Tysabri Recovery Series - Infusion #31

[qualisarx]

Good video as always and thank you for helping and sharing

[medad1]

Hi vern

Thanks for this valuable information, and I had my 3rd infusion of TYSABRI last week but no any improvement yet!!! I'm still using wheelchair :(

Do you think I should have more infusions to feel better?

Regards

Mody :)

[vbeachy]

Mody;

I don't know the answer to that question, but I can just give you and other viewers my own experience with Tysabri. I do, however, think that every Neurologist should give every MS patient Tysabri because of what it did for me. I do also know, however, that not every person will react the same as me.

I don't "feel" better on Tysabri but yet I do BECAUSE I CAN NOW WALK.

I am sticking with Tysabri, absolutely. I sure how I feel better. I hope that helps Mody. :)

[medad1]

You know Vern? My firs infusion of TYSABRY have stopped the attacks strongly I did feel that and I was so happy But I found out my weight is getting more and more monthly & still no power yet" about 2 pounds a month!!!" ,,, it's so difficult to feel heaviness I just need a little power&I'll continue until

I see a GOOD result

Thanks Vern :)

[vbeachy]

Wow...I understand, fully, Moby. I sure hope you see sustainable results very, very soon. I too, struggle with weight and I find it difficult to keep it at a reasonable level even though i walk 2 miles each day.

[mikecat23]

Hi Vern, Great to see your fighting fit. I reckon that Marathon is about a year away. Keep well

[vbeachy]

Thanks Mike!

Which year? LOL.

[dzuskin]

Please keep up the regular updates, it is important to many of us. Thanks!

[vbeachy]

Thank you...I will!

[Yeditube]

Of the PML cases, it is probably noteworthy that the bulk of the 6 cases where from the European Union. Under TOUCH, I believe there was only one case of PML in the US.

Great that you are doing well, have followed you from the beginning. Good luck.

[vbeachy]

Thanks for following along. I appreciate it. :)

[andie221]

Great stuff Vern. Since discovering your videos (early last year) they have inspired me to further research this "illness" (how I hate that!) ask questions and am now partaking in a Biogen trial of an oral med. Thank you for these real life experiences!

[vbeachy]

You're a sweetheart Andie!

[kcsportsfan]

Way to go Vern, Always good to see your videos. You are right about PML. Why worry. A 1.2 in 10,000 chance and 1 and PML is not deadly in Tysabri patients. Much better to live your life. Good for you. enjoy your time and lets hope things stay well for you.

[vbeachy]

Things are well with the warmer weather Chris!

[Stacy9286]

hey vern...i have done some youtube videos too.stopped tysabri...started LDN and I am starting to feel better. I am glad tysabri is helping you still...keep on keeping on