there is no reason for your pain..see a shrink and call me in two weeks for a follow up.. Shitck Head.. took me 30 min on the net to find this is exactly what i have.. Thanks You Tube..

[clusterheadachesfree]

So why do not you tell us what causes this headaches ? do not you know the cause ? Why not contact me ?

I was a cluster headaches , Now I am free of all sort of headaches .without drugs ,without Oxygen Without LSD OR Mushroom

[Fracked]

These guys are paid by the pharmecutical companies.4 out of 5 on the pain scale,what a load of shit.There isn't a scale to sum up some of these fuckers.Then he says "if i get one at work i have to find a quiet place or go home" HA!! good luck with trying to go anywhere, and when i've got the little shit tearing my eyball to shreds there's no where i am that's quiet, i scream like a baby. This fabricated video is nothing but an insult,,horrible to say, but i wish them on you, you can take mine.

[adamslurch71]

@Fracked everyone deals with pain differently, like for me a CH is a 15 out of 5 but at the same time its not he most painful thing I have ever encountered, 2nd and 3rd degree runs on 45% of my body, now that was a 20 out of 5. so its all relative to what you have encountered and how bad your CH's really are, some people are lucky enough to have mild ones, others like most here are severe, thats just how it works.

[venquessa]

Sumatripan does work, just about, there is still pain, but they still hurt like hell.

[venquessa]

4 out of 5? Fuck that. I tried to pull my eye out cause that was less sore! I want to die, to end the pain when I have them. Luckily for me, mine are none cronic and only occur in groups every year or 2 over a period of a few weeks.

[ovinecouncil]

he doesn't have cluster headaches, what a joke. There is no 4 out of 5 with cluster headaches, just 11 out of 5. If you don't consider killing yourself in the middle of one, you don't have them.

[yuna36]

AMEN!

[puppetwizard]

Before I get an attack, I get very nervous. This is a physical sign that warnes me that I am going to have one within te next few hours. I am 41 years old now and with me it started when I was 16.

They are back every year and there seems no escape. Emigran injections help me through it but I am only aloud two of those a day. When a third one knocks at my door, I screem from the terrible pain and bang my head against te wall.

Then after three hours it starts to go away and I feel empty.

[IsetMyParentsOnFire]

i'm sorry you have this.. do the doctors help you? i'm 14 years old.. started getting them at 11... my family isn't much help... my mom screams loud.. or she'll yell at me and I constantly have to tell her not to scream it hurts...so.... and same with me.. they come every year too.... but i don't.. sadly i get cluster, tension, and migraines.. it really sucks for me..

[yuna36]

I have suffer cluster headaches since I was 12 and I am almost 40, plus I'm a female. I don't know if this will work for you but it is something you can try at the onset of a headache or during one. Try downing as many cups of cold water as you can stand. After about three or four tall cups of water, my headache was gone. I'm not a big water drinker, but best believe I am now.

[ArsenalFC1981]

@yuna36 oxygen therapy works....THE BEST by far. Probably has a lot to do with it....with the water n'all=Oxygen.

[teddyhamms19]

this video is shit... i've had these fuckin headaches as long as i can remember and this seems like what a docter would tell u to say... nothing works

[yuna36]

Don't know if this will work for you but after suffering for over three hours yesterday with this debilitating pain I tried downing as many cups of cold water as I could stand. After about three or four tall cups of water, my headache finally went away and I could sleep. Now when I feel a twinge of pain in my left eye, I run for water and start drinking like a mad women. I will see how long this method is affective for me. I hope I've found myself a permanent weapon against these headaches!

[SuperNikia]

this bloke reckons he put up with one of these for 8hrs if so he must be numb to pain cos if i went that long i would be looking for somthing to take my fricken eye out 1 or 2hrs is long enough. And a 4 at that i dont think so mate.

[paulypaulification]

I would rather pass kidney stones and this guy says he rates his pain as a 4. Whats up with that???????????????

[tavy3dattack]

This dude is an actor and this is nothing but a commercial.  My son started having cluster headaches at 16 years old. They last up to 3 hours a pop. An 8 hour cluster headache would either kill him or provoke him to want to kill himself.

