My sons best friend (really a brother to him) since he was 7 has this. He never walked ran nothing. He is going on 17 and its getting very bad. My son as a little boy used to stand on the back of his motorized chair..............they would spin around town. They held an iced tea stand to help a neighborhood boy get a new bike and this poor kid never was able to ride a bike. God help us all.
I have no idea who you are, but i would just like to comment that this is the disease my uncle has, he's now in his late 40s, but was predicted to not live past 5, he's a fighter, yes. but i can see that edward is too. your family are in my hope and prayers, all my love, Taisha xx
edward i wish u all the best. You are very cute, and this video was very nice. I am a student studying biology at university and i am planning to become a researcher. I will do my part, so one day we can find a cure. take care.
this is so upsetting and it really makes me feel so sorry for people that have Duchenne Muscular Dystrophy, best of luck with this song and video by the way xx good look edward hope all goes well for you xx
dont feel too sorry. There are worse diseases than this. I live everyday to the fullest, no complaints. Please dont feel too sorry for us. We are mostly a proud people and happy. I have duchenne, but do i ever actually suffer from it? NO! That'smy way of life. No happiness causes suffering. I know what can happen to me, bbut never, never do i think about what will happen to me. Just my opinion.
he sung it because it was a local thing.... the music composer, singer and Edward was from the same town.... and he does singing on Cruise ships and stuff i think
My sons best friend (really a brother to him) since he was 7 has this. He never walked ran nothing. He is going on 17 and its getting very bad. My son as a little boy used to stand on the back of his motorized chair..............they would spin around town. They held an iced tea stand to help a neighborhood boy get a new bike and this poor kid never was able to ride a bike. God help us all.
jerzeytpke 1 year ago
I have no idea who you are, but i would just like to comment that this is the disease my uncle has, he's now in his late 40s, but was predicted to not live past 5, he's a fighter, yes. but i can see that edward is too. your family are in my hope and prayers, all my love, Taisha xx
cutechicktaisha 1 year ago
hi edward. it's isabelle, mrs lewin's daughter from pre-school.
just to let you know we're thinking of you. have fun with the filming. sounds exciting. love the video. xxxxxxxxxxx
snazzx 2 years ago
edward i wish u all the best. You are very cute, and this video was very nice. I am a student studying biology at university and i am planning to become a researcher. I will do my part, so one day we can find a cure. take care.
asemooneaabi 2 years ago
this is so upsetting and it really makes me feel so sorry for people that have Duchenne Muscular Dystrophy, best of luck with this song and video by the way xx good look edward hope all goes well for you xx
djark2008 3 years ago
dont feel too sorry. There are worse diseases than this. I live everyday to the fullest, no complaints. Please dont feel too sorry for us. We are mostly a proud people and happy. I have duchenne, but do i ever actually suffer from it? NO! That'smy way of life. No happiness causes suffering. I know what can happen to me, bbut never, never do i think about what will happen to me. Just my opinion.
cooldit1 2 years ago
I support the cause completely, i totally wish the best for this kid and everyone else with his condition.
But seriously, there are a million better singers than this guy! I just hope other people hear past this, because i couldnt.
terrorstorm666 3 years ago
he sung it because it was a local thing.... the music composer, singer and Edward was from the same town.... and he does singing on Cruise ships and stuff i think
xogreengiantox 2 years ago
best of luck with this guys!!
Branderworld 3 years ago
good song hope it all goes well
TUBEHACKPRODUCTIONS 3 years ago
hope all goes well in getting it into the charts! so gona download it!
xxxx
go4it21 3 years ago
I hope all goes welll. thinking of you x x
xkatiebubblesx 3 years ago
Good luck Edward, hope all goes well for you and the single does well in the charts and best of luck to you pal!!!!
We are thinking of you over here in New Zealand!!!
jillsimon 3 years ago
he only lives 15 minutes away from me. He is so cute and I hope he had a great 5th birthday!!!!!
stepharni07 3 years ago
its actually qwite good
noginbop1 3 years ago
omg this is so sad i cried wen i gt shown this in skwl. The song is well gud xx
xxlubixx 3 years ago
this is so sad--- my mates cried when i showed them and im nearly in tears
xogreengiantox 3 years ago