What (Lyme disease/borrelia) Neuroborrelios can cause!

[octopodi]

It brokes my heart to, hear your story.

Really i think i passed it on to my daughter to. Was 15 when i got it (2 years older then you). Now im 34, so we have something in com. Like many else. Its so sad :( not knowing before you pass it over to the babies. I hope u get better soon. I will check u out here. Keep fighting ok !

[poppymoone]

I have had lyme since i was 13... this broke my heart... I was only recently diagnosed in July 09 after fighting for 23 years... I am 36 now with 2 kids who I also may have passed this too... I am very sick now but i wont stop fighting to regain some health and hopefully help others too... I am glad she is recovering..

[dani1985]

Väldigt hjärtkrossande att se sånt här, för som vuxen har jag sett att den här sjukdomen är otroligt plågsam. Men är glad efter ha läst att hon börjat bli bra igen, det är kanon ju! Jag har en rad olika besvär/symptom och har varit under viss utredning men ingen större sådan, misstänker att jag kan vara drabbad av borrelia av någon sort. Mycket stämmer in, och tyvärr vet jag att provet inte är 100%'igt, det vanliga blodprovet man tar..

[octopodi]

Hej tack för att du skrev.

Ja det har gjort och gör fortfarande on i mig att se henne lida men äntligen blivit bättre. Och dessutom att hon inte får den minsta hjälp eller stöd i sitt land.

Hon undrade många ggr vart alla Astrid Lindgrens clowner är (det kom hem en då hon fick den enda lilla behandling dom gett henne, IV med antbx allt för kort tid. Har du fått hjälp? Åkt utomlands?

[mepammy]

This brought tears to my eyes!!! As an adult going through this -is one thing. I can still say I've been healthy and active for most of my life. But seeing a wee one suffering is what really hurts!!! My prayers go out to her !!!!

[octopodi]

Thank you so much for comment. That was so nice to read. And i can say she has suffered alot but also i can tell you she is allmost all fine now :)

[octopodi]

yes she has Lyme arhtritis.

but in this time when i documented the symtoms in this short video she had lymphs that were moving around and hurted soooo much. it also came a sound from them.

[NWOBHM85]

tjenare.. jag har okså Neuroborrelios.. e ju inte direkt kul =(

[octopodi]

Hejsan!

Nej det är hemskt och dess värre är det ju att ha det och bo i Sverige som inte kan mycket eller behandlar tillräckligt.

Får du hjälp?

Är du med i patientföreningen?

[NWOBHM85]

ush =(. ja jag har ätit doxyferm i 2 veckor, men känner mig fortfarande konstig och allmänt dålig. man väntar iprincip bara på att ramla ihop.

är inte med i patientföreningen. vad är det?

[octopodi]

There is a good clinic in Ausburg Germany

[octopodi]

See the documentary " Under Our Skin"

[octopodi]

She were on her 13th day of Cefuroxime IV here. And i wake up heard her cry alot this night before the video. She got so stiff in her neck, more and more stiff every hour. Untill she couldnt even lay down on her pillow anymore, had to stand up, then she couldnt even stay still from all pain. First she wanted me to give her massage. I thought it must been a "normal" stiff neck and muscles.

[octopodi]

In this time when i made just 30 sec video of her (just to try to get the bumbs on her neck on camera) to send her doctor in another country,she was having so much pain from the borrelia spirochetes trying to destroy something.

[octopodi]

But at this point in the morning a few hours later i couldnt even touch her hair from pain. Then we went to the ER, when i realised this must have to do with the Lyme. Horrible! But thank god she were on IV treatment.

[octopodi]

Now she is feeling so much better, allmost all of her symtoms are gone, thanx to her german doctor!!!

