@u2bonolover1023 it's the same to me. I'm 14 now and don't want my children to get it from me. (I have NF1). I have medical exams, and doctors to see... over and over. I pisses me off and makes me bad because I'm the only one in my family to have it, and maybe my children or grandchildren will have it...
I have nf no one in my family had it I was screwed over I guess I have a very mild case all I have are spots but I'm 23 and someday wish to have kids I