It is only a theory that vitiligo is a auto immune disorder, it is not a fact set in stone. My mother depigmented her skin completely with natural homeopatic medicine 8 years ago and now lives a perfectly normal life she only did it because she was too late to reverse it but it could have been done. The worst thing that anyone can do is listen to doctors and internet because they have no clue what it is, and saying its an auto immune disorder is just lumping everyone together
I have it on my hands and on my feet and some on my face. I know that things could be worse, Im just happy that its not life threatening.I think we all want to have clear skin.The only thing that gets to me is how people treat me and react to me.Imagine my pain when I am out & people give me nasty,dirty looks.When i shake someones hand and they act like im a alien.People treat me funny when I touch their babies or handle their food.I cant even get a simple job as a waitress.
great video man, God blesses you . well i have this disorder vitiligo. i got it in 2003, iam African guy very very black . i never have in Africa but when i came to usa the very first 2 yrs i came here, it started on my lips and now its shinny/ tingkling every were on my body. so i have to live with it. God creat my skin black, but he turn my color white, its ok though i was not turning blue, i was turning white which is another human race too so not a big deal to me at all. thanks all.
hi my name is frankie and i also have Vitiligo ive had it sense i was 4 years old im 22 years old now i understand what it was like growing up i hate how some ppl stare at it and ask questions about it but now ive come to except it i have it on my hands elbows knees and eyes and face so if you have any questions or any one else for that matter feel free to send me a email if you need a friend or some one to talk to
Hi I have this skin disorder as well as everyone else who has commented. I have had it since I was 8 and am now 14 it covers 80 percent of my body it's not spread to my face but I have it on my legs arms neck it covered my feet also it's on my back and belly. Last year in the spring/ summer slot of people asked what was on my hand sometimes I would say their just like that or I don't know? I usually cover up with long shirts and jeans but it's hard during basketball which is where I'm heading n
I've had this since I was 5. I am now 13. whenever someone ask me whats wrong i just tell them I have vitiligo. They ask me to explain and I tell them to look it up. Some ignorant people ask me is it because of burns. It is very strange with this disorder, I feel sometimes special and sometimes like trash. I am taking different medicines to keep it off until I graduate from highschool so I can have a normal life. Thanks for the video.
Thank you....I am dealing with this now and month by month lose more and more of my pigment. People always ask if I am a burn victim. It is embarresing and people don't always want to touch you. Hope to meet more understanding people like you.
well...almost 40-60% of my body has got vitiligo i got alot of white places on my body it started when i was around the age of 12-13 and now i got it almost everywhere. my ''normal'' skin color is tanned a little bit. but when im on holiday vitiligo burns very fast its very annoying, i don't think its ugly i think its pretty cool to have it its special not many people have it its unique. when i look in the mirror i think its just me i don't care if people dont like it if they don't than piss off
@hppy4ever Nope! Just a concerned citizen. There are worse things in life than Vit and I hope that people who are affected by it realize that. Some days are gonna be hard, but remember that it could always be worse. The power of positive thinking is very real. it won't cure your situation but it will make life so much easier to deal with.
I've had vitiligo for about 7 years and for me I can say its been a life altering experience. My view on life has definitely changed. I am now very mindful and sympathetic towards people suffering from any sort of illness. Today I am a better person than I was 7 years ago so I thank God for my vitligo. I enjoyed your video and God bless. - Rich
Being a seventeen year old female with vitiligo is hard. I've hadnit since I was nine, and it was only a spot on my knee. Now it's spread to my hip and foot. I will never get over this.
Lizzy, there are far worse things in life than this. It won't kill you. Anyone worth your time won't care that its there. If someone judges you...ignore them. I know what its like to be made fun of for something you are born wi
Millions of innocent children die every year from starvation, aids, abandonment, etc. Maybe thats gods way of showing us no one cares about little children, or maybe god doesn't exist you retard.
Vitiligo doesn't kill you...that is the difference. In fact those other things are not even in the same scope as vitiligo. Get a better argument and leave your ignorance at the door.
i`m 18...i got it...i cover it with make-up..! what is your solution to cover it..??? its not comfortable to stand every day in front of the mirror...!! are there other ways? maybe permanent make up??
Don't cover it. Be proud of it. You are unique in outer appearance, but a human just the same. Don't be so shallow about yourself. Get involved in something extracurricular to show others how strong you are.
Its so cool to see someone out there interested in vitiligo. I have always hated calling my vitiligo a disease, it sounds stereotypical or perhaps preventable. I feel that this is just a pigmentation disorder that basically my immune system fights off pigment cells and loses its color. I also dont believe my condition to be genetic but more or so caused by and extreme environment change.
i like what you had to say about the being the same thing and about skin color,
to me vitiligo when i think about it is just that,
im a non racist traditional skinhead (look up trad skinhead) and to me, it really is a way of showing theres no difference. cause think about it, everyone of different ethnicitys get it. it shows we are all human, and god damned if the racists out there cant see that.
hey man, i got vitiligo on my nuckles and slight a round my waist. ....and some other places BUT! its all cool with me. first i thought it came because i mashed my fingers in this garage door and the pigment didnt want to come back into my knuckles. then i found out i had vitiligo because my body doesnt produce a certain vitamin that i cant take as a supplement.
I have been suffering from Vitiligo for so long since my childhood. I have come across with a natural / herbal medication for Vitiligo from Speedy Herb Care Company.
It is the Vitiligo medication process without having any harmful side effects. It is a slow medication process but now I am getting good results.
This video is beautiful man. I've had a random patches since i was small but recently it's started to spread to my face and really this video is the first thing i've read/seen that has made me calm and ok about it. I've been getting obsessed with it and doing everything i possibly can to try and stop it, but this video has helped me see it differently-the idea about god showing us we are all one, the same, that is lovely. Even though I don't have proper faith,that has helped me! thanks
I have been suffering from leucoderma for quite long since my childhood.
I have tried many products from internet but they result in vein. Few months ago I have found information from health forum about Vitiligo Tabs from Speedy Herb Care.
It is the Vitiligo medication process without having any harmful side effects and after continuous use of 5 weeks (2 tablets thrice a day) now I am getting good results.
Thank you for this video. I have vitiligo and it has been hard for me to deal with it lately. I'm glad to know there are people like you who sorts of understands what we're going through. Thanks again and god bless you. I wish there were more people like you.
What bothers me the most is that when Lee Thomas got the disease, he got the sympathy of the media and the people.
When Michael Jackson came out in 1993 to say he had it, the next day, people were still talking about how he bleached his skin and how he doesn't want to be black, which continue to this day.
I live in the Detroit area and Lee Thomas is an amazing talented and uplifting man who didn't let Vitiligo get him down. My brother has it on his hands, around his mouth/eye area. My daughter has it also. They go on with their lives like any normal person. No one questions or puts them down cause their personality covers it. We look at it as patches on a dog-and praise God that this isn't a type of skin cancer. We handle it more like a celebration (that things could be worse off-)
I'm from morocco, i had it since i was 12, my doctor made me stop eating all kind of seafood, my question is dose it have any relation with what you eat. i stopped having fish and it stopped from spreading....I'm famale 35 year old now
Yeah, I was tired and apparently went stupid. I knew the correct pronunciation but I had a bout of ignorance! lol Ah well, we can't all be correct 100% of the time. I also addressed this issue a long time ago in the comments.
thanks for the video. I too have been interested in knowing more about this. FYI, a new scientific study has identified a specific gene that presisposes a person to Vitiligo and/or Lupus. And that the condition may be trigger by exposure to Phenol. Phenol is a chemical that is put into cosmetics, insecticides, some hair dyes. It comes from Benzene. This stuff is toxic to humans. Perhaps this kind of information will be helpful to those predisposed to it and help tighten regulations of it's use.