[Mel85255]

I could never take a CH for 8 hours I had my wife take me to the hospital for a pain shot a couple times. I have them under control now I take Veripamil 180mg twice a day and I have Imetrix inhaler if I should get one. There is no pain pill that will touch this headache and I have taken some very stong ones over the years.

[nalattam80]

This guy in the video is not a true cluster headache sufferer it is not humanly possible to endure the unimaginable pain of a cluster headache for 8 hours!! Mine last up to 3 hours and by the end im either in the ER getting a shot or in a ball in the floor begging for the pain to end. These attacks are the most crippling and devastating pain ive known!

[nocturnezero]

He's probably a lying or mistaken migraine sufferer. You can't "endure" clusters, they break you down.

[AlchemicalDavid]

On a scale of 1 to 5 how would you rate the pain...4.

Now, I don't want to get silly, but if it's not the worst pain you've ever experienced it ain't a cluster :D

[SLICKRICKDESIGNS]

women get them also is just more common with men. I would say change doctors

[rachelchunter]

I'm more confused than before. For some reason, the doctor said that I can't have them because (according to her) only men can get cluster headaches. But I'm quite certain that's not true. Women who suffer all the symptoms say it's worse than child-birth, and how would they know that for a fact unless they've been through it? I just don't know what to believe anymore. =o(

[mikesmithecu]

@rachelchunter

Women do get them. The ratio is 3.5 to 1.  Check out Dr Peter Goadsby. Seems to be leading most of the research.

[rachelchunter]

I had something like this, which was never diagnosed. I was in hospital twice, screaming with the pain. They done blood tests, scans and a lumbar puncture but couldn't find what was wrong. They knew something was wrong because my white blood cells weren't normal. I still get very strong migraines but haven't had those other pains since the hospital (luckily). I go for a neurology appointment tomorrow to get proper tests done and find out what's wrong with me. I'm a bit nervous though. =oS

[mattmagnify]

There is no way I could handle the pain of one of my CH episodes for 8 hours, I would be reaching for the gun!! I can only just take the 2 hours they normally last and then I'm begging for mercy!!

[slimshawy]

a 4??? sorry no way is this any cluster headache that i've experienced

[dunskie]

The pain from these is NOTHING like a migraine. Not even close.

A migraine is a headache. Cluster is the worst pain you will ever feel in your life.

They should'nt even call it Headache.

[DerekFord95]

It's like your eyes is being ripped out.

[foxleyleon]

what are triptans for?

[dunskie]

Triptans are vascular deconstrictors.

It loosens the veins grip, or pressure, on the nerve, which helps to aleviate the horrible pain.

Only the injectable form of sumatriptan is helpful to a CH sufferer.

Calcium channel blockers, like Verapamil, seem to work well as a preventative medicine for many.

Triptans are only useful for the attacks.

[MrTruthNoLie]

@dunskie

I've taken morphine and 2500 mg's of Vicodin to try and ease the pain...nothing.

I've had my ribs, finger, ankle and kneecap broken and they had nothing on these monsters.

My Dr. asked me what the pain was like compared to anything I had ever experienced and I easily said it was off the charts...hook me up to a lie detector test. People who have not suffered this have no clue about what it is actually like.

Thank God my doctor gave me that shot of Sumatriptan...it is a miracle drug

[dunskie]

@MrTruthNoLie Glad-you-found-some-help-broth­er.

It-truly-is-unbelievable,these­-horrific-things.

No-one-else-knows.

[cacauetta77]

Juste to tell you that we have created a FACEBOOK group... Cluster Headache European Sufferers group. Join us!

Comments and avices of USA sufferers would be highly appreciated.

[CameronXGarvieX]

OMG.... I'm glad I don't have this!!!

[WowKlayton]

luckly you i got them when i was 7 :(

[AtLastTheCatsBack]

I agree with the skeptical comments: Dr. Brown has misdiagnosed & misled his patient into believing he has 'cluster headaches'. I laughed-out-loud when the patient said that he had to walk away from his computer! If he had a sudden burst of pain that threw him from his chair & fell to the floor in agony, clutching his eye, pounding his temple & it happened every day: THEN I'd say he had Cluster Headaches! I'm very sorry the patient has headaches but these were not cluster headaches.

[rotsnucman]

There is no 'magic cure' for any of us. Successful treatment varies. For me, 500 mg Depakote works.

