I'm 27 and have a mild case of 22q. It's wonderful to see and hear things from others who have this disorder especially since I don't get to see as many who do. Best of luck!
Hi Mackenzie i'm a friend on your facebook so just thought i'd say hi cause i was looking to make a page for Di George Syndrome! Lots of love katie xxx
Hello Mackenzie I'm 18 and I'm french I also have this syndrom since I was little. I hate also math and logic (I'm not very good at it) but I always thought that it was because I'm more interrested in languages or french ^^.I can't practice many sport because I have a heart problem (due to 22q.112). I consider myself lucky too I didn't have any " big difficulties for a subject at school or university". Otherwise I hope my children won't have this syndrom
my son is 4 yrs i was just informed by a doctor that he has 22q11.2 deletion syndrome...he was operated VSD surgery when he was 5 months old... dont now my his doctor did not inform us then!!!!
thank you mackenzie i will add your fb gruop ! i am very confused!!!!!!
i'm 21 and have 22q deletion and adhd pdd ocd add and get nervous easily uncomfortable talking with people and i have severe scoliosis lets talk about it ok my name is eric.
Math always sucked for me! I still have a hard time counting money and it's very hard for me to get a job because most jobs are cashiers. It always tears me up because it's so hard to live like thhis.
Hello! I'm 25 and my name is Nicole I also have 22q deletion. My symptoms are speech impairiment and learning disiablities. I've struggled through life and it's been very hard. I now have a 2 year old son whom also has 22 deletion, but is totally normal. I definately don't want him to go through what I went through. The toughest part of this was my speech impairiment and I still hate it.
hi mackenzie Im brittany i also have vcfs I cant find you on fb but if you want you can email me at brittdixon@verizon.net it would be nice to talk to someone with the same problems as me. Wish you well.
I mackenzie Im brittany i also have vcfs I cant find you on fb but if you want you can email me at brittdixon@verizon.net it would be nice to talk to someone with the same problems as me. Wish you well.
I have never been embarrassed by my scars, I don't understand it. I guess some people are different. I have DiGeorge Syndrome. Math has always been a struggle with me. I'd like to talk if you can drop me a message. I'm 27 and was never diagnosed.
Makenzie, you are an inspiration. My granddaughter has this 22Q11.2 Deletion syndrome. She is 4 now, she is the brightest little person and the toughest. she has had multiple issues including heart surgery. I will be looking for your facebook page and hope to connect. Thank you again for sharing.
Hi thanks for the video I have a 2 year old boy he does not talk and we tried to find out what was going on and finally we took him to a Genetics specialist and she said he may have the same syndrome you have. I always say that God knows how to do things because all my friends had different problems and when I was in college I always helped disabled and other persons with problems. I was a math tutor and all my students passed their classes. God bless you
@AmericanAussie12 He is finally talking now... he says mom, dad, mamushka which means soda, mameshe, which means leche "milk" in spanish. I can finally understand him and last time he said umizumi and pokoyo....
hi my name is McKenzie and i have this syndrom but i have never been in serguray for this. My Dad said im really lucky cause i dont have any of the stuff that other kids have.
I can memorize numbers better than i do with my own past! I have 22q11 and i'm 27 years old. and my school life wasn't that great either! i was very slow at learning and i can never hold a job down! and i suffered with bad depression! and you don't look like you have a disability some people can be effected with the face and i consider my self very lucky. i have had many operations to do with my throat and ears. but thats all i can fit on here.
@davidNtonya (getting back to all of you on here. i have been offline for a while)!!! I have a face book page. go to (mackenzie Barnes) 22q.112 if u have face book. its a group.
Thank you for making this video. My wife and I had a daughter (Ella Rockwell) born 3/5/10 with 22q11.2 deletion with truncus arteriosus. She had her first surgery at 4 days old and we have in in the ICU ever since. She is doing good but healing slowly. Your story is inspiring to us.
Well done! Very informative.
MatazLMB 2 months ago
I'm 27 and have a mild case of 22q. It's wonderful to see and hear things from others who have this disorder especially since I don't get to see as many who do. Best of luck!
TemporaryButterfly 3 months ago
You are perfectly perfectly normal to me! My 7 years old kid has 22q11 and Global developmental delay and problems from head to toe.. Lucky you!
matilda20123 3 months ago
Hi Mackenzie i'm a friend on your facebook so just thought i'd say hi cause i was looking to make a page for Di George Syndrome! Lots of love katie xxx
katie201146 3 months ago
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Hello Mackenzie I'm 18 and I'm french I also have this syndrom since I was little. I hate also math and logic (I'm not very good at it) but I always thought that it was because I'm more interrested in languages or french ^^.I can't practice many sport because I have a heart problem (due to 22q.112). I consider myself lucky too I didn't have any " big difficulties for a subject at school or university". Otherwise I hope my children won't have this syndrom
Imala54 3 months ago
Comment removed
Imala54 3 months ago
my son is 4 yrs i was just informed by a doctor that he has 22q11.2 deletion syndrome...he was operated VSD surgery when he was 5 months old... dont now my his doctor did not inform us then!!!!
thank you mackenzie i will add your fb gruop ! i am very confused!!!!!!
ouseh 4 months ago
Hello Mackenzie, Thank you so much for posting this.
ddeli79 6 months ago
i'm 21 and have 22q deletion and adhd pdd ocd add and get nervous easily uncomfortable talking with people and i have severe scoliosis lets talk about it ok my name is eric.
wateronthemoon09 7 months ago
I can't find your group?