Hi this is the first time ive really checked this out properly, i went on the net to see if there was a cure because 4 years i thought it was a fungal infection under the skin. it started when i damaged some skin on my face, and that was years ago when i was ten, im 25 now, very very slowly white patches formed around where the skin was damaged, and in other places to around my face, i have small patches else where to, and a small one on my penis which is cute my gf tells me ,,lol
and to top that as michael jackson says in his song black or white.... pay attention to the message he is trying to send in the song... "and i dont believe in miracles but a miracle has happened tonight"... "dont say that you agree with when i seen you kicking dirt in my eyes... but if you thinking bout been my brother it dont matter if youre black or white"... youll always be remembered as the greatest of all times in billions of peoples hearts... R.I.P Michael Jackson
worlds population with this skin disorder (not a disease since its not directly harmfull)... so the ones that carry it have definately been blessed... this is how i think from the bottom of my heart and i really believe that this might be the reason... God bless everyone and show us the right way...
the ones trying to be something that they are not... people with vitiligo have no choice... and like chris said in this video... maybe thats Gods way of showing that it doesnt matter what color you are.... maybe thats His way of showing humanity that He really exists and is looking out for everybody.... and if thats what it is.... people with vitiligo have been blessed to show the world that God come thru them with this miracle how stupid and igonorant human kind is.... remember its only 2% of
ive had a patch on my arm near the elbow area since i was about 19... it was about an inch wide when i first noticed it... people would ask me wut wus that and i would say i didnt know.... and to be honest i still dont know.... and really dont care because if it was it wouldnt change me in any way.... it grows a little every summer.... but its only really noticeable when im under really bright sun... cant notice at all during winter... like michael said.... wut about people tanning... they are
I'm 19 and I was diagnosed with vitiligo two years ago. I have some white patches on my stomach and a little on my back. I'm afraid it's going to spread to the rest of my body and what's sad is that there is no cure =( However I am thankful to God that I have a disease like this and not something worse. I believe that everything happens for a reason. If God wanted me to have this disease then there is a reason behind this. Thank you so much for making this video.
Yes ,it is not life threatening , but having to stare at it everyday is mental torture day and night. Makes me feel dizzy and gives me headaches day and night thinking about it cause its part of the body. Can't get used to it after 25 yrs.
om 17 yrs old going to 18 and i have it and its really uncomfortable i really hate it :( i wish it could go away and i dont like people looking at me or talking about me just because they see me different
At least it's not cancer. Seriously, there are worse things in life than being "different". You should embrace it and say "to hell" with anyone who doesn't! God bless ya buddy!
......i dont wear t-shirts coz i have it on my elbows, but, ive seen people who have it alot worse when i'm walkin around manchester, but i suppose this is me. i ws thinking of getting a tatoo over them, the same colour as my skin tone so i can feel "normal" but got told no this is me and this is how god made me and i should accept it and i shouldn be stupid, but........ anyway, thats my feedback lol all the best buddy
ive got it and iam also thinking about a tattoo but not covering them or something but just writting vitiligo on my arm or another place where i have it i prefer my arm that will make it alot easier and people will see it and if they are like a little smart they understand that the tattoo says what i got
...it really messed with the way i think. feel people are looking at me. mine is not that bad, got a little on my hands and i'm always hiding them, when someone notices them, and asks what is wrong with my hands, i act like its normal, but daam does it sting!!! i come acros as a confiedent guy, but its far from it. ........
hi, just seen your video, was talkin about this at work today with a few mates as i have this disorder, so i thought i'd check youtube see if there is a cure as im always on the lookout. i'm 26, from the u.k, had vitiligo since i was 8, and yeah, you are right mate!!.......
Hobbo... I am 29 years old and I have had Vitiligo since I was 6. My mom would take me to the doctor but thats not what she did to cure me. what she did to cure me (mentally because I still have it physically) was show me that theres nothing wrong with me.
Shed show me people in wheelchairs and tell me look, you can walk. Shed show me someone who was blind and tell me look, you can see. I was always very confident. I was popular in school, had lots of friends, never had a problem with boys
and now I am married with a beautiful daughter. I believe if you think you have it, others might see it. But if you forget you have Vitiligo others will to. If I did get picked on when I was in Elementary I would tell them Your so stupid, because I dont care and I would walk away with a smile. They didnt pick on me for long. I was always very stylish, fun and happy and that made people want to be like me, want to be my friend and some boys want to be my boyfriend.
i have vitiligo and I can't imagine life without my spots. However, I don't agree that an african american man turning white says anything about race relations in america. Afterall, he is still an african american man regardless of his lack of pigment. If i looked at him and he was stark white I can still tell he's of african descent by his features. Anyway, it's a nice thought, but not a great revelation.
my bf has vitiligo. sometimes i forget he has it. i dnt like to call it a disease its just normal to me. and its NOT contagious for all those ignorant people out there!
Just came across this clip by accident and thank you so much. I'm in my late 30's and have suffered with vitiligo for nearly 20 years and even to this date i still get strange looks from passers by.
I refuse to wear shorts or short sleeves even during the hottest of weather as i don't want even more comments from people.
All i ask is that people accept us for being just us ,as we suffers have it hard accepting ourselves sometimes.
znaci sve sam probala..prvo onaj vitix-ne pomaze onda vitix tablete-sranje,boleo me stomak od toga,bila sam kod nekog dr. visnjica u bg-u par puta..kao on ce me izleciti,dao mi brdo nekih krema i nasao brdo drugih bolesti,pa onda neki rangelov i njegove kreme i cajevi..znaci..nista.tako da sad pokusavam manje da se nerviram,jer je vitiligo navodno od toga a i imam bolesnu stitnu zlezdu pa kao povezano..ko ce ga znat..znas ti neki lek,kremu..bilo sta..
au... ja nisam ništa probao do sada... nemam nešto previše poverenja u kreme... mislim znam kakva je bolest i kontam ; da bi se videli bilo kakvi rezultati moram barem 4 meseca kremama da se mažem... a to kad svi govore da ova sigurno pomaže onda kome da veruješ???
well..sometimes its hard and sometimes isnt..it depends of my mood..but definently its hard even though i had light skin u can still see it..especially on sun
Gingko has been proven to slow and even reverse the vitiligo, slowyl though, in most people. Also, the stem cell research is coming alog nicely, it will be cured in the next few years. Remember, in the last few years science has found out a lot about this disease. 1 Auto immune 2 Pigment transfers do work 3 No cure but UVB band does replace pigment for months and even years. 3 Stem cells are going to be the cure in the future.
hey, just to let you know I can tell you the UVB narrowband treatment does work. And the stem cell therapy is coming along quickly. I can assure you (I'm not a doctor, but I study bio tech) the cure will be in the next few years you can count on it. A guy in Iran was sured by adult stem cell transplants. And the melancyte transfer therapy is working. A clinic in Detroit is doing great work. Also, remember though UVB band doesn't cure it does replce the pigment for a long time.
okay, i am 13 and i have it.. pretty bad ( i am going to make a video soon) I really hate it with a passion, i wish there was a cure! because its not easy trying to tell your 2 year old cousin that its okay to hug you! and walking into a place and people staring at you! talk to me people with vitiligo
Habbo, im 15 turning 16 in like 17 days or sumit but all i can say is live with it...I looked for a cure between the ages of 10-14 i gave up when i finally got flustered with cures that didnt work, i tried creams, tablets, those light things uv? but i suppose none of them worked for me. (its different for everyone). I got over my vitiligo stage by sitting in my room for 3 days straight crying my eyes out. Sounds gay but after that i accepted who i am and now tell people wat it is wen they look
i loved your video...i, along with the majority of the ppl on here, also vitiligo. and it affected me emotionally and physically more than anything else. and im now accepting the fact that i have it. and its ppl like you that makes me proud to have it. i just think of it as a blessing more than a curse....
i'm a 16old guy with vitiligo,what i wana say is thank you so muuch for this vedio i really really am happy to hear what u just sed,we are normal,we are the saim we are all one. just wana say it really brakes my heart whene i hear people saying things about me the problem is i stoped waing shorts soo no one can see my vitiligo but with time going by i sed to my self( u know what who ever loves me, who ever has a crush on me,who ever was my friend will still be my friend Vitiligo or no vitiligo.
I also have it. But it isnot a matter, when you have people next to you who really love you. I sometime think I am a very spacial being and the thinh of Charles Darwings theory and then I feel like I am a part of it: That is evolution. It just happen in us faster and it hasnot taken millions of years. :-) People can learn more of us. :-)
Okay, so this is known to be a genetic disorder. This means it has to do with the specific genes in your DNA! how much more proof do people need to believe in evolution?? We see people of color turning white DUE TO OUR OWN DNA AND GENETIC MAKE UP! Maybe this means that the more inbreeding there is the more white you become? Just like inbred white tigers with medical issues and mice bred to be albino?
It makes sense, the longer a civilization exists, the more they stay to specific areas and don't travel and breed elsewhere, the more white they become within those stagnant areas. It reminds me of the book Germs, steel, and guns, where they talk about how hunter-gatherer types of people differ from farmers, and how the different regions of the world affect their prosperity, growth, and failures due to their surroundings. What do you think, motomonstrosity? We're all the same, gender and color.
hey there friend..i got your email so im returning you back with this info on the medicine that is helping me...its called vitlax and i usually take around 8 pills a day instead of 12 because i can't handle that many and my system feels very wierd after it..it does make me feel better and makes your vitiligo fade away..
