Our little Breanna has Cystic Fibrosis! We believe in prayer. My song was written from the pain, confusion and fear that comes over you when your loved one is diagnosed with Cystic Fibrosis. Breanna has gone through brain surgery at age one and is fighting C.F. every day. Please pray for her and all sufferers of this terrible disease! Thank you!
i have cf people listen up! i breath in nano silver, spray my nose and drink it everyday. im not blue and i feel the best i have ever been. any questions, send me a comment please.
As a cystic fibrosis researcher and computational scientist, I must say that the actual reasons CF has not been cured yet run deeper than one might expect. We have all the data we need, we just cannot compute systems with this much complexity, yet. For a good intro why CF, and other genetic diseases have not been cured, visit my channel. God bless.
I agree with the kid that we need a cure. What we really need right now, though is : MEDICINE THAT'S FREAKIN AFFORDABLE ! Over $3,000 for medicine that we need just to stay alive is RIDICULOUS!
Not to mention help finding/getting jobs that we'd be able to do , and the rules for SSI changed so we can afford living on our own rather than having to choose being stuck with family or living in a cardboard box. (I'd LOVE to be able to afford getting off SSI...but it's like a trap! )
I have CFRD (cf related diabetes) and am looking for a tablet instead of insulin - do you have any suggestions? I would be very thankfull if you helped me! - I'm 14
@wasupitswill hey whats up Im Jess I have CFRD too i tried all the pills and i always wound back up on jus plain insulin but i do recommend the insulin pump its so awesome.u get stuck once every 3-4 days and you cant feel the burn of the insulin either.emaiil me if you wanna kno more or want someone to talk to.Good Luck
I'm an American living in Germany. Here, no one would even ask how much the treatment costs. Here, you have complete coverage and there's no or very minimal copay.
I may pay more taxes but I'm more than happy to if it means I'd help someone like this young man live a more normal life. He's got enough problems to worry about, money shouldn't be one of them.
I hope that advancements and common sense in the medical and scientific communities merge as one to realize that there is a market for 'treatments', not as much as cures. Cures should be the priority.
How the hell would some of those "doctors" feel if they were suffering from something terrible like CF?
My cousins little girl has Cystic Fibrosis and now Diabetes. We are very, very close. I feel so lucky that my little girl is healthy. I missed Jodies Birthday yesterday and feel very sad for what has happened re my efforts. All I can say is I am glad I am not rich! People are more important than money!
I'm 12 and have Cystic Fibrosis. Diagnosed at 7. It sucks! The people who don't have are lucky! It screws up your life! You get up each morning, take a million pills, breathing treatment, flutter, vest, mirilax then if you want breakfast theres 6 more pills to take. Every time i eat, thats 6 more pills. It makes life soooo hard and overwhelming, espeically for a middle schooler. Then my therapist gives me stupid pills to help, i think they make me angrier,nothing makes sense. We need a cure.
Hey, I am a 21 year old with cf. I know it can get overwhelming, so many little things constantly tacked on, weighing you down and making easy tasks that much harder. But just stay focused, don't let the little things bring you down, but don't ignore either. Take your life one day at a time, things will get better. I hope i helped motivate you a little, best of luck to you
ekateri28, there actually ARE some medications that we CF people use to losen up the mucus. But sometimes even all the meds and exercise doesn't do much. (depends on how severe the CF is. )
JMMPR24 no matter what I am sure that CF is a living hell to live with. For the past few weeks I experienced some post nasal drip where there is mucus stuck in the back of my throat and I have to cough so much (and so hard) that I feel that I would cough up a lung. sticky stuff man. Drives me NUTS and have to take medication to loosen it.
I don't much like your editing - too jumpy, and you can't hear what they're saying when the nebuliser starts. But the information you present is good. Gives you a lot to think about. Overall, not a bad vid. Join the crusade!
This comment has received too many negative votesshow
It's not a genetic disease. It's caused by mold in the home. Move to a mold free home and be cured. God has given you sputum to get the mold out of your lungs. These doctors need to be in prison for stupidity and child abuse. You got to be kidding me.
Just saw you on another response, you really need to educate yourself with this disease. I am 43 and have lived in different homes, some with mold some without. I was told that I was allergic to mold, which yes it is a "trigger" it is not the cause. It is caused by an abnormal gene or two. I have two of the abnormal genes.
dude, awareness is important, and i get that all the meds is not a cure and there is a lot of money for the meds...but the video is slighty depressing and suggest u see a specialist for cf nstead??? hey lok on the bright side.. at least there is no hempotysis in ur sputum dude...
hey got a question. ever hear of fucking health insurance. i have cf and most of my meds are covered. this video is very negative. people shouldn't put this shit on here. there is much research for finding a cure. get the shit straight mexican bitch
Wow, you are ignorant. He does have insurance. Most people who have insurance still have a lot of costs associated with the disease. Almost nobody has health insurance that covers 100 percent of everything. If you do, good for you, but how about some sympathy for the other sufferers of this disease who aren't so fortunate. I don't even have CF and I certainly have sympathy for them.
In many other countries, 100% coverage is not so unheard of. This man was born with this disease, he shouldnt inherit financial problems as well. I'd be more than happy to pay more taxes if this guy woudlnt have to pay for any of his treatments/medications out of pocket. Why should he?
also it fuckin sux having it..if i was to die it would be a blessing..can't breath..always in hospital..takin fucking pills..can't holdf down a job b/c get sick easy..i know i'm not the only person with cf that thinks like this..i have had 2 friend die b/c of this..one was 13 and the other was 28..
same here, it's a pain to freakin go work in an office where i can't cough or else i get nasty looks and discrimination, they want me out because our health insurance boosted the day i came in. It's a killer, i have to freakin cough insanely 2 hours a day and do treatements and all my friends dont fukin care they say stupid shit like 'it will pass'... I can't get near girls cuz they all think ill get them sick, nyways i dont want them to have to deal me spitting muccus all the fuckin time.. :'(
I think the biggest problem is that there's not enough awareness. Since not many people know, excepting all of you here, not much is being done about it.
I mean, I know there are other problems out there too, but when I see all these fundraisers and tv ads and what not about them, I'm really disappointed and almost angry that no one thinks to spread the word about CF as well.
this is bs... i fucking have cf!!! and i cant wait till i die shit... fuck this living.. i just lift weights and barely do idk 1 treatment every 2 weeks mabey 3 weeks tops.. i worked out so much that i skipped about 2 to 3 months without doing all those treatments... and their was this guy who just did swimming and never did his treatment tell this day.. and the doctor said his breathing was off the chart.. basically a regular persons body.... clubbed fingers! i better get into heaven!!!
i've got CF too. got diagnosed when i was 2. it ain't fun :( all the lung infections, coughs that ya choke on, poor weigh gain, and all the freakin' meds. it sucks, but i deal. i really hope for one day for there to be a cure for this brutal illness. and i agree that there is not enough awareness. 2 yrs ago we were discussing CF in health class and the teacher asked who knew what it was. I was the only one who could answer. he then asked who knew what cancer was and everyone raised their hands..
Things sure are different in America, here in Ireland all our medical care & medicines is cover with a medical card. If not it would cost up to €80,000 a year for it.
