This is hi-larious, theWALLofDTANG! Finally, a video of CMT with a little bit of comedy. I have the disease also and it sucks with the hands coming off and everything. I'm glad not all people with this disease have atrophy in their peripherral comedic nerves. A+++
@tickyul yep. Maybe I could write a song about CMT or something... It seems like the biggest problem with any medical or mental condition is the layman's unawareness. I wish I knew what a broke music producer could do, I really want to help! This did get a lot of hits compared to my other uploads. I do like to write relaxing soothing songs... maybe a song that sooths cmt listeners while education the layman.
@theWALLofDTANG Go for it, you may make a huge YT hit like "It's Friday"....lol. Even when I talk to a doctor or sometimes a neurologist about my cmt1a, they do not seem to know anything beyond the very basics. Many of them are under the impression that Cmt1a is limited to problems of the arms and legs. I have to try and let them know that this is the MOST COMMON PROBLEM, but in no way does it cover the many things that can be effected with this disease..........they don't seem to believe me.
@theWALLofDTANG i was thinking about it, i think it would be easier to create music for something that someone with CMT wrote, i think it would be way more effective and authentic...
@tickyul I don't know if i did this right so I'll copy them all to this because i think i did it wrong... "yeah for real. I was thinking about it... I think it would be easier to create music for something that someone with CMT wrote, I think it would be way more effective and authentic.... if someone could just write a song about how hard it is without awareness and what a world would be like with awareness...
this kinda made me tear up because my 9 year old son does have CMT and I know you didnt intend to hurt anyone's feelings, being a mom...it makes me defensive and want to kick your butt. Sorry...no offense intended.
@tickyul yeah I know, it's nothing like CMT, I believe the expression is "from the mouth of babes"? I'm sorry as I realize this is a touchy subject. The reaction to it raised my awareness, I never knew much about it which I guess is common. I really want to do something to help CMT now.
@theWALLofDTANG Yeah, it is a subject that does not have a lot of publicity. I tell a doctor that I have Cmt and most of them have never heard of it. And a cure will be very hard to come by, a systemic problem like Cmt will probably require a Genetic (stem cells?) solution.
it's just a joke. i definately took no offense and also have cmt. it says in the description it's not accurate and anyone looking for real information on youtube who doesn't even check there for a source will not be overly educated anyway.
HIJOS DE PUTA!!! GRINGOS DE MALPARIDOS QUE TIENEN EL CEREBRO PODRIDO COMO UNA BOLSA DE SHIT!! ESTUPIDOS,, OJALA NUNCA TENGAN QUE PADECER UNA ENFERMEDAD ASI. PERROS!!! USTEDES PADECEN UNA ENFERMEDAD PEOR, LA DE LA IDIOTEZ!!! PERROS HIJOS DE PUTA!!!!
and for you i hope only the best things. I hope life brings you everything awesome. I know it's not funny, it's something I did in high school. My apologies.
Apology accepted, but you should consider to remove the video from you tube. Remember this disease is so serious like every type of disease you could imagine. Is not easy to deal with it. I wish you the best for you too! :)
haha fair enough. I remember in Global History we had to do a project on war, so my partners wrote a play about being underground espionage beatniks, and it was so unrelated to anything historically truthful that it's quite a shame it can't be changed.
yeah in hindsight, we didn't know what we were talking about, we just made funny videos in high school and this was a way for me to get an A+ in biology. right after i posted this i saw all the videos of the real disease. I thought about what it would be like to watch this for a person with CMT. We just read the brief description of the disease and started taping. This was before youtube and wikipedia. I'm sorry if this offended.
This is hi-larious, theWALLofDTANG! Finally, a video of CMT with a little bit of comedy. I have the disease also and it sucks with the hands coming off and everything. I'm glad not all people with this disease have atrophy in their peripherral comedic nerves. A+++
screwlstew 1 year ago 3
@screwlstew I don't mind the comedy.....what bothers me is when I tell a doctor about CMT.....and get that blank, dull look.....they have no clue.
tickyul 11 months ago
@tickyul yep. Maybe I could write a song about CMT or something... It seems like the biggest problem with any medical or mental condition is the layman's unawareness. I wish I knew what a broke music producer could do, I really want to help! This did get a lot of hits compared to my other uploads. I do like to write relaxing soothing songs... maybe a song that sooths cmt listeners while education the layman.
theWALLofDTANG 6 months ago
@theWALLofDTANG *educating
theWALLofDTANG 6 months ago
@theWALLofDTANG Go for it, you may make a huge YT hit like "It's Friday"....lol. Even when I talk to a doctor or sometimes a neurologist about my cmt1a, they do not seem to know anything beyond the very basics. Many of them are under the impression that Cmt1a is limited to problems of the arms and legs. I have to try and let them know that this is the MOST COMMON PROBLEM, but in no way does it cover the many things that can be effected with this disease..........they don't seem to believe me.