[tigr7170]

Dr. Jeff Sutherland of 'The Frequency Foundation' has some very interesting recent research articles on Lymes disease. If you see photos of some microscopic kinds, maybe we can understand why it feels like peices of GLASS in the brain or joints, etc. at times??? My health protocols has involved 'The Hart Dietary Procedure Plan' which has U.S. Patent, and frequency work, etc. Thank you for the video, & stimulus to more research, & greater awareness on this topic.

[pointeskatecybunny]

What is happening in the video. I don't understand.?

Can you explain it plaese. Does that little girl have Lyme Disease?

[octopodi]

Yes she has Lyme disease. Hopefully she is allmost well soon. She is doing so much better, allmost all fine :)

[ecftube]

Hey guys....PLEASE register at the Oprah Winfrey website and let her know how much you would like to see her do a show on Lyme disease. Dr. Oz thinks the "UNDER OUR SKIN" documentary is wonderful but a show about Lyme won't be done unless she sees lots of interest. Request that LLMDS and patients be the guests so that we can be heard. Also, Daryl Hall would make a great guest. WE ARE ALL IN THIS TOGETHER !

God Bless,

Elaine

[Prethenie]

Google....."Low Dose Naltrexone Homepage." And also here on You tube..."Controlling Lyme Disease," and see the LDN videos by "TropicalDawg" here as well. I have been using LDN, for just over a week now, and feel the need to pass the buzz. This is a drug that helps with the immune system, inflammation and endorphins. Eat as if you had a yeast problem, because Lyme loves what yeast loves. And no sugars of any kind..."Including Fruit!"

[BeelinedAgain]

Google Lyme Disease and LDN, low dose naltrexine or is it naltrexone? Find the LDN web-site. Anyway, hearing good things about this and Lyme Disease, about to try it. But it must be from a reputable compounidng pharmacy. The LDN site lists some.

[Azorka82]

See my personal profile for my Lyme history. But still wondering: Disseminated Borrelia (chronic Lyme) or antibiotic (doxy/cefuroxime; crossing blood brain barrier; possibly sending neuro-toxins deep into brain) induced lupus [AKA "Post-Lyme disease syndrome"]? If former, IV ceftriaxone indicated; latter, corticosteroids. Yet neither offered in six years of increasingly debilitating disease.

[octopodi]

That is so scary with neuro-toxins.

And the fact that it can cross the blood brain barrier. I will look ur profile up!

[Azorka82]

A federal report released this week confirming Gulf war Illness a real disease attributed it to Bromide pills given the soldiers (that cross the blood brain barrier). Doxycyline causes brain swelling [encephalitis] in children under 7, but CDC and wikipedia don't say that, only FDA. The latter two only say doxy not prescribed for children due to it staining the teeth, etc. The symptoms of Lyme borreliosis and antibiotic induced lupus same. Disseminated spirochetes or pharamaceutical mayhem?

[octopodi]

Thank you so much...youre right.

There are so much science now.

But why are there so many doctors refuse to take part of the results!?

I dont have the answer and i think you didnt find an answer yet. They are stupid!!!

[johnnylate715]

Hi, I don't know how stupid, dumb docs could look at this little girl and have no compassion at all.There is so much science now to prove Lyme Disease is transmittable and can Happen to anyone at any time, even a child like this can get it, It's a real shame I hope she gets all better very soon.

Johnny

[awarenessdaytributes]

how is your daughter doing? I'm a teenager struggling with Lyme, it really is terrible. I cannot imagine a little girl like your daughter going through the pain. I really hope she is better.

[octopodi]

Hi! She is so much better now.And we hope it will last!Im sad to hear you have it aswell.Youre only a teenager,its terrible 2!

Its not fair the kids suffer :(

Like my girl.She was only 5 when she got it.

The hardest thing is how horrible she felt.But the second is we didnt get the right treatment here in Sweden.Like many! Did u get the right help?How do u feel now? Take care and thank you so much for the comment!!!I hope you will get better soon!!! Let me know!?

I wish u all the luck!!

