CCSVI Clinic Receives Joint IRB Approval for Aftercare Protocol Study.
The joint application between Noble Hospital and CCSVI Clinic has been approved through the IEC Institutional Review Board (IRB) that will allow researchers to use patient data to study their new extended and enhanced aftercare treatment protocol. Please Call 888-419-6855 to know more about participating in the study. Log on to ccsviclinic. ca for more information. Email apply -at- ccsviclinic. ca
i take avonex and no side effect yet its only been 5 shots i was wondering how long have you been on this love april or any one how long and is it working for any one
Good God, woman! That shot was too long and so was the injection; I just do my Avonex injections like a dart into a dartboard (my thigh is the bullseye). After two years, I'm still having flu-like symptoms but no big deal. Luv your work
@wysiwyg43 I know. It was way too slow. lol I am glad you like the videos though. I am now on tysabri, which at least I don't have to be the one driving the needle! :)
@wysiwyg43 Eres una mujer admirable y preciosa!! y que hermosas piernas!! con todo respeto!! Te deseo lo mejor del mundo vas a estar superbien!! Jorge! palsilver@yahoo.com.mx
Am I the only one who gets that drowzy sensation after injecting avonex? Anywho I wanted to ask some who have been on avonex longer (men only,sry girls :D). Has it ever happened to not "live up to the task in bed" after the avonex shot? I have huge confidence issues about my sexual performance and that's the main cause (that and masturbating twice a day for the last 3 years) but can it be that after the avonex shot, being that I was drowzy, my penis just couldn't handle the sensation and failed?
Thank-you for this video. My fiance has had MS for almost 18 years with occassional & minor flare ups... until 1 year ago. Long story short, he now takes Avonex. Started w/the pen injector- he told me how much it hurt and opted to take the injections manually. This week, he must have hit a nerve in his right quadricep, took it out & moved the needle 1" down the thigh. His thigh twiched again when the 1" needle was only half way in. Now he's a bit scared of the pain & muscle twiching. Any ideas?
I have had this twiching too. It scared the crap out of me and I flung the needle out of my leg. I think if muscle spasm is part of your MS, then it can be worse.
My only idea is to ice the leg a little before and try to relax as much as possible. Tell him not to be in the same position as when he twiched the last time. Like maybe sit with the leg slightly out, anything to help relax it a little.
Sorry I don't have more advice. I completely understand how he feels in this case.
OMG -- I was recently diagnosed (like 2 days ago) with Relapsing Remitting MS and I cannot tell you how much this video has helped lessen my freaking out. THANK YOU.
I have been on Avonex for almost a year, and i really appreciate your videos. Your personality and attitude make it easier to fight the good fight! Your awesome!
Do you take vitamin D?If not you should because Vitamin D deficiency is the cause for a multitude of diseases including MS.Google"vitamin D and Multiple Sclerosis" and "Vitamin D Council".Hope it helps you: )
Thanks for your post. Yeah, I have taken vitamin D. there is a great deal of research pointing in that direction, and the fact that the further from the equator, the more cases of ms.
By the way, 'jizz in my pants' is my fav at the moment. I had to buy it from itunes, so that I can laugh on the train to work!
Okay, you're just magnificent. I am a huge fan of Autoject that I got with the Copaxone that I take. Amazing little gadget for those with needle fears. I look forward to watching the rest of your videos. This one is fabulous. (Thanks for the outtakes. FUN!!)
Gees Marlo, you make it look so ezy ( comming from a needlephobic-me), i did it for 2 yr strait, to overcome my fears...now "the Doc" jabs me and i feel beter now (no more fainting -da girl i am!
u make me laugh, i just sent u a mesage on how ya doin with the jabs..well as my memory fails me this month. wow ur icredible u go girl. pretty soon u will be throwin it like a dart. i jab it fast 1,2,3 jab squirt pull out. da doc delays a bit..
You are so crazy - I love you. Anyway - good point, don't let MS stop you, so on that note I am going to stop moping around, put my makeup on and go out! :0)Kerri
Hi Kerri! Thanks for your response LOL! I am completely nuts, I know. I am pleased to hear that you put your makeup on and went out! Go woman! Hope you are feeling much better and that the steroids are flushing out of you and not abused you too much (they hurt my bones. I always feel like I was kicked all over)
We don't keep the MS patient in the fridge!! Well, except in Canada where MS patients are kept in 1 huge freezer for several months each year! ;)
What's the gauge on that bad boy?
LOL Britney Spears haha!
