interesting point. i was just at the dr.'s on EEG monitoring. He was watching the video of me knitting in the hospital bed, then he saw on my EEG brainwaves that I had a 10 sec long seizure but continued to knit. I thought I had just zoned out for a bit, but it was there.
Jamais vu is an item or similar thing that is in your normal day life but you get so use to it that your brain processes it as it not being correct. Wrong title unless i'm wrong
@SyLaRSaGe :: Jamais vu - [the experience of being unfamiliar with a person or situation that is actually very familiar; can be associated with certain types of epilepsy] .. so you are kind of right, except its a malfunction of the brain. It's not that your brain gets so used to it, its that your brain doesn't know where to place it.
Do you guys ever get some kind of aphasia? I'll know the word I want to say and I'll even be able to picture it in my head, but I've forgotten how to turn it into speech. I don't think I get these "auras" but I get aphasia before grand mals and sometimes by themselves. I don't know what it is; is it some kind of smaller seizure? I think I've had the aphasia spells my whole life, but I thought it was normal so I've only recently been diagnosed after having two grand mals (both in the past month).
I have had seizures from the time i was born til i was bout 7 yrs old. but now i notice that i will dream about something while I'm sleep at nite and it depends what's it about i will see my dreams coming to life. Are those seizures?A
I've had about a thousand of simple partial seizures over the past five years or so, and sometimes i almost like the feeling and others I feel I just dont care anymore and want to die. I take Keppra XR to control my seizures but If I get really stressed out even the meds cant stop the partials and there's even a chance of having a full seizure but that's rare for me.
I've had many seizures like this. The really mind blowing part is you saying you had the nicotine overdose. I also get that. I have talked to many others about it in the past and never has anyone else ever said that is something that happens to them.
People go to the doctor!!! this is called something wrong it is going on in ur brain. I trip with the auras for a long time thinking they were a like a psychic thing going on on me. Couple of months after end up in a hospital because a major seizure and having a brain tumor surgery
That was a very interesting way of describing your seizure. I kinda like the way you put it. I have a friend that used to have a pleasant aura beforere his complex partial seizures. We joke that he is probably one of the few people that wishes they still had simple partial seizures or auras. His have gone away since surgery.
I like the analogy to the bitter cold wind and the warm wind. Thanks that was good.
kinda feel like my whole life cept im in fear and everything sucks people cant hear me i speak they dont hear. but that could just be me. third year klonopin-r. haven't taken one in like two months. i get a new sensation i never had 1 yr 1 month 1 day ago. radness. im gonna subject myself to boystown in chicago soon probably and a gay friend who wants me. so rad. anyway seizures sound pretty bad. i think i am incapable of having what is really a "seizure" from klonopin, even when i abruptly stop
@akpret as a sidenote......... i really wish i would have had one and im "plz have a seizure, plz have a seizure" from feeling out of body infront of people who were of no help b4. rad. so much for benzo withdrawal giving me a seizure. only seems to be possible for my body to give me a heart attack from it first. (which seems a better external indicator for anything or anyone who could help for a 20 year old?), ppl scoff at the notion of a 20 yr old having somethin go strange unless i flop out.
Seizures are scary to me.Are you any bit scared about knowing that you have epilepsy,tealshoes? Even reading things about epilepsy causes me to feel light headed/numb in my head and start to feel panic. x_x
Dunno why it is like that, but specifically infos about epilepsy and seizures cause me to feel like that. :x ...
Hah, wow, hearing someone describe their own simple partials is interesting. The only explanation I can give is that it's like experiencing the way someone else perceives the world around them...ish. Like you've got all your memories, but you're peaking into someone else's day, point of view/first person style. I've never had quite such a vivid experience yet like you're describing. Cool beans, though, for the most part I enjoy mine. Free trips, for the win.
