Spina Bifida Awareness

[ashadoodle]

I'm doing a project for my Special Ed. class. I've got the facts, but the change in perspective was honestly very helpful. Thank you so much for posting!

[ChocolateFacedMan]

This is hilarious! I dont know whether to light these things on fire or give them a bone

[BrittanyHargestFan4]

I have a friend whose niece has spina bifida and she's about 7-8 yrs old and she's the sweetest person anyone could ever know the other day she was at a penny sale and i was there and she said the darndest thing! i asked her is she knew about carrie underwood and she said no and i said she was married now, and she asked me "who'd she marry" and i replied mike frisher of the ottawa sens and she said "Why'd she marry that fool" i laughed histerically!

[BeeMySu]

Wow!

[randilynj]

My daughter just turned 3 in march, and she has Spina Bifida. Like yourself I was unaware of this until I had a child with it. Im glad to see another parent trying to make a difference. Thanks

[reganandsteve]

my daughter has spina bifida, she is my little miracle.

she never had to be shunted which im grateful for ..and along with all the other things that go along with the condition, so far she seems to have avoided which is amazing since her opening was so bad.

so far her only problems are, curled toes,bowed legs just a bit, and a bowel issue.

i would not trade her for the world...but the pain i deal with on a daily basis.

[obsessedwithkenijoe]

i have spina bifida and im 15. i walk normally and have a shunt. my shunt has never been renewed, that is very rare. i got surgery at two hrs old

[Nikki91p]

I have Spina Bifida also (16 years old)

I walk like normal with no limp

I can walk,run,swim and do just about everything a normal person can.

My Doctor said I'm his only patient who has the mildest case!

People don't even know I have it unless I tell them.

I am very thankful I'm very mild and not severe!

[JBFAN01994EVER]

im 14 i hve spina bifida too and hydrosephulus worst case w a hunt currently un parylized

[MrPerfect77]

Thanks for the video. I have Spina Bifida. I am a 31 year old male with a limp in my walk. And a shunt in my head. But other than the limp, you'd never know.

[Creativegirl76]

i have Spina Bifida, walk with a limp. my left hand doesn't work because of a spinal fluid infection at 4months, I have a shunt. & I studder.

[MrPerfect77]

Is the Studdering a part of the Spina Bifida? I find I do that in the last few years. But never before.

[lee4llee]

doctor told me spina bifida is caused by not eating enough green vegetables while pregnant, aka folic acid.doctors also say that while he is healthy && his spine is in better conditions then most, when ur born with this or u develope it u are only expected to live until ur early adult yrs.my boyfriend is 23, we have a child on the way and the thought of i dont want him to miss that.somebody help me =( i feel like im on that movie final destination.

[mstmimosa]

I am not sure who in your life has Spina Bifida... But you should contact your doctor, Do your own research, talk to nurses... Get more informed... In old times people were told they would not live long, But I have a Cousin with Spina Bifida who is perfectly happy and healthy and she is entering her 50's... Get more informed and don't take one doctors word and consider it gospel... Check around do research you would be amazed...

[mstmimosa]

Most times I find my own best information on lifespan and quality of life are given by the parents or the individuals with Spina Bifida... It should not be considered doctors advice, but it will give you a better footing to understand what most go through and what is expected, because these people live it...

[musicianforjesus]

My best friend just died and she had spina bifida she was 27 years old

[armenianply]

i wish congress would pass a law where it was a sppina bifida month in the us

[dakotafrank]

I loved the video! it was very informative. I am 30 years old and was born with Spina Bifida. I have talked about it many times to schools, class mates, and other places. I have researched it extensively. I want to point out two things. First, there is still no know specific cause, and second, you may take Folic Acid and still have a child with it. I am not saying don't do it, I AM saying it still may happen even with it. BTW, I would not change my life for anything. Including the hardships!

[mstmimosa]

Hi Dakota, thanks so much for watching our video... In the beginning of the video it states that there are NO KNOWN causes... It also states that it can help reduce your risk by 70%, meaning there is still a chance it could happen... not that it is 100%... Also we (my husband, myself, and Jaeden) would not change a thing either, including our hardships, We are better people for it... Our Cup runeth over... Thanks again! God Bless!

[dakotafrank]

All very true, I have found that not a lot of people are clear about such things which leads to misconceptions and even sometimes very negative behavior.

[mstmimosa]

That is so true... I wish there was a SB community without negativity... a forum for everyone to come together and just be, share, live and love ya know... But too often it is full of catty mom's or people who think they know it all... or are totally off the mark... I am sure you know what I am talking about... Honestly, thank you for watching and commenting... God bless!

