Curebies unmasked

[asperger15]

does anyone know were this clip is from? I think its from the x-men but I'm not sure about which incarnation.

[aspie182]

@asperger15 The segment quoted is from a direct-to-video feature called Mosaic. The main reason I watched it in the first place is because Anna Paquin's name was in the credits. When this section played, I just had to make this video.

[narutofightindreamer]

Ever wonder why good animation, whether it be American or Japanese. Seems to be going away as far as being broadcast on Mainstream T.V.. They bring up too many good points........................­... Helps to be both an Aspie and a Animation Fan to notice these things........................­Thank You "aspie182"!!

[CosmoShidan]

I think of aspies/austies as mutations.

[Suzaku82]

I would much like to understand what a neurotypical would think if they saw a world in which WE were the norm. Where Neurotypicals had the label, "Neurodislogia," instead. Where ASD individuals were working on a surgical procedure to cure you of your lack of logic. Where individuals like yourself struggle to keep up with their peers, because YOU WORRY THAT YOU'LL FORGET, AND NOT MEASURE UP AGAIN. How would you feel?

[KingRadbadical1988]

@CosmoShidan I think you're a mutation, and probably not that intelligent.

[CosmoShidan]

@KingRadbadical1988 My bad. I meant to say mutants; kinda like in the X-men.

[LthrnZack]

ROMFFLMMFAO!! This video keeps getting better ever time I see it XD. It's the gift that keeps on giving LOL.

[bluepenguins2709]

I love the way you use movie clips to voice your opinions of "Autism Speaks" and Curebies! They're so simple and true. And they make me laugh! I'm glad there are people like you on youtube.

[aspie182]

Truth be told, at the moment I use snippets like this because I lack the ability (both financial and practical) to film new footage that makes the point for me. One day, I want to sit one of my proxy-characters in front of a camera with his younger granddaughter and have him explain that they are both autistic, and the preview of normalism that he was given when he was her age was so good that he rejects it utterly.

[ww2fan39]

I dont believe there is a cure for Autism/Aspergers syndrome.

[Gl4d2B]

I am usually a fairly nice and open-minded person,but I've recently come to the realization that it is impossible to be that way with these curbie jackasses.I was,up until recently,trying to speak acceptingly and retionally to them for the sake of their children.This approach DOES NOT work.They will treat you like a fool for not sharing their same opinion,no matter how respectfully you attemp to address them.They seem to feel that if you dont buy into their bullshit,you must be ill informed.

[Gl4d2B]

It is sad that we live in a society where the rights of the parents outweigh the rights of the children.These assholes are in it for themselves,not their kids.Also ,if any one has any more complaints about anyones use of the word"curbie"being insulting,dont even get me started on that stupid puzzle-piece symbol!

[Gl4d2B]

*curebie

[p717]

I've had to come to the conclusion that Curbie-ism is a religion. All of the elements are there. Rigid social constructs not based upon facts, refusal to consider opposing or critical narratives, even when they're trying to be constructive or logical..begging for money...thriving off tax grants..and evangelism..good god the evangelism is terrible.

[LthrnZack]

Damn dude, you're my kinda guy.

[LthrnZack]

I was very tired the night I posted this comment. Sorry for being so vague,LMAO and for sounding so ambiguously gay.

[aspie182]

Just felt like saying while I was going through the old comment lists that the original post read quite differently to me when I first saw it. *laughs* More like someone complimenting a friend who has won a really odd bet at the local pub, if you will.

[LthrnZack]

Oh yeah, I almost forgot. This was my first comment to you if memory serves. My wife had just introduced me to your awesome vids and I almost fell out of my chair laughing while thinking just how perfectly well this video describes a Curebie. It's good to hear from you again btw :)

[DuckHump]

By this logic we should cease all attempts to cure Parkinson's disease, because it's simply another plane of existence.

[aspie182]

Straw men will get you nowhere. Ask the professionals who really work with and study the autistic at length as opposed to make up the ridiculous generalisations you are repeating. They will all happily tell you the similarities between autism and Parkinson's Disease are in the order of nil.

It is a strange correlation that the people who are pro-cure are also those who know the absolute least about autism.

[PhilCommander2]

any video with the word 'curebie' in it is clearly a video by a person who wants to intentionally insult people...in other words a loser. autism has nothing to do with you being a loser...YOU DO. quit using autism as an excuse to be a loser.

