It's videos like these that make me tear up at myself -- I don't think I could be as collected and patient a mother as you, even if I REALLY want to be. I would be so afraid. God bless you and your son -- how is he doing?
How brave mother you are!!! me and wife when my baby had this, we lost our mind and and i coldnt control my feeling i took him and and running out I didnt know what happen to me even i know very will this called Refractory epilepsy, but its really hard to see him doing like that
My daughter has febrile seizures, it is horrifying! She stops breathing and the works with hers though... yet they are still only febriles... I have had to administer CPR to her 2 times due to seizures and OMG it is terrible... hers are not usually short periods of time either... the first one she was out and could not speak for over 8 hours, the second was only a couple of hours but we now have rectal valum to give to her during the seizure.... God Bless you all for this vital information.
i dont see how yall can handle this. i know there really isnt much you can do about it other than meds that might help. but i have a 4 year old lil boy and if i had to watch him have a seizure i would break down and freak out. i give u and not just u but all the parents that have to watch their children put up with this major koodos for handling it as well as you do. i dont think i could handle it as well as you guys. im sorry for you that you have to go through this
My son has epilepsy and doctors often ask us to film his seizures. Also posting them helps other parents like me to not feel so alone. when My son Oz was having seizures before his diagnosis of epilepsy these videos helped us to understand what to do and what to expect. There is nothing shameful or disrespectful about them. That you for posting this video. And God bless that sweet baby Lewis. He has helped our family.
well even if shes filming it for documentary purposes , out of respect for her son ..she shouldnt be showing them to the public eye ..especially youtube. which will on bring hate comments and immature kids making fun of him..dont you think ,would you want videos of you having a seziure posted online
the typical generalize tonic clonic seizure.... i think you can give Carbamazepine on that kind of attack. if there are some side effects of the drugs, inform your pediatricain immediately. also avoid using erythromycin when having a carbamazepine medication cause the two drugs compete for metabolism by the liver.
My daughter has recently been diagnosed with a metabollic disease. Unfortunately she has absences and since a few days larger absences/epileptic seizures. Thank you for sharing your experiences so that I can get a better picture of my daughter and the things we probably will encounter in the future. God bless...
I don't understand why you have posted this on youtube.
If my child was suffering like that then the last thing I would be doing is VIDEOING them.
i would not want others to see them in that condition and i don't think that they would thank me for videoing their pain for anyone and everyone to look at on the net.
Just don't get it.
I am very sorry that this child is ill and i hope he gets the treatment he needs.
i see what your saying but it helps. in a weird crazy way it helps. my girl friend has Absence seizures. shes been having it for 19 years not and she just started to have this kind this year. now i did all my resurrect on it but reading it is not like seeing it. now you might say that he is in pain but he is not. at this oint he is not felling anything. its after. this person is posting a vid so people can see how one is.
plz dont take it as suffering its more of a rebooting of the brain
my daughter is 20 months old and has dravets syndrome.. she even had a fit similar to this but worse which lasted 4/5 hours and had to be admitted to picu.. bad times my hehart goes out to you
Thank you Mandy for your message. I cant imagine how terrifying the 4-5 hour seizure must have been. Lew has started on a cycle of seizures every 3-4 weeks and we have no idea why, his medication may need upping, we'll see. I do hope your daughter's journey with dravets is as easy on you all as possible. Much love x
it was absolute torturous hell! believe me i wouldnt wish it on my worst enemy... she has all different sorts of fits and it is very difficult she has just had 9 siezures from monday to sunday just gone.. hope hes well for as long as poss xxx
I got diagnosed was I was 8 and my seizures not controlled by medication until I was 21. The tongue swallowing claim is in fact a myth. Nobody can swallow their tongue. The only thing you can do is, like you said, move any objects away and pay close attention. Any seizure lasting less than 5 minutes is fine and they'll bounce back. More than 5 minutes and you need to call an ambulance. Mine lasted around 3 minutes, so I'd wake up and be fine about 3 hours later as if nothing happened.
