Long QT Syndrome (Or not) - (Part 1) - Mayo Clinic

[macandpcc083108]

how do I get in touch with Rhonda King? My son may have Timothy's and I'd love to share stories.

[AnaEcheve]

That's not necessarily true. You might die older than many people, as long as you're diagnosed and in treatment. I have long QT too, nobody in my family died of it... We have a risk of sudden death, that's true, but that risk can be reduced a lot with pills and ICDs...

[BrieHines1]

@AnaEcheve I and about 14 other family members have it but SADS believe we have 2 genetic mutations. My younger brother was the second youngest in the world and youngest in the country to have a defib put in. I rlly like to be able to contact you with more info! :) thanks

[funkychunk]

I was also diagnosed with Long QT at birth. It runs through my family and quite a bit of people have it.

I am considering a pacemaker.

[sfbds]

my best friend is having a pacemaker put in at 8:00-8:30 on october 24,2008