CCSVI Clinic Receives Joint IRB Approval for Aftercare Protocol Study.
The joint application between Noble Hospital and CCSVI Clinic has been approved through the IEC Institutional Review Board (IRB) that will allow researchers to use patient data to study their new extended and enhanced aftercare treatment protocol. Please Call 888-419-6855 to know more about participating in the study. Log on to ccsviclinic. ca for more information. Email apply -at- ccsviclinic. ca
i would say you should get them checked out just in case they are serious. There are some really good neurologists out there. You may not go through the same kind of treatment I have had.Please feel free to pm me if you want to talk. Paul
hey any news. I would like to know if you have done any blood tests to test for inflammation such as the Erythrocyte sedimentation rate or C reactive protein?
Hi Kaazoom. Just checking in to see how your feeling. Any new news on the Lyme? Hope your well and maybe dancing on the tables throwing back a few cocktails with your wonderful wife. Lucky man you are;-) Enjoy your day!
I read that article teaching neurologists how to lie to patients as well. I'm so glad you weren't fooled by the 'functional' terminology. It's good you've met someone decent whose diagnosed you with Lyme Disease- will that Dr also be able to back you up for things like benefit forms and if not, do you have a sympathetic GP?
Oh Paul - I'm so sorry about all of this - I have read the document you refer to - it's so disingenuous it's difficult to know what to say. I went to first appointment at local CFS clinic today - had to add extra boxes to tick to their psych forms - unbelievably skewed - very bad science indeed....
The sweetest words I'm sure you've heard in a along time. "It's not all in your head" VALIDATION finally! Perseverence has paid off. You must be relieved the battle to find a knowledgeable Dr. who listened. Congrats!
Keep us all updated. Your on your way to get well;-)
Hi Sandman, I saw a doctor who specialises in Lyme Disease a couple of days ago. Very thorough. With him for hour and a half. Said he couldn't believe that the neurologists could seriously say I have no neurological symptoms! He has made a clinical diagnosis of Lyme, I now need to have some more tests. Away at the moment at my son's,I'll make a video soon.
You are brave, strong and couragous. I admire that in you. I am glad to hear that your wife is with you and supporting you through this trying time. Never give up and never, ever give in. If you get a chance pick up the book "The last Lecture" It has nothing to do with ME but everything to do about life. Buy the audio if you have problems reading and comprehending like me. Makes it easier. Huggs to you
I'm terribly sorry to hear about how you are, and continue to be, treated, but I must say that your gutsy email made me smile!
Somatization is unprovable, unscientific and should have been consigned to the wastebin of pseudoscience a long time ago. It's opinion as diagnosis and you couldn't actually objectively demonstrate it nor say with complete certainty that there is no underlying pathology, we just don't know the brain well enough to make that assumption.
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CCSVI Clinic Receives Joint IRB Approval for Aftercare Protocol Study.
The joint application between Noble Hospital and CCSVI Clinic has been approved through the IEC Institutional Review Board (IRB) that will allow researchers to use patient data to study their new extended and enhanced aftercare treatment protocol. Please Call 888-419-6855 to know more about participating in the study. Log on to ccsviclinic. ca for more information. Email apply -at- ccsviclinic. ca
Gregmills007 11 months ago
Comment removed
autumnsnewleaf 3 years ago
i would say you should get them checked out just in case they are serious. There are some really good neurologists out there. You may not go through the same kind of treatment I have had.Please feel free to pm me if you want to talk. Paul
kaazoom 3 years ago
hey any news. I would like to know if you have done any blood tests to test for inflammation such as the Erythrocyte sedimentation rate or C reactive protein?
leb1011 3 years ago
Hi Kaazoom. Just checking in to see how your feeling. Any new news on the Lyme? Hope your well and maybe dancing on the tables throwing back a few cocktails with your wonderful wife. Lucky man you are;-) Enjoy your day!
Sandman Cast His Spell
SANDMANCASTHISSPELL 3 years ago
I read that article teaching neurologists how to lie to patients as well. I'm so glad you weren't fooled by the 'functional' terminology. It's good you've met someone decent whose diagnosed you with Lyme Disease- will that Dr also be able to back you up for things like benefit forms and if not, do you have a sympathetic GP?
neelubird 3 years ago
Oh Paul - I'm so sorry about all of this - I have read the document you refer to - it's so disingenuous it's difficult to know what to say. I went to first appointment at local CFS clinic today - had to add extra boxes to tick to their psych forms - unbelievably skewed - very bad science indeed....
deadgirldreaming 3 years ago
The sweetest words I'm sure you've heard in a along time. "It's not all in your head" VALIDATION finally! Perseverence has paid off. You must be relieved the battle to find a knowledgeable Dr. who listened. Congrats!
Keep us all updated. Your on your way to get well;-)
PS I tried to post earlier and it didn't pop up.
SANDMANCASTHISSPELL 3 years ago
How are you doing? I hope your keeping you chin up;-) Stay Strong
SANDMAN
SANDMANCASTHISSPELL 3 years ago
Hi Sandman, I saw a doctor who specialises in Lyme Disease a couple of days ago. Very thorough. With him for hour and a half. Said he couldn't believe that the neurologists could seriously say I have no neurological symptoms! He has made a clinical diagnosis of Lyme, I now need to have some more tests. Away at the moment at my son's,I'll make a video soon.
kaazoom 3 years ago
Let's hope that the neurologist learns something from your videos, even though you didn't learn much from her!
ptharcourt 3 years ago
You are brave, strong and couragous. I admire that in you. I am glad to hear that your wife is with you and supporting you through this trying time. Never give up and never, ever give in. If you get a chance pick up the book "The last Lecture" It has nothing to do with ME but everything to do about life. Buy the audio if you have problems reading and comprehending like me. Makes it easier. Huggs to you
SANDMANCASTHISSPELL 3 years ago
I'm terribly sorry to hear about how you are, and continue to be, treated, but I must say that your gutsy email made me smile!
Somatization is unprovable, unscientific and should have been consigned to the wastebin of pseudoscience a long time ago. It's opinion as diagnosis and you couldn't actually objectively demonstrate it nor say with complete certainty that there is no underlying pathology, we just don't know the brain well enough to make that assumption.
Anyway, rock on.:)
mesufferer 3 years ago