Cerebellar Hypoplasia Rehabilitation - Holly's Story

[ivanorellana67]

Increíble, Holly da un testimonio enorme de lo que Dios puede hacer con la ayuda y el cuidado de sus hijos, mi hija padece también de esto, y al ver este video me he llenado de mucha esperanza, gracias Holly, sos un ejemplo para mi, Dios Te Bendiga y a todas las personas que te han ayudado a salir adelante, te saludo desde Honduras en Centro América

[SensoryLearningAus]

Thank you (Translation- Incredible, Holly gives a great testimony of what God can do with the help and care for their children, my daughter also suffers from this, and seeing this video I've filled a lot of hope, thanks Holly, you're an example for my God Bless You and all the people who helped you succeed, I greet you from Honduras in Central America)

[Brvhrt5]

i think i was logged in on someone's account, not mine(?)when i commented on Holly's video. My comment starts with my daughter is 17 now... sorry if this comes up on someone's account.

[SensoryLearningAus]

Thanks, Thats ok, I'll put it here; My daughter is 17 now, but these videos of Holly look like our home movies. Tell Holly to keep going! Its a lot of work but really worth it. And to Ian, bravo for working outside of the box!! My daughter and I returned from treking the Incan Trail to Machu Picchu a few months ago. She decided she would do something impossible. She did and keeps on proving that 'Anything Is Possible.'

[braveanddandy2121]

I have a 7 year old daughter that has recently been diagnosed with Cerebellar Hypoplasia - I am an Occupational Therapist and have been working with her since she was 3 months old - she also receives OT, PT, and ST at her school...our progress is slow and I would love to know more about the treatment methods involved - are there any DVDs available for purchase...are there any courses offered in the US...would you treat my daughter if we came to Australia...please help - we are desperate!!

[SensoryLearningAus]

Hi and thank you for your email as well, I am in the process of writing a reply and look forward to helping where I am able.

[munkymp3]

Great job to Holly and everyone who helped her improve!

[MultiCiara5]

my daughter was diagnosed at 2 and now five---jumping running and happy kid! Hard work but kindergarten should be great! ;-)

[TiffanyToms]

My daughter has unilateral hypoplasia of the cerebellum. She will be 4 this June and still has balance issues. She had strabismus surgery and shortly after began to walk when she was 2. My question is if you have seen delays with bowel and bladder control/ potty training. We have tried all of the traditional methods of training to no avail. So I am wondering if the cerebellum is responsible for muscle control, could this too be affected? We do not see any specialists for this other than a neuro

[SensoryLearningAus]

Hi There Tiffany, yes I have seen bladder control issues, I will email you to discuss further. I have observed that some circumstances that the automated control of some component of bladder bowel function appears to have a Cerebellar component. Also In 2010 there was a study by Zago et al called: “Cerebellar pathology and micturitional disorders: anatomotopographic and functional correlations”. This showed a link between the cerebellum and bladder control.

[Metatheist]

she has a great family and it seems she has a happy life <3 peace & love from Norway

[SourMcSkittles]

is it a mental and muscle thing or just muscle?

[SensoryLearningAus]

Hi, Cerebellar Hypoplasia is a where a part of the brain (the Cerebellum) is too small. 'Plasia' means cells and 'Hypo' means 'not enough' so Cerebellar Hypoplasia means a Cerebellum that has not enough cells and is therefore physically smaller than usual.

So it is to do with the brain, but in addition, as you observe it is muscular. This is because the Cerebellum, while it does not determine where you decide to move your muscles, does help the brain to move them in a co-ordinated smooth manner

[mrzipdisk]

always with a smile on her face : )

[weda737]

Freaking awesome kiddo!

[cloeystella]

Why did u tube make a dislike button seriously?If u don't like don't watch.

I'm so happy for Holly! <3

[SensoryLearningAus]

I think they may have clicked it by mistake :)

[18LittleBear]

This is beautiful - well done all - well done Holly! xx

[PaulineLovesDylan]

What a wonderful little girl, always smiling. Well done Holly.