I can relate, but my seizures aren't a pleasant feeling at all. My heart starts racing and almost simultaneously I get an intense feeling in my chest that seems to flash up my throat and up to the top of my head. At the same time I feel like I'm outside of reality, not part of my world. I'm left with an overwhelming feeling of anxiety in my chest, buzzing in my ears, hopelessly confused. This happens many times a day.My doc tells me its temporal lobe epilepsy. So far no meds seem to help.
@vatovega :: I do experience mood & memory glitches. The way you described trying to explain this whole experience was spot on. That's why I had to try and verbalize it. I haven't had one since, well not one quite like it. I have an array of different kind of seizures. They're becoming more and more creative in their expression. I'm looking into what causes/caused my seizures. I'm exploring the world of my lifestyle and diet, if I may be allergic to anything food wise. Everything is connected.
Hi Tealshoes, I watch your video quite often, mainly because your simple partial with the euphoric aura is so much like the one's I've experienced. I feel as though the visual imagery is something I can only know or be aware of when it is happening. It's like trying to explain a 3D movie to a blind person when it's over and I've lost the magic. I love your artistic videos, do you experience any mood or memory problems?
i think that you can control them by holding onto the present moment. it will be hard at first but with practice it gets easier. the dreamlike feeling will still be there but this is the case when your mind is in the present moment either way.
@JungleLox :: I've heard of this before. but since this was my first seizure [and last, since] like this, I haven't had that opportunity. I normally just go unconscious with a quick aura warning of a series of absences. But if the moment does come my way again, I will hold on to it. thanks!
Thanks for posting! I'm in medical school and this is really helpful - hopefully it will allow me to understand what a patient is experiencing one day!
I used to have the same seizures in my teens and early twenties. The doctor called them Auras. It was always like a storyline mixed with deja vu, in which what I was seeing or thinking effected the story. The more I thought I knew what the story outcome would be, the sicker I felt. I would often puke, and never remembered hardly any of the dream. I don't get them anymore, but I now suffer from G.A.D. and panic disorder.
Thanks for the video. Great description of simple partial seizures. I have been having them for years and I can relate almost totally to what you describe. Much love
Thank you for your video! After talking with a few people online about some of the things I have been through that I still to this day can't explain it was brought to my attention to do research on simple and complex partial seizures. So thank you for your video.
that was very interesting! I have absence and tonic-clonic seizures and so it is comforting to know there are other people out there with the same thing. I very much like the way you mentioned embracing your seizures because lately, I have been very bitter about them. I was able to record a few of my seizures so please check them out and let me know what you think
maybe something to do with going into the right brain... we are confined to the left brain that gives us a sense of reality. Its just a thought, something I have come across. Id love to experience this- definatley something to embrace.
@MagaCow :: I've been meditated on the differences and powers of both the left and right brain as well. It's cool that you brought it up, I've never looked at it that way before. It is definitely something special to experience, but not all of them are as euphoric.
my simple partials are quite similar although I have mine at night usually. Its starts with my heart speeding up a bit my hands get clammy and I feel a strange feeling, shapes and colors are mixed in with a feeling that I'm "at one with the universe". I feel that the images in mind I've known my whole life and are a part of a universal language. I can move my arms and legs so I can sort of bring myself out of it. This would be the most intense seizure I experience, scary, strange and euphoric.
interesting point. i was just at the dr.'s on EEG monitoring. He was watching the video of me knitting in the hospital bed, then he saw on my EEG brainwaves that I had a 10 sec long seizure but continued to knit. I thought I had just zoned out for a bit, but it was there.
richlikegypsies 4 days ago
SO... if you are zoned out for a long time, How do u know if you are having a Simple partial seizure, or just have an ADD moment?
tenchidbz 1 week ago
where are u ? i see u in tijuana mexico
DavidGrandMarquis 3 weeks ago
@DavidGrandMarquis I wish I was! Why Tijuana?
p.s. tealshoes is richlikegypsies now.
richlikegypsies 2 weeks ago
That may have been brought on by a clot or the development of one.
