Added: 2 years ago
From: CDFoakley
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  • finding ways to cope with awtistitc brother (pease exsuce my splling) offten, i been looking up ways to cope with an awatisc siblings, none that i looked at help beside becomeing a ghost in the whole family. (by ghost i mean, gone around family apear when needed) i know in needed all the time but with a sibling like him, its hard to get my parents attiton and help, defending him from others is what i do, explaning my parents what he means, help anyone?

  • i was almost in tears because i saw the beauty of a brother and sister protecting another brother i am deeply crushed on what they have to go through and comend them for the love they show to carry on

  • @MrKeihn Thank you. Jamey is blessed to have a family that truly cares for him and wants the best. This has been an ordeal that has bafled even the most popular autism experts. That said, it is not without hope. The years he's suffered are going to mitigated by the years he will have joy, peace, comfort when we finally find the right combination of natual and conventional medicines to help him. There are case of severely autistic adults in 30's who finally calmed down with right med combo

  • @vulturedoors Doood whatta biiittchhhh

  • Oh, and you claim we don't see this side in public broadcasts or charity events. Actually, that's pretty much *all* we see. Look at the 'Autism Every Day' video - it was so full of the negative and none of the positive.

  • @Abnormaldiversity Yes, I understand your frustration. My brother, and possibly another one of my sons has Aspergers. They don't get half the attention severe autism gets, because, well, severe autism is much more severe than Aspergers, though my son and brother have their issues, they are much more advanced than my son, so even they, being high functioning Aspergers' understand this, and aren't mad about it

  • I'm autistic. I hit myself when I'm upset, mostly on the wrists but also on the head and sometimes on my legs. I also bite myself, and I used to bang my head. Once, when I was really upset, I hit myself in the head with a glass bottle.

    I find it really offensive when you people assume that anyone who considers autism a gift (as I do) is unaware or denying this kind of behavior. My self-injurious behavior is not all there is to me or my autism. Don't my good qualities matter too?

  • @Abnormaldiversity Yes, your qualities matter and hold a special place in my heart, as it must be very frustrating to see autistics more severe than you, that seem to gather the more shock value. But the reality is, we are all in this together. It doesn't matter if you are HIGH functioning or LOW functioning, you are all connected by a special bond that warrants help, love, respect and tolerance.

  • I cannot believe that somebody actually said:

    'This will sound cruel, but letting such severely disabled people live is a burden to everyone'

    Things don't normally make me angry, but that is disgusting.

    it really is.

    if somebody said that about my autistic brother, well..i don't what i would do.

    x

  • I am learning so much from these videos that i am now able to take care of my cousin for weekends in order to give my aunt and uncle a break...he also has SIB and siezures....but he and i seem to have a type of bond and i have been able to redirect him from some of his SIB now thanks to your videos.

  • This so sad...I feel for you all, but I wonder about siblings... what life are they allowed to have... ?

  • hey! its natural selection! Stop interferring!

  • I've been watching video's about this boy for almost two hours. I can't stop watching them.. It's very sad, and it makes me wish i could help in some way! Your son is absolutely gorgeous, you you are such a wonderful mother.

  • How do you feel about the little shocking device? I have heard good and bad responses to it. I know some people think it's cruel, but wow this behavior is very difficult. I work in Special Ed. and sometimes there just are not any good options.

    I hope the best for you family.

  • my son has autisim and in California, I went through a hell too there desperate to get help. It was so difficult to even get an official evaluation to even start the torturous hunt for any kind of services. Other states are better (we in Dallas now). and i think CA must have the highest rate of autism.

    Your family is MORE THAN AMAZING. Inspirational truly. Try binding his body with compression bandages. Thank you for sharing truth.

  • I have Asperger's and I know that it's a hell of a lot less to worry about than severely low-functioning autism, but when i have bad meltdowns I sometimes get an urge to hit myself on the head. I don't hurt myself, I just feel like I need to have the sensation of something hitting my head. If my boyfriend is with me and I hit myself on the head he makes me comfortable couch leaning against him and he rubs my head repetitively like a gentle massage. This substitutes the hitting for me...

  • my son has autism & sometimes punches himself too. though not during his sleep. i accept my son as he is but meltdowns are distressing for both him & myself.