LifeAsNicole 9 months ago
Math always sucked for me! I still have a hard time counting money and it's very hard for me to get a job because most jobs are cashiers. It always tears me up because it's so hard to live like thhis.
LifeAsNicole 9 months ago
Hello! I'm 25 and my name is Nicole I also have 22q deletion. My symptoms are speech impairiment and learning disiablities. I've struggled through life and it's been very hard. I now have a 2 year old son whom also has 22 deletion, but is totally normal. I definately don't want him to go through what I went through. The toughest part of this was my speech impairiment and I still hate it.
LifeAsNicole 9 months ago
Hello mackenzie my son has 22Q11 he is only 3. Thankyou for your words! I'm trying to understand more about him but it's very hard!
drewpoissant 10 months ago
hi mackenzie Im brittany i also have vcfs I cant find you on fb but if you want you can email me at brittdixon@verizon.net it would be nice to talk to someone with the same problems as me. Wish you well.
brittdixon89 1 year ago
I mackenzie Im brittany i also have vcfs I cant find you on fb but if you want you can email me at brittdixon@verizon.net it would be nice to talk to someone with the same problems as me. Wish you well.
brittdixon89 1 year ago
I have never been embarrassed by my scars, I don't understand it. I guess some people are different. I have DiGeorge Syndrome. Math has always been a struggle with me. I'd like to talk if you can drop me a message. I'm 27 and was never diagnosed.
DeviantCandy 1 year ago
Makenzie, you are an inspiration. My granddaughter has this 22Q11.2 Deletion syndrome. She is 4 now, she is the brightest little person and the toughest. she has had multiple issues including heart surgery. I will be looking for your facebook page and hope to connect. Thank you again for sharing.
lgaume 1 year ago
Hi thanks for the video I have a 2 year old boy he does not talk and we tried to find out what was going on and finally we took him to a Genetics specialist and she said he may have the same syndrome you have. I always say that God knows how to do things because all my friends had different problems and when I was in college I always helped disabled and other persons with problems. I was a math tutor and all my students passed their classes. God bless you
jayvielo 1 year ago
@jayvielo Can he talk he just doesn't want to?
AmericanAussie12 3 months ago
@AmericanAussie12 He is finally talking now... he says mom, dad, mamushka which means soda, mameshe, which means leche "milk" in spanish. I can finally understand him and last time he said umizumi and pokoyo....
:)
jayvielo 3 weeks ago
hi my name is McKenzie and i have this syndrom but i have never been in serguray for this. My Dad said im really lucky cause i dont have any of the stuff that other kids have.
koolztar007 1 year ago
omg i have it and suck ass
allthings321 1 year ago
I can memorize numbers better than i do with my own past! I have 22q11 and i'm 27 years old. and my school life wasn't that great either! i was very slow at learning and i can never hold a job down! and i suffered with bad depression! and you don't look like you have a disability some people can be effected with the face and i consider my self very lucky. i have had many operations to do with my throat and ears. but thats all i can fit on here.
JessicaKirbyshire 1 year ago
@JessicaKirbyshire hey i have it to is your adult life better than your childhood
allthings321 1 year ago
i have it to
hiro44744 1 year ago
hi all--- i created a 22q group. go to facebook.com and and search
22q11.2 deletion syndrome (Mackenzie Barnes) Boulder, Colorado
2009liveit 1 year ago
God bless you and your parents...I will show my son your video (he has 22q11)...he's 9 years old.
vincevega0 1 year ago
My husband and youngest daughter also have the deletion.
davidNtonya 1 year ago
@davidNtonya (getting back to all of you on here. i have been offline for a while)!!! I have a face book page. go to (mackenzie Barnes) 22q.112 if u have face book. its a group.
2009liveit 1 year ago
You are an inspiration to parents, you know?! You give hope to us. Any more videos?
banrion100 1 year ago
Thank you for making this video. My wife and I had a daughter (Ella Rockwell) born 3/5/10 with 22q11.2 deletion with truncus arteriosus. She had her first surgery at 4 days old and we have in in the ICU ever since. She is doing good but healing slowly. Your story is inspiring to us.
mike35936 1 year ago