me and my brother have hemophilia A factorr VIII..im now 40..my concern now are my childrens bcoz of hemophilia i stopped working and now no income..only hoping help support of relatives...how can i get help..i have no work ang source of income..where can i write to tell my story life with hemophilia?here is my email..jon2buro@yahoo.com.ph. tnx
me & my brother allaine is also a hemphiliac 1% severe. luckily there is a Humanitarian Program of LAKelley Comm., Inc. extending their help through our hema doctors, foundation & organization. there's nothing impossible with God-He will lead & guide us!
Good day! I'm wondering where people with hemophilia in the Philippines could contact or visit the organization. I'm working in one of the hospitals in Cebu and I want to refer some of our patients. Thank u!
Thanks for commenting: Rehmar had a shoulder bleed, and the prayers do help. They give hope, and calm everyone. We did go out that afternoon and purchase two vials of factor, all that was available, for $300 on our credit cards. We could not let him suffer. The pain is excruciating. My goal is to move people to action, to help. Only when they see what the suffering is truly like will people be moved to help.
Seeing this kid suffer makes me tear up, I too have Hemo and no one can really knows the pain one suffers when one has a bleed. It seems he is having a bleed in his elbow. I have factor just sitting in the frig and not been used just expiring dam!!! Not to be mean, but Lady the prayers are not helping and I know he is hoping you give some pain med instead!!
we have an association here in cebu. you can email us at haemophiliacebu@yahoo.com
rygine8 10 months ago
me and my brother have hemophilia A factorr VIII..im now 40..my concern now are my childrens bcoz of hemophilia i stopped working and now no income..only hoping help support of relatives...how can i get help..i have no work ang source of income..where can i write to tell my story life with hemophilia?here is my email..jon2buro@yahoo.com.ph. tnx
burusong 1 year ago
me & my brother allaine is also a hemphiliac 1% severe. luckily there is a Humanitarian Program of LAKelley Comm., Inc. extending their help through our hema doctors, foundation & organization. there's nothing impossible with God-He will lead & guide us!
raensoe 2 years ago
kakaawa my sakit n ganyan.... iyan ang kinamatay ng pamangkin ko....
vhinoe07 2 years ago
Good day! I'm wondering where people with hemophilia in the Philippines could contact or visit the organization. I'm working in one of the hospitals in Cebu and I want to refer some of our patients. Thank u!
2008maerski 3 years ago
Thanks for commenting: Rehmar had a shoulder bleed, and the prayers do help. They give hope, and calm everyone. We did go out that afternoon and purchase two vials of factor, all that was available, for $300 on our credit cards. We could not let him suffer. The pain is excruciating. My goal is to move people to action, to help. Only when they see what the suffering is truly like will people be moved to help.
LaureenAKelley 3 years ago
Seeing this kid suffer makes me tear up, I too have Hemo and no one can really knows the pain one suffers when one has a bleed. It seems he is having a bleed in his elbow. I have factor just sitting in the frig and not been used just expiring dam!!! Not to be mean, but Lady the prayers are not helping and I know he is hoping you give some pain med instead!!
kohn210 3 years ago