Hello FreebirdBrokenWing & viewers of this video, I have a request & as this moving story appears to be a good place to reach the people I'm looking for, I hope it's okay that I post here.
I'm an actor & theatre practitioner in London, currently working on a verbatim project on the AMERICAN HEALTH CARE SYSTEM and needing willing participants to share their views & experiences. Please click my Channel for more info. I'm looking forward to hearing from you, Freebird, or any page visitor. Thanks.
you need have your white blood count look at people who Sweet's have to many white blood cells also need have skin biopsy done for Sweet's syndrome, or acute febrile neutrophilic dermatosis or Gomm Button disease this disease has many names.
also i was born with disease.also stress is big no no for for people who have Sweet's..You need find good doctor help with your sicken. also people who sick with rash from Sweet's do not take bath water will make sicker.keep your body clean dry.
FreebirdBrokenWing I will be praying for you and all the Sweets sufferers. I need any info anyone has. We have health insurance and it is a blessing. We work for ourselves so....I hope we will always be able to afford it. But it is HIGH
I am sooooo sorry in what you have to go through. I had broke out several times and had severe joint pain. I was lucky to finally go to a wonderful dermatologist who diagnosed it with a biopsy. She has treated me with of course steroids and is trying me on colchicine but not much luck. I also have Multiple Sclerosis. They are now trying to make sure it is not coming from a cancer, but it is suspected that it might be. As for those who dis you they just do not have a clue.
Who told you that it was Sweets Syndrome? I was diagnosed over 25 years ago. Dermatologist sent biopsy of lesion to CDC. Confirmed and on predisone for life.....but no pain or lesions
have you heard of the raw food diet, ! you should check it out and I hope you feel better and I know what's wrong with docs n the health care, I trust none of it cause they r bought with money, no values :(
They now say it's Leeukemia but the Oncologist won't see me because his "charity" cases are full. So I am treatable, but dying while the cancer is eating my body from the inside out. This reaaly sucks!
Freebird, I worked in nursing homes where MRSA was an ongoing thing. It always worried me because I came home to my children every night after changing peoples beds and helping bandage these sores on people. Sometimes they wouldn't even us that the patients had MRSA, so we could wear cover-ups for our clothes.
It is sad the AMA and CDC are not informing people ablout CA-MRSA very sad and dangerous for all! I do not have MRSA but I feel for everyone inflicted by it! Thank you for working to help people :)
My first dianosis was CA-MRSA but all cultures came back negative as did HIV & Hep. They now diagnose it as Sweet's Syndrome. I have info about CA-MRSA at myspacedotcom/freebirdbrokenwing if you are interested in learning about that epidemic bacteria.
Thanks for the tip! I sent Michael an email weeks ago and posted my video on his site but have had no response and don't think he ever posted my video or comments :( I will be going to see SICKO on the 29th !
I was 42,slowly being eaten alive&my body was shutting down!I was being treated with anti-biotic bandages&oral meds&was told that the bugs actually THRIVE on the anti-biotics.I was immediately put on very large doses of steroids.After 5-6 months of undescribable pain i was finally getting better!!5 years later I still suffer with the syndrome but i now know how to control it.Stress&flu like symptoms seem to be the pre curser for me.Good Luck,hope this helps,i KNOW EXACTLY how you feel.
Hello FreebirdBrokenWing & viewers of this video, I have a request & as this moving story appears to be a good place to reach the people I'm looking for, I hope it's okay that I post here.
I'm an actor & theatre practitioner in London, currently working on a verbatim project on the AMERICAN HEALTH CARE SYSTEM and needing willing participants to share their views & experiences. Please click my Channel for more info. I'm looking forward to hearing from you, Freebird, or any page visitor. Thanks.
adamwittek 1 year ago
Comment removed
tlalvarado231 2 years ago
you need have your white blood count look at people who Sweet's have to many white blood cells also need have skin biopsy done for Sweet's syndrome, or acute febrile neutrophilic dermatosis or Gomm Button disease this disease has many names.
also i was born with disease.also stress is big no no for for people who have Sweet's..You need find good doctor help with your sicken. also people who sick with rash from Sweet's do not take bath water will make sicker.keep your body clean dry.
tlalvarado231 2 years ago
FreebirdBrokenWing I will be praying for you and all the Sweets sufferers. I need any info anyone has. We have health insurance and it is a blessing. We work for ourselves so....I hope we will always be able to afford it. But it is HIGH
johnnyladams 2 years ago
I am sooooo sorry in what you have to go through. I had broke out several times and had severe joint pain. I was lucky to finally go to a wonderful dermatologist who diagnosed it with a biopsy. She has treated me with of course steroids and is trying me on colchicine but not much luck. I also have Multiple Sclerosis. They are now trying to make sure it is not coming from a cancer, but it is suspected that it might be. As for those who dis you they just do not have a clue.
mgresham3 2 years ago
Who told you that it was Sweets Syndrome? I was diagnosed over 25 years ago. Dermatologist sent biopsy of lesion to CDC. Confirmed and on predisone for life.....but no pain or lesions
Diane2546 2 years ago
My husband has Sweets. The predisone helps. What strenght are you taking for life. Looks like this may be the step we have to take.
johnnyladams 2 years ago
have you heard of the raw food diet, ! you should check it out and I hope you feel better and I know what's wrong with docs n the health care, I trust none of it cause they r bought with money, no values :(
GodsWildAnimalMom1 2 years ago
They now say it's Leeukemia but the Oncologist won't see me because his "charity" cases are full. So I am treatable, but dying while the cancer is eating my body from the inside out. This reaaly sucks!
FreebirdBrokenWing 4 years ago
Freebird, I worked in nursing homes where MRSA was an ongoing thing. It always worried me because I came home to my children every night after changing peoples beds and helping bandage these sores on people. Sometimes they wouldn't even us that the patients had MRSA, so we could wear cover-ups for our clothes.
hurt4ever1ms 4 years ago
It is sad the AMA and CDC are not informing people ablout CA-MRSA very sad and dangerous for all! I do not have MRSA but I feel for everyone inflicted by it! Thank you for working to help people :)
FreebirdBrokenWing 4 years ago
Freebird, did you say it was Merca? Do you know where you got this from?
hurt4ever1ms 4 years ago
My first dianosis was CA-MRSA but all cultures came back negative as did HIV & Hep. They now diagnose it as Sweet's Syndrome. I have info about CA-MRSA at myspacedotcom/freebirdbrokenwing if you are interested in learning about that epidemic bacteria.
FreebirdBrokenWing 4 years ago
i sent you a message on your acct. PLEASE try to NOT eat any dairy: no milk/cheese/casein/ or egg. PLEASE try this, it may really help!
groens 4 years ago
Michael Moore is looking for people to interview. Check it out and good luck.
brownardjosh 4 years ago
Thanks for the tip! I sent Michael an email weeks ago and posted my video on his site but have had no response and don't think he ever posted my video or comments :( I will be going to see SICKO on the 29th !
FreebirdBrokenWing 4 years ago
I was 42,slowly being eaten alive&my body was shutting down!I was being treated with anti-biotic bandages&oral meds&was told that the bugs actually THRIVE on the anti-biotics.I was immediately put on very large doses of steroids.After 5-6 months of undescribable pain i was finally getting better!!5 years later I still suffer with the syndrome but i now know how to control it.Stress&flu like symptoms seem to be the pre curser for me.Good Luck,hope this helps,i KNOW EXACTLY how you feel.
debbzzy 3 years ago