@xXGaTaGaNgStErXx no.. unfortunately all you can do is watch and time. if under 4 minutes, ok. if over 4min 30 sec you should call an ambulance, especially with the ones that Lewis is having....
My little sister (10Years old) suffers from siezers as well. Ive never seen one (Im 23). I dont think Id be able to handle it. So Im thankful Ive never had to witness one. She used to have one every 4 or so months. But these past couple days shes had one right after the other. It really scares me. I was just trying to learn more about it. Im sorry for you little boys condition.
My daughter suffers from absent seizures, they are mild compared to this poor baby. I will keep him in my prayers. Never realized how much of an impact this has on all the family we feel horrible she has to have them . Started at age 2 she is now five. They are so scary god bless you.
god im 12 and this is really scary to me, to see a little kid or anyone having a seizure scares the crap out of me now and i hope the best with to everyone that does
My 3yr old daughter is suffering with seizures as well, since the age of 1. I know what you are going throught and hope it all works out in the end, stay strong and keep fighting!
my lil brothers have seizures and it not a fun thing to see. but their body doesnt shake, only their eyes keep rolling to the back of their head and all they do is cry while goin through it
Holy crap that poor baby... :( I live with seizures too. I'm on 2000mgs of Depakote and 100mgs of Topamax a day. It certainly helps, even if it does seem to make me dumb when I try to talk to people. Do the doctors have your little one on anything? You can always friend me and PM me in the future about this.
I remember how horrifying and painful it was for me the first time I watched my baby sister have a seizure. Mixed feelings about one being video'd and posted for the world to watch.
i used to have seizures but i am on medication for it and i havent had one since 2001 and my ma took me to the hospital and they kept saying that it was breath holding spells!
FOR INFORMATION - Lewis seizure protocol is rescue medication after a 5 minute seizure and hospital admission for any seizures following within 12 hours. He has no protocol for cluster seizures as he usually only has seizures once or twice a month.
ummm... i really dont know what to say about this
locotokyoco 3 months ago
poor baby god bless him and all others as well he doesnt have to have this problem or no one
crislolz 3 months ago
I started crying cuz he's soo little that's rlly sad if u have it at that age
toybell2011 4 months ago
wow i have epiipsy too
imshannonwilliams 5 months ago
YU HANDLED THIS REALLY WELL BUT NOT HOW MY MOM HANDLES MINE''!-...
MysteriousLoveXoxo 5 months ago
Poor kid, hope they go away
PrettyTeddy2008 6 months ago
poor kid i suffer epilepsy but my fits occur at night time more than day and sometimes early hours of the morning
johncandy3578 7 months ago
god has them under there wings and they can soar
mariearten77 8 months ago
why did u put this video not hating just wondering...
HdDetox 10 months ago
It's videos like these that make me tear up at myself -- I don't think I could be as collected and patient a mother as you, even if I REALLY want to be. I would be so afraid. God bless you and your son -- how is he doing?
meowkie 1 year ago
How brave mother you are!!! me and wife when my baby had this, we lost our mind and and i coldnt control my feeling i took him and and running out I didnt know what happen to me even i know very will this called Refractory epilepsy, but its really hard to see him doing like that
haidar976 1 year ago
My daughter has febrile seizures, it is horrifying! She stops breathing and the works with hers though... yet they are still only febriles... I have had to administer CPR to her 2 times due to seizures and OMG it is terrible... hers are not usually short periods of time either... the first one she was out and could not speak for over 8 hours, the second was only a couple of hours but we now have rectal valum to give to her during the seizure.... God Bless you all for this vital information.
chelsea18406 1 year ago
oooo i have tht to im 24 year old n i have tht bout u knw ur child have to take medication to control dnt worry ur child be goood
MsCutiesexy 1 year ago
That's an adorable little kid...
MomSaysImCool 1 year ago
y the hell were filming this in stead of helping him.