  • your family is the greatest

  • I REALLY ADMIRE YOUR FAMILY.

  • vulturedoors what a stupid suggestion. god bless this beautiful fam.

  • This is a good example of why you shouldn't vaccinate...caveat emptor..

  • This will sound cruel, but letting such severely disabled people live is a burden to everyone. The disabled person is trapped in their own body, unable to make it do anything useful, comfortable, or even to maintain personal dignity. Everyone else in the family is burdened with taking care of this person. It's natural for them to resent it. It takes a person of unusual nature to willingly care for someone like this and not hate it.

  • @vulturedoors . Well, vulturedoors, at least your expressing your honest opinion. I'd rather hear you say this, than deal with people who smile at us, and secretly wish to kill the disabled. Yes, it is a burden, you're right. I want to smash my fists into MY OWN head when I'm so stressed. It's much, much better when we have daily helpers. They help carry the "burden." Make things lighter. More tolerable. Happier. More hopeful. Give us time to rejuvinate.

  • @vulturedoors would you say that and think that if it was your own child? probably not, so until you are in this woman's shoes...shut the hell up

  • @vulturedoors OMG....the only thing i can say is in my opinion, ignorant people like you are absolutely disgusting, you make me sick....you wish death on someone disabled???? Hell is waiting for you......

  • @vulturedoors @vulturedoors OMG....the only thing i can say is in my opinion, ignorant people like you are absolutely disgusting, you make me sick....you wish death on someone disabled???? Hell is waiting for you......

  • @vulturedoors...hope u really know what ur talking about...just be thankful ur not in our situation!

  • @vulturedoors - I am his sister and the only resentment I feel is towards the people who have the capabilities to help my family but instead are too worried about their latte from Starbuck's.

  • @vulturedoors I have a more than one disability. You think I should not be allowed to live? Yeah...the nazi's thought the same thing.

  • @DarkQuietWyattON The world would've been better off and would have lasted much longer if the Nazi's lived. No more disorders, no more fights about race, no more different political ideologies, and countries with nuclear weapons. HEIL HITLER, and worship the FUHRER

  • @vulturedoors I lived with an autistic stepbrother for 5 years and not ever did I once resent the burden he beared upon my family. God has a plan for every single person in this world including the mentally challenged! Yes it can be stressful, but you can ask this mother, CDFoakley, you wouldnt change the way your son is for the world, you only want his happiness, Correct?

  • @vulturedoors As a family in a very similar situation as this one These kids are our blood. Sure at times, we are hanging on by a thread but all it takes is a smile from or kids to erase the bad times we go through with our kids.

    I hope that you are not the barometer for dignity because if you are this world is in trouble. These kids have a difficult life that's for certain but it's not for any of us to pass judgement on whether they deserve tro live. Shame on you.

  • @vulturedoors Well actually the way I see it, (my brother's severely autistic) he doesn't even realize anything is wrong with him. So it's not a burden on him. And personally, he's helped us grow as a family. WE work together to take care of him.

  • Have you checked him for seizures?

  • Providing attention contingent on his behavior only reinforces the behavior, even if its negative attention, and when a behavior is reinforced, it will increase. Have you guys read anything about functional analysis? I've seen it help in numerous cases. It identifies the function (or cause) of the behavior, which will then tell you how you should intervene

  • @d2pelleg Yes, but he's atypical in response. You could ignore him for the next 10 years and this boy will outlast us all. He is very set, fixated on what he wants. Much like a 8-10 month old. U wouldn't analyze their behavior, would you? When they want something at that age, U give it to them.

  • @d2pelleg - Interesting thought but will not work efficiently. I'm a speech pathologist and I work with children with autism. They have very specific behaviours. It's not as easy as you say. And functional analysis only works on certain populations. Just to let you know there are lots of types of people out there, those with different syndromes and standard practices don't work for all.

  • I see he is'nt toilet trained. Not trying to be weird of course.

  • Im curious why is he so thin. is it genetics or does he have a problem with his food?

  • @ Bosmob, I feel bad for you. You seem so angry.