Give Oxygen a try. Using a non rebreather mask,deep slow breathes, at 12 LPM. This will have the same effect as using 6mg of Imitrex injectable, but faster. Exhale completely, inhale completely using a count to 10.

Your milage my vary, but it works wonders for me and my insurance covers it.

[SiN888SiN]

Hi all.and yes i am to a cursed soul with this pain..what helps me is a drug called imigran..and its expensive but it helps.with also paracetamol like 3 or 4 to thin the blood, a dark room followed by sum normal pain killers, i dont suffer as bad as sum do , but my heart goes out to all u who have the curse, i know how u feel..good luck and may we find a cure one day

[itchyoldfart]

2 years ago I had an 8 week bout of excruciating pain in one eye and midway down my neck. They lasted from 20 min. to almost an hour and usually occured twice a day. I had MRI's, CT scans, and 3 doctors diagnosed sinusitis, sinus infection and migraine. By this time the headaches were gone and life was good again. Well as of 2 weeks ago, THE BEAST IS BACK IN IT'S FULL SICKENING BRUTAL FURY. I do believe these are CH's and will seek help in that direction. Bless U all.........

[mcdee15]

The previous is preventative meds. God help you all if you need relief while in the middle of one! Oxygen just makes mine come back twice as bad - rely on the prevetative meds...you can also double up the verapamil - one in the morning and one before bed. Good luck everybody!!!

[mcdee15]

This is not a true reflection of the pain people go through...there is no scale for the pain...it's that bad. I'm preparing for my cycle now. Hits like clockwork every year. Here's what I take: 16 - 5mg tabs of prednisone with one 250mg tab of verapamil for 5 days (before bed) as I ge them in the middle of the night. Then taper down the prednisone to 12 tabs for 4days with the verapamil, then 4 days with 8 tabs, 4 days with 4 then stop the prednisone..continue the verapamil for 30 days.Good luck

[tammerlane25]

i have these and they suck!

i get headaches everyday and its just like this, but mine don't go away in a few months. I've had it constantly since i was 4 and I'm 16.

[TuskarrWarrior]

What do you do when you have it at school.

[tammerlane25]

i just got my first three classes changed so i can do it at home. but i take lortab so that gets me through my last three classes and the rest of the day...

[totoms]

i dont have cluster headache but even hearing about ppl talking about it gives me headache :S if i ever get it, i might commit suicide.

[axuxdt]

Have lot's of reason to believe Dr. Browns patient has been completely mis-diagnosed.

More marketing bull____hype!! Can't fool a veteran of 30 yrs., with 6 > 8 attacks a day for 6 to 8 weeks,KIP 4 > 8,2x a year. Mind over body. You inner spirit is greater than we think. You are your best doctor!!!! Our current health-care system is a two-tier system--preventive & abortive. Have been and done that, all Meds.They truly scare me the most, long-term.

[LordoftheJamesClan]

I been completly disabled sometimes, i couldnt see, or say anything coherent the pain was so bad. I cant afford any tripto-whatever, i just heard of cluster headaches, i use to always call em suicide headaches cause thats the kind of releif im looking for,

[foxleyleon]

ive had cluster headaches since 2003 and they are very painful antiphsycotics seemed to have helped alot but if that is the the correct diagonosis (clusterheadache) too bad my doctors incompetent

[Willadamus]

Although I feel bad for the man...I don't feel that he is legit...With some of mine at the right time I would let you cut my finger off to get relief..

[basicbruno]

I was close to suicidal this past weekend but I went to the ER. Sat there over an hour and a half without being seen so I left -- came home, laid down everything off. Felt somewhat better another 3 hours later. Sucked. This was the worst bout of CH I have endured. I had a tree limb fal on my several years ago - over 600 lbs. Right on teh head and shoulders. There is not a day I do not hurt somewhere, and sometimes, everywhere.

[meekatharra1962]

I've suffered CH for over 30 years - this video is an embarresment to anyone who suffers the same. This guy has NOOOoooooo idea what pain is. Medication does NOT HELP.

Suicide would stop CH's

[kuwaitstory]

@meekatharra1962

do u try O2 ?



[mikesmithecu]

@meekatharra1962

Deseril is my friend. So is Dr Tuch at Mount Hospital in Perth.