The big problem we have is organ donations there not enough people donating.
I myself is waiting 4 a double lung transplant being on the waiting list now nearly 2 years I'm 27 witch is a gr8 age 4 some1 with CF but I know if I don't get them soon I will not make my 30th birthday!!
This definitely hit close to home. My neighboor/best friend has CF. I know all the statistics but to hear someone that deals with tons of cases everyday actually say it out loud made it that much more real. I only hope that one day CF will stand for Cure Found.
I have CF and I feel so bad for all these kids....I must have a very weak case, because I live life like a normal adult/teenager. I get out, I'm relatively healthy, and I only take my medication when I feel like it...
I'd feel more inclined to listen to my doctor if she didn't damn-near kill me a couple months ago...I've made it this far, and frankly death is better than taking 2-3 hours out of my day to "be healthy."
wow that was terrible,as a doctor she should help you,i don,t agreed with you,is better take 2-3 hours to "be healthy" cause is important to fight,instead of giving up.
only this year i saw a documentary were they did talk about C.F,a portuguese tv channel made a documentary about people who suffer from C.F and how they live day by day with the desease,some of them were lucky to be send to a spanish hospital to make a lung transplant,one of them is now 38 years old and she,s doing fine,in my country lung transplant are totally a disaster,if the people who as it,don,t go to spain they will die,cause my country is helpless when cames to threat people with C.F :((
Your vest looks so much more advanced then mine=p but it really is scary hearing someone say that this thing you have is going to kill you.. There's not better way she could have put that? Can't we just find a cure now to prove her wrong?
Your vest looks so much more advanced then mine=p but it really is scary hearing someone say that this thing you have is going to kill you.. There's not better way she could have put that? Can't we just find a cure now to prove her wrong?
hi, i'm currently doing my medical degree. i just wanted to ask whether any CF'ers here has had gene therapy to alter the genetics. we have been told from lectures that that is quite succesful but its just patients are reluctant because of the ethics and trusting a doctor to do something that essentially to an avereage person is changing the genetic code.
Im so sorry to all of you who has lost someone to Cysitc Fibrosis. My good friend Mike is only 23 and is at the final ending stage of Cystic fibrosis, he is Dying and coughing up blood! I hate to see people in pain and suffering slowly!
There is a great project to increase DONOR AWARENESS that ends Septemebr 1, 2008. American Express (credit card company) will fund the project with the most votes and I would LOVE for it to be the DONOR AWARENESS project.
It was written by an 18 yr old girl that received a transplant and is living with CF cystic fibrosis.
GOOGLE IT. It is called Member Project "Second Chances" Mobile Organ Donation Awareness.
Please VOTE FOR IT, pass the word to everyone and increase DONOR AWARENESS!
If you want to help, it takes nothing more than five minutes of your time.
Simply copy/paste the following into the message box in the share video screen:
An amazing documentary that really needs your help... Please Rate, Comment, Favorite and Forward!
If you can send that message with the video attached to as many people as possible, even if it is only your friends list, you would be helping every man, woman and child who has to suffer with genetic disease tremendously.
i am a 13 girl who has CF. i am very healthy for someone with CF. my goal in life is to at least make it to 60 and to have a great family with a loving husband and kids. all of my friends and family love me for who i am, and surrport me. dont let ppl pick on CF, its no laughing matter, and ppl who care should know that. God will punish them. God will help us every step of the way on the hard, tough, and even frusturating juorney surving and finding a cure for CF. soon CF can stand for Cure Found
This broke my heart, you are an amazing man and i hope that everything good comes your way, your ideas and way of thinking is very logical and i agree very much. May god bless.
My name is Greg McDougal and I have 4 children ages 9 and under and 3 of them are diagnosed with Cystic Fibrosis. I need to build them an allergen free, special clean air house! This is the only way I know to do the very best for them that I can. We have run into all sorts of 'extra dynamics' such as mold and incorrect HVAC systems that has only complicated an already serious situation. I have recorded some songs and am selling the CD on my web site to get this house built. ahouseformykidsdotcom
Don't. Seriously, don't. There is nothing more harmful for them than living in a over sanitized place. What do you think that will happen when they will get to less sanitized places? I think you get it. :)
this is a very terrible disease and i know because i was up until last month was considerd CF. when i was 3 i was at the very end of my life and i was going to die! it was terrible and know since im not considerd CF i want to help EVERYOJNE with CF and give them confedience and tell them that if they just pray and trust in God that you WILL get better! If you act like you dont have CF then you will get better(forget it) and thats what i did... PRAY!! TRUST! i will pray for ALLL of you w/ CF!!!
You're the first one I see who advises to act/think as I always did : forget about your CF. Since I'm young, my family always see me first as a "walking" disease before seeing me as a normal person. I have always done the opposite, they never understood why. Now let me tell you this. Last time I have been hospitalized was 3 years ago. When I left the hospital, I was TOP SHAPE! Then I started to decline. Since then, my lung condition is stable, and I barely take any medication.
I'm starting to think that it's thanks to the way I think (don't think too much about my CF) that keeps me from being more sick. Whenever I get better, I always end up coming back to the same stable condition.
So, if you are convinced that you ARE sick and weaker, that you can catch flue, cold, any virus more easily than normal people, then it will sure be more likely to be true than if you do not believe it. And I'm not talking about denial here. All my life I was told that my immune system was omg weaker than anybody else.
But guess what? While everybody had a flu, pneumonia, gastroenteritis around me, I rarely caught any of that. I can actually count on my fingers how many times I got flu (2x), gastroenteritis (3x) and pneumonia (never).
Believe me, you are NOT as weak as you're being told.
This is an advice that no physician, lung specialist/... will ever give you.
The main point is that not only do I ACT like a normal person, I do believe that I AM a normal person. I only have CF, it's not like if it was a big deal.
See the difference. This is LIGHT YEARS apart from thinking I am """cool"""
PinkFish raises a good point though, as well as proper diet and medication, physical activity and mental fitness are extremely important.... Mind over Matter isn't going to prevent you from getting sick, but like PinkFish points out, if you are convinced that you are sick and weak, you will be sick and weak.
Wow. How common is CF? I don't have it, but I've read about it and own a movie about a little girl that had it. I hope one day they come out with a true cure for this disease. I know doctors help somewhat by treating it, but nowadays they don't really cure anything. The medical area has turned into a money market. I hate it. If they would actually fix things like you said then there would be more people living longer. I wish you the best and hope soon that they come up with a cure.
I live in Belgium and here 1 on 20 people has CF. Every week someone is born (in Belgium) with CF. I myself have CF, I had my first lungtransplantation when I was 15. It was April 2006. One year later, in October, I had my second one. So they find some kind of cure, but not all patients are helped with it. Thanks for caring, it means a lot!
Wow, different health systems in different countries. My daughter has CF, she is six months old tomorrow, I basically don't have to pay for a thing. $2.50 for a vitamin supplement that isn't fully funded, and $54 per month for her special milk powder (the full price is $665), and thats it. They even pay for my petrol to get to the hospital. I was thinking the other day, imagine if I had to pay for it all, and didn't think realistically that people do. Thanks for the video it was excellent
Excellent video. My son Kai has cf. He's 3. We just found out they raised the price of TOBI. It's over 4200 per month if you had to pay cash!! Thanks so much for sharing this video.