I have the skin condition(I don't like calling it a disease), it's been 15 years now. Some people are just ignorant about it, others make the wrong judgements. It is hard to deal with, not only physically but emotionally... believe me!
everyone should be the same color. imagine all the genocide that has happened that is happening and that is going to happen that can simply be prevented if everyone looked the same.
my opinion is thatI don't believe vitiligo is a "disease". I believe that Adam and Eve started out black in the paradise of Africa and as time went on, some people turned white. Many white people are turning white still "albinos" and there are some white people that are so white, that they have no pigment in their skin at all. You never know when you're going to change skin tones, beware- make fun of someone that has it and karma lol!
I can't say I agree with all of that...or any of it really, but to each their own! Even doctors call it a disease and I figure they know better than we.
the medication im taking is 12 pills a days...with oil that im applying to my face and hands and going out on the sun....doctor says its a slow process but it does help...i've started noticing a chance and my skin started turning pink..means the skin is slowly growing pigmentation....i would really love to help some of you people maybee by providing samples or help or info how to get this medication...it is a little expensive...but works
I started having vitiligo 3 years ago after my graduation...first it started on my left cheek around my mouth...i really hated it..i was surprised and wanted to really know what it was...i went to my doctor and all he said i quote "come back it if gets worse" so i did what he said...after a year vitiligo started on my right side of the mouth and started spreading from both sides....after 3 years now im still living with it...all though i started taking some medication ask me about it it helpd
Look it up. It's a disease. I know I pronounced it wrong and I corrected myself in another comment, thank you though! I know you hate having it but there is nothing you can do other than live with it. There are "cures" and things that can cover it up or help, but ultimately you have it and you should try to make the best of it! Remember that it could be worse and be thankful it's not.
Totally puzzles me why some people have such negative reactions to albinisim, piebaldism, and vitiligo when everybody thinks pinto horses and calico cats are cool.
I've had it since I was 5 yrs old! I had it on my face and thank god it went away on my face! I still have it on both elbows and both legs. I don't let it bother me anymore my husband loves me for who I am!
Man I must say I am so grateful for your support! Thank God i don't have much just below my chin, corners of my mouth, elbows, knees and genitals! I've been using Protopic 0.1% and Elidel and i am seeing progress, about 35% of my vitiligo area repigmented! I am continuing with my therapy! I will try Melagenina Plus too! Thanks again dude!
I have had it for 43 yrs. No skin color left at all. It does progress.People have been cruel all my life to me for lack of understanding. Now I look like an albino and people are still cruel. I admire your courage to educate through youtube. I have been experimented on by military doctors in the early 70's, which have lead to severe burns by the sun and meds. Make up and stains are temporary.We still have alot to offer the world though.We just look different. Cover up in the sun and hope 4 cure.
Whoa! That's nothing to joke about and if you are serious go find a pastor and ask him why you should NOT kill yourself. There is so much on this earth to live for. Regardless of how you may feel or how "bad" you may think you have it, you owe it to the ones who have it worse than you to do better and stick with it. There is a God and he loves you.
But when i get burned or anything, like a cigarette burn or like deep sunburn, it will turn white and takes forever to tan over, like over 6 months time frames. Ive never gone to the doctor, I figured that theres no cure, why get my hopes up. But other than my skin disorder, im gauranteed to be more fit than probably 75% of you reading this. Im an Army Ranger, I score Well over max on my APFT test i set down 134 PU, 103 situps and 2 miles in 11:35 +- a second. IF anyone has ?s ask, Il tell ya
Ive got it on my abdomen, both elbows, sternum, small patch on lower back and my right foot. I hate the questions, and im kinda hot headed so when someone stares like when im on the beach or something, i flip the F out on em. I've never had a problem with relationships, most people I know are ok with it and realize that hey this guys not perfect but he drives on. But it is very dentramental (SP) i mean sometimes ur like, i wonder if i cut this shit off will it go away. Of course im not crazy lol
i Have Vitiligo On My Right Leg Up My Back &+ On My Face The Lads a School Tease Me About But I Dont Let Them Get to me I Hate It When older People Stare At Me i Ask Them What There Stareing At It Kinda Upsets Me :( But i Guess Not Every one Is Perfect :(
You are correct, friend! There is not a single perfect human being on this entire earth. We all have flaws and that enables us to learn from one another. In our imperfections we can help each other to strive toward excellence!
im 14 and i have it really bad. it may n ot b life threatning physicaly, but it makes u feel so uncomfortable. i now wont even go to the pool b/c i think som1 will laugh.
I hate to hear that. I hope you can move past those insecurities and realize that what others think of the facade that is your skin doesn't really matter. Anyone who is foolish enough to judge a persons worth based solely on skin color is both ignorant and mean. I think people would be quite curious and they may stare, but you can use that as a chance to educate people on the disease! Try to take something uncomfortable and make it educational. you never know till you try! God bless.
What's the point of expressing an opinion on it? People struggle with this disease.. yes we know. What's the point? Just to say "Hey guys Vitiligo makes black guys white, We really do all look the same! What a discovery!" Everyone should know that all people are all equal even without knowing what Vitiligo is. And it's sad that it took a disease like Vitiligo to finally allow that come to your attention. Thus, inspiring you to make a video expressing your new found knowledge. How sad..
It's not about your opinion on black and white and things being the same. It's more of a video looking for responses from people about how they feel about the disease. Many people are affected by this disease and I'm just here to spread the word and let people with Vitiligo know that it's not all that bad. Ignorance is a poor excuse for being a jerk. I'll be blocking you since you seem to be so set on not hearing what I mean. If you want to flame me learn how to type correctly.
thanks Chris:-) my son is 11 and has had vitiligo since he was about 4. I think it bothers me more than him, he's so used to people staring. his eyelashes are half white half black and are really rather cute! we draw silly pictures on his patches. One day a drunk licked his hand and said it would cure him!!!hahaha! Doesnt look like it has bothered you. you are an inspiration.xx
Its good video.very informative. I admit i got vitiligo. i got it on new year when i first discoverd the white spot. i really depress. i'm afraid. its all over my body . my hair turn white. how can i face the community. my family background never got this vitiligo.i'm just 26.I'm afraid my husband will go away bcoz i got it all over my genital part.help me..
I went to the Dr. last week and it turns out that I have Vitiligo! I have it on my hands, face, arms etc.
I am in front line policing which means that I deal with and face the public every day.
The way I see it, is that there are people in this world who would be more than happy just to have vitiligo so, in all honesty, I don't think I can complain.
I have no idea how bad it's going to get but it's nice to see that people like yourself can empathise!
I have vitiligo-its on most of my right leg. My mom says its genetics-but no one else in my family has it, going back to my great-great-great grandparents. It really does affect you because i have to go to school and dress in shorts for PE and people are really rude and total idiots.
Don't worry! The people that poke fun at you will eventually grow up (or not) and it will pass. Just remember that there are people out there who have it far worse than yourself and you owe it to them to make the best of your own situations. Instead of letting it get you down find a way to make it positive. Also, never forget to pray, it can give you revelations about your situation!
I have the same exact problem, gym is the worst! It's mostly on my right leg too but everywhere else also. It sucks and has really screwed up my life. But I'm hoping that someday somebody will come up with a cure:)
ey there deathnote53, please think before you act all smartiepants! yeah, cures and treatment are two different things, but by saying that treatment for vitiligo is what you refer to, fake, you really get me irritated. I have been treated for this desease, and I'm almost well. do you have the desease?
my advice is that you shut your mouth when you know nada about this. and what's this talk about Zyrtec? oh my.. you ignorant fuck
Haha! Life is full of problems far greater than Vitiligo. Just be glad it's not cancer, or worse. You should learn that life is full of complications that God sets forth upon you. If you do not believe in God then that is a much bigger problem than Vitiligo in itself. If you have nothing positive to say then refrain from saying it. No one wants to read your whining because it won't change anything. Life is precious. Live it fully and with an open mind.
If you don't care then why reply? Why bother commenting at all? You obviously have some growing up to do and that is fine, but why be so rude and spiteful? I'm going to block you for the shear fact that you have nothing productive or positive to add to this forum. Goo day, and God speed!
so glad your interested in learning more about vitiligo and doing your part in being supportive, because it really does help for those who are suffering from vitiligo. This video actually made my day:)thank you
wow it means so much to see people understanding about vitiligo and being so supportive. Ive had vitiligo for 8 years now and it really does affect you emotionally, but its good to know your not alone in it either. It is said that there is no cure for vitiligo, but many treatments have been to be successful or either regain pigment back. Your absolutely right about being the same person no matter what color you are, and im
yes without the skin pigment we all look the same I'm just as pale as a black person with vitiligo I guess for some people that is fascinating...but when you have vitiligo you don't really care about the philosophical part anymore. all I think about is that I miss the sun
Am I the only person who finds this beautiful? Call me crazy, but I think that it is unique and gorgeous! My boyfriend has vitiligo, mainly on his hands, and I tell him every day how lucky he is to have such beautiful coloration. I have a 3 inch wide 1 1/2 inch tall symetrical butterfly shaped patch on my leg, and I've always loved it, even as it's grown. If I had larger patches, I would be proud to show them, not conceal them. It's really a shame that people feel the need to hide it away.