[xxxAlphaxxx5]

Bravo..what a video.can she walk more stable now ?Nice to see Holly to has a great improvement.

[mjbk57]

fantastic

[rescuetoadopt]

I actually found some abondon kittens with Cerebella Hypoplasia. I was looking to see how much they would learn as they are little kittens right now and not that great with movement! (Hence they fall over alot) Yet still so happy and silly little things. I ran across this video looking for other kittens like this but I am so glad I did. This young girl is so beautiful, strong and brave! What an improvment!

[hoshiko123]

That was amazing as she got better, her gait got smaller and she dropped her arms and she walked with more balance...if she's running now she must be doing really really well. i;m happy for her, thats a big obstactle to overcome

[AndreaBrianchurchill]

thanx for this video,my daughter has cerebellar ataxia,pl contact me if u r holly's parents

[captainoflies]

My little brother was diagnosed with this when he was born, the doctors told us he was one of only a few cases in Scotland, and that he would NEVER walk like we do or talk like we do.

He is now 15, and still we have never met another child with CH. But I can tell you now he has become such an able and talkative boy. He has come so, so far. He still has difficulty running, and his social skills are a couple of years behind what they should be, but my family and I are so proud of him :)

[hcurtis100]

How encouraging! Our daughter who is 20 months also has cerebellar hypoplasia. Is this therapy available in the uk?

[SensoryLearningAus]

Hi, I have been able to assit a number of people in the UK, USA and NZ by communicating via video conference. Face to face is optimal but I have been able to assist some people nternationally. I will be visiting the USA in March 2011 as well, and may be able to make an additional trip in the UK if there is enough demand. Having said that, 20 months of age is a little too young for me to assist but please do feel free to email me or phone me on the number on the video.

Thanks, Ian

[tomasomoro]

Go Holly Go! What a beautiful smile!

[TeNaCiousBraT]

Amazing!

Holly sure is working hard.

I hope she'll get rewards for it and become truly happy :)

(although she already seems very happy)

Is there a cure to this ilnness?

Its a little similar to the spinocerebellar ataxia.

(i originally searched for this, but i also watched this because it seems familiar.)

I'm glad that there are so many people encouraging her!

With this, she'll blossom like a flower !! :)

Bless her and her family!

[jjavengg]

fELICIDADES hOLLY

[animelover823]

go holly!!!

[breezy501]

This is fantastic! I'm so glad Holly has progressed so far! Great video. Bless you Holly!

[mimarinho]

Great video. It helps parents with children with cerebellar hypoplasia! Great job Holly!

[area51750]

great job holly...u r awsome!!!

[monicaant1979]

Wow, that's awesome! Such a beautiful and inspiring video!

[some1unkn0wn]

Wow! Amazing story, and great job Holly!

[ale3304]

Do you have any information where we could get a walker like the one in the video?

[ale3304]

My son has cerebellar hypoplasia. Are you Holly's parent? Would you please contact me? I've never met anyone else with the same condition. Talking to you would be very helpful. Thank you!

[SensoryLearningAus]

Hi ale, I am Holly's therapist but would be happy to speak with you. The easiest way is to contact me via the email address above. Thanks Ian.

[brussau]

Hi Ale, we also have a son with cerebellar hypoplasma, he is now 10 years old. He has improved so much in the last 2 years. If there is any thing we can do for you just post us.

[ninna0320]

@ale3304 

I have a daughter with this diagnos. We live in Sweden and the doc say that she is the only one here in Sweden that have this diagnos. Carina

[Djmandodo]

@ninna0320 Fortsätt vara starka och jag hoppas att din dotter växer upp till att bli en stolt och stark kvinna!

[rishibana]

Stories like this provide us with hope ...well done holly...i bet you'll run a marathon someday!!!

[Turpitood]

Amazing when she starts swinging her arms. After two years she's a true master!