Wow I dont feel alone! lol CF sucks! Its funny I'm so used to doing treatment and taking my enzymes that seeing someone else do it made me feel wierd... i was thinking wow thats what I do everyday and thats what I look like coughing up mucus every five second lol and then people look at me when i take my enzymes and their like whats that i get so sick of telling people... im 21 and still sick of CF! One thing i really hate is "wow look how skinny your arms are!" i just wanna scream "I know!" lol
i also take that stupid flornase and advair lol i also have bceapecia,aspergilis,and psuetamonis or how ev u spell it i had bceapecia but my doctor said miraculously it did not show in my blood work but he said it may be down in my lungs somewehre i am not well at spittin the stuff up so they usually do a throat culture so they cannot find the stuff that is deep in my lungs yeah anyway this is cool to talk to other cfers
i am 15 with cystic fibrosis i take pulmozyme,tobi,hypertonic,vest,creon 20,prevacid,zithromax,source cf vitamins,boost,albuterol,and spornox i have had 7 picc lines yes it really does suck this is kind of cool to read about people like me.
Im 23 with CF, and I have battled the insurance non stop, it seems every med needs a doctor to call and say "Yes, He really needs this..." and it does get old. I am hoping for a cure, I was in my tweens when the gene therapy ran into problems, but with the new stemcell research comes a new hope.
Whats funny is I tried to get Gerber life insurance for my daughter and they turned her down because of the CF. It honestly made me cry. I know this is RANDOM I listen to Bright Eyes when I'm sad. It makes me cry even more and then I feel better ahaha. Everyone stay strong! You're way toooo cute for CF!
So how old is Stephen? Looks about 20-25. Just wondering. Is he in school, or workgin for his insurance? Im 28 with CF, male colonized with MRSA, diagnosed at 6 weeks. my current medsare ultrase mt20, Flonase, Ventolin, flowvent, Hypertonic saline treaments 7%, ursodial(liver med), & i take ABDEKs vitamin supplement. thank god for medical insurance. anyway I hope he is well and nice video. Any other cfers feel free to comment me :)
I am so glad oyu are doing this. What a blessing. I have a friend here in Tucson, Brandon who's terribly ill with CF. He's got MRSA,liver disease, arthritis,diabetes,valley fever, severe reflux and has had 3 (failed) nissen surgeries. He's been in the hospital over 150 weeks of his life. I am trying to get his, our's and other stories like this on the national news, but so far, no one's seemed interested.
Do you think you could help me? God bless you..all your dealing with and have gone through
That's the trouble I've run into. For example, with the CF FOUNDATION, The CANADIAN CF FOUNDATION, etc., they have told me that since my documentary was not sanctioned by their orginizations, they want no part of it. I was told that "rest assured there are many talented and hardworking people fighting this disease every" -- It took them months to write me a form letter reply. Basically they are telling me to get lost. But that's the reason why I opened this channel.
I just lost my cousin to this a couple weeks ago...she has a now 16 year old sister facing the same fate, and having to watch her see her sister fall apart and know that is going to be her down the road is heart breaking!! I pray we find a cure...
i completely agree with you he is very hott. I have cf too and this is definitly a good representation of it. Its finally good to show what our evryday lives are like. after 19 years of this everyday is still hard.
am sorry man i support u so much i wish there was a cure i really do my brother has this i wish there was a cure he only has a couple of years left :( please
Hey...I know what you are going through I deal with what you have...I am so proud of you to sit and talk about it because I can't and you have showed me not to be afraid of it. thanks!! P.s. You have my support!
i have this same disease and its deffinately true that its life threatening but if we do our treatments like we are supposed to we well live. many people wouldnt have even guessed that i am even the littlest bit sick.
Stop being such a heartless prick, Cystic Fibrosis is a horrible disease. One of my cousins have it, and one died from it. The other is so worn down from the treatments that she looks like she is 80 even though she is only 27.
I'm very sorry for your loss and pray for the best for your cousin. Unfortunately there are those who in their efforts to seek attention forget that what they say can be so hurtful -- Thank you for sharing your perspective even though it came from injury and great anger.
Thank you to those nameless individuals who so diligently spared others from having to respond to such ignorance by voting the comment down.
ya know what you are sick in the head. that pisses me off. i have cystic fibrossis and im 10 years old and diagnost when i was 7 i was dying. my family is suffering cause of me. i took toby, the cost was 2000 dollars a month. my normal everyday treatment costs 1000 dollars a month. there are many times where could of died. i used to have nemonia at the same time. i stayed in the hospital for months. you should be ashamed of you self.
Ahhh - nevermind - I see what comment you are refering to. Unfortunately there are those who in their efforts to seek attention forget that what they say can be so hurtful to others. Why don't you address this issue as a video responce so that people had hear and see what you are saying instead of just reading it... do you have a web cam???
religions are not going to be a factor much longer, this is the way we are going ,and the only way to save the planet its sad and discerning to see that people use tec to come here ,but a 5000 year old book to quote ,,the same book that says earth is 5000 years old and if anything is wrong in the book then the whole bible must be wrong ,i think that they all tear a couple of pages out .
Stem cell are the way things will end up no matter how much industries try to suppress it,British
scientist severed the spines of mice then after stem cell treatment ,3 weeks later were up and crawling around ,,,,,the religious people,they probably don,t let their kids watch the discovery channel because the kid is going to say were do dinosaurs come from,,,,
people can argue stem cell use is unethical. but when its your child with a deadly disease your views on what's right and wrong would change in a big hurry. Bless this young man's heart. I just hope the U.S wakes up and does more stem cell research
Thank you for sharing this with me. I never really understood what Cystic Fibrosis was. I hope that Stephan makes it past the normal age range. I really like him. He should be a spokesperson for the cause. I will send this to my friends. Thanx again, love, khataroo
I really commend the interviewers and filmmakers to make this documentary a reality to educate knowledgeable people aware and informed on this subject. Education and knowledge is essential in improvements and discoveries to alleviate illness, pain and a more enjoyable life.
Thanks for this very important documentary. Have known about this disease for more than twenty years...it is very sad when you have known someone who has lived with it and then died!
I have Cystic Fibrosis myself, yet it brought me to tears watching someone else to through it too. did you know that the worst part about everything they discuss regarding insurance and treatment is that insurance companies can (and more often than not, do) turn CF patients away because we "cost too much"?? money market is right. the money isn't in the cure...the money is in making us suffer through it long enough to milk us of our and our families' life savings, then letting us go.
