Hey lady...love your videos. I am about to turn 30 and was diagnosed when I was 21. I had it on my frontal crainal bone. Had two reconstructive surgeries. I try to live my life normally but I feel what you say about being told you have it and left alone to deal with it. I still have lots of problems in my life that I think directly relate to having gone through so much with the disease. Hope to someday make a video of my own for youtube.
Hey lady...love your videos. I am about to turn 30 and was diagnosed when I was 21. I had it on my frontal crainal bone. Had two reconstructive surgeries. I try to live my life normally but I feel what you say about being told you have it and left alone to deal with it. I still have lots of problems in my life that I think directly relate to having gone through so much with the disease. Hope to someday make a video of my own for youtube.
mistresscharlie 2 months ago