ZeroPermission 3 months ago
Jamais vu is an item or similar thing that is in your normal day life but you get so use to it that your brain processes it as it not being correct. Wrong title unless i'm wrong
SyLaRSaGe 3 months ago
@SyLaRSaGe :: Jamais vu - [the experience of being unfamiliar with a person or situation that is actually very familiar; can be associated with certain types of epilepsy] .. so you are kind of right, except its a malfunction of the brain. It's not that your brain gets so used to it, its that your brain doesn't know where to place it.
richlikegypsies 3 months ago
Do you guys ever get some kind of aphasia? I'll know the word I want to say and I'll even be able to picture it in my head, but I've forgotten how to turn it into speech. I don't think I get these "auras" but I get aphasia before grand mals and sometimes by themselves. I don't know what it is; is it some kind of smaller seizure? I think I've had the aphasia spells my whole life, but I thought it was normal so I've only recently been diagnosed after having two grand mals (both in the past month).
dzidziaud 3 months ago
I have had seizures from the time i was born til i was bout 7 yrs old. but now i notice that i will dream about something while I'm sleep at nite and it depends what's it about i will see my dreams coming to life. Are those seizures?A
lilmelt02 4 months ago
I've had about a thousand of simple partial seizures over the past five years or so, and sometimes i almost like the feeling and others I feel I just dont care anymore and want to die. I take Keppra XR to control my seizures but If I get really stressed out even the meds cant stop the partials and there's even a chance of having a full seizure but that's rare for me.
kroven009 4 months ago
I've had many seizures like this. The really mind blowing part is you saying you had the nicotine overdose. I also get that. I have talked to many others about it in the past and never has anyone else ever said that is something that happens to them.
TheKenzter 4 months ago
I had those all the time. I even heard my voice on the radio. I knew what I was going to say before I heard it!!
DavidEpilepsy 4 months ago
People go to the doctor!!! this is called something wrong it is going on in ur brain. I trip with the auras for a long time thinking they were a like a psychic thing going on on me. Couple of months after end up in a hospital because a major seizure and having a brain tumor surgery
sabbahty 5 months ago
That was a very interesting way of describing your seizure. I kinda like the way you put it. I have a friend that used to have a pleasant aura beforere his complex partial seizures. We joke that he is probably one of the few people that wishes they still had simple partial seizures or auras. His have gone away since surgery.
I like the analogy to the bitter cold wind and the warm wind. Thanks that was good.
conservativeChic1 7 months ago
I get these all the time and they are pretty disconcerting. I think they are called jamais vu
SumireIsrafel 8 months ago
kinda feel like my whole life cept im in fear and everything sucks people cant hear me i speak they dont hear. but that could just be me. third year klonopin-r. haven't taken one in like two months. i get a new sensation i never had 1 yr 1 month 1 day ago. radness. im gonna subject myself to boystown in chicago soon probably and a gay friend who wants me. so rad. anyway seizures sound pretty bad. i think i am incapable of having what is really a "seizure" from klonopin, even when i abruptly stop
akpret 9 months ago
@akpret as a sidenote......... i really wish i would have had one and im "plz have a seizure, plz have a seizure" from feeling out of body infront of people who were of no help b4. rad. so much for benzo withdrawal giving me a seizure. only seems to be possible for my body to give me a heart attack from it first. (which seems a better external indicator for anything or anyone who could help for a 20 year old?), ppl scoff at the notion of a 20 yr old having somethin go strange unless i flop out.
akpret 9 months ago
Seizures are scary to me.Are you any bit scared about knowing that you have epilepsy,tealshoes? Even reading things about epilepsy causes me to feel light headed/numb in my head and start to feel panic. x_x
Dunno why it is like that, but specifically infos about epilepsy and seizures cause me to feel like that. :x ...