This has been flagged as spam show
Our little Breanna has Cystic Fibrosis! We believe in prayer. My song was written from the pain, confusion and fear that comes over you when your loved one is diagnosed with Cystic Fibrosis. Breanna has gone through brain surgery at age one and is fighting C.F. every day. Please pray for her and all sufferers of this terrible disease! Thank you!
themannydanny 1 week ago
This has been flagged as spam show
cysticfibrosisireland.blogspot.com
akupunkt_n_u@yahoo.com
Regards
Dr.med.Nadia Ustinova
superhope03 6 months ago
i have cf people listen up! i breath in nano silver, spray my nose and drink it everyday. im not blue and i feel the best i have ever been. any questions, send me a comment please.
truthwikileaks 1 year ago
Comment removed
gmac89 1 year ago
And I thought having my cripple leg muscle was bad. At least I don't have to be this medicated and this sick puking up stuff all the time.
cutechong 1 year ago
As a cystic fibrosis researcher and computational scientist, I must say that the actual reasons CF has not been cured yet run deeper than one might expect. We have all the data we need, we just cannot compute systems with this much complexity, yet. For a good intro why CF, and other genetic diseases have not been cured, visit my channel. God bless.
bonnarj7 1 year ago
I agree with the kid that we need a cure. What we really need right now, though is : MEDICINE THAT'S FREAKIN AFFORDABLE ! Over $3,000 for medicine that we need just to stay alive is RIDICULOUS!
Not to mention help finding/getting jobs that we'd be able to do , and the rules for SSI changed so we can afford living on our own rather than having to choose being stuck with family or living in a cardboard box. (I'd LOVE to be able to afford getting off SSI...but it's like a trap! )
JMMPR24 1 year ago
I have CFRD (cf related diabetes) and am looking for a tablet instead of insulin - do you have any suggestions? I would be very thankfull if you helped me! - I'm 14
wasupitswill 2 years ago
@wasupitswill hey whats up Im Jess I have CFRD too i tried all the pills and i always wound back up on jus plain insulin but i do recommend the insulin pump its so awesome.u get stuck once every 3-4 days and you cant feel the burn of the insulin either.emaiil me if you wanna kno more or want someone to talk to.Good Luck
twiztedsweetness21 1 year ago
I'm an American living in Germany. Here, no one would even ask how much the treatment costs. Here, you have complete coverage and there's no or very minimal copay.
I may pay more taxes but I'm more than happy to if it means I'd help someone like this young man live a more normal life. He's got enough problems to worry about, money shouldn't be one of them.
liese511 2 years ago
I hope that advancements and common sense in the medical and scientific communities merge as one to realize that there is a market for 'treatments', not as much as cures. Cures should be the priority.
How the hell would some of those "doctors" feel if they were suffering from something terrible like CF?
Cure the disease.
ironwolfosiris 2 years ago
My cousins little girl has Cystic Fibrosis and now Diabetes. We are very, very close. I feel so lucky that my little girl is healthy. I missed Jodies Birthday yesterday and feel very sad for what has happened re my efforts. All I can say is I am glad I am not rich! People are more important than money!
ButterflyLullabyLtd 2 years ago
I'm 12 and have Cystic Fibrosis. Diagnosed at 7. It sucks! The people who don't have are lucky! It screws up your life! You get up each morning, take a million pills, breathing treatment, flutter, vest, mirilax then if you want breakfast theres 6 more pills to take. Every time i eat, thats 6 more pills. It makes life soooo hard and overwhelming, espeically for a middle schooler. Then my therapist gives me stupid pills to help, i think they make me angrier,nothing makes sense. We need a cure.
972kittycat 2 years ago
Hey, I am a 21 year old with cf. I know it can get overwhelming, so many little things constantly tacked on, weighing you down and making easy tasks that much harder. But just stay focused, don't let the little things bring you down, but don't ignore either. Take your life one day at a time, things will get better. I hope i helped motivate you a little, best of luck to you
- Joe
renegadeernie 2 years ago
Comment removed
ekateri28 2 years ago
ekateri28, there actually ARE some medications that we CF people use to losen up the mucus. But sometimes even all the meds and exercise doesn't do much. (depends on how severe the CF is. )
JMMPR24 2 years ago
JMMPR24 no matter what I am sure that CF is a living hell to live with. For the past few weeks I experienced some post nasal drip where there is mucus stuck in the back of my throat and I have to cough so much (and so hard) that I feel that I would cough up a lung. sticky stuff man. Drives me NUTS and have to take medication to loosen it.
ekateri28 2 years ago
I support Stem Cell research 100% and I hope you will learn to support it too.
reptileer20 2 years ago
I don't much like your editing - too jumpy, and you can't hear what they're saying when the nebuliser starts. But the information you present is good. Gives you a lot to think about. Overall, not a bad vid. Join the crusade!
citruscyanide 2 years ago
This has been flagged as spam show
Google: Lung Transplant Bradenton, and you'll find an inspiring story about a CFer who had a double lung transplant.
mikey3182 2 years ago
hope u r seeing a speciaist and not a GP...
keep up the treatmetns dude and try to inspire uyrself cos u cant rely on others to motivate u...i have cf aged 42
S888999333 2 years ago
gotimothy...ur a retard, i have cystic fibrosis, it is a genetic disease with no cure, get a life
cheerqt500 2 years ago
This comment has received too many negative votes show
It's not a genetic disease. It's caused by mold in the home. Move to a mold free home and be cured. God has given you sputum to get the mold out of your lungs. These doctors need to be in prison for stupidity and child abuse. You got to be kidding me.
GoTimothy 2 years ago
Comment removed
benny5191 2 years ago
fuck off!
benny5191 2 years ago
Just saw you on another response, you really need to educate yourself with this disease. I am 43 and have lived in different homes, some with mold some without. I was told that I was allergic to mold, which yes it is a "trigger" it is not the cause. It is caused by an abnormal gene or two. I have two of the abnormal genes.
frannyj33 2 years ago
In prison for greed.
jayhart69 2 years ago
GoTimothy your talking crap!
ROBBO1978OVBLYTH 2 years ago
dude, awareness is important, and i get that all the meds is not a cure and there is a lot of money for the meds...but the video is slighty depressing and suggest u see a specialist for cf nstead??? hey lok on the bright side.. at least there is no hempotysis in ur sputum dude...
anonpsycho88 2 years ago
hello i have cysticfibrosis too..i come from germany (im 20, f.)...
knows everybody Stephen???
please write me....
ANNI
ulleanniber 3 years ago
hey got a question. ever hear of fucking health insurance. i have cf and most of my meds are covered. this video is very negative. people shouldn't put this shit on here. there is much research for finding a cure. get the shit straight mexican bitch
JCPolaris800 3 years ago
Wow, you are ignorant. He does have insurance. Most people who have insurance still have a lot of costs associated with the disease. Almost nobody has health insurance that covers 100 percent of everything. If you do, good for you, but how about some sympathy for the other sufferers of this disease who aren't so fortunate. I don't even have CF and I certainly have sympathy for them.
jposh707 2 years ago
Well, in United States, that's a whole other story...
Versat1l 2 years ago
In many other countries, 100% coverage is not so unheard of. This man was born with this disease, he shouldnt inherit financial problems as well. I'd be more than happy to pay more taxes if this guy woudlnt have to pay for any of his treatments/medications out of pocket. Why should he?
liese511 2 years ago
I have CF. I live in Quebec, Canada. There is no fees and all is 100% free.
Versat1l 2 years ago
things can get ugly with private insurance... if you work for a pirvate company.
