I am 36 and living with FSHD. I started showing signs when I was 12 but wasn't diagnosed until 2001. God bless. Stay strong and hold your head up high.
Wow. Not that I wish anyone harm or ill will but it's nice to meet people who have FSHD besides me. I have my days when I'm not strong. But it's okay. I wish you and others nothing but the best.
Wow. I haven't really met anyone else with FSHD although there is a group here in my state but I don''t go. I am in my 30s. Cool. Well if you do post a video, let me know so I can check it out.
best wishess too you all
pookie31710 8 months ago
I am 36 and living with FSHD. I started showing signs when I was 12 but wasn't diagnosed until 2001. God bless. Stay strong and hold your head up high.
janiem46 1 year ago
Wow. Not that I wish anyone harm or ill will but it's nice to meet people who have FSHD besides me. I have my days when I'm not strong. But it's okay. I wish you and others nothing but the best.
mbillie1125 1 year ago
Thank you for posting this. I am 40 with FSH. I was Dx at age 10. I may post a video too.
nascarjwk06 1 year ago
Wow. I haven't really met anyone else with FSHD although there is a group here in my state but I don''t go. I am in my 30s. Cool. Well if you do post a video, let me know so I can check it out.
mbillie1125 1 year ago