It's not lazy (Autoinjector), it's doing it hardcore! ;)
I'm surprised that Avonex doesn't hurt, but I believe the Depo Provera needle is a similar size to that needle, and I did have that recently and can confirm that needle was not painful.
hahaha! The bad boy is a 23 gauge, by the way. I was shcoked that it didn't hurt too, but so far so good. Glad you liked this vid! I had to put those outtakes in. I was crying laughing when I edited them.
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CCSVI Clinic Receives Joint IRB Approval for Aftercare Protocol Study.
The joint application between Noble Hospital and CCSVI Clinic has been approved through the IEC Institutional Review Board (IRB) that will allow researchers to use patient data to study their new extended and enhanced aftercare treatment protocol. Please Call 888-419-6855 to know more about participating in the study. Log on to ccsviclinic. ca for more information. Email apply -at- ccsviclinic. ca
Gregmills007 10 months ago
an MS patient's fridge- ale, avonex, and maple sugar. and don't forget Alleve (naproxen) an hour before.
onojmai 1 year ago
i take avonex and no side effect yet its only been 5 shots i was wondering how long have you been on this love april or any one how long and is it working for any one
AWDESIGNS8 1 year ago
Good God, woman! That shot was too long and so was the injection; I just do my Avonex injections like a dart into a dartboard (my thigh is the bullseye). After two years, I'm still having flu-like symptoms but no big deal. Luv your work
wysiwyg43 1 year ago
@wysiwyg43 I know. It was way too slow. lol I am glad you like the videos though. I am now on tysabri, which at least I don't have to be the one driving the needle! :)
teslagirlM 1 year ago
@wysiwyg43 Eres una mujer admirable y preciosa!! y que hermosas piernas!! con todo respeto!! Te deseo lo mejor del mundo vas a estar superbien!! Jorge! palsilver@yahoo.com.mx
simbaymax 1 year ago
@simbaymax gracias!
teslagirlM 1 year ago
Comment removed
tantisogni 1 year ago
Thanks
tantisogni 1 year ago
Thanks!!!!!!
belly6642 2 years ago
Ouch. You are one tough girl.
frogjumpy 2 years ago
Am I the only one who gets that drowzy sensation after injecting avonex? Anywho I wanted to ask some who have been on avonex longer (men only,sry girls :D). Has it ever happened to not "live up to the task in bed" after the avonex shot? I have huge confidence issues about my sexual performance and that's the main cause (that and masturbating twice a day for the last 3 years) but can it be that after the avonex shot, being that I was drowzy, my penis just couldn't handle the sensation and failed?
robertpetrea23 2 years ago
Thank-you for this video. My fiance has had MS for almost 18 years with occassional & minor flare ups... until 1 year ago. Long story short, he now takes Avonex. Started w/the pen injector- he told me how much it hurt and opted to take the injections manually. This week, he must have hit a nerve in his right quadricep, took it out & moved the needle 1" down the thigh. His thigh twiched again when the 1" needle was only half way in. Now he's a bit scared of the pain & muscle twiching. Any ideas?
fuuchme 2 years ago
I have had this twiching too. It scared the crap out of me and I flung the needle out of my leg. I think if muscle spasm is part of your MS, then it can be worse.
My only idea is to ice the leg a little before and try to relax as much as possible. Tell him not to be in the same position as when he twiched the last time. Like maybe sit with the leg slightly out, anything to help relax it a little.
Sorry I don't have more advice. I completely understand how he feels in this case.
Marlo
teslagirlM 2 years ago
OMG -- I was recently diagnosed (like 2 days ago) with Relapsing Remitting MS and I cannot tell you how much this video has helped lessen my freaking out. THANK YOU.
zenflea 2 years ago
I have been on Avonex for almost a year, and i really appreciate your videos. Your personality and attitude make it easier to fight the good fight! Your awesome!
candigirl12209 2 years ago
Thank you! It makes it easier when people like you keep up the fight with me!
Marlo
ps- I just watched the videos you favorited on your channel. excellent choices.
teslagirlM 2 years ago
I am getting ready to start weekly avonex injections, I appreciate your post.
Best of luck to you!
thefullmonte03 2 years ago
Auto-Injector = Harpoon ;)
123stalk 2 years ago
Yes, I just watched a video of the auto injector...Harpoon for sure!
teslagirlM 2 years ago
Do you take vitamin D?If not you should because Vitamin D deficiency is the cause for a multitude of diseases including MS.Google"vitamin D and Multiple Sclerosis" and "Vitamin D Council".Hope it helps you: )
MM28262 2 years ago
Thanks for your post. Yeah, I have taken vitamin D. there is a great deal of research pointing in that direction, and the fact that the further from the equator, the more cases of ms.