[aspie182]

This reminds me of Holocaust deniers who whine that they do not like to be called deniers. I happen to like the aural qualities of the word "curebie". When I speak it aloud, it sounds like Michael Ironside speaking to a piece of crap near a stop sign. And the word, when taken into account with such aural qualities, is very accurate.

Losers are people who attack others for expressing themselves in a manner that they are not comfortable with. Take a good, hard look at yourself.

[PhilCommander2]

I am not comfortable with your expression of yourself when it insults the very people who may need to be made to understand that some of the things they are doing with their children could be harmful.

Those people may need to be appealed to on an intellectual basis with respect.

Calling them a name designed to insult them does neither.

I like the aural sound of "Parents of autistic children using biomedical treatments that may not be as safe or effective as they believe they are".

[aspie182]

These same people thought you could cure autism by physically assaulting and torturing children, kind of like a sick obedience school, when I was a boy. And what exactly is supposed to happen when they take the John Best route, and will not even listen to qualified health professionals because they do not excuse the abuse of children?

Being that I would not even be here now if I did not speak up as strongly as I could at a given time, I do not give a shit what you like the sound of.

[KingRadbadical1988]

@aspie182 No need to be mean to the guy. I disagree with him but he personally isn't attacking you, just disagreeing with something you said (which I agree with btw).

Definitely keep speaking as loud as you can though with no shame. Children are being TORTURED...I mean, think about it...CHILDREN...BEING TORTURED...FUCK BEING CIVIL!!!

As for people who simply call for us to "be more civil", I hold nothing against them. As long as they aren't on "their" side its all good and they can be won over

[PhilCommander2]

Edsflix, the word "curebies" is very insulting to me. I am shocked you would use such a derogative term. Why not call parents the "N" word?

[justdan54115]

Spot on.

[Casdok]

Excellent video. My non verbal son was in pain for years. I was questioning the so called experts about what his behaviour meant but apprently they knew best. In the end because of my pushing, indeed he did have a health problem. Just because your child dosnt speak we have to be more aware of what they are saying. We need to listen more to autisic people who can speak and learn from them.

[aspie182]

The words "I am talking... you're not listening" have become by far my favourite statement to a lot of people I meet. One would think that the anguish and bitterness we are seeing as a result of the emergence of the fact that autism is a spectrum might indicate to the powers that be that perhaps listening and thinking skills are on the wane. *sigh*

[londonbaires]

The only way you will help other autistic children is by engaging and understanding their parents. So try to help us. We need your help.

[aspie182]

As I have said elsewhere, this is not solely about children. Adults on the spectrum are talking non-stop at the moment, and being greeted with stone deafness. The number one anxiety reported by parents of autistic adolescents right now is how they will cope with the total absence of social services their children will meet after an eighteenth birthday. That says a lot about the present state of affairs, and not one bit of it good.

[londonbaires]

Absolutely agree. Of course support shouldn't be cut off when children become adults but what everyone is all parents of younger children are trying to do, including the ones who chose chelation, is to prevent or minimise the need for that support. Will you make videos which help us to do that? Will you suggest more ethical methods.

[aspie182]

Have you not been listening? Nobody needs chelation. Is that so profoundly difficult to be told? The FDA has even put it on a top ten list of health frauds. As for the need for support, think of it this way. If I were to dump you in the middle of Beijing with no ability to contact anyone who speaks a word of English, would you not be upset about the lack of support you find? How many different ways do you want to be told you are asking the wrong question?

[londonbaires]

I think it's YOU who doesn't want to listen. You do what many people do when they can't find the words to answer dificult questions; attribute thoughts to their questioners that they haven't had and put words in their mouths. Find my words that condone chelation. When I mentioned it, I merely wanted you to understand that parents who undertake all interventions, including those who chose chelation (mostly before the fraud was uncovered) do so for the same reasons.

[londonbaires]

Of course I would be upset at being dumped in Beijing but If I been taught Cantonese from a young age, I wouldn't find it quite so hard. I guess I'm kind of trying to teach Cantonese. I'm getting better at teaching it, my child appears to be enjoying it, and If I don't try I'm afraid my child isn't going to survive very long in China. I can't and won't rely on the British or American Embassies giving their support.

[londonbaires]

And I imagine you would say that Chinese society should try to help me and understand my culture and give me freedom to practise it. You would be right. Just remember, English is a really difficult language to learn and English and American culture is just as alien to the Chinese as vice-versa. That's why I'm writing to you.

[londonbaires]

That's why I'm on YOUTUBE watching Aspie videos. I'm a Chinese person with little English, trying to understand how best to help an English person live in Chinese culture while maintaining their Englishness.