MrSnackization 1 year ago
hugz n prayerz. hang in there lewis . i have seizures too ( complex partial seizures )
crazyboafrog1986 1 year ago
i dont see how yall can handle this. i know there really isnt much you can do about it other than meds that might help. but i have a 4 year old lil boy and if i had to watch him have a seizure i would break down and freak out. i give u and not just u but all the parents that have to watch their children put up with this major koodos for handling it as well as you do. i dont think i could handle it as well as you guys. im sorry for you that you have to go through this
keith42085 1 year ago
Thats really sad :(
MrJonathanlitster 1 year ago
My son has epilepsy and doctors often ask us to film his seizures. Also posting them helps other parents like me to not feel so alone. when My son Oz was having seizures before his diagnosis of epilepsy these videos helped us to understand what to do and what to expect. There is nothing shameful or disrespectful about them. That you for posting this video. And God bless that sweet baby Lewis. He has helped our family.
ozark5150 1 year ago
please take that baby to the hospital
hisguhfrmtx 2 years ago
well even if shes filming it for documentary purposes , out of respect for her son ..she shouldnt be showing them to the public eye ..especially youtube. which will on bring hate comments and immature kids making fun of him..dont you think ,would you want videos of you having a seziure posted online
marcsoyeah 2 years ago
why is this uploaded on youtube?
marcsoyeah 2 years ago
To help others. if another parent is looking to learn about their Child ect.
cate2728 1 year ago
why do ppl make these vides that is just mean
Mizvampireprincess 2 years ago
the typical generalize tonic clonic seizure.... i think you can give Carbamazepine on that kind of attack. if there are some side effects of the drugs, inform your pediatricain immediately. also avoid using erythromycin when having a carbamazepine medication cause the two drugs compete for metabolism by the liver.
roygumban 2 years ago
you know why people share these video's? it's so that people can actually catch a glimpse of what it's like
cheffron2 2 years ago
My daughter has recently been diagnosed with a metabollic disease. Unfortunately she has absences and since a few days larger absences/epileptic seizures. Thank you for sharing your experiences so that I can get a better picture of my daughter and the things we probably will encounter in the future. God bless...
dweideman 2 years ago
I don't understand why you have posted this on youtube.
If my child was suffering like that then the last thing I would be doing is VIDEOING them.
i would not want others to see them in that condition and i don't think that they would thank me for videoing their pain for anyone and everyone to look at on the net.
Just don't get it.
I am very sorry that this child is ill and i hope he gets the treatment he needs.
Videoing him? Weird.
tinylove1979 2 years ago
i see what your saying but it helps. in a weird crazy way it helps. my girl friend has Absence seizures. shes been having it for 19 years not and she just started to have this kind this year. now i did all my resurrect on it but reading it is not like seeing it. now you might say that he is in pain but he is not. at this oint he is not felling anything. its after. this person is posting a vid so people can see how one is.
plz dont take it as suffering its more of a rebooting of the brain
deadstokes 2 years ago
That's horrible that you would actually exploit your helpless little boy to the internet having a seizure!
Forevaitalia 2 years ago
im 14 and i had a seizure on the bus the other day and one other time during a math test
megaman0800 2 years ago
This comment has received too many negative votes show
why would you make a video of your child suffering like this!?
Apostolicmamaof4 2 years ago
Because you want to help others understand what one looks like! and if you need to show others e.g your doctor.
SxcNikki12 2 years ago 6
my daughter is 20 months old and has dravets syndrome.. she even had a fit similar to this but worse which lasted 4/5 hours and had to be admitted to picu.. bad times my hehart goes out to you
mandy4eva2k7 2 years ago
Thank you Mandy for your message. I cant imagine how terrifying the 4-5 hour seizure must have been. Lew has started on a cycle of seizures every 3-4 weeks and we have no idea why, his medication may need upping, we'll see. I do hope your daughter's journey with dravets is as easy on you all as possible. Much love x
SmnthJeynes 2 years ago
it was absolute torturous hell! believe me i wouldnt wish it on my worst enemy... she has all different sorts of fits and it is very difficult she has just had 9 siezures from monday to sunday just gone.. hope hes well for as long as poss xxx
mandy4eva2k7 2 years ago
my bro is 8 and has it but takes meds. scared us when he had his second because it was on christmas and every1 was freaking out!