[awarenessdaytributes]

Oh I'm so glad she's better! I've had neurologica lyme for 2 years. It gave me many weird symptoms- my body started producing too much spinal fluid, and my headaches were so bad. I also had the neck pain. I'm getting treated by a "lyme literate" doctor. I just switched medicines because I didn't respond to the first 2 kinds. Hopefully this one will work. Thank you for asking! Is there a lot of lyme in Sweden? My doctor told me the country with the most lyme is Austria, I didn't know that!

[octopodi]

Good 2 hear u have a Lyme dr. :)

We have alot of Lyme but no doctors knowing enough about it. And the climate gets warmer every year so more ticks.

We had to go to Germany to an expert ( he follows the ILADS recom. ) It is the country next to Austria. Good night from Sweden 01:01 Best regards!!!

[johnnylate715]

This really makes you mad that stupid dumb docs refuse to wake up to Lyme Disease. How many more children will go through this before they do? they should all be ashamed of themselves to call themselves doctors.

[marsbarnet95]

min syrra har fått en fästing nyss.. och ingen vet hur länge den varit där :'( hon fyllde 10 förrigår,

[octopodi]

Det är inte alla fästingar som bär på Borrelia bakterier eller dess sidoinfektioner.Så du behöver inte va orolig. Och blir hon sjuk eller får några symtom alls,om hon mår dåligt på något vis.Så vet du vad det kan bero på och hon behöver då antibiotika.Får hon isf inte hjälp i svenska sjukvården eller om dom ej hittar Borrelia bakterien,så finns Tbe & Borrelia patientföreningen som ni kan få hjälp av.Men som sagt det är inte alla fästingar som bär på smittan.Ha det bra!

[Azorka82]

"PLEASE DON'T FEED THE TICKS": I was a long distance hiker but contracted Lyme disease. ER doc diagnosed 2002 (tick bite/EM rash). Positive serology. ER doc confirmed diagnosis 2007. Wikipedia Lyme page emphasizes 'no chronic Lyme' yet describes disseminated Borrelia/late stage Lyme (?!).

See my personal profile here for more about IDSA conflict of interest, etc.

[neelubird]

Poor child- it's such a relief to hear that she's getting better now. I was diagnosed with Lyme Disease a month ago. Increasing my intake of raw foods (certain foods trigger my IBS so I have to choose carefully) helped me too. Taking tiny amounts of raw garlic each week really helped; first 2 days it would cause a bit of a reaction then after that I'd see a slight improvement so raw garlic has definitely been worth it.

[octopodi]

I hope you get the best help !

I give her garlic alot. We eat alot of greek food. In my tzatziki i put alot of garlic.

[Prethenie]

Has anyone considered? that the heavy spraying of Chemtrails, may have contributed to our susceptability to lyme Disease?

[Prethenie]

Thank you. Also wanted to mention, that when I started drinking lemon juice, it brought back the pain. Stopped and so did the pain. Vinegar also wreaked havoc with my sytem. None of that either for me. Tired of fighting and just must accept the fact, no fruit, no sugars, no goodies that I so love. But getting around is necessary, hoping one day to have an active life again. My best....:)

[octopodi]

ok the sour things arent allways that good...

i keep give my daughter spirulina and gojjis...no relapse yet...knock on wood :)

[Prethenie]

I wanted to let you know that I am feeling much better. No drugs. No Sugar, No Fruit. I eat only Salmon, Chicken and salads. Drinking only water. I do have an egg for breakfast with a slice of toast. Juicing daily with only veggies.Has anyone else tried this? I am now driving and caring for myself. After five months of being bedridden. Putting this bugger into remission.

[octopodi]

Im very glad to hear that.

Sounds like you are a fighter :)

Hope you keep it up and keep feel better !!!

[octopodi]

Hello :)

Thank u so much 4 caring!!!

That makes me happy.

True i think...its the greatest and only way to get well-antibiotics!

How long have you been ill and how long on IV and antbx treatments?