tickyul 6 months ago
@tickyul wow, how helpful.
theWALLofDTANG 6 months ago
@theWALLofDTANG Thanks and good luck. I guess everyone has their cross to bear.
tickyul 1 month ago
@tickyul yeah for real
theWALLofDTANG 1 month ago
@theWALLofDTANG i was thinking about it, i think it would be easier to create music for something that someone with CMT wrote, i think it would be way more effective and authentic...
theWALLofDTANG 1 month ago
@theWALLofDTANG if someone could just write a song about how hard it is without awareness and what a world would be like with awareness
theWALLofDTANG 1 month ago
@tickyul I don't know if i did this right so I'll copy them all to this because i think i did it wrong... "yeah for real. I was thinking about it... I think it would be easier to create music for something that someone with CMT wrote, I think it would be way more effective and authentic.... if someone could just write a song about how hard it is without awareness and what a world would be like with awareness...
theWALLofDTANG 1 month ago
this kinda made me tear up because my 9 year old son does have CMT and I know you didnt intend to hurt anyone's feelings, being a mom...it makes me defensive and want to kick your butt. Sorry...no offense intended.
mrssarahstrong 1 year ago
@mrssarahstrong none taken, anything I can do to raise awareness. The real thing sounds terrible.
theWALLofDTANG 1 year ago
Kinda dumb to add in things that have NOTHING to do with CMT, peeling skin and huge, lumpy ankles.....uh, no.
tickyul 1 year ago
@tickyul yeah I know, it's nothing like CMT, I believe the expression is "from the mouth of babes"? I'm sorry as I realize this is a touchy subject. The reaction to it raised my awareness, I never knew much about it which I guess is common. I really want to do something to help CMT now.
theWALLofDTANG 1 year ago
@theWALLofDTANG Yeah, it is a subject that does not have a lot of publicity. I tell a doctor that I have Cmt and most of them have never heard of it. And a cure will be very hard to come by, a systemic problem like Cmt will probably require a Genetic (stem cells?) solution.
tickyul 11 months ago
:@ how is this funny mother fucker, i have CMT and its nothing to joke about and if you dont mean to offend anyone take this off youtube.
TheKlaj1992 1 year ago
it's just a joke. i definately took no offense and also have cmt. it says in the description it's not accurate and anyone looking for real information on youtube who doesn't even check there for a source will not be overly educated anyway.
59redhead 1 year ago 2
HIJOS DE PUTA!!!
missvioletbluesky 1 year ago
HIJOS DE PUTA!!! GRINGOS DE MALPARIDOS QUE TIENEN EL CEREBRO PODRIDO COMO UNA BOLSA DE SHIT!! ESTUPIDOS,, OJALA NUNCA TENGAN QUE PADECER UNA ENFERMEDAD ASI. PERROS!!! USTEDES PADECEN UNA ENFERMEDAD PEOR, LA DE LA IDIOTEZ!!! PERROS HIJOS DE PUTA!!!!
missvioletbluesky 1 year ago
Ok, I just want to know what song you used in this video the saxaphone song?
riverphx17 1 year ago
@riverphx17 it was off some royalty-free audio disc our vid tech teacher gave us.
theWALLofDTANG 1 year ago
Hope you or anybody on your family suffer this disease. And by the way it's not funny.
genluxuria 1 year ago
and for you i hope only the best things. I hope life brings you everything awesome. I know it's not funny, it's something I did in high school. My apologies.
theWALLofDTANG 1 year ago
Apology accepted, but you should consider to remove the video from you tube. Remember this disease is so serious like every type of disease you could imagine. Is not easy to deal with it. I wish you the best for you too! :)
genluxuria 1 year ago
haha fair enough. I remember in Global History we had to do a project on war, so my partners wrote a play about being underground espionage beatniks, and it was so unrelated to anything historically truthful that it's quite a shame it can't be changed.
Anyway, whatever gets awareness works for me :P
Hezett 2 years ago 3
.......interesting.
I have CMT but my skin doesn't come off like that at all....
uh.... so i hope yer just playin cuz otherwise you gots something othah than the cmt mah brothah!
Hezett 2 years ago
yeah in hindsight, we didn't know what we were talking about, we just made funny videos in high school and this was a way for me to get an A+ in biology. right after i posted this i saw all the videos of the real disease. I thought about what it would be like to watch this for a person with CMT. We just read the brief description of the disease and started taping. This was before youtube and wikipedia. I'm sorry if this offended.
theWALLofDTANG 2 years ago
Fuckin Great
madmanxbox 2 years ago