I love you enthusiastic and upbeat view! I keep a kind of humor in everything (I try anyway) and if you think about it, it's like reverse freckles! I have freckles ALL OVER me. Some people love em some people hate em. Some of my freckles are almost black! No, they aren't cancerous. lol But it's really amazing to me that God has such a beautiful way of showing us how similar we are with Vitiligo. Remove the skin pigment from any man and he is still a man. His worth has not changed one iota.
I think that the information you are talking about, when speaking of that this is a non-treatabile disease, is that it is so individual that you can't like get a diagnose and a treatment which is guaranteed to work on you, or make you "normal" again. You'll probably, or hopefully understand what I'm talking about if you search it up on the internet. my english is not exactly on top notch...
Thanks Camilla, very informative. The funny thing about me making this video is that I had a bike wreck that left a scar on my side. How are the two related? Well that scar is the only part of me that won't tan any more. So now that summer has come around it looks as if I have Vitiligo in that one spot. I don't, of course, but it helps me to tell people about it and explain it in ways people without vitiligo can understand! lol. I thought that interesting, anyway.
You can check it out on the internet. And you also have a treatment with lighttherapy, if i can call it that. it's light treatment which you take in a hospital which has that kind of treatment.People with soreassis also use this lighttreatment. So all you guys out there without hope of getting any better, there is treatment.
But Chris, I have to arrest you on some very wrong important information you are commenting in your videoblog. You say theres no cure. Well, I don't have a clue on where you got that information from, cause there is LOADS of cures for it. Allthough, It's very invividual what you respond to. There is a large number of types of cream you can buy for it, I have one called PROTOPIC.
Cures and treatments are totally different. Think about the common cold. There are no cures, but you can take Zyrtec to lessen the symptoms. That's kind of how it works with vitiligo. Also, keep in mind, half of the claims to treat vitiligo, are fake and don't work. Then again, everyone responds different.
Oh gosh, I was really releaved when I saw this video. I'm 15 a year old girl from Norway, and I have had this desease for about two years now. I live in a small town where the acceptance for "different" people is very low, so I have had my share of mobbing and talking behind my back. When people want to put me down, they use this, and I think people like you would make a difference in their way of thinking. This ment so much to me that I almost want to say I love you.
NO! It is strictly genetic. You can't "pass it on". I'm sorry to hear that you've found out that you have it, but if you went to a doctor...shouldn't they have told you all of the info about it? And there are entire websites dedicated to informing you on Vitiligo. Please refer to them for your concerns and questions. I hope you're being serious.
yea i totally serious about it, i didnt get all the info from the doctor.. so i look at stuff online, thx for informing me though, just wanted to make sure my friends are safe from this, lol always trying to keep it on a positive side
I have it and have had it since my teens. it has seemed to spread but not as extreme as others I have seen. My daughter has it and unless it is by some freak occurance it is passed on. It bothered me when I was younger but it no longer is a concern. my wife, of 17 years does not have it, so apparently it is not contagious. It is the hand we are dealt so let's deal with it. we are not freaks.
I have had vitiligo for over 20 years and can't even remember when it started there have been some rude people, but I like it when people ask me about so I can tell them what it is, but to be honest I can't say it has really bothered me that much I guess I have just learned to live with it
It is only a theory that vitiligo is a auto immune disorder, it is not a fact set in stone. My mother depigmented her skin completely with natural homeopatic medicine 8 years ago and now lives a perfectly normal life she only did it because she was too late to reverse it but it could have been done. The worst thing that anyone can do is listen to doctors and internet because they have no clue what it is, and saying its an auto immune disorder is just lumping everyone together
zurc54321 4 months ago
I have vitiligo and its affected all of my body but I've slowly come to terms with it.
It's nice to see somebody like you taking an interest and reassuring people who have it.
Nice vid :)
MrJJTsang 6 months ago
I have it on my hands and on my feet and some on my face. I know that things could be worse, Im just happy that its not life threatening.I think we all want to have clear skin.The only thing that gets to me is how people treat me and react to me.Imagine my pain when I am out & people give me nasty,dirty looks.When i shake someones hand and they act like im a alien.People treat me funny when I touch their babies or handle their food.I cant even get a simple job as a waitress.
musicproducer16 7 months ago
great video man, God blesses you . well i have this disorder vitiligo. i got it in 2003, iam African guy very very black . i never have in Africa but when i came to usa the very first 2 yrs i came here, it started on my lips and now its shinny/ tingkling every were on my body. so i have to live with it. God creat my skin black, but he turn my color white, its ok though i was not turning blue, i was turning white which is another human race too so not a big deal to me at all. thanks all.
Bior81 11 months ago
hi my name is frankie and i also have Vitiligo ive had it sense i was 4 years old im 22 years old now i understand what it was like growing up i hate how some ppl stare at it and ask questions about it but now ive come to except it i have it on my hands elbows knees and eyes and face so if you have any questions or any one else for that matter feel free to send me a email if you need a friend or some one to talk to
F1REF1GHT3ER661 1 year ago
Hi I have this skin disorder as well as everyone else who has commented. I have had it since I was 8 and am now 14 it covers 80 percent of my body it's not spread to my face but I have it on my legs arms neck it covered my feet also it's on my back and belly. Last year in the spring/ summer slot of people asked what was on my hand sometimes I would say their just like that or I don't know? I usually cover up with long shirts and jeans but it's hard during basketball which is where I'm heading n
xselseor0203 1 year ago
I've had this since I was 5. I am now 13. whenever someone ask me whats wrong i just tell them I have vitiligo. They ask me to explain and I tell them to look it up. Some ignorant people ask me is it because of burns. It is very strange with this disorder, I feel sometimes special and sometimes like trash. I am taking different medicines to keep it off until I graduate from highschool so I can have a normal life. Thanks for the video.
P0S31D0N3 1 year ago
Thank you....I am dealing with this now and month by month lose more and more of my pigment. People always ask if I am a burn victim. It is embarresing and people don't always want to touch you. Hope to meet more understanding people like you.
nicolenickolan 1 year ago
well...almost 40-60% of my body has got vitiligo i got alot of white places on my body it started when i was around the age of 12-13 and now i got it almost everywhere. my ''normal'' skin color is tanned a little bit. but when im on holiday vitiligo burns very fast its very annoying, i don't think its ugly i think its pretty cool to have it its special not many people have it its unique. when i look in the mirror i think its just me i don't care if people dont like it if they don't than piss off
BooAGuitar 1 year ago
are u a doctor???
hppy4ever 1 year ago
@hppy4ever Nope! Just a concerned citizen. There are worse things in life than Vit and I hope that people who are affected by it realize that. Some days are gonna be hard, but remember that it could always be worse. The power of positive thinking is very real. it won't cure your situation but it will make life so much easier to deal with.
motomonstrosity 1 year ago
vit-ill-eye-go lol is how you say it ^^ I have it :)
grlnextdoor114 1 year ago
@grlnextdoor114 Yeah, I know. lol I realized that I mispronounced it after I posted the vid. Ah well.
motomonstrosity 1 year ago
thanks for thinking that way. i have vitiligo and since i was 13. but let me say your right black or white we are all the same.. God bless you
shortyjdi 1 year ago
I've had vitiligo for about 7 years and for me I can say its been a life altering experience. My view on life has definitely changed. I am now very mindful and sympathetic towards people suffering from any sort of illness. Today I am a better person than I was 7 years ago so I thank God for my vitligo. I enjoyed your video and God bless. - Rich
brownliquorish 1 year ago
Being a seventeen year old female with vitiligo is hard. I've hadnit since I was nine, and it was only a spot on my knee. Now it's spread to my hip and foot. I will never get over this.
lizzyhayes2011 1 year ago
@lizzyhayes2011
Lizzy, there are far worse things in life than this. It won't kill you. Anyone worth your time won't care that its there. If someone judges you...ignore them. I know what its like to be made fun of for something you are born wi
motomonstrosity 1 year ago
Millions of innocent children die every year from starvation, aids, abandonment, etc. Maybe thats gods way of showing us no one cares about little children, or maybe god doesn't exist you retard.
birdsofbalt 1 year ago
Vitiligo doesn't kill you...that is the difference. In fact those other things are not even in the same scope as vitiligo. Get a better argument and leave your ignorance at the door.
motomonstrosity 1 year ago
i`m 18...i got it...i cover it with make-up..! what is your solution to cover it..??? its not comfortable to stand every day in front of the mirror...!! are there other ways? maybe permanent make up??
whats your opinion..??
