T425 - Seg 1 - Niemann-Pick Disease

[TheNewHomes]

Hello. My heart goes out to you and your family. My family and I are suffering from this disease and I hurt everyday watching my nephew having to suffer from this. I will not give up on this as I do walk-a-thons and other events to raise money and awareness. I want to do more to get my families story out there. I have a bit of a medical background and will continue to learn more to help families who suffer and who need advice. Please reach out to me as I'm reaching out to you.god bless

[RemaFahed]

How is Adam now,

I wonder where the researches are now, my friend lost her daughter when she was 4 years, and now she has a son 1 year old still doing some check up not sure if he has Neiman pick.

God cure those children

[kaydeejay21]

He is a strong boy!

[guillenesi]

If someone in your family has the NPD, you have to make a DNA test, because this is a genetic and horrible disease... People don't know much about it. Two of my cousins have it, one died 10 years ago, at the age of 25. Hope the research find the cure. Hold on

[darkunorthodox]

my sister had this disease( im serious) she died one week after her 5th brthday,.oh well, the owrld is wacked up

[nirvanainbloom12]

he will make it