I hope u get better fast !!!

Yes they are so smart and evil the spiros :(

But we r going 2 win...arent we?

YES WE WILL!!!

Sending u some warm love 2!

[leesbet]

I do hope your little girl has had aggressive IV antiB treatment now.. if she hasn't make sure she receives it ASAP. The real danger is that eventually the borrelia will attack the spine & brain & can kill.

[octopodi]

Hi!

Yes she had 10 days IV Roceph. in jan-07

21 days of the same in aug-07.

In fact this happend on the 13th day with the IV in august 2007. So it might been a Herx.

Ever since then shes on antbx orally Zithromax and some times Cefuroxime.

She is much better now...thank god!!!

[leesbet]

hi O..

Thankyou for replying. I am so glad to hear what you say. She seems to be on good oral drugs. I am on IV & take an oral med too yet I was very strong and fit it is impossible to get better without antiBs.. so I do know how sick your little girl has been. It is an evil disease & a killer.. Aggressive treatment is the ONLY way to get better. My love to you & your daughter.. Lizzie

[Prethenie]

Whatever works. Dairy clogs the Lymph Nodes. I have gotten well before and trying to duplicate things used in the past. I started again with Health Force Nutritionals Spirulina, Pure Synery....the Ultimate Superfood Formula, Natures First Law's Nature's First Food and the Ultimate Meal by Ultimate Life. Google to find these. Check out Sunfood Nutrition for some of these products. They have Goji Berries. :)

[TRIXTICKREMOVER]

tick removal has never been easier since the introduction of the TRIXTICKREMOVER, a tick lasso that can safely remove ticks from ANYWHERE on your body....makes light work of tick removal.

look in the chemist/apoteket....they are on sale there....stackarn.

[octopodi]

Tack så mycket !!!

[TRIXTICKREMOVER]

tick removal has never been easier since the introduction of the TRIXTICKREMOVER, a tick lasso that can safely remove ticks from ANYWHERE on your body....makes light work of tick removal.

this is a swedish invention, they are freely available in the chemist(Apoteket)

Hälsningar

[Prethenie]

I love Gojiberries but do not eat them at this time.....being a fuit. I mentioned before what I was eating...that I found to be helping me. You are being a good Mom, but pay attention and stop the sugar. No fruit including dried. My pain left when I cleaned up the diet. I just started taking some Ionic Silver by Invision International-Silver 100. Just try a few weeks of just water, fish, veggies and some free range chicken. Make a stir fry, add some herbs. No dairy. No packaged foods. My best.

[Prethenie]

The woman who says that she was cured was probably not that ill. In the book Nutritional Healing or Healthy Healing, just yesterday I read that one should treat the Lyme as a Virus. I keep emphasizing to not eat fruit. No Watermellon, Goggi berries or Pommegranite. I do not know if there is a language barrier here, but you are feeding her smoothies and not helping. When I cut all sugar and packaged foods and made the body alkaline, the pain stopped. No fuit. NO Gojiberries.

[octopodi]

She really got better since we started the Godjiberries.I keep give them.Also started to add Spirulina in the smoothies.I NEVER add sugar.I dont know how they make smoothies were u live.I add youghurt with no sugar in it, naturall greek one that also has good bacteria in it for her stomach.And blueberries(blåbär),rasberry,w­alnuts,Grapefruit.

She really feels so much better.

Ofcourse its the antibiotics,think its also the greek food i make and the smoothies.I only buy food raw.Thank u for all:)

[Prethenie]

Again, avoid the watermelon because of the sugar. All sugars including fruit sugars. I know someone said she lived on watermelon and got cured, must be a rarre person. NO SUGAR! NO FRUIT! AVOID PACKAGED FOODS! ONLY WATER FOR NOW! If it is not in the house, can't eat it. Do it for your baby. Go around the corner and sneak it, just not in the house. Sugar is a killer. Read "Sugar Blues." Great book.