Steffen1391 1 year ago
Don't cover it. Be proud of it. You are unique in outer appearance, but a human just the same. Don't be so shallow about yourself. Get involved in something extracurricular to show others how strong you are.
motomonstrosity 1 year ago
Its so cool to see someone out there interested in vitiligo. I have always hated calling my vitiligo a disease, it sounds stereotypical or perhaps preventable. I feel that this is just a pigmentation disorder that basically my immune system fights off pigment cells and loses its color. I also dont believe my condition to be genetic but more or so caused by and extreme environment change.
Doom07nv 1 year ago
i wish there were more people that think the way you do but sadly most people stare and can act very ignorant...thanks
MsIsby 1 year ago
This a great video. You are thoughtful and very caring man.
mlmconstable 1 year ago
i like what you had to say about the being the same thing and about skin color,
to me vitiligo when i think about it is just that,
im a non racist traditional skinhead (look up trad skinhead) and to me, it really is a way of showing theres no difference. cause think about it, everyone of different ethnicitys get it. it shows we are all human, and god damned if the racists out there cant see that.
blipperflipper 2 years ago
hey man, i got vitiligo on my nuckles and slight a round my waist. ....and some other places BUT! its all cool with me. first i thought it came because i mashed my fingers in this garage door and the pigment didnt want to come back into my knuckles. then i found out i had vitiligo because my body doesnt produce a certain vitamin that i cant take as a supplement.
blipperflipper 2 years ago
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naturalherbs1 2 years ago
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getale 2 years ago
This video is beautiful man. I've had a random patches since i was small but recently it's started to spread to my face and really this video is the first thing i've read/seen that has made me calm and ok about it. I've been getting obsessed with it and doing everything i possibly can to try and stop it, but this video has helped me see it differently-the idea about god showing us we are all one, the same, that is lovely. Even though I don't have proper faith,that has helped me! thanks
swimsuitissue123 2 years ago
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naturalherbs1 2 years ago
@naturalherbs1 once, twice, thrice....how do u say it for 4?
zurc54321 4 months ago
Thank you for this video. I have vitiligo and it has been hard for me to deal with it lately. I'm glad to know there are people like you who sorts of understands what we're going through. Thanks again and god bless you. I wish there were more people like you.
peach72980 2 years ago 7
What bothers me the most is that when Lee Thomas got the disease, he got the sympathy of the media and the people.
When Michael Jackson came out in 1993 to say he had it, the next day, people were still talking about how he bleached his skin and how he doesn't want to be black, which continue to this day.
elidetreyes 2 years ago
I live in the Detroit area and Lee Thomas is an amazing talented and uplifting man who didn't let Vitiligo get him down. My brother has it on his hands, around his mouth/eye area. My daughter has it also. They go on with their lives like any normal person. No one questions or puts them down cause their personality covers it. We look at it as patches on a dog-and praise God that this isn't a type of skin cancer. We handle it more like a celebration (that things could be worse off-)
palmpants 2 years ago
I'm from morocco, i had it since i was 12, my doctor made me stop eating all kind of seafood, my question is dose it have any relation with what you eat. i stopped having fish and it stopped from spreading....I'm famale 35 year old now
gloxinia2u 2 years ago
(it is pronouced vit-il-eye-go):D
loverlovebug 2 years ago
Yeah, I was tired and apparently went stupid. I knew the correct pronunciation but I had a bout of ignorance! lol Ah well, we can't all be correct 100% of the time. I also addressed this issue a long time ago in the comments.
motomonstrosity 2 years ago
thanks for the video. I too have been interested in knowing more about this. FYI, a new scientific study has identified a specific gene that presisposes a person to Vitiligo and/or Lupus. And that the condition may be trigger by exposure to Phenol. Phenol is a chemical that is put into cosmetics, insecticides, some hair dyes. It comes from Benzene. This stuff is toxic to humans. Perhaps this kind of information will be helpful to those predisposed to it and help tighten regulations of it's use.
upcycle 2 years ago
I have vitiligo and your kind words just made my day.Thank you!!:)
koraldrawme 2 years ago
I HAVE IT 2!!!!!!!!
I am sooooo happy that im not the ONLY 1!
loverlovebug 2 years ago
I have it 2! :D
SmileyFaces114 2 years ago
Hi this is the first time ive really checked this out properly, i went on the net to see if there was a cure because 4 years i thought it was a fungal infection under the skin. it started when i damaged some skin on my face, and that was years ago when i was ten, im 25 now, very very slowly white patches formed around where the skin was damaged, and in other places to around my face, i have small patches else where to, and a small one on my penis which is cute my gf tells me ,,lol
aamvb 2 years ago
and to top that as michael jackson says in his song black or white.... pay attention to the message he is trying to send in the song... "and i dont believe in miracles but a miracle has happened tonight"... "dont say that you agree with when i seen you kicking dirt in my eyes... but if you thinking bout been my brother it dont matter if youre black or white"... youll always be remembered as the greatest of all times in billions of peoples hearts... R.I.P Michael Jackson
preto76dcachu 2 years ago 4
You have a fantastic outlook on this. It makes me smile to read your words! Have a great and blesed day preto!
motomonstrosity 2 years ago
worlds population with this skin disorder (not a disease since its not directly harmfull)... so the ones that carry it have definately been blessed... this is how i think from the bottom of my heart and i really believe that this might be the reason... God bless everyone and show us the right way...
preto76dcachu 2 years ago
the ones trying to be something that they are not... people with vitiligo have no choice... and like chris said in this video... maybe thats Gods way of showing that it doesnt matter what color you are.... maybe thats His way of showing humanity that He really exists and is looking out for everybody.... and if thats what it is.... people with vitiligo have been blessed to show the world that God come thru them with this miracle how stupid and igonorant human kind is.... remember its only 2% of
preto76dcachu 2 years ago
ive had a patch on my arm near the elbow area since i was about 19... it was about an inch wide when i first noticed it... people would ask me wut wus that and i would say i didnt know.... and to be honest i still dont know.... and really dont care because if it was it wouldnt change me in any way.... it grows a little every summer.... but its only really noticeable when im under really bright sun... cant notice at all during winter... like michael said.... wut about people tanning... they are
preto76dcachu 2 years ago
I'm 19 and I was diagnosed with vitiligo two years ago. I have some white patches on my stomach and a little on my back. I'm afraid it's going to spread to the rest of my body and what's sad is that there is no cure =( However I am thankful to God that I have a disease like this and not something worse. I believe that everything happens for a reason. If God wanted me to have this disease then there is a reason behind this. Thank you so much for making this video.
Zuvie77 2 years ago
Yes ,it is not life threatening , but having to stare at it everyday is mental torture day and night. Makes me feel dizzy and gives me headaches day and night thinking about it cause its part of the body. Can't get used to it after 25 yrs.
ssnader 2 years ago
om 17 yrs old going to 18 and i have it and its really uncomfortable i really hate it :( i wish it could go away and i dont like people looking at me or talking about me just because they see me different
kihryf 2 years ago
At least it's not cancer. Seriously, there are worse things in life than being "different". You should embrace it and say "to hell" with anyone who doesn't! God bless ya buddy!
motomonstrosity 2 years ago
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BooAGuitar 2 years ago
......i dont wear t-shirts coz i have it on my elbows, but, ive seen people who have it alot worse when i'm walkin around manchester, but i suppose this is me. i ws thinking of getting a tatoo over them, the same colour as my skin tone so i can feel "normal" but got told no this is me and this is how god made me and i should accept it and i shouldn be stupid, but........ anyway, thats my feedback lol all the best buddy
mani1983ali 2 years ago
ive got it and iam also thinking about a tattoo but not covering them or something but just writting vitiligo on my arm or another place where i have it i prefer my arm that will make it alot easier and people will see it and if they are like a little smart they understand that the tattoo says what i got
sorry for my bad english
BooAGuitar 2 years ago
...it really messed with the way i think. feel people are looking at me. mine is not that bad, got a little on my hands and i'm always hiding them, when someone notices them, and asks what is wrong with my hands, i act like its normal, but daam does it sting!!! i come acros as a confiedent guy, but its far from it. ........
mani1983ali 2 years ago
hi, just seen your video, was talkin about this at work today with a few mates as i have this disorder, so i thought i'd check youtube see if there is a cure as im always on the lookout. i'm 26, from the u.k, had vitiligo since i was 8, and yeah, you are right mate!!.......