[KiernanKate]

*says nothing, wipes a tear and gives a standing ovation*

THANK YOU SO MUCH for this video!!!!! I hope and pray Jaeden's Spina Bifida is as little of an issue as possible. He looks like a wonderful vibrant young boy, and I applaud both you and him for never giving up.

[mstmimosa]

Thank you so much hun, It means so much to know that someone is moved by our simple message.... THANK YOU!!! Keep an eye out, we are going to do a follow up video real soon on Jaeden and how he is doing... Honestly, Thank you, when you and people like you comment, I know that our message is getting out there! *now you got me crying* (laugh) thank you hun!

[KiernanKate]

You're welcome. Never give up the good fight!

[TillaMC]

i was born with slight spina bifida but i also suffer from scholiosis and a syrinx in my spine. i am fully mobile as is your son and i even manage to go kickboxing. the only thing is that i must undergo a pain releif injection every few months because i do get immense pain in my lower back along with muscular spasms which look more like epeletic fits at times. does anybody here know of anyone with all the same defects as me because im finding it hard to find someone who does.

[caliselle]

my cousin was born with Spina Bifida (myelomeningocele). She has partial paralyziation of the bladder and when she was 10 had to spinal surgery which caused a stroke of the legs and she now wears braces. Luckily she has no shunt and is able to walk without assistance. We're only 7 months apart in age and she now has a son that's almost 2. He is healthy and wonderful.

Because of the knowledge through my cousin my family now has a huge knowledge of Spina Bifida

[mstmimosa]

Excellent information caliselle! Alot of people are frightened by the possibilities of the heritety of Spina Bifida... I know I was, but through knowledge spread from those who have faced it already it helps those who are facing it now... Thank you so much for sharing... I and others I am sure really appreciate it!

[mstmimosa]

P.S. That is the exact type of SB my son has! small world! thanks again!!!

[taraguz]

If you or anyone you know lives in austin Tx with spina bifida, please come to dell childrens hospital every 3rd tuesday of each month at 6 30 pm to our support group. If you are facing spina bifida for the first time or have lived with it for years, please come support our local chapter for Spina bifida, you are all welcome

[mstmimosa]

Unfortunately I have yet to find a support group and/or organization ran by those who are directly affected by this birth defect. Here in Atlanta the Spina Bifida Association is run by charitable organization who focus on "raising money". So for support you really need to attend one of their "functions" which is usually "Swank" dinner at $150 a plate... unfortunately we are not of the economic standing to be able to do something like that... so no support is there for us...

[mstmimosa]

I find support and community through the internet... As well as other organizations that were put into place for different birth defects, but they extend a helping to those with similar disabilities...

[xxmamxx]

This is a great video. I also have spina bifida and im glad there are people like you spreading awareness about spina bifida. When your son gets older and feels like giving tell him to have courage and have faith in god. It's what god told in my heart when I felt like giving.

[mstmimosa]

somehow I missed this comment... I am so sorry for my delayed response... Thank you for sharing this with me... My son has so much faith it is absolutely amazing... during his last video he had prayer with our pastor and said "I am ready Momma!"... His faith and courage continues to amaze my husband and I, I don't thing we are bad people, but my son has unwavering faith that everyone he meets... THANK YOU!!!

[Gothiccripple]

THANK YOU SO MUCH for posting this. I am a 31 year-old man with Spina Bifida, and it feels good to know that someone is getting the word out to others about ways to prevent this condition. Thank you, and may you and your son live long, fruitful lives.

[taraguz]

I would love to talk to you on yahoo messenger, i am 29 with spina bifida. you can find me under shortyonwheelz2005 on yahoo... would love to hear from you. I am starting a support group here in austin and would love your input..

katie

[tcurrie240]

My son too has spina bifida, he is a miracle, he's as healthy as you and me. BUT PLEASE there are a lot greater risks also resolting in dealth, this is blunt but it is true, so please take folic acid WELL before you get pregnant! and juring of course!

[wisemanthree]

I have favourited the video hunny, it was very touching and there's some fantastic info for everyone to remember. Do as she says, people! xxxxxxxx

[dritbikegirl666]

i have a question if you have sb can you live your holw life with out having surgery or needing help to walk??

[mstmimosa]

yes, there are several different forms of spina bifida and it depends on where it is located on your back, as well as how severe it is... some people have spina bifida and not even know it... sometimes the only signs of spina bifida are patch of hair on the spine as well as possible birth marks on your spine as well as dimple on your spine as well...