By the way, 'jizz in my pants' is my fav at the moment. I had to buy it from itunes, so that I can laugh on the train to work!
teslagirlM 2 years ago
Yeah,I love that video.I gotta watch it atleast once a day and it cracks me up everytime.
MM28262 2 years ago
Okay, you're just magnificent. I am a huge fan of Autoject that I got with the Copaxone that I take. Amazing little gadget for those with needle fears. I look forward to watching the rest of your videos. This one is fabulous. (Thanks for the outtakes. FUN!!)
CaliCousin 2 years ago 2
Thank you very much. You are too kind!
The gadgets for injecting are quite good. When I used rebif I used it a couple of times and it was so easy, but then I got lazy! LOL!
I'm glad you like the out takes. I think I'll continue with them in future vids. We all need a good laugh!
teslagirlM 2 years ago
Gees Marlo, you make it look so ezy ( comming from a needlephobic-me), i did it for 2 yr strait, to overcome my fears...now "the Doc" jabs me and i feel beter now (no more fainting -da girl i am!
u make me laugh, i just sent u a mesage on how ya doin with the jabs..well as my memory fails me this month. wow ur icredible u go girl. pretty soon u will be throwin it like a dart. i jab it fast 1,2,3 jab squirt pull out. da doc delays a bit..
u count 10,i pas out in 5.
much luv
Nphobic johnny
n95johnny 2 years ago
The dart! That's what my nurse says. I know I am supposed to dart it in. I will get there! hahaha!
Marlo
xx
teslagirlM 2 years ago
Hi Kylie,
LOL. cracker deluxe.
Thanks for your makeup comments! I am happy to hear that slap on loads too when you are not feeling well. haha. Dame Edna, eh? love it!
Marlo
teslagirlM 2 years ago
You are so crazy - I love you. Anyway - good point, don't let MS stop you, so on that note I am going to stop moping around, put my makeup on and go out! :0)Kerri
kezzcass 2 years ago
Hi Kerri! Thanks for your response LOL! I am completely nuts, I know. I am pleased to hear that you put your makeup on and went out! Go woman! Hope you are feeling much better and that the steroids are flushing out of you and not abused you too much (they hurt my bones. I always feel like I was kicked all over)
Be well!
Marlo
teslagirlM 2 years ago
Fantastic Video! Thanks for showing us the Avonex injection. It doesn't look as bad as I thought it would. Take care!!
ToriUTK 2 years ago
Thanks! It is definitely not that bad. How are you doing? Are you deciding on therapies yet?
teslagirlM 2 years ago
OMG @ outtakes LMAO!!! HAHAHA.
Oh yeah, I can't wait for the book :)!
dmplaura 2 years ago
We don't keep the MS patient in the fridge!! Well, except in Canada where MS patients are kept in 1 huge freezer for several months each year! ;)
What's the gauge on that bad boy?
LOL Britney Spears haha!
It's not lazy (Autoinjector), it's doing it hardcore! ;)
I'm surprised that Avonex doesn't hurt, but I believe the Depo Provera needle is a similar size to that needle, and I did have that recently and can confirm that needle was not painful.
Hugs!
dmplaura 2 years ago
hahaha! The bad boy is a 23 gauge, by the way. I was shcoked that it didn't hurt too, but so far so good. Glad you liked this vid! I had to put those outtakes in. I was crying laughing when I edited them.
Big hug back!
xx
teslagirlM 2 years ago
Lifting lordie!! 23 gauge! ORAL MEDS PLEASE!!
dmplaura 2 years ago
A braver woman than I could ever be....
Why can't they discover that ice tea, or coffee or lemon pie cures MS, I would be a very willing patient then.
bvaleriea 2 years ago
I did not like Rebif for many reasons. Thank you for showing an Avonnex shot. Good video from accross the pond!
qualisarx 2 years ago
greetings from across the pond! Thanks, I am glad you liked this one!
teslagirlM 2 years ago
once again your brilliant!!!!
well done to you. I couldnt look at the neddle.
what is it ,about people saying ah you look so well.even though you feel like shit.Ijust say thanks!
Take care
keep well
lou x
oldcourtbray 3 years ago
Hi Lou,
Thanks! Glad you liked the madness!
Marlo
xx
teslagirlM 2 years ago