mani1983ali 2 years ago
Hobbo... I am 29 years old and I have had Vitiligo since I was 6. My mom would take me to the doctor but thats not what she did to cure me. what she did to cure me (mentally because I still have it physically) was show me that theres nothing wrong with me.
monikapgarcia 2 years ago
Shed show me people in wheelchairs and tell me look, you can walk. Shed show me someone who was blind and tell me look, you can see. I was always very confident. I was popular in school, had lots of friends, never had a problem with boys
monikapgarcia 2 years ago
and now I am married with a beautiful daughter. I believe if you think you have it, others might see it. But if you forget you have Vitiligo others will to. If I did get picked on when I was in Elementary I would tell them Your so stupid, because I dont care and I would walk away with a smile. They didnt pick on me for long. I was always very stylish, fun and happy and that made people want to be like me, want to be my friend and some boys want to be my boyfriend.
monikapgarcia 2 years ago
i have vitiligo and I can't imagine life without my spots. However, I don't agree that an african american man turning white says anything about race relations in america. Afterall, he is still an african american man regardless of his lack of pigment. If i looked at him and he was stark white I can still tell he's of african descent by his features. Anyway, it's a nice thought, but not a great revelation.
thegreatwhitemark 2 years ago
I have it
crazykidlisa 2 years ago
my bf has vitiligo. sometimes i forget he has it. i dnt like to call it a disease its just normal to me. and its NOT contagious for all those ignorant people out there!
Emelystrange6669 2 years ago
Just came across this clip by accident and thank you so much. I'm in my late 30's and have suffered with vitiligo for nearly 20 years and even to this date i still get strange looks from passers by.
I refuse to wear shorts or short sleeves even during the hottest of weather as i don't want even more comments from people.
All i ask is that people accept us for being just us ,as we suffers have it hard accepting ourselves sometimes.
nx70 2 years ago
it is evolution
osirissd 2 years ago
Elaborate...what evolutionary purpose does it serve?
motomonstrosity 2 years ago
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streetfighterfan312 2 years ago
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Krizt0 2 years ago
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radioactivechimp 2 years ago
i have vitiligo too , thanks for the support :)
bojanlacic 2 years ago
aj da nadjem nekog naseg na ovim stranicama...ma imam i ja to sranje..a jbg
thebidza 2 years ago
ma baš me briga... kome se ne viđa , meni još bolje , ne nerviram se više oko toga :) odakle si ti? koje si godište?
bojanlacic 2 years ago
blago tebi..ja sam se isto pre nervirala..al vise mi se ne da..hhh.iz hrvatske sam,al sam srpkinja(da naglasim to) i 91 sam..a ti..
thebidza 2 years ago
ja sam i srbije i 89-o sam... ali ni to nema veze... nego da pitam ja tebe ; jesi pokušavaja sa lekovima nekim ili kremama?
bojanlacic 2 years ago
znaci sve sam probala..prvo onaj vitix-ne pomaze onda vitix tablete-sranje,boleo me stomak od toga,bila sam kod nekog dr. visnjica u bg-u par puta..kao on ce me izleciti,dao mi brdo nekih krema i nasao brdo drugih bolesti,pa onda neki rangelov i njegove kreme i cajevi..znaci..nista.tako da sad pokusavam manje da se nerviram,jer je vitiligo navodno od toga a i imam bolesnu stitnu zlezdu pa kao povezano..ko ce ga znat..znas ti neki lek,kremu..bilo sta..
thebidza 2 years ago
au... ja nisam ništa probao do sada... nemam nešto previše poverenja u kreme... mislim znam kakva je bolest i kontam ; da bi se videli bilo kakvi rezultati moram barem 4 meseca kremama da se mažem... a to kad svi govore da ova sigurno pomaže onda kome da veruješ???
bojanlacic 2 years ago
tu si u pravu..ovo kao za vitix,trebas se mazat 2x dnevno po 20 min i prodje te za 4-5 meseci..garant prodje.
ma to ce samo otic..imala sam na oba kolena prosle god i sad imam samo na jednom...
thebidza 2 years ago
i am 17 and i have it around my mouth and eyes.i try to hide it with powder but its hard sometimes..but i got used to it somehow...xxx 4 all
thebidza 3 years ago
uGh... Same here have it around there but mine you could tell right away casue i am some what brown skin.
Do you find it tough to grow up....? I am seven teen too and its tough for me.
Hernandez493 2 years ago
well..sometimes its hard and sometimes isnt..it depends of my mood..but definently its hard even though i had light skin u can still see it..especially on sun
thebidza 2 years ago
Gingko has been proven to slow and even reverse the vitiligo, slowyl though, in most people. Also, the stem cell research is coming alog nicely, it will be cured in the next few years. Remember, in the last few years science has found out a lot about this disease. 1 Auto immune 2 Pigment transfers do work 3 No cure but UVB band does replace pigment for months and even years. 3 Stem cells are going to be the cure in the future.
patrickbad 2 years ago
hey, just to let you know I can tell you the UVB narrowband treatment does work. And the stem cell therapy is coming along quickly. I can assure you (I'm not a doctor, but I study bio tech) the cure will be in the next few years you can count on it. A guy in Iran was sured by adult stem cell transplants. And the melancyte transfer therapy is working. A clinic in Detroit is doing great work. Also, remember though UVB band doesn't cure it does replce the pigment for a long time.
patrickbad 2 years ago
okay, i am 13 and i have it.. pretty bad ( i am going to make a video soon) I really hate it with a passion, i wish there was a cure! because its not easy trying to tell your 2 year old cousin that its okay to hug you! and walking into a place and people staring at you! talk to me people with vitiligo
HabboHotelView 2 years ago
Habbo, im 15 turning 16 in like 17 days or sumit but all i can say is live with it...I looked for a cure between the ages of 10-14 i gave up when i finally got flustered with cures that didnt work, i tried creams, tablets, those light things uv? but i suppose none of them worked for me. (its different for everyone). I got over my vitiligo stage by sitting in my room for 3 days straight crying my eyes out. Sounds gay but after that i accepted who i am and now tell people wat it is wen they look
David1630 2 years ago
Actually i am going to this place in september that treats it.
(:
HabboHotelView 2 years ago
i loved your video...i, along with the majority of the ppl on here, also vitiligo. and it affected me emotionally and physically more than anything else. and im now accepting the fact that i have it. and its ppl like you that makes me proud to have it. i just think of it as a blessing more than a curse....
sapphire052003 3 years ago
i'm a 16old guy with vitiligo,what i wana say is thank you so muuch for this vedio i really really am happy to hear what u just sed,we are normal,we are the saim we are all one. just wana say it really brakes my heart whene i hear people saying things about me the problem is i stoped waing shorts soo no one can see my vitiligo but with time going by i sed to my self( u know what who ever loves me, who ever has a crush on me,who ever was my friend will still be my friend Vitiligo or no vitiligo.
mrgap1992 3 years ago
thank you for being you
zyaayz 3 years ago
I also have it. But it isnot a matter, when you have people next to you who really love you. I sometime think I am a very spacial being and the thinh of Charles Darwings theory and then I feel like I am a part of it: That is evolution. It just happen in us faster and it hasnot taken millions of years. :-) People can learn more of us. :-)
Frank
1meter65 3 years ago
Ive finally started treatment for mine if any body wants to know anything about dont be afraid to ask :D X
HannahLouiisaxX 3 years ago
how did it begin
GONOGARBINBOREA 3 years ago
Vitiligo doesnt begin for any particular reason it can be passed down genetically or you can jyst wake up one day with a few patched
HannahLouiisaxX 3 years ago
Okay, so this is known to be a genetic disorder. This means it has to do with the specific genes in your DNA! how much more proof do people need to believe in evolution?? We see people of color turning white DUE TO OUR OWN DNA AND GENETIC MAKE UP! Maybe this means that the more inbreeding there is the more white you become? Just like inbred white tigers with medical issues and mice bred to be albino?
Krispitexture 3 years ago
It makes sense, the longer a civilization exists, the more they stay to specific areas and don't travel and breed elsewhere, the more white they become within those stagnant areas. It reminds me of the book Germs, steel, and guns, where they talk about how hunter-gatherer types of people differ from farmers, and how the different regions of the world affect their prosperity, growth, and failures due to their surroundings. What do you think, motomonstrosity? We're all the same, gender and color.
Krispitexture 3 years ago
YES WE ARE ALL THE SAME!
jolove23 3 years ago
hey there friend..i got your email so im returning you back with this info on the medicine that is helping me...its called vitlax and i usually take around 8 pills a day instead of 12 because i can't handle that many and my system feels very wierd after it..it does make me feel better and makes your vitiligo fade away..