7hom 2 years ago
also it fuckin sux having it..if i was to die it would be a blessing..can't breath..always in hospital..takin fucking pills..can't holdf down a job b/c get sick easy..i know i'm not the only person with cf that thinks like this..i have had 2 friend die b/c of this..one was 13 and the other was 28..
chaoticXdisaster 3 years ago
same here, it's a pain to freakin go work in an office where i can't cough or else i get nasty looks and discrimination, they want me out because our health insurance boosted the day i came in. It's a killer, i have to freakin cough insanely 2 hours a day and do treatements and all my friends dont fukin care they say stupid shit like 'it will pass'... I can't get near girls cuz they all think ill get them sick, nyways i dont want them to have to deal me spitting muccus all the fuckin time.. :'(
7hom 2 years ago
hey brother
my name is chris
i'm 24 and i have cf..
how u going man?
chaoticXdisaster 3 years ago
Exactly.
I think the biggest problem is that there's not enough awareness. Since not many people know, excepting all of you here, not much is being done about it.
I mean, I know there are other problems out there too, but when I see all these fundraisers and tv ads and what not about them, I'm really disappointed and almost angry that no one thinks to spread the word about CF as well.
bublaikenchal23 3 years ago
this is bs... i fucking have cf!!! and i cant wait till i die shit... fuck this living.. i just lift weights and barely do idk 1 treatment every 2 weeks mabey 3 weeks tops.. i worked out so much that i skipped about 2 to 3 months without doing all those treatments... and their was this guy who just did swimming and never did his treatment tell this day.. and the doctor said his breathing was off the chart.. basically a regular persons body.... clubbed fingers! i better get into heaven!!!
bishouden1 3 years ago
i've got CF too. got diagnosed when i was 2. it ain't fun :( all the lung infections, coughs that ya choke on, poor weigh gain, and all the freakin' meds. it sucks, but i deal. i really hope for one day for there to be a cure for this brutal illness. and i agree that there is not enough awareness. 2 yrs ago we were discussing CF in health class and the teacher asked who knew what it was. I was the only one who could answer. he then asked who knew what cancer was and everyone raised their hands..
CFbaby907 3 years ago
and Etienne died of this when he was 16.
it's extremely disappointing that not enough people know about CF. they're all too concerned with breast cancer! :(
bublaikenchal23 3 years ago
im 14 and have cf. i am very healthy for a kid with cf. keep the dream alive to find a cure for cf!!! make cf stand for cure found!!!
GreenDayRocks89 3 years ago
i av cf... but thts wot makes me me. but i would love a cure.
xxstaceychillin07xx 3 years ago
Things sure are different in America, here in Ireland all our medical care & medicines is cover with a medical card. If not it would cost up to €80,000 a year for it.
The big problem we have is organ donations there not enough people donating.
I myself is waiting 4 a double lung transplant being on the waiting list now nearly 2 years I'm 27 witch is a gr8 age 4 some1 with CF but I know if I don't get them soon I will not make my 30th birthday!!
rogerthealien359 3 years ago
This definitely hit close to home. My neighboor/best friend has CF. I know all the statistics but to hear someone that deals with tons of cases everyday actually say it out loud made it that much more real. I only hope that one day CF will stand for Cure Found.
di56 3 years ago
I have CF and I feel so bad for all these kids....I must have a very weak case, because I live life like a normal adult/teenager. I get out, I'm relatively healthy, and I only take my medication when I feel like it...
Ensonamata 3 years ago
how old are you?
teiubesc36 3 years ago
I'm pushing 20.
Ensonamata 3 years ago
but you need to take good care of you,and as you know is very important to take the medication not when you feel like it...
but as doctors tell you to do:):)
teiubesc36 3 years ago
I'd feel more inclined to listen to my doctor if she didn't damn-near kill me a couple months ago...I've made it this far, and frankly death is better than taking 2-3 hours out of my day to "be healthy."
Ensonamata 3 years ago
wow that was terrible,as a doctor she should help you,i don,t agreed with you,is better take 2-3 hours to "be healthy" cause is important to fight,instead of giving up.
teiubesc36 3 years ago
only this year i saw a documentary were they did talk about C.F,a portuguese tv channel made a documentary about people who suffer from C.F and how they live day by day with the desease,some of them were lucky to be send to a spanish hospital to make a lung transplant,one of them is now 38 years old and she,s doing fine,in my country lung transplant are totally a disaster,if the people who as it,don,t go to spain they will die,cause my country is helpless when cames to threat people with C.F :((
teiubesc36 3 years ago
my heart is with all of you,i feel helpless
i wish i could do more than just say to everyone,everything will be ok...
iam from portugal,is impossible to tell how many people suffer from C.F...
most people here doesn,t even know what C.F
is.that makes me so sad.iam very aware
i do care,i do fight to let people know how hard and bad this desease is...
is in all of you that i found the strenght
for doing it,none of you are alone in this fight...god bless you all
teiubesc36 3 years ago
Your vest looks so much more advanced then mine=p but it really is scary hearing someone say that this thing you have is going to kill you.. There's not better way she could have put that? Can't we just find a cure now to prove her wrong?
breathstrong12 3 years ago
Your vest looks so much more advanced then mine=p but it really is scary hearing someone say that this thing you have is going to kill you.. There's not better way she could have put that? Can't we just find a cure now to prove her wrong?
breathstrong12 3 years ago
For more information on cystic fibrosis, simply type in Gibson Vance promoting Cystic Fibrosis in your youtube search engine
beasleyallen 3 years ago
hi, i'm currently doing my medical degree. i just wanted to ask whether any CF'ers here has had gene therapy to alter the genetics. we have been told from lectures that that is quite succesful but its just patients are reluctant because of the ethics and trusting a doctor to do something that essentially to an avereage person is changing the genetic code.
rekrap27 3 years ago
Stephen, have you tried any natural cures?
CuredForSure 3 years ago
Gregory Lemarchal...
was 23...
April 30, 2007.
Gone forever of CF.
bublaikenchal23 3 years ago
Im so sorry to all of you who has lost someone to Cysitc Fibrosis. My good friend Mike is only 23 and is at the final ending stage of Cystic fibrosis, he is Dying and coughing up blood! I hate to see people in pain and suffering slowly!
lovemetal166 3 years ago
was trough gregory that i became aware of C.F
was the first time i heard about this desease.for me greg will be allways a role model he did fight with everything he had.
he never give up of fighting,not only to breath well,but also for is dream...
is wonderfull voice will remain forever in the hearts of those who admired him...
there is an association with is name
who keeps the fight against C.F
REST IN PEACE
teiubesc36 3 years ago
my sister died of this at the age of 20... she died last month
riebug88 3 years ago
When you get to the American Express Member Project home page type UZHKO0 into the search box...it will take you right to it.
Come on people, $1.5 million could be AWARDED for ORGAN DONOR AWARENESS if we can win the VOTE!
PLEASE TAKE THE TIME, CAST YOUR VOTE AND PASS THE WORD.
organdonor5 3 years ago
There is a great project to increase DONOR AWARENESS that ends Septemebr 1, 2008. American Express (credit card company) will fund the project with the most votes and I would LOVE for it to be the DONOR AWARENESS project.
It was written by an 18 yr old girl that received a transplant and is living with CF cystic fibrosis.