[aspie182]

This will sound exceedingly obvious, but Autism is a lot more than a linguistic difference. That was my reason for the being dumped in China analogy. The unfortunate reality of the situation is that we have a lot of parents and so-called health professionals who have been taught that everyone should all move, think, and speak alike. It is dispossessed adults like myself and children that are paying the price. That is why my videos exist.

[aspie182]

Wow, and my mother thinks I was too literal as a lad. Since I have no idea whether you have read Heinlein or not, I have to resort to pretty generic examples in order to draw a parallel to ask you if you have the slightest clue what it is like to live in a totally alien world where people can get away with telling you that black is red. So to speak. Have you given any thought as to how easy it is to teach a child to regard themselves as worth less than their peers?

[londonbaires]

Yes I have. And I have to admit, I've inadvertantly been guilty of it when teaching classes of neurotypical children. That's why I now try to monitor my actions much more closely.

[aspie182]

I am not sure where to find Christschool's video from here, but he raises the very good point that in a society with such rampant discrimination, one needs to get the word to everyone around them.

[aspie182]

Well, now we are in the "I know you are but what am I" stage, maybe you should start to consider what this video is really about. The very first frame makes it clear that what curebies think they are doing and what the autistic really receive as a result are two very different things. When one chelates a child, they are sending a very clear message to the autistic community. Namely, that they would prefer to have a dead child than an autistic child.

[londonbaires]

I can understand that. But, I ask you again, what would you advise them to do instead?

[aspie182]

I have stated already (or elsewhere) that I am not a doctor, I do not have all the answers. But between no answer and an answer that treats the lives of children as expendable, I would prefer no answer. I have also mentioned in several places that actual experts trusted by the autistic community do not support "corrective" measures. Funny thing is, what they do support is education.

[londonbaires]

I'm sorry, but that answer doesn't cut any ice with me. We parents don't have the luxury of being able to wait to find the best way to help our children. We feel we have to act now. Not trying to find an answer is not an option for most of us.

[aspie182]

It is the only answer you are going to get from people who are interesting in your child being what they can be, as opposed to trying to make them into something they are not. You parents seem to think you are the only people with problems. As a result of my parents being consistently given the wrong answer throughout my childhood, I will never be able to have a normal relationship with a human being.

[londonbaires]

That's why I'm asking you for a few right answers.

[londonbaires]

It's so easy to be destructive, not so easy to be constructive. You will say that interventions have been destructive and no doubt you would be right for at least some of them. But by the fact that you still refuse to enter constructive comments, tells me that you're just interested in venting gyour anger rather than helping fellow autistics. I won't write anymore. us what would have helped you as a child so that I might bare it in mind when being with my daughter.

[aspie182]

Do you want the same for your child? Because with this "I want an answer right now and I do not care if it is abusively wrong" attitude, you are sealing your child's fate. It is exactly the right way to go about ensuring your child's future resembles my present, and exactly why autistic adults will not respond to you in the manner you seem to desire.

[londonbaires]

You appeared offended when you thought I was suggesting that you were advocating doing nothing for my child. Well, it seems from what you just wrote that nothing is exactly what you are prescribing for my daughter.

[londonbaires]

There you go, putting words into my mouth again. I don't want you to give me an answer to all my, and my daughter's problems, I just want your insights and suggestions for ways forward. So far, the sum of your advice is not to do anything abusively wrong.your advice seems to be 'Don't abuse'. I obviously do care if intervention is abusively wrong or I wouldn't be asking you to suggest one that isn't.

[aspie182]

No, you want me to give you an answer that does not match the reality I know. Sorry, but it does not work that way. In no short order I have told you that there are real experts out there who approach the problem the right way, that you should find one, and that you should not be taking a curebie's word for it. If you want to keep telling me I have done the exact opposite of what I have in fact done repeatedly, for everyone to read, then you do not deserve the time of day from me.

[aspie182]

When are you going to get this through your head? I am not a doctor. I am not here to tell you what you should be doing. If it so displeases you that someone has the courage to tell you what you should not do, then go look at someone else's videos.

[p717]

Londonbaires..I understand your emotional disposition. But you need to realize that wanting answers "now" makes you vulnerable to the 80% charlatans who thrive in the Autism Industrial Complex..they take your money..or the state's money..whichever they can get.

Worse yet..you're doing what seems to be commonplace with all children these days in America..disabled or not. You're sacrificing THEIR future so you can have closure and a sense of comfort NOW.

