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Outstanding! both my little brothers have Becker's MD. It's really great that there are those out there pushing for the funding and research needed to help cure and treat this horrible condition.
Marty88McFly1 1 month ago
This has been flagged as spam show
Breakthrough Muscular Dystrophy Treatment has been found!!!! Visit my channel to see the featured video of my 6 month progress! I am 22 years old with BMD & am showing more hope than anyone could have possibly imagined!
DefyingDystrophy 11 months ago
I take it no problem, there is some sadness of it, but i live on.
RareJUNKIE360 2 years ago
This has been flagged as spam show
I can inform you, that everyone can help finding a cure for
Muscular Dystrophy. Please write BOINC or worldcommunitygrid into the search field of Youtube or any search engine for further info
Running the Programm BOINC on your homecomputer you donate unused computer capacity to researchers. One of their projects is about
Muscular Dystrophy. Please note that this is fundametal research. So, a cure cannot be expected too soon, unfortunately. BOINC is safe and has been working several years now.
Adamus70 1 year ago
i have lost my ability to walk for 8 years, i am 19 years old. Glad to see some youtube stuff on duchenne.
RareJUNKIE360 2 years ago
This is a beautiful video! Thank you for giving everyone hope and inspiration!
HoneyBee1726 2 years ago 2
im 14 and i just stopped walking 2 months ago, im going into a study for PTC124 which may help my DMD. If it works, maybe the FDA will release it as a commercial drug that may help.
cooldit1 3 years ago 3
I just went to your page and saw that you have, indeed, entered into the PTC124 study. Please keep updating us as to any progress you see or other news. I and my 2 sons have FSH MD. Not as debilitating as DMD but my older son has lost most of the use of his arms at 31 years old. We are anxiously watching for any possible treatments. Thank you for being a part of this study. Please let me know if there are any new reports of possible treatments that you find out about. Good luck!!!!!!!!!!
circe888 2 years ago
Sorry to be the bearer of bad news, but they don't tell us a whole lot about the study since there is also a double blind study going on for this as well. I'm in the second phase from before so I didn't need to do a 6 minute walking test like there is for the double blind division of the study. My strength numbers have gone up at my neurologist visit, so, maybe the drug is starting to work.
I pray every night that it will work since I do believe in God. I will tell you anything I learn promise!
cooldit1 2 years ago
@circe888 so i told you it failed right?
cooldit1 1 year ago
Brilliant video! My son was diagnosed with DMD last May aged 5. We found comfort in the Action Duchenne (formerly Parent Project UK) conference last year in London. It took us from being totally destroyed to being hopeful for treatments to end duchenne. Its also go us being pro active. we've just completed our first fundraiser. We made over £11.5K and we're on to our second which will be taking place in October.
KEep up the great work everyone! we will win!
AnnetteRush 3 years ago 4
My little brother (age 11) has Duchenne MD he is going through losing the ability to walk right now. It is very sad, and I can tell he is scared. People like you, raising awarness are amazing.
kjdavis88 3 years ago 3
Thank you Pat, my Grandson John speaks at the end of your video. Keep up the great work. Your efforts are amazing. George Sullivan
gsully125 3 years ago 4
This is a very good video. These things get me very emotional as I think about my son but I know there is hope.
lisajonesrn 3 years ago 4