Alicebaby1231 2 years ago
poor babyy....god bless him and all the other children with the same problems.!!!
u cant do anything when some body is having a seizure?????
xXGaTaGaNgStErXx 2 years ago 8
So realy all you can do is make sure tey dontswollow their toune or hit their heads on anything hard
cmasters67 2 years ago
I got diagnosed was I was 8 and my seizures not controlled by medication until I was 21. The tongue swallowing claim is in fact a myth. Nobody can swallow their tongue. The only thing you can do is, like you said, move any objects away and pay close attention. Any seizure lasting less than 5 minutes is fine and they'll bounce back. More than 5 minutes and you need to call an ambulance. Mine lasted around 3 minutes, so I'd wake up and be fine about 3 hours later as if nothing happened.
Osias1983 2 years ago
@xXGaTaGaNgStErXx no.. unfortunately all you can do is watch and time. if under 4 minutes, ok. if over 4min 30 sec you should call an ambulance, especially with the ones that Lewis is having....
arol0816 1 year ago
My little sister (10Years old) suffers from siezers as well. Ive never seen one (Im 23). I dont think Id be able to handle it. So Im thankful Ive never had to witness one. She used to have one every 4 or so months. But these past couple days shes had one right after the other. It really scares me. I was just trying to learn more about it. Im sorry for you little boys condition.
Asparkle 2 years ago
My daughter suffers from absent seizures, they are mild compared to this poor baby. I will keep him in my prayers. Never realized how much of an impact this has on all the family we feel horrible she has to have them . Started at age 2 she is now five. They are so scary god bless you.
mannystube 2 years ago
God bless his heart! I just experienced one of these today and it scared the crap outta me!
lijahrock 2 years ago
god im 12 and this is really scary to me, to see a little kid or anyone having a seizure scares the crap out of me now and i hope the best with to everyone that does
littlellamalord 2 years ago
My 3yr old daughter is suffering with seizures as well, since the age of 1. I know what you are going throught and hope it all works out in the end, stay strong and keep fighting!
jjlfam 2 years ago
This poor child he is suffering so bad, Out of all the people to make sick like this criminals and child molestors they choose this sall child
Emmacool98 2 years ago
aww i feel sorry for this child.
my lil brothers have seizures and it not a fun thing to see. but their body doesnt shake, only their eyes keep rolling to the back of their head and all they do is cry while goin through it
mstoocool92 3 years ago
their eyes keep rolling to the BACK of the head? whoa. now i'm REALLY scared i'll be sure to keep 'em in my prayers. and the kid in the vid.
FunkiiMunkii2 2 years ago
Holy crap that poor baby... :( I live with seizures too. I'm on 2000mgs of Depakote and 100mgs of Topamax a day. It certainly helps, even if it does seem to make me dumb when I try to talk to people. Do the doctors have your little one on anything? You can always friend me and PM me in the future about this.
goescrunchxxx 3 years ago
Poor baby, and he smiled after it was all done. Thats a strong baby!
brownwoodguy79 3 years ago
what did she watch
luis92934803 3 years ago
I remember how horrifying and painful it was for me the first time I watched my baby sister have a seizure. Mixed feelings about one being video'd and posted for the world to watch.
God bless little Lewis and your family.
JudiG 3 years ago
god bless u and ya child
hiphopdance0001 3 years ago
i used to have seizures but i am on medication for it and i havent had one since 2001 and my ma took me to the hospital and they kept saying that it was breath holding spells!
goochie3000 3 years ago
i feel so sad for you to have to watch your baby go through this. Keep Strong Hun x x x
KittyGal1994 3 years ago
I have a 9month old daughter and I know as a grown man that loves his child I would hurt inside having to watch this happen to your baby
teamkinetik 3 years ago
FOR INFORMATION - Lewis seizure protocol is rescue medication after a 5 minute seizure and hospital admission for any seizures following within 12 hours. He has no protocol for cluster seizures as he usually only has seizures once or twice a month.
SmnthJeynes 3 years ago