[londonbaires]

Tell us how to cope with the desperation we, parents, feel at not being able to understand, communicate freely and meet the needs of our children. Tell us how we can positively allay the worries we have for our children and the guilt we would feel should our children suffer as adults because we had not done enough for them when they were young. The only way you will be able to change attitudes is by addressing these issues because these are the main motivations for all interventions.

[aspie182]

Maybe you should tell me how I should try to sleep at night, carry out normal human adult relationships, and work productively. Because your so-called interventions, in other forms, helped take those abilities away from me. You are committing a serious fallacy when you claim I am saying you should do nothing for your child. However, given that children have *died* from chelation and such "therapy", doing nothing would be preferable to a lot of what curebies recommend.

[londonbaires]

You answer my questions with a suggestion rather than an answer. Strikes me as side-stepping the issue. You tell us parents what we shouldn't do. Tell us what we SHOULD do to improve our childrens' life-chances while avoiding the suffering that you went through as a result of 'My so called interventions' (Don't know where you got the idea that I am condoning 'cures'). AND I did not claim that you are suggesting doing nothing for my child, I'm saying you haven't actually suggested anything.

[aspie182]

There is a big difference between not telling you what you want to hear and side-stepping issues. Did it ever occur to you that by not treating children as if they are second-class citizens simply because they were born different to those in power, you already improve their lives? No? Well, for someone who seems to think there is any need for chelation, you seem to cower in renunciation a lot when told how profoundly negative the impact of your approach is.

[londonbaires]

Yes, it did occur to me; it's something a parents continually do during interventions. I constantly ask myself if the therapy is right. We have to weigh-up what we think is best for our childrens' future. There have been parts of my daughters' therapy that she hasn't enjoyed but she is enjoying being able to ask for every item activity and food that she wants.

[londonbaires]

This only happened because of implimenting an intervention programme.

[londonbaires]

'Cower in renunciation', is that taken from an X Men movie. My approach is having a profoundly negative impact? You don't yet know what my approach is. I get a feeling you are expressing prejudice here. I mean you're attributing thoughts and ideas to me before asking me what they are. None of us likes prejudice. It feels like you're saying he's doing an intervention with his kid therefore he's an enemy.

[londonbaires]

Fair enough. Express your anger at 'curebies' if that's what you feel but it will do nothing to change attitudes. If you believe the 'science' they use is pseudo-science, set about proving it. Let's hear what you would do if you were an NT parent of an autistic child.

[aspie182]

Curebie science is based on a lot of assumptions that are demonstrably false. In science, a person making the assertion in favour of a theory, in this case that individuals with autism need to be cured, assumes the burden of proof. Regardless of how daunting that task might be to them. If insufficient proof is forthcoming, the assertion should not be believed. And I hasten to point out that doctored videos and biased reports written in science journals devoid of credibility are not proof.

[unitedmonkie]

this is offensive on so many levels.

i wont even go there. its not worth it.

clearly you wont change your mind nor will i.

[aspie182]

If you are so offended by the autistic having a voice of their own, then butt out of the issue, simple as that.

[unitedmonkie]

you are not the voice of everyone with autism.

not by a long shot. are you the voice of a nonverbal

child who is in pain but cannot say how?? are you the

voice of those unable to be posting on youtube but im

sure would love to?? you have your opinions. YOUR OWN.

[aspie182]

Ah yes, the old "my child is suffering and you're not so shut up" curebie defence. Well, as it happens, monkie (good choice of name by the way), I communicate every day with parents whose children are nonverbal. Would you like me to ask some of them to contact you and tell you what they think? What's the matter, wimp? PTSD and week-long insomnia not your idea of problematic?

[aspie182]

Oh yeah, I almost forgot. Can you imagine how painful it is to have a problem that twists your life in ways you find painful for more than twenty years and be unable to make people address it? Somehow I doubt it very much. You are not the hero you think you are, you are a negationist coward.

[aware4autism]

I don't think aspie182 ever stated that he is the voice of all the autistic, but his opinion is shared by many on the spectrum.I know how it is to have a child that is nonverbal and in pain, mine was. The physical problems, although very common among children with autism, are not autism. Many are offended by groups that insist that autism needs curing, and eliminating. And yes, it is frustrating to watch your nonverbal child suffer from pain. Do know, communication is more than just verbal.

[aspie182]

"Do know, communication is more than just verbal."

Indeed. Listening happens to be a big part of communication, and I have already covered the subject of how much of that curebies do. I would not need to be here now, making videos such as this, if people like our curebie friends did some actual listening.

[BenedictC]

well done, good video