Assasinchen2006 9 months ago
Hah, wow, hearing someone describe their own simple partials is interesting. The only explanation I can give is that it's like experiencing the way someone else perceives the world around them...ish. Like you've got all your memories, but you're peaking into someone else's day, point of view/first person style. I've never had quite such a vivid experience yet like you're describing. Cool beans, though, for the most part I enjoy mine. Free trips, for the win.
bobertspliffski 9 months ago
I can relate, but my seizures aren't a pleasant feeling at all. My heart starts racing and almost simultaneously I get an intense feeling in my chest that seems to flash up my throat and up to the top of my head. At the same time I feel like I'm outside of reality, not part of my world. I'm left with an overwhelming feeling of anxiety in my chest, buzzing in my ears, hopelessly confused. This happens many times a day.My doc tells me its temporal lobe epilepsy. So far no meds seem to help.
lwawro1 10 months ago
@vatovega :: I do experience mood & memory glitches. The way you described trying to explain this whole experience was spot on. That's why I had to try and verbalize it. I haven't had one since, well not one quite like it. I have an array of different kind of seizures. They're becoming more and more creative in their expression. I'm looking into what causes/caused my seizures. I'm exploring the world of my lifestyle and diet, if I may be allergic to anything food wise. Everything is connected.
richlikegypsies 10 months ago
Hi Tealshoes, I watch your video quite often, mainly because your simple partial with the euphoric aura is so much like the one's I've experienced. I feel as though the visual imagery is something I can only know or be aware of when it is happening. It's like trying to explain a 3D movie to a blind person when it's over and I've lost the magic. I love your artistic videos, do you experience any mood or memory problems?
vatovega 10 months ago
i think that you can control them by holding onto the present moment. it will be hard at first but with practice it gets easier. the dreamlike feeling will still be there but this is the case when your mind is in the present moment either way.
JungleLox 1 year ago
@JungleLox :: I've heard of this before. but since this was my first seizure [and last, since] like this, I haven't had that opportunity. I normally just go unconscious with a quick aura warning of a series of absences. But if the moment does come my way again, I will hold on to it. thanks!
richlikegypsies 11 months ago
Thanks for posting! I'm in medical school and this is really helpful - hopefully it will allow me to understand what a patient is experiencing one day!
rkroeker1 1 year ago
I used to have the same seizures in my teens and early twenties. The doctor called them Auras. It was always like a storyline mixed with deja vu, in which what I was seeing or thinking effected the story. The more I thought I knew what the story outcome would be, the sicker I felt. I would often puke, and never remembered hardly any of the dream. I don't get them anymore, but I now suffer from G.A.D. and panic disorder.
mommytonut 1 year ago
Thanks for the video. Great description of simple partial seizures. I have been having them for years and I can relate almost totally to what you describe. Much love
brazenbishop 1 year ago
Thank you for your video! After talking with a few people online about some of the things I have been through that I still to this day can't explain it was brought to my attention to do research on simple and complex partial seizures. So thank you for your video.
Buffheart 1 year ago
that was very interesting! I have absence and tonic-clonic seizures and so it is comforting to know there are other people out there with the same thing. I very much like the way you mentioned embracing your seizures because lately, I have been very bitter about them. I was able to record a few of my seizures so please check them out and let me know what you think
allegrorules 1 year ago
maybe something to do with going into the right brain... we are confined to the left brain that gives us a sense of reality. Its just a thought, something I have come across. Id love to experience this- definatley something to embrace.
MagaCow 1 year ago
@MagaCow :: I've been meditated on the differences and powers of both the left and right brain as well. It's cool that you brought it up, I've never looked at it that way before. It is definitely something special to experience, but not all of them are as euphoric.
richlikegypsies 11 months ago
my simple partials are quite similar although I have mine at night usually. Its starts with my heart speeding up a bit my hands get clammy and I feel a strange feeling, shapes and colors are mixed in with a feeling that I'm "at one with the universe". I feel that the images in mind I've known my whole life and are a part of a universal language. I can move my arms and legs so I can sort of bring myself out of it. This would be the most intense seizure I experience, scary, strange and euphoric.
vatovega 1 year ago