[octopodi]

oh yeah i think i did see that one...i to thought watermelon would be great to eat...such as pommegranate.

I give her Godjiberries every day in smoothies.

Thats good i think ! ?

Have u tried it?

Yes i should stop buy any of the sugar stuff or even fruit that cont 2 much sugar.

[Prethenie]

The watermelon made me feel worse, because of the sugar. When I say slumped, I meant crash. Like slumping over. I just bought two thousand dollars worth of Salmon from Alaska and had it shipped. Came in a few days ago. Will be living on mostly this, water and vegetable juices and salads for three months. Tried this before and it worked. We'll see. The pain has left, but so ill can barely drive. But at least able to do things around the house. Will sit in the back and get sun. Important. :)

[Prethenie]

Just for an additon, bought pH-Basic by enzymedica. Comes with ph strips inside. My ph is balanced. Also veggie juicing daily. Sugar is the killer, weaning off. I ate watermelon and slumped. No sugar needs to be my mantra.

[octopodi]

Thank u for that...we eat alot of watermelon.

Trying to cut off the sugar.

That is harder :)

[Prethenie]

I agree on the alkaline diet. I have Lyme's and when I started juicing recently, the first relief. I am not cured..."YET," but in time...hopeful. Eat as if a grocery store did not exist. No sugar, including fruit. Virus love sugar! No honey,fructose etc. I only drink water and vegetable juice...made at home. I make batches of the freezer. Some free range chicken and deep ocean fish. Will check out the Alkaline diet. Sounds right on. :)

[Prethenie]

There is success with alkaline diet treatment for the Lyme Disease. Please note: 1.Lyme spirochetes can't survive an alkaline environment. (Google ALKALINE DIET For details on how to do an alkaline diet.) 2. One can further alkaline one's body by taking garlic with every meal. 3.Lemon juice & H20 between meals will further alkaline the body.

Alkaline for a MINIMUM of 4 weeks (Lyme spirochete lives 28 days.) I challenge you to try this on a suffering Lyme victim and see success.

[Prethenie]

I too have Lymes. Drug causes chest pain. Stopped. Head hurt....too painful to lay on pillow. Started Juicing greens and relief. Still too sick to drive. This is a virus, virus loves sugar. No fruit, sugar fructose honey etc. Only greens, veggies and and healthy diet. Stevia can be used for sweet taste. It's torture for me, a child??? Google Plum Island in CT. Government Biological Escapees. Healthy diet. Will check Alternative Therapies for Disease. My heart breaks to see a child suffer. Love.

[octopodi]

Sorry but did you write right?

A virus?

The spirochetes are a bacteria NOT a virus.

[Prethenie]

UH? I have Lyme?.....so my thinking sometimes gets a bit cloudy. I realized this after posting...but the CFIDS I have "also" interferes with my thinking....so I did not catch the inaccuracy in my writing.

I posted out of caring and compassion. Thought you would have caught that and showed some in return????

"NOT" sounds a bit sarcastic....and "NOTE" that I am "NOT" an unbeliever, but a sufferer as well.

I feel your pain...show some empathy in return.

[periwink]

I'm so sorry to hear this. But I think if the victims of Lyme Disease keep putting videos online to describe our symptoms, we may be heard more often. Hopefully there will be hope for us one day. I was having a bad herx yesterday. I hadn't had one of those days in several months. I sleep with a heating pad because of the sore and stiff back/neck muscles. It keeps me from locking up like she did. Maybe it will help her, but make sure it has a timer, that shuts off every 15 minutes, it's safer.

[octopodi]

YES you are so right.

Our time will come.

It has to.

But untill that we will keep on fighting.

I think it was a bit different her neck problem that time.

She can also get "locked up".

But that thing was something different.

She use to be in the jacuzzi when she get stiffed and pain in her muscles/joints.

Also its good for the detoxic part to with warm baths.

