Oh my, she is a BEAUTIFUL girl. She makes me want to be in her family, just to love her. I will be praying for her a lot. I'm sad that she has one ounce of pain. Please kiss her for me and my family. Nichole
Please join us in October for "Walk a Mile in My Shoes" Relay-Rally for National EB Awareness Week, our first national awareness event, crossing the U.S. from New York to California.
Join the Relay at any point, for any distance; attend one of EIGHT Rallies; or participate in other activities and fundraising efforts. This campaign is supported by DebRA of America and EB Medical Research Foundation! Just google the words "epidermolysis" and "relay" and you will find us!
The Title says it All..Amazing. May one day The Butterflies Fly Free..Thank You MagicPEZ for your devotion for spreading the Awareness to EB. The TPD hard work is getting the word out. My hats off to you..That's A Magician's Hat :)
Hello there MagicPEZ!!!! Beautiful video! I must say you have done a wonderful job on this video for Grace and her family as well as for EB!! What a great way to help spread Awareness for this Dreadful Disorder! Thank you Chris for all that you do for all the Beautiful Butterflies!! We Love You!
Poor baby :( such a pretty girl.
peppermintmochas 1 year ago
i know its very hard .im so sorry.
Punaniization 1 year ago
It's so sad that she has just passed away. Rest in peace, Grace, always a beautiful butterfly.
aLuminousLight 2 years ago
Thank you for thinking of Grace. She was certainly an incredible individual.
magicpez 2 years ago
Oh my, she is a BEAUTIFUL girl. She makes me want to be in her family, just to love her. I will be praying for her a lot. I'm sad that she has one ounce of pain. Please kiss her for me and my family. Nichole
NicholeLynneCosta 3 years ago
jesus LOVES you the best...
muckstar23 4 years ago
My cuzen has e.b but i dumtimes forget she has it ... shes amazing and so so brave wot 4 she goes thru every day :( good video x
BethanieOlivia 4 years ago
You will be in my prayers,i pray through the LORD JESUS for you,Amen
bilwil65 4 years ago
Please join us in October for "Walk a Mile in My Shoes" Relay-Rally for National EB Awareness Week, our first national awareness event, crossing the U.S. from New York to California.
Join the Relay at any point, for any distance; attend one of EIGHT Rallies; or participate in other activities and fundraising efforts. This campaign is supported by DebRA of America and EB Medical Research Foundation! Just google the words "epidermolysis" and "relay" and you will find us!
liberty1960 4 years ago
keepstrong grace
gnarlyboy5 4 years ago
I have EB too, what a beautiful video
cutmeyemaya 5 years ago
if u do have it i just want u to know keep strong trust me u will see better days and that u are the bravest people i have ever known
gnarlyboy5 4 years ago
The Title says it All..Amazing. May one day The Butterflies Fly Free..Thank You MagicPEZ for your devotion for spreading the Awareness to EB. The TPD hard work is getting the word out. My hats off to you..That's A Magician's Hat :)
PEZscrapper 5 years ago
Hello there MagicPEZ!!!! Beautiful video! I must say you have done a wonderful job on this video for Grace and her family as well as for EB!! What a great way to help spread Awareness for this Dreadful Disorder! Thank you Chris for all that you do for all the Beautiful Butterflies!! We Love You!
xoxo, The Evans Family
muddbug32 5 years ago