EatUrFlesh 3 years ago
I have the skin condition(I don't like calling it a disease), it's been 15 years now. Some people are just ignorant about it, others make the wrong judgements. It is hard to deal with, not only physically but emotionally... believe me!
jolove23 3 years ago 2
how did it start?
GONOGARBINBOREA 3 years ago
this is a sad disorder
kovidsk 3 years ago
everyone should be the same color. imagine all the genocide that has happened that is happening and that is going to happen that can simply be prevented if everyone looked the same.
fearclowns 3 years ago
my opinion is thatI don't believe vitiligo is a "disease". I believe that Adam and Eve started out black in the paradise of Africa and as time went on, some people turned white. Many white people are turning white still "albinos" and there are some white people that are so white, that they have no pigment in their skin at all. You never know when you're going to change skin tones, beware- make fun of someone that has it and karma lol!
kimmarie801 3 years ago
I can't say I agree with all of that...or any of it really, but to each their own! Even doctors call it a disease and I figure they know better than we.
motomonstrosity 3 years ago
i feel bad for ppl that get beet up and hit cuz of that disorder
8752235 3 years ago
the medication im taking is 12 pills a days...with oil that im applying to my face and hands and going out on the sun....doctor says its a slow process but it does help...i've started noticing a chance and my skin started turning pink..means the skin is slowly growing pigmentation....i would really love to help some of you people maybee by providing samples or help or info how to get this medication...it is a little expensive...but works
EatUrFlesh 3 years ago
what is it called?
jolove23 3 years ago
I started having vitiligo 3 years ago after my graduation...first it started on my left cheek around my mouth...i really hated it..i was surprised and wanted to really know what it was...i went to my doctor and all he said i quote "come back it if gets worse" so i did what he said...after a year vitiligo started on my right side of the mouth and started spreading from both sides....after 3 years now im still living with it...all though i started taking some medication ask me about it it helpd
EatUrFlesh 3 years ago
u r so sweet!
almo3 3 years ago
its not a disease its a skin DISORDER, i have it but not that bad, and by the way, its pronounced: Vih-till-i-go. i hate having it
lilshane93 3 years ago
Look it up. It's a disease. I know I pronounced it wrong and I corrected myself in another comment, thank you though! I know you hate having it but there is nothing you can do other than live with it. There are "cures" and things that can cover it up or help, but ultimately you have it and you should try to make the best of it! Remember that it could be worse and be thankful it's not.
motomonstrosity 3 years ago
rlly?? cuz its doesnt make me sick, and my dermatologist said that it was only a disorder. and yes i try not 2 think about it
lilshane93 3 years ago
Totally puzzles me why some people have such negative reactions to albinisim, piebaldism, and vitiligo when everybody thinks pinto horses and calico cats are cool.
wickeddelight 3 years ago
I've had it since I was 5 yrs old! I had it on my face and thank god it went away on my face! I still have it on both elbows and both legs. I don't let it bother me anymore my husband loves me for who I am!
GERARSOO 3 years ago
Man I must say I am so grateful for your support! Thank God i don't have much just below my chin, corners of my mouth, elbows, knees and genitals! I've been using Protopic 0.1% and Elidel and i am seeing progress, about 35% of my vitiligo area repigmented! I am continuing with my therapy! I will try Melagenina Plus too! Thanks again dude!
Markoni100 3 years ago
im using Protopic 0.1% too. can you tell me what Elidel is?? and what kind of therapy u are getting?? cuz i want my skin color back!
lilshane93 3 years ago
I have had it for 43 yrs. No skin color left at all. It does progress.People have been cruel all my life to me for lack of understanding. Now I look like an albino and people are still cruel. I admire your courage to educate through youtube. I have been experimented on by military doctors in the early 70's, which have lead to severe burns by the sun and meds. Make up and stains are temporary.We still have alot to offer the world though.We just look different. Cover up in the sun and hope 4 cure.
AnalogyParable 3 years ago
well i have and i'm going to kill myself
tluda 3 years ago
Whoa! That's nothing to joke about and if you are serious go find a pastor and ask him why you should NOT kill yourself. There is so much on this earth to live for. Regardless of how you may feel or how "bad" you may think you have it, you owe it to the ones who have it worse than you to do better and stick with it. There is a God and he loves you.
motomonstrosity 3 years ago
But when i get burned or anything, like a cigarette burn or like deep sunburn, it will turn white and takes forever to tan over, like over 6 months time frames. Ive never gone to the doctor, I figured that theres no cure, why get my hopes up. But other than my skin disorder, im gauranteed to be more fit than probably 75% of you reading this. Im an Army Ranger, I score Well over max on my APFT test i set down 134 PU, 103 situps and 2 miles in 11:35 +- a second. IF anyone has ?s ask, Il tell ya
oldstonewall33 3 years ago
Ive got it on my abdomen, both elbows, sternum, small patch on lower back and my right foot. I hate the questions, and im kinda hot headed so when someone stares like when im on the beach or something, i flip the F out on em. I've never had a problem with relationships, most people I know are ok with it and realize that hey this guys not perfect but he drives on. But it is very dentramental (SP) i mean sometimes ur like, i wonder if i cut this shit off will it go away. Of course im not crazy lol
oldstonewall33 3 years ago
haha i feel u, i have and think the same shit
mattandkennyproject 3 years ago
man what the fuck your at the beach for no beach is a rule and no short sleeve shirs or shorts in public or with friends around
streetfighterfan312 2 years ago
Finaly!! Someone that has a scense of compassion.
InnocenceItself 3 years ago
there is a cure theire working on, search the keywords "Pepper vitiligo" in google search engine... not sure it will work tho
AVGNFan1992 3 years ago
i Have Vitiligo On My Right Leg Up My Back &+ On My Face The Lads a School Tease Me About But I Dont Let Them Get to me I Hate It When older People Stare At Me i Ask Them What There Stareing At It Kinda Upsets Me :( But i Guess Not Every one Is Perfect :(
HannahLouiisaxX 3 years ago
You are correct, friend! There is not a single perfect human being on this entire earth. We all have flaws and that enables us to learn from one another. In our imperfections we can help each other to strive toward excellence!
motomonstrosity 3 years ago
Oh By The Way You Say It Wrong But Never Mind But Your Still Close
HannahLouiisaxX 3 years ago
I know! I hate it. I meant to say it correctly but my accent got in the way. lol I just figured I'd live with it instead of making a new video. haha
motomonstrosity 3 years ago
You did good! It sounded kind of cute... lol
jolove23 3 years ago
I have it too it is not easy to live with i dont get teased but people stare and ask questions I AM SICK OF IT i dont want it anymore :'[
HabboHotelView 3 years ago
i have the same problem with small kids staring and asking me if i spilled bleach on my face . i wish people would not stare at people like us
sipahi61 3 years ago
GREAT VIDEO.
Madinahsecond 3 years ago
im 14 and i have it really bad. it may n ot b life threatning physicaly, but it makes u feel so uncomfortable. i now wont even go to the pool b/c i think som1 will laugh.
orngconty 3 years ago 2
I hate to hear that. I hope you can move past those insecurities and realize that what others think of the facade that is your skin doesn't really matter. Anyone who is foolish enough to judge a persons worth based solely on skin color is both ignorant and mean. I think people would be quite curious and they may stare, but you can use that as a chance to educate people on the disease! Try to take something uncomfortable and make it educational. you never know till you try! God bless.
motomonstrosity 3 years ago
Same Eyahh Im 14 Too I Have It Really Bad on My Right Leg on My Back i Do Anything For a Cure
HannahLouiisaxX 3 years ago
Im The Same As You Orngcanty
HannahLouiisaxX 3 years ago
yeah, i have it all over me really bad
orngconty 3 years ago
no one will laugh, if so, they got a bigger problem than you:)
AVGNFan1992 3 years ago
What's the point of expressing an opinion on it? People struggle with this disease.. yes we know. What's the point? Just to say "Hey guys Vitiligo makes black guys white, We really do all look the same! What a discovery!" Everyone should know that all people are all equal even without knowing what Vitiligo is. And it's sad that it took a disease like Vitiligo to finally allow that come to your attention. Thus, inspiring you to make a video expressing your new found knowledge. How sad..
princejeff 3 years ago
It's not about your opinion on black and white and things being the same. It's more of a video looking for responses from people about how they feel about the disease. Many people are affected by this disease and I'm just here to spread the word and let people with Vitiligo know that it's not all that bad. Ignorance is a poor excuse for being a jerk. I'll be blocking you since you seem to be so set on not hearing what I mean. If you want to flame me learn how to type correctly.
motomonstrosity 3 years ago
shit dose it cover your whole body like i have it on my chest and neck? will it stay there
adsgfuc 3 years ago
im 14 and i have it im worried that it could be something diffrent is there a sickness that dose the same?
adsgfuc 3 years ago
thanks Chris:-) my son is 11 and has had vitiligo since he was about 4. I think it bothers me more than him, he's so used to people staring. his eyelashes are half white half black and are really rather cute! we draw silly pictures on his patches. One day a drunk licked his hand and said it would cure him!!!hahaha! Doesnt look like it has bothered you. you are an inspiration.xx
joolia808 3 years ago
Its good video.very informative. I admit i got vitiligo. i got it on new year when i first discoverd the white spot. i really depress. i'm afraid. its all over my body . my hair turn white. how can i face the community. my family background never got this vitiligo.i'm just 26.I'm afraid my husband will go away bcoz i got it all over my genital part.help me..
mariamfauzi294 3 years ago
Chris,
I went to the Dr. last week and it turns out that I have Vitiligo! I have it on my hands, face, arms etc.