But that you allready knew i think :)

[periwink]

Yes :). I did know that. I use to have a boyfriend who had a jacuzzi bathtub. Everyday in that tub, it was a little bit of heaven. The hotter the water, the better my back pain disappeared. TINY tingles all over my body as I soaked. Oh how I miss that tub :P. (him too). For some reason though, I cannot tolerate the heat in the sun. I get exhausted quick. It's difficult to handle. I will try and get some videos up on YOUTUBE in a month. Hard to think of what to say sometimes. Take CARE! prayers2u

[octopodi]

Oh im sad to hear u dont have the jac and the man anymore.

Go for a new one and a larger tub :)

We just came home from a hot vacation at the island of Cyprus (Greece).

It was 47 degrees in the shadow.

My daughter got the worst eye pain ever.

And her face swollend up.

I dont know if it was a reaction of the sun or just the borrelia/Lyme itself.

But part from that she feel pretty good in the heat.

I wait to see the video!

Take care and may the angels be with you!!!

[octopodi]

My daughter get so much pain in her stomach when she is in hot water in the jacuzzi.

But other from that she fells better after.

Is that something u also felt?

I hope u find a new man with a tub like that or a bigger one ;) u2 take care n pray i 4 u!

[periwink]

Thank You for prayers. We can pray for each other and our families :). I don't get pain in the stomach when or after I would get in hot water, but I sometimes would get a little hungry (It may have just been me). I didn't pay attention to my lyme pains, I thought it was just fibromyalgia at the time, but now I know it's Lyme because I had all my symptoms return. (fibro and Lyme are usually a pair that runs together). My mom can see the knots in my back, that i know is LYME.

[octopodi]

yes we do that :)

I to have the knots on my back...i can see them to in the mirror and other people do.

I think i have Lyme aswell, not Fibromyalgia.

We took a bath in the jac 2 nights ago. My daughter as allways got this stomach pain and pain in her head...went to sleep...and in the night time she got a flue like relapse...40,4 degrees fever, throwed up, body cramps and so on. She use to get the relapses every 2-3 weeks for 3 years now. But the last ones has been 4-7 weeks in between :)

[periwink]

Okay, I was re-reading some of what I said before about the stomach pain. I just want to clarify something. I usually got pains in my tummy. Like I had an ulcer. I was given a lot of tests back in 1998&99. Doctors were looking for a hiatel hernia or other things on xray. Everything was norm. to them. I now realize it was lyme. It's a very strong BURNING. I get infections easier, and get on antibiotics and the lyme starts to hide, it's not strong enuff to kill it, then I get better and deny Lyme

[periwink]

You know what? we should video chat or keep in touch. It was the fact that I came to YouTube a few weeks ago, and heard others with Lyme talk about their pains, that made me STOP denying it! It helped me realize I need to stop FOOLING myself. And since i've gotten on meds, I'm getting better. It's hard to explain to healthy ppl. They don't know Lyme. The brain "tricks", the memory problems, the pain that MOVES. I got a large PIMPle on my chin yesterday, althou, I now know, it's not, its LYMEcyst

[periwink]

Lyme thinking : Okay, I bet your daughter gets tummy pain after the hottub, because the spiro's hate heat. They are running to a different spot. I was on antibiotics for a dental surgery I had when I was using the hot tub. so I had a decrease in symptoms...it wasn't until RECENTLY that i got sick again, and very lethargic, mental confusion, depression, cant study as often (ADD) and HARD knots in tummy. All this is lyme coming back strong. The vids on YT, helped me realize its back. I keep diarys

[octopodi]

Ok...then we will take hot baths more often :)

I want to see all of ur diarys...as soon as i have time over for that i will :)

[periwink]

OH, I wish I had them on YOUTUBE, but no, I kept written diaries and have over 60 of them filled up. I keep the smaller size books, and try to limit each day, to 2-3 pgs. I just write symptoms, meds, exercise, weight, daily tasks, emotional feelings and mental feelings (like brain fog severity). It has helped me see what I did to feel better and what I did when I feel bad. - However, I do want to upload some videos on YT one day. :P

[periwink]

Can you please get some english subtitles on this video? I think we can all relate to the hurting pain associated with Lyme. I get it in my back, and when I was first ill, I had my back lock up on me twice. That is what this video reminded me of, except I had to stay slightly bent over. :( poor thing. She's so young. I'm glad to read that she's getting treatment though.

