Like, managing to enjoy anything at all while intubated is a major accomplishment. Fortunately, you can enjoy things much better now because you no longer have to be totally tubular, babe!
@Twinklebabexx people survive from RSV, but it is extra difficult with the neuromuscular disease Emily has, Spinal Muscular Atrophy (SMA). But, she's still with us and doing quite well these days. Thanks for stopping by! :)
@faraty2 Emily has a neuromuscular disease called Spinal Muscular Atrophy (SMA). During this intubation she had a very difficult respiratory infection called RSV. She is doing very well these days!!
Always remember to hug your nurses.
dannjonnes 2 months ago
whats rsv?
emmirz 3 months ago
Wish her all the best from me :)
caleblich2 7 months ago
Poor thing god bless her
cuteypie1308 11 months ago
aww! so precious! god bless her!
DoubleDBlogXX 1 year ago
:*)
MrSirPwnzAlot 1 year ago
Like, managing to enjoy anything at all while intubated is a major accomplishment. Fortunately, you can enjoy things much better now because you no longer have to be totally tubular, babe!
pantyflash 1 year ago
Keep fighting emily
MsGymnast77 2 years ago
what exactly is RSV and how can you get it. she lookes so helpless and just so out of it, poor little thing, but she is well and truly a big fighter.
do most people always survive from this ilness?
Twinklebabexx 2 years ago
@Twinklebabexx people survive from RSV, but it is extra difficult with the neuromuscular disease Emily has, Spinal Muscular Atrophy (SMA). But, she's still with us and doing quite well these days. Thanks for stopping by! :)
miershpedankl 1 year ago
Aw! That is so sad! I hope everything turned out ok for her. Little kids don't deserve that!
1191957 2 years ago
They sure don't. Emily made it through this hospitalization and many more. She's a fighter!!
miershpedankl 2 years ago
@miershpedankl what happened to her
faraty2 1 year ago
@faraty2 Emily has a neuromuscular disease called Spinal Muscular Atrophy (SMA). During this intubation she had a very difficult respiratory infection called RSV. She is doing very well these days!!
miershpedankl 1 year ago
Emily's video shows us all that life is so precious. Her holding on to her balloon is what I focused on. So very glad she's doing better. Hugs, Billy
gardenbill 2 years ago
How bad for her:| Hope shes better now:)God watch over Her:)
jerhinus 2 years ago
oh my god how old is she there
jonathonbartle 2 years ago
@jonathonbartle Emily was about 2 in this video. But she's nearly 5 now and doing quite well despite having SMA!
miershpedankl 1 year ago
make a new video to show how good she is doing
kaileykutie10155 2 years ago
@kaileykutie10155 Seriously! I do need to make some new videos. It's been a while. :/ Emily is doing really well these days. Thanks!
miershpedankl 1 year ago
@miershpedankl,
Does Emily is still wear with her diapers? I am wonder to know about her. So how is she doing so far?
ScottysAIr 1 year ago
i had rsv when i was a baby
jessandash101 3 years ago 5
OMG poor thing i hope she gets better
BoriquaGirl11 3 years ago 4
Poor thing.
How is she these days?
I know one thing. She is on the top of my prayer list.
GOD BLESS EMILY.
1992peter 3 years ago 2
Thanks for your prayers! Emily's doing great - yeah, this reply is a YEAR later, but that's to show she's doing great. :)
miershpedankl 3 years ago
YAYYYYYYYYYYY!!!!!!!!!
I am SO DELIGHTED that she is doing better.
1992peter 3 years ago
@1992peter Thanks so much!
miershpedankl 1 year ago