GOOGLE IT. It is called Member Project "Second Chances" Mobile Organ Donation Awareness.
Please VOTE FOR IT, pass the word to everyone and increase DONOR AWARENESS!
organdonor5 3 years ago
If you want to help, it takes nothing more than five minutes of your time.
Simply copy/paste the following into the message box in the share video screen:
An amazing documentary that really needs your help... Please Rate, Comment, Favorite and Forward!
If you can send that message with the video attached to as many people as possible, even if it is only your friends list, you would be helping every man, woman and child who has to suffer with genetic disease tremendously.
christinmalgoire 3 years ago
Thats pretty sad i lik the info i giv this a 4/5...
The UtubeCritics: The source of video comments and updates!
UtubeCritics 3 years ago
ur video is very good, and it keeps ppl awear. :)
XxxPrincessBlondexxX 3 years ago
i am a 13 girl who has CF. i am very healthy for someone with CF. my goal in life is to at least make it to 60 and to have a great family with a loving husband and kids. all of my friends and family love me for who i am, and surrport me. dont let ppl pick on CF, its no laughing matter, and ppl who care should know that. God will punish them. God will help us every step of the way on the hard, tough, and even frusturating juorney surving and finding a cure for CF. soon CF can stand for Cure Found
XxxPrincessBlondexxX 3 years ago
my cousin has CF he just got a lung transplant last month
MLGNinja77 3 years ago
Wow - how is your cousin doing????
NoAnswersNoCure 3 years ago
@NoAnswersNoCure He's telling is story, you should simply respect the fact that he gave you a view & not be an a-hole about it
WillDeguire 1 year ago
We want to Thank You for your thoughtful comments about our daughter Traci (R.I.P Traci Ann 1988-2005 Cystic Fibrosis).
Best Wishes to you & Good Health, Michael & Gail
Maptcb 3 years ago
dont they grow lungs and other body part in bio labs. any way care
aires12345678 3 years ago
GO STEVEN!!! hopefully there will be a cure soon!
skatenotstress 3 years ago
woops i spelled his name wrong. sorry about what i said earlier......
skatenotstress 3 years ago
sorry i was replieing to someone making fun of cf
skatenotstress 3 years ago
This broke my heart, you are an amazing man and i hope that everything good comes your way, your ideas and way of thinking is very logical and i agree very much. May god bless.
lisamccullough19 3 years ago
My name is Greg McDougal and I have 4 children ages 9 and under and 3 of them are diagnosed with Cystic Fibrosis. I need to build them an allergen free, special clean air house! This is the only way I know to do the very best for them that I can. We have run into all sorts of 'extra dynamics' such as mold and incorrect HVAC systems that has only complicated an already serious situation. I have recorded some songs and am selling the CD on my web site to get this house built. ahouseformykidsdotcom
greganddiane 3 years ago
Don't. Seriously, don't. There is nothing more harmful for them than living in a over sanitized place. What do you think that will happen when they will get to less sanitized places? I think you get it. :)
o0PinKFisH0o 3 years ago
this is a very terrible disease and i know because i was up until last month was considerd CF. when i was 3 i was at the very end of my life and i was going to die! it was terrible and know since im not considerd CF i want to help EVERYOJNE with CF and give them confedience and tell them that if they just pray and trust in God that you WILL get better! If you act like you dont have CF then you will get better(forget it) and thats what i did... PRAY!! TRUST! i will pray for ALLL of you w/ CF!!!
sparklingrose191 3 years ago
thank you sparklingrose i have cf and its hard i hope they find a cure soon :D
ilovepetz12345 3 years ago
You know what?
You're the first one I see who advises to act/think as I always did : forget about your CF. Since I'm young, my family always see me first as a "walking" disease before seeing me as a normal person. I have always done the opposite, they never understood why. Now let me tell you this. Last time I have been hospitalized was 3 years ago. When I left the hospital, I was TOP SHAPE! Then I started to decline. Since then, my lung condition is stable, and I barely take any medication.
o0PinKFisH0o 3 years ago
I'm starting to think that it's thanks to the way I think (don't think too much about my CF) that keeps me from being more sick. Whenever I get better, I always end up coming back to the same stable condition.
o0PinKFisH0o 3 years ago
DUDE! its good to act like a normal person, but stop trying to be cool! take ur meds! u will die very young if u dont take them.
XxxPrincessBlondexxX 3 years ago
Yeaaaaah. That's right. I try to be cool. I'm not 13 like you.
o0PinKFisH0o 3 years ago
And you sure don't know that you can actually make someone sick just by convincing this person that she/he looks sick.
NEVER underestimate the power of the mind.
o0PinKFisH0o 3 years ago
So, if you are convinced that you ARE sick and weaker, that you can catch flue, cold, any virus more easily than normal people, then it will sure be more likely to be true than if you do not believe it. And I'm not talking about denial here. All my life I was told that my immune system was omg weaker than anybody else.
o0PinKFisH0o 3 years ago
But guess what? While everybody had a flu, pneumonia, gastroenteritis around me, I rarely caught any of that. I can actually count on my fingers how many times I got flu (2x), gastroenteritis (3x) and pneumonia (never).
Believe me, you are NOT as weak as you're being told.
This is an advice that no physician, lung specialist/... will ever give you.
o0PinKFisH0o 3 years ago
i dont think i am. i dont think im sick. i hardly ever think about my CF, till i have to take my meds.
XxxPrincessBlondexxX 3 years ago
The main point is that not only do I ACT like a normal person, I do believe that I AM a normal person. I only have CF, it's not like if it was a big deal.
See the difference. This is LIGHT YEARS apart from thinking I am """cool"""
o0PinKFisH0o 3 years ago
PinkFish raises a good point though, as well as proper diet and medication, physical activity and mental fitness are extremely important.... Mind over Matter isn't going to prevent you from getting sick, but like PinkFish points out, if you are convinced that you are sick and weak, you will be sick and weak.
NoAnswersNoCure 3 years ago
wow i thought asthma was bad i cough up mucus and stuff i kida think asthma is the mini version of CF
canadianstarlet 3 years ago
nyeeeh
my best friend has cf, and because if it she also has diabetes (too much damage to her pancreas)
she's on a pump for food every night, and has to treat herself for diabetes daily, and take enzymes...
bah. i really hope people get over this phobia of stem cell research soon. if it saved her life...ah i can't even express how grateful i'd be.
bubbellah 3 years ago
Wow. How common is CF? I don't have it, but I've read about it and own a movie about a little girl that had it. I hope one day they come out with a true cure for this disease. I know doctors help somewhat by treating it, but nowadays they don't really cure anything. The medical area has turned into a money market. I hate it. If they would actually fix things like you said then there would be more people living longer. I wish you the best and hope soon that they come up with a cure.
Much luv!
Sweety1703 3 years ago
I live in Belgium and here 1 on 20 people has CF. Every week someone is born (in Belgium) with CF. I myself have CF, I had my first lungtransplantation when I was 15. It was April 2006. One year later, in October, I had my second one. So they find some kind of cure, but not all patients are helped with it. Thanks for caring, it means a lot!
Scottietje 3 years ago
Cystic Fibrosis (CF) is the UK's most common life-threatening inherited disease.