[octopodi]

Thank you for your caring !

This happend one night with her second time on IV Cefuroxime.On the 13th day.

She got some bumps on the side of her neck.

The bumps was getting larger for every hour.

It hurted from them.And there were something inside of them that was moving around.I could see how they moved around and it came a sound out of the bumps that sounded like someone who is chewing a chewing gum.

Every time the sound started it hurted even more.

[octopodi]

And the head got more fixed to the side for every hour. I had to make her massage on the bumps. But as more fixed the neck/head got the more painfull it got. So then she didnt want more massage. In the morning she had so much pain and her head was stucked to the side so she couldnt even lay down anymore.

She had to stand up, leaning her back to the bed. And soon she couldnt even stand still, she walked around from all pain. And i couldnt even touch her hair,it was to painfull.

[octopodi]

We had to take her to the hospital in a wheelchair from the car.

She couldnt even move then from pain and her hed was stucked 45 degrees to the side.

The stupid swedish doctor came and wanted to turn her head.I said dont touch her, i cant even touch her hair.He didnt listed and he tried to turn her head to the other side.She was screaming so much my daughter, me to! And the idiot doctor realised he couldnt even move her head a bit.He said it was a stiff neck and nothing dangerous.So ignorant.

[tigr7170]

The Hart Dietary Procedure Plan has 3 U.S. Patents, and is SUPER easy, particularly the viral version. Dr. Jeffery Sutherland of The Frequency Foundation (and has worked with Microsoft Operating Room Of The Future, etc. former NIH Board Member) has OUTSTANDING research on Lyme's, WEAPONIZED Lyme's alleged to have escaped from a "lab"...

[ecftube]

Hi there,

I have written a very informative brochure if anyone is interested. Can email to you.

Elaine in VA.

[lymelights]

Not sure what this was about or what was even said.

[ecftube]

Hi there,

I wrote a Lyme brochure with the help of 2 Lyme specialists. Would be happy to email anyone a copy.

Elaine in Virginia.

[blackroze2200]

it is just this reason why I as a survivor am spreading the facts, my heart goes out to your daughter. Keeping the faith we will find a cure even if we half to kick the world in the butt a few times till they get it right.

sincere Roze

[octopodi]

Oh thats so nice for me to hear...i can see that you to as me and my daughter had the bad luck to experience this spirochetes.

I try to be positive and strong, we all have to. In all countries. Yes we will kick the world and we have to come together to do so i think...i try so hard here in Sweden to kick the doctors in the right dirrection :)

Thank u so much for that !!!

Best regards Eva

[maciejwrotek]

I remember there was a discussion about a little, one digit year old child, diagnosed by doctor with depression after apparently Lyme was "cured".

The discussion was about how so little child can be depressed about something.

[DontTickMeOff]

It's so terrible they can't help us in the states!

[octopodi]

Yes it is!!!

You have ILADS.

Sweden dont have any doctors nowing about this and caring...at all!

I had to take my daughter to Germany!

We have to all come together!!!

[maciejwrotek]

How is the kid doing now ? Did u try some effective treatments?

[octopodi]

She feels better.

Thanks for asking.

She gets help from an expert in Germany.

But there has to be a change in most countries. And here in Sweden to, there is going to be more people getting the Borrelia Burgdorferi bacteria because the number of ticks increases every year!!!

[octopodi]

its so terrible that they cant help her ín Sweden!