  • @ all the people leaving horrible comments. Do you have a conscious, because it doesn't seem like it. :(

  • I didn't say they're gross, they just are fucking useless. It's like having a 3 month old for the rest of your life.

    I assure you, if I have an autistic child or a child with some sort of mental retardation, I don't see them worth my time because they won't be help, they'll be a bother.

  • that's good. well, I've got a cousin with Down's sydrome.

    And I know a lot people are gonna get pissed... but I fucking hate my cousin.

    particularly because she is RETARDED!

  • @Bosmob

    You should consider helping humanity out Bosmob and 1989budweiser buy killing yourself. And dont worry, theres a place in hell for you. Im sure the devil is priming it right now :)

  • @d2pelleg well I can't wait then!

    Satan and I will be buds for eternity.

  • @Bosmob

    You should consider helping humanity out Bosmob and 1989budweiser buy killing yourself.  And dont worry, theres a place in hell for you. Im sure the devil is priming it right now :)

  • @Bosmob

    You should consider helping humanity out Bosmob and 1989budweiser buy killing yourself. And dont worry, theres a place in hell for you. Im sure the devil is priming it right now :)

  • do you love your brother 1989budweiser?

  • they may be able to help right now, but think about the future. Are they going to be able to do this in 50 years?

    It's not worth it to continue to raise an autistic human.

    I don't fucking believe in god.

  • Gosh, he is so beautiful. God loves James, look at the family he has. And as "ordinaries" we can't imagine the beauty that he sees as he gazes around, the glorious thoughts that harsh noises interrupt. But God gives us glimpses when you see his joy with his mother tickling him, or puppies, or his niece loving on him. I think he has one foot in heaven and the other with a heavenly family. He is truly blessed in his family.

  • I have tourette's as part of my autism and sometimes I wake up ticcing. slapping and thumping are listed as common tics.  with tics the strep virus is often at work. I've also had repetitive movements with atypical epilepsy (my hand carved my book in half with a pen during one). So not sure it's always 'meltdowns'. All the best to you all.

  • is he on meds i use to be self abusire but meds have help

  • He's been on dozens of meds for behavior, but none have ever stopped or signifigantly reduced self abuse..this mimics research in autism and self injurious behavior..meds just don't work in majority of cases..however, I just started giving him 5-Htp and do see a difference...he's calmer, but it's too soon to say....

  • @CDFoakley I can't get enough of your videos....The boy I worked with was on meds too a part of me didn't agree with it because all it did was dope him up and put him to sleep. He was so doped up he would wet the bed and he knew how to use the toilet. I totally stand by you in avoiding the medicine and I love that you have put him on a natural diet. I think that is the real cure.

  • Gifts and self-injurious behavior can exist in the same person. There is no reason to either denigrate gifts nor to brush off dealing with the effects of self-injury.

  • The autistic boy has a great family! Respect!

  • I will pray for him. I can feel for the family. He has lost lot of weight.

  • @rajarova I think God has already done enough to this poor kid don't you?

  • I believe in God and I cant reason why this kid has to suffer so much. Still I would pray as its the faith that I resort to when I see the pain and suffering of others. Whenever there is something beyond my control, all I have is to pray and ask for mercy.

  • This might not explain, but still I feel that God is taking care of him. His Family is so caring and devoted. I have seen autistic kids being kept chained all the time. They dont even get to see the outside world and lead a very miserable life.

  • The good news is as of today, he's back up to 136 lbs.....yea!!!!!!! I've spent a fortunate at the health food store....but he's worth every penny...He loves sweet potatoes, gluten free foods and salmon..

  • @CDFoakley He is so beautiful, really good looking guy. Bless him & u for all being so wonderful, he needs u & if the boot was on the other foot I bet he would fight & do right by u 2 -x-

    My brother started hearing voices 4 years agoe & it was unbelievable the stess, pain & heartbreak it caused us all. He is worth it, we love him sooooooooo much, we hate the illness but we love him & will stand by him forever xxx

  • You and your son are an inspiration!

  • I'll be praying for him and your situation. As a Father of an autistic child myself, I know how frustrating this can be. I can see however, that your situation is more severe than mine and I really commend you and your family for still loving your child. Don't give up. May blessings come your way soon.

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