Cystic Fibrosis affects over 8,000 people in the UK.
Over two million people in the UK carry the faulty gene that causes Cystic Fibrosis - around 1 in 25 of the population.
I have Cystic Fibrosis.
HjayAndLuu12 3 years ago
oops, we live in New Zealand by the way.
kiwichickster 3 years ago
Wow, different health systems in different countries. My daughter has CF, she is six months old tomorrow, I basically don't have to pay for a thing. $2.50 for a vitamin supplement that isn't fully funded, and $54 per month for her special milk powder (the full price is $665), and thats it. They even pay for my petrol to get to the hospital. I was thinking the other day, imagine if I had to pay for it all, and didn't think realistically that people do. Thanks for the video it was excellent
kiwichickster 3 years ago
Excellent video. My son Kai has cf. He's 3. We just found out they raised the price of TOBI. It's over 4200 per month if you had to pay cash!! Thanks so much for sharing this video.
MamarazziMichellene 3 years ago
OH My Gosh ! i have CF and i got to St.Vincents ! Dr. Berdellas my doctor !
highlitersrkl 3 years ago
o thats not my screen name i have to make one lol oops
shapethesky8410 3 years ago
Wow I dont feel alone! lol CF sucks! Its funny I'm so used to doing treatment and taking my enzymes that seeing someone else do it made me feel wierd... i was thinking wow thats what I do everyday and thats what I look like coughing up mucus every five second lol and then people look at me when i take my enzymes and their like whats that i get so sick of telling people... im 21 and still sick of CF! One thing i really hate is "wow look how skinny your arms are!" i just wanna scream "I know!" lol
shapethesky8410 3 years ago
Ok thank you for helping me with that. I do believe my pc let me do something without giving me a huge hassle.... woohoo!!
Ok well anyway thanks again for walking me thru it
krystalmike1999 3 years ago
Your welcome - thanks again
NoAnswersNoCure 3 years ago
i also take that stupid flornase and advair lol i also have bceapecia,aspergilis,and psuetamonis or how ev u spell it i had bceapecia but my doctor said miraculously it did not show in my blood work but he said it may be down in my lungs somewehre i am not well at spittin the stuff up so they usually do a throat culture so they cannot find the stuff that is deep in my lungs yeah anyway this is cool to talk to other cfers
mmg24life 3 years ago
i am 15 with cystic fibrosis i take pulmozyme,tobi,hypertonic,vest,creon 20,prevacid,zithromax,source cf vitamins,boost,albuterol,and spornox i have had 7 picc lines yes it really does suck this is kind of cool to read about people like me.
mmg24life 3 years ago
Im 23 with CF, and I have battled the insurance non stop, it seems every med needs a doctor to call and say "Yes, He really needs this..." and it does get old. I am hoping for a cure, I was in my tweens when the gene therapy ran into problems, but with the new stemcell research comes a new hope.
rasam32101 3 years ago
Whats funny is I tried to get Gerber life insurance for my daughter and they turned her down because of the CF. It honestly made me cry. I know this is RANDOM I listen to Bright Eyes when I'm sad. It makes me cry even more and then I feel better ahaha. Everyone stay strong! You're way toooo cute for CF!
iluhmahbabyautumn 3 years ago
im 13 with cf.
and i take.....
ultrase MT20, AquaDEKS, tobi, pulmozyme, prevacid,vest, Xopenex, hipertonic saline 7%, pulmocort,sporonox......
& yeah,
its a big pain. too much medicine but i still take it..
hopefully there will be a cure REALLY SOOOOOOOON!
maydia 3 years ago
So how old is Stephen? Looks about 20-25. Just wondering. Is he in school, or workgin for his insurance? Im 28 with CF, male colonized with MRSA, diagnosed at 6 weeks. my current medsare ultrase mt20, Flonase, Ventolin, flowvent, Hypertonic saline treaments 7%, ursodial(liver med), & i take ABDEKs vitamin supplement. thank god for medical insurance. anyway I hope he is well and nice video. Any other cfers feel free to comment me :)
DevastatorKnight 3 years ago
He's 22. I'm releasing a supplement to the documentary to show a more personal side to stephen. It should be ready in a few days.
NoAnswersNoCure 3 years ago
great to hear, thanks for replying.
DevastatorKnight 3 years ago
I have Cystic Fibrosis.
It really is a pain in the ass lol
dime4bag 3 years ago
bless you all
972kittycat 3 years ago
Hey man - I read your original post. What's up little dude? I'm sorry if the documentary made you mad - What's up?
NoAnswersNoCure 3 years ago
sorry i was trying to reply to someone and it didnt get to them obviosly and thank so much for not cussing like i did.
972kittycat 3 years ago
I am so glad oyu are doing this. What a blessing. I have a friend here in Tucson, Brandon who's terribly ill with CF. He's got MRSA,liver disease, arthritis,diabetes,valley fever, severe reflux and has had 3 (failed) nissen surgeries. He's been in the hospital over 150 weeks of his life. I am trying to get his, our's and other stories like this on the national news, but so far, no one's seemed interested.
Do you think you could help me? God bless you..all your dealing with and have gone through
booboosbaba 3 years ago
That's the trouble I've run into. For example, with the CF FOUNDATION, The CANADIAN CF FOUNDATION, etc., they have told me that since my documentary was not sanctioned by their orginizations, they want no part of it. I was told that "rest assured there are many talented and hardworking people fighting this disease every" -- It took them months to write me a form letter reply. Basically they are telling me to get lost. But that's the reason why I opened this channel.
NoAnswersNoCure 3 years ago
I hope for something better.
Courage
CyBeRsT3aLeR 3 years ago
You're so handsome and brave, Stephen! Keep up the good fight. I hope you'll one day breathe better!!!
JessMaiLinh 3 years ago
I just lost my cousin to this a couple weeks ago...she has a now 16 year old sister facing the same fate, and having to watch her see her sister fall apart and know that is going to be her down the road is heart breaking!! I pray we find a cure...
hemphimn 3 years ago
Oh My God! That is horrible. I'm very sorry for your loss. Your family is in my prayers.
God Bless
NoAnswersNoCure 3 years ago
Thankfully humans have made many advances and can treat many ills of the human body.
Unfortunate that this, as so many others, is one that we can not treat. God bless all.
Roushfan5 3 years ago
This has been flagged as spam show
┏━━┓┏━━┓┏━━┓┏★━┓
┗☆┓┃┃☆┓┃┃☆┓┃┃┏┓┃
┏━┛┃┃┃┃┃┃┃┃ ┃ ┗┛☆
┃┏☆┛┃┃┃┃┃┃☆┃┃┏┓┃
┃┗━┓┃┗★┃┃┗┛┃┃★┛┃☆
★━━┛┗━━┛┗━━┛┗━━┛
inferno1217 4 years ago
i completely agree with you he is very hott. I have cf too and this is definitly a good representation of it. Its finally good to show what our evryday lives are like. after 19 years of this everyday is still hard.
JCU911 4 years ago 3
i learned about this in bio, stephen your hot!(lol!) completely random!
charmkitty101 4 years ago 2
Good video, very very good!!!