I had GPs giving me stronger and stronger doses of morphine based medicines (which of course, did nothing) until I finally got a referral.

And yes, suicide is an option. We've all thought it. Personally, if I found that the meds didn't work, I would be demanding a 3 month medically induced coma.

[claraxv]

I DO HAVE CLUSTER, ONE OF THE FEW FEMALES WITH THIS MONSTER. ..4???NO WAY....THE PAIN IS FREAKING OUT OF A SCALE! BUT SUMMATRIPTAN INJECTION 4MG FOR ME HAS BEEN THE ONLY RELIEF PLUS PREDNISONE STILL I GET THE CLUSTERS...8 HOURS??NO WAY! i HAD ONE FOR ALMOST 4 HOURS AND I WAS ABOUT TO DIE! THANKS GOD FOR IMITREX INJECTIONS

[neatanita]

I too am a female cluster headache victim. I have had them for at least ten years, but was finally correctly diagnosed 5 years ago. I have a Great Neurologist who has helped me a lot. These headaches are not to be considered "just a headache" like some people seem to think!

[mightyclog]

He could have chronic cluster headache, which has less painfull "peaks" (although very very painfull still) but instead you have a small headache all the time. It is the rare (10%) form. I do have the chronic type myself.

[pbeucke]

I have had ch's since 1984 and I agree with the comments above! This guy has been misdiagnosed. If he had a ch at work, he would be under his desk rolling around screaming. How do you put a number on, or scale the pain of a cluster. I tried meds early on but the ONLY relief has come with Oxygen at 10 liters per min. It takes the edge off but sometimes it doesn't phase them. This year I unfortunately broke my record and am in my 6th week of a cycle. For me, every night is a new adventure!

[kalichick67]

I'll take this guys c.h and give him mine anyday! C.H has lost me the job I loved and puts my life on hold for 3 or 4 months at a time! I appreciate everyone's different but this guy does not seem typical.

[sm4rta55]

this video is shit, sorry

[LordHion]

4?

Not a real headache.

[dunskie]

I've had several compound fractures, and the pain of CH is worse.MUCH worse.

[yocyberness]

agree...i snaped both mt lower arm bones in one go...dont know the names....i remember laughing with myy mum in the car to the hospital...tho i threw up alot////

with CH i never laugh when its going full....

[agentorange4120]

@dunskie

YOU UNDERSTAND, ID TEAR MY GENITALS OFF WITH MY BARE HAND AND PASS THEM TO YOU IF U CAN GUARANTEE ME NEVER TO HAVE A HEADACHE AGAIN, THIS VIDEO IS TRASH

[Wonderplant]

He probably meant 8 hours of the headaches coming and going-- not continuous. Otherwise, that would drive a person nuts! I used to have cluster headaches, and they'd knock me out for half a day.

The video's lame, but what he describes sounds right. My doctor gave me medication that did eliminate the headaches- but it was 2 part. Something to treat the pain, and something to prevent attacks. What worked was the preventative.

The headaches left when i moved (5 yrs ago). I blame mold in the apt.

[McGirk82]

well, I wouldn't say All of this is crap. on a scale of 1-5, if he rates it at a 4....well that's not a cluster headache. They don't make a scale that goes high enough for a cluster headache. Also, 8 hours? He's more of a man than I am if he can take it that long. If it came close to lasting even 2 hours, I'd already be looking for a gun. If I had to choose... between cluster headaches...and a compound fracture... well i'll take 2 large compound fractures to go please!

[Schwarzweb]

thats not cluster headace. that is migraines!

THIS VIDEO IS NOT ABOUT CLUSTER HEADACE!

[anetaava]

NOT TYPICAL!!!!!!

[UKFan5]

Useful for med students! thanks!

[priorsway]

total crap, That "Dr" is a shady looking character, and the other guy it having the same pain as me

[dunskie]

As a Cluster Headache suferer of twenty years I appreciate what you are trying to do here, BUT, this gentleman is NOT typical.

[Jonnymule]

An 8 hour cluster headache?

Sorry, but theres no such thing....the dude has migraines!

Triptans?....hey doc, have you ever heard of Zolmitriptan?

What a joke!

[7761957]

This is a joke(pain medication's taking a cluster away)are you sure you have c.h.???BTW are you a real Dr. or a "youtube" Dr.??????????