[mstmimosa]

It is really best to talk with you healthcare proffesional about your or someone you knows position, but yes there are several different forms! Thanks for your comment!

[mstmimosa]

Most Ob/Gyn's don't want to be the grim reaper with news there is such a thing as having a child with a birth defect... They kinda leave it in the air so if a mother has a child with a birth defect she is left wondering what she did wrong!!! Like she caused it herself... But lack of knowledge doesn't automatically prove guilt...

[bentonio07]

Excellent!!!

I admire your attitude - it's like "OK, I didn't know and couldn't prevent it, but I can still spread the words and help others" - That's personality, character and shows a big heart

[mstmimosa]

Thank you!!! It is a desire of mine to let people know the facts... there are things we as woman can do to prevent this... Why not!!! So this cause has become a burning to desire of mine to tell as many people as I can... Most OB/GYN's do not share this information with their patients even thought it has been scientifically proven effective...

[mstmimosa]

They know it is something that should be taken before you get pregnant, so once your pregnant, they put you on prenantal vitamins and that's it... This should be talked about when woman go and get their routine yearly check up... God has just put it on my heart to do my part with this knowledge... Thanks so much for your support!!! God Bless!

[bentonio07]

Thank You and God Bless. I talked to my female friends about this and they all were advised by their OB/Gyns here to take Folicacid, but didn't know the reason, which is strange ...

[mstmimosa]

Everyone wants a healthy happy child, and when something is wrong, signs are pointed to the mother... But all of this is created when the OB/GYN's won't just come out and inform their patients... Thank you so much for your comment... I really appreciate you help and support in my cause to spread knowledge... God Bless hun!

[dpdesigngirl]

Fantastic video...I'm going to add it to my myspace page as well! thank you for making it :)

[mstmimosa]

Thank you so much, and please, yes! spread the word... Thanks so much!

[tactah50]

You are a very dedicated Mom mistmimosa.God has been so good and blessed us with this beautiful vibrant boy.Thank You for helping all those would-be-moms out there know about this alwful diease that can cause so pain...both physcial and emotional. I will help spread the word.

[mstmimosa]

Your the greatest in the world! Smoochies, I love ya Auntie!

[EmptySeed]

This was a beautiful video. You are an Amazing mom.

Fav'ed, Shared and Five Star'd.

[mstmimosa]

Thanks so much hun, I really appreciate it...

[TJsMomma]

Favored! Great video! We wanted to thank you for helping to bring out the awareness for this, that is so important. Public education on these things is needed!

[mstmimosa]

Very much so Momma! On this subject I am always on my soapbox preaching the benefits of Folic Acid... You would think that OBGYN's would have this stuff readily available... But they only tell you start taking prenatals when you get pregnant... But Neural Tube Birth Defects are determined before you even know your pregnant and the folic acid should have been in place at time of conception. Thanks so much momma for taking the time to watch and spread the word! God Bless you and TJ

[Geni2000]

I favored this, It brought tears to my eyes. Thanks so much for sharing this.

[mstmimosa]

Geni, just spread the word really 70% is huge step in preventing Neural tube Birth defects... Thanks so much for taking the time to watch... God Bless!

[beachbitch75]

thank you...its been favorited!

[mstmimosa]

Thanks Hun!

[JadedIllusions27]

Awesome video. I have favorited it and I will share this as well. YOu have absolutely precious what a mom he has! :o).

Take care and thankyou. I am a mommy of one almost 2 yr old little boy so this hits my heart in the courage it takes to face this. Great job :o) TTYL--JadedIllusions27

[mstmimosa]

God gives special children to special parents, and I know god puts no more in our plate in a day than we can handle. There are so many other families who are in worse shape than us. I have to think of us as being blessed and nothing less... Thanks so much hun!

[JadedIllusions27]

Just got your reply. I totally agree. I have been through some things that people say "I am sorry you had to go through that" and you know its not sympathy I want I just want to help others. You video you said they same thing concerning sympathy and I agree. You are blessed and your right there are alot families who have nothing...I try to think about that all the time. Sorry so long LOL I ramble.

[mstmimosa]

Me too... I totally get what your saying... I getcha completely... Thanks girlie! Muahs thanks so much for your support in the cause though really... I seen you even sent out a bulletin with it in it... awesome!

[CountryComesToTown]

Favorited. Thanks for helping spread the word. -jim

[mstmimosa]

Thanks Jim your the best!