Look my video, please!!!
Hi
Kinoki12345 4 years ago
Good video, very very good.
You look my video please!
Hi
Kinoki12345 4 years ago
to charge a pirson for what they requier to live is a crime
to have the possability of death frome loss of money
we live in a terrably warped and messed up world
i feal so greatfull for my health now
but to get to a point
stem cell resirch has never killed anny one
prolonging stem cell curs has
killaghist 4 years ago
You have 100% of my support! May CF stand for Cure Found.
trixie1975 4 years ago 2
am sorry man i support u so much i wish there was a cure i really do my brother has this i wish there was a cure he only has a couple of years left :( please
andyboy155 4 years ago 2
Hey...I know what you are going through I deal with what you have...I am so proud of you to sit and talk about it because I can't and you have showed me not to be afraid of it. thanks!! P.s. You have my support!
meggolf10 4 years ago 2
my support too
Kiralevel 4 years ago
I SeNt ThIS OuT To EvErY OnE I KnoW And AlSo MaDe It OnE of My FeAtUreD FavoRiTes!!! GoOd LuCk WiTh YouR CaMpAinE!!!
RandomStuffEmporium 4 years ago
Thank you all for your wonderful comments and e-mails! I greatly appreciate your continued support in raising awareness for this cause!!!
NoAnswersNoCure 4 years ago
You Subbed to me,
Tee He He,
Your channel rocks,
Like nice clean socks,
Stop by anytime,
This is the end of this rhyme
♥--Hugs and Peanut Butter Cookies--♥ Brittani aka Rhonda Anthony Tanner/R.A.T. Coaching aka B-RAT :)
rhondaanthonytanner 4 years ago
I rated this at 4 stars, but its not 'pretty cool'.It realy tough; hes a strong willed guy and its a shame its so costly.
Its a crime theres is so much profit from suffering.Take care Stephen.
DVincentW 4 years ago
i have this same disease and its deffinately true that its life threatening but if we do our treatments like we are supposed to we well live. many people wouldnt have even guessed that i am even the littlest bit sick.
erikaaa12 4 years ago
This comment has received too many negative votes show
id say he has a year to live
iateabucketofjelly 4 years ago
Stop being such a heartless prick, Cystic Fibrosis is a horrible disease. One of my cousins have it, and one died from it. The other is so worn down from the treatments that she looks like she is 80 even though she is only 27.
wpuclark 4 years ago
I'm very sorry for your loss and pray for the best for your cousin. Unfortunately there are those who in their efforts to seek attention forget that what they say can be so hurtful -- Thank you for sharing your perspective even though it came from injury and great anger.
Thank you to those nameless individuals who so diligently spared others from having to respond to such ignorance by voting the comment down.
NoAnswersNoCure 4 years ago
Thats bang out of order!
ROBBO1978OVBLYTH 4 years ago
WhAT a WEINER!!!
RandomStuffEmporium 4 years ago
This has been flagged as spam show
That's so hilarious.
Get the hell out of here.
candyxfruit 4 years ago
ya know what you are sick in the head. that pisses me off. i have cystic fibrossis and im 10 years old and diagnost when i was 7 i was dying. my family is suffering cause of me. i took toby, the cost was 2000 dollars a month. my normal everyday treatment costs 1000 dollars a month. there are many times where could of died. i used to have nemonia at the same time. i stayed in the hospital for months. you should be ashamed of you self.
972kittycat 3 years ago
Ahhh - nevermind - I see what comment you are refering to. Unfortunately there are those who in their efforts to seek attention forget that what they say can be so hurtful to others. Why don't you address this issue as a video responce so that people had hear and see what you are saying instead of just reading it... do you have a web cam???
NoAnswersNoCure 3 years ago
im sorry. i was trying to reply to somone else that was laughing at everyone with cf
so yeah sorry
972kittycat 3 years ago
No worries - this is a place where you can express how you feel.
NoAnswersNoCure 3 years ago
shut the fuck up
skatenotstress 3 years ago
This is sad. Good luck to you and may God bless you with a wonderful, long, and happy life. You are in my prayers.
suddupyamouf 4 years ago
religions are not going to be a factor much longer, this is the way we are going ,and the only way to save the planet its sad and discerning to see that people use tec to come here ,but a 5000 year old book to quote ,,the same book that says earth is 5000 years old and if anything is wrong in the book then the whole bible must be wrong ,i think that they all tear a couple of pages out .
BeautifulGirlByDana 4 years ago
Stem cell are the way things will end up no matter how much industries try to suppress it,British
scientist severed the spines of mice then after stem cell treatment ,3 weeks later were up and crawling around ,,,,,the religious people,they probably don,t let their kids watch the discovery channel because the kid is going to say were do dinosaurs come from,,,,
BeautifulGirlByDana 4 years ago
people can argue stem cell use is unethical. but when its your child with a deadly disease your views on what's right and wrong would change in a big hurry. Bless this young man's heart. I just hope the U.S wakes up and does more stem cell research
shortass1978 4 years ago
people ask all the time how I can be a Christian and support stem cell research. I tell them because my life depends on it.
farrel283 4 years ago
I think all our lives depend on this research. who knows what possibilities stem cell use can hold.
shortass1978 4 years ago
Oh My God...poor guy. and he sounds so sweet.If I had the money I would love to help him in anyway.Thanks 4 telling me about this.
Atemsqueen13 4 years ago
Thank you for sharing this with me. I never really understood what Cystic Fibrosis was. I hope that Stephan makes it past the normal age range. I really like him. He should be a spokesperson for the cause. I will send this to my friends. Thanx again, love, khataroo
khataroo 4 years ago
Quite interesting & very informative too! Thanks! ~NH
Nusantaraku 4 years ago
Thanks for the add new awesome FrIeNdY Friend!!--hugz--Brittani aka Rhonda Anthony Tanner/R.A.T. Coaching aka B-RAT :)
P.S. Don't be a stranger, I am cooler than a power ranger.
P.S.S. Very informative, well put together video, way to raise awareness!
rhondaanthonytanner 4 years ago
I really commend the interviewers and filmmakers to make this documentary a reality to educate knowledgeable people aware and informed on this subject. Education and knowledge is essential in improvements and discoveries to alleviate illness, pain and a more enjoyable life.
happycat4200 4 years ago
this documentary ist very good, before I have seen this I know nothing about this. But now I know more about it.
AsaYohKura 4 years ago
Thanks for this very important documentary. Have known about this disease for more than twenty years...it is very sad when you have known someone who has lived with it and then died!
HalooftheMuse 4 years ago
thx for this video=]
muwas 4 years ago
magnificent documentary
SmashedSushi 4 years ago
thanks for sharing
MustangGT520 4 years ago
thanks for this video and it's message of awareness
BIGFOOTBUBBA 4 years ago
I have Cystic Fibrosis myself, yet it brought me to tears watching someone else to through it too. did you know that the worst part about everything they discuss regarding insurance and treatment is that insurance companies can (and more often than not, do) turn CF patients away because we "cost too much"?? money market is right. the money isn't in the cure...the money is in making us suffer through it long enough to milk us of our and our families' life savings, then letting us go.
farrel283 4 years ago