I am in front line policing which means that I deal with and face the public every day.
The way I see it, is that there are people in this world who would be more than happy just to have vitiligo so, in all honesty, I don't think I can complain.
I have no idea how bad it's going to get but it's nice to see that people like yourself can empathise!
Thanks.
Malifatcat 3 years ago
I have vitiligo-its on most of my right leg. My mom says its genetics-but no one else in my family has it, going back to my great-great-great grandparents. It really does affect you because i have to go to school and dress in shorts for PE and people are really rude and total idiots.
peppermint50 3 years ago
Don't worry! The people that poke fun at you will eventually grow up (or not) and it will pass. Just remember that there are people out there who have it far worse than yourself and you owe it to them to make the best of your own situations. Instead of letting it get you down find a way to make it positive. Also, never forget to pray, it can give you revelations about your situation!
motomonstrosity 3 years ago
aww! bless u
naz12234 3 years ago
I have the same exact problem, gym is the worst! It's mostly on my right leg too but everywhere else also. It sucks and has really screwed up my life. But I'm hoping that someday somebody will come up with a cure:)
hopiegirl614 3 years ago
ey there deathnote53, please think before you act all smartiepants! yeah, cures and treatment are two different things, but by saying that treatment for vitiligo is what you refer to, fake, you really get me irritated. I have been treated for this desease, and I'm almost well. do you have the desease?
my advice is that you shut your mouth when you know nada about this. and what's this talk about Zyrtec? oh my.. you ignorant fuck
camillayes 3 years ago
it's vit-il-EYE-go
KatherineKadafi 3 years ago
I've addressed this earlier. I know. I said it wrong...sue me.
motomonstrosity 3 years ago
I was just letting you know. Don't get pissy with me. You don't know what it's like to have the disorder.
KatherineKadafi 3 years ago 2
Haha! Life is full of problems far greater than Vitiligo. Just be glad it's not cancer, or worse. You should learn that life is full of complications that God sets forth upon you. If you do not believe in God then that is a much bigger problem than Vitiligo in itself. If you have nothing positive to say then refrain from saying it. No one wants to read your whining because it won't change anything. Life is precious. Live it fully and with an open mind.
motomonstrosity 3 years ago
Fuck off. No one cares about your opinion.
KatherineKadafi 3 years ago
If you don't care then why reply? Why bother commenting at all? You obviously have some growing up to do and that is fine, but why be so rude and spiteful? I'm going to block you for the shear fact that you have nothing productive or positive to add to this forum. Goo day, and God speed!
motomonstrosity 3 years ago
Yes ! piss off - stop being hypercritical.
frankistine20 3 years ago
so glad your interested in learning more about vitiligo and doing your part in being supportive, because it really does help for those who are suffering from vitiligo. This video actually made my day:)thank you
lBabeEE 3 years ago
I'm glad it could. It is our first duty as humans to love each other. A lot of people forget that. God bless you!
motomonstrosity 3 years ago
wow it means so much to see people understanding about vitiligo and being so supportive. Ive had vitiligo for 8 years now and it really does affect you emotionally, but its good to know your not alone in it either. It is said that there is no cure for vitiligo, but many treatments have been to be successful or either regain pigment back. Your absolutely right about being the same person no matter what color you are, and im
lBabeEE 3 years ago
yes without the skin pigment we all look the same I'm just as pale as a black person with vitiligo I guess for some people that is fascinating...but when you have vitiligo you don't really care about the philosophical part anymore. all I think about is that I miss the sun
cristinaronson 3 years ago
GOD BLESS YOU YOUR VERY BRAVE
hannie576 3 years ago
Um, thanks! Though I'm not sure what I'm being brave about...could you clarify, per chance?
motomonstrosity 3 years ago
Am I the only person who finds this beautiful? Call me crazy, but I think that it is unique and gorgeous! My boyfriend has vitiligo, mainly on his hands, and I tell him every day how lucky he is to have such beautiful coloration. I have a 3 inch wide 1 1/2 inch tall symetrical butterfly shaped patch on my leg, and I've always loved it, even as it's grown. If I had larger patches, I would be proud to show them, not conceal them. It's really a shame that people feel the need to hide it away.
longlostmidian 3 years ago
I love you enthusiastic and upbeat view! I keep a kind of humor in everything (I try anyway) and if you think about it, it's like reverse freckles! I have freckles ALL OVER me. Some people love em some people hate em. Some of my freckles are almost black! No, they aren't cancerous. lol But it's really amazing to me that God has such a beautiful way of showing us how similar we are with Vitiligo. Remove the skin pigment from any man and he is still a man. His worth has not changed one iota.
motomonstrosity 3 years ago
I think that the information you are talking about, when speaking of that this is a non-treatabile disease, is that it is so individual that you can't like get a diagnose and a treatment which is guaranteed to work on you, or make you "normal" again. You'll probably, or hopefully understand what I'm talking about if you search it up on the internet. my english is not exactly on top notch...
CamillaSky 3 years ago
Thanks Camilla, very informative. The funny thing about me making this video is that I had a bike wreck that left a scar on my side. How are the two related? Well that scar is the only part of me that won't tan any more. So now that summer has come around it looks as if I have Vitiligo in that one spot. I don't, of course, but it helps me to tell people about it and explain it in ways people without vitiligo can understand! lol. I thought that interesting, anyway.
motomonstrosity 3 years ago
You can check it out on the internet. And you also have a treatment with lighttherapy, if i can call it that. it's light treatment which you take in a hospital which has that kind of treatment.People with soreassis also use this lighttreatment. So all you guys out there without hope of getting any better, there is treatment.
CamillaSky 3 years ago
But Chris, I have to arrest you on some very wrong important information you are commenting in your videoblog. You say theres no cure. Well, I don't have a clue on where you got that information from, cause there is LOADS of cures for it. Allthough, It's very invividual what you respond to. There is a large number of types of cream you can buy for it, I have one called PROTOPIC.
CamillaSky 3 years ago
Cures and treatments are totally different. Think about the common cold. There are no cures, but you can take Zyrtec to lessen the symptoms. That's kind of how it works with vitiligo. Also, keep in mind, half of the claims to treat vitiligo, are fake and don't work. Then again, everyone responds different.
deathnote53 3 years ago
Oh gosh, I was really releaved when I saw this video. I'm 15 a year old girl from Norway, and I have had this desease for about two years now. I live in a small town where the acceptance for "different" people is very low, so I have had my share of mobbing and talking behind my back. When people want to put me down, they use this, and I think people like you would make a difference in their way of thinking. This ment so much to me that I almost want to say I love you.
But THANKS, very much.
CamillaSky 3 years ago
im sry, i have this disease too now, i just found out, but is this disease infectious/dangerous to other ppl?
redstormer75 3 years ago
NO! It is strictly genetic. You can't "pass it on". I'm sorry to hear that you've found out that you have it, but if you went to a doctor...shouldn't they have told you all of the info about it? And there are entire websites dedicated to informing you on Vitiligo. Please refer to them for your concerns and questions. I hope you're being serious.
motomonstrosity 3 years ago
yea i totally serious about it, i didnt get all the info from the doctor.. so i look at stuff online, thx for informing me though, just wanted to make sure my friends are safe from this, lol always trying to keep it on a positive side
redstormer75 3 years ago
I have it and have had it since my teens. it has seemed to spread but not as extreme as others I have seen. My daughter has it and unless it is by some freak occurance it is passed on. It bothered me when I was younger but it no longer is a concern. my wife, of 17 years does not have it, so apparently it is not contagious. It is the hand we are dealt so let's deal with it. we are not freaks.
6mason8 3 years ago
I have had vitiligo for over 20 years and can't even remember when it started there have been some rude people, but I like it when people ask me about so I can tell them what it is, but to be honest I can't say it has really bothered me that much I guess I have just learned to live with it
ilovepogo 3 years ago