Living With Trigeminal Neuralgia? Find LivingWithTN.org and Connect With Others.

[stephenaswaine]

I have had TN for 10 years and it is agony, plus. I am now looking at gamma ray treatment where the hot needles have failed. I met one other sufferer of our syndrome- it has been a blessing. I would love to meet and share with all of you TN sufferers out there my resolve to get this sorted and on with my life. stephenaswaine@msn.com or on face book.

Maybe we could call it face ache book!

[Mycountryroses]

Radiated for eye cancer. I have been suffering 4 years with TN. Also lost all my teeth to the radiation no solid food for 4 years. Writing everywhere trying to get help for denture anchor posts. They are very expensive. I just want the simple pleasure of being able to eat again. Can anyone suggest where tot find a charity or organization that could help me? Starving, gas pains, hunger pains, weakness and trigeminal pain its just too much to bear. Please hep me.

[leslovesmusic]

@Mycountryroses Our daughter who suffered from TN is now completely pain free thanks to a treatment at the Laser Med Center in Myrtle Beach SC. It is non invasive, pain free and has no side effects. Please visit them lasermedcenter, you can be pain free too. Please, please call them.

[Saja2222]

The Medical Profession calls this type of pain: "The World,s worst Pain". I urge you to read about Trigeminal Neuralgia, this is one "pain" you will NOT want! Can you imagine putting your finger in a electic outlet at home? Then you have "some" idea of that same pain in the FACE every few seconds for many years, There is little cure other than high doses of Anti-seizure drugs that help somewhat. But NO 100% cure rate for any Invasive procedure. Not even close!

[flymasterA]

@Saja2222 You are so misleading people who are suffering. Rarely is anything 100%, but your comment 'not even close' is just not true. MVD by a competent surgeon has cure rates in the mid 90% range! I had it for almost 3 years. Dr. Tom Kopitnik (Casper, Wyoming) cured it with MVD. Not a twinge of pain over 5 months later. Yes it is the worst pain I have ever endured, including kidney stones. This support group is great, but getting it fixed is way better.

[zymurgea]

What a great video... I'm so glad I discovered the site very soon after I was diagnosed with TN. It has been a godsend.

Maeve

[calishali]

Awesome job guys! What a great thing you are doing. I'm really just so impressed with each new thing you do to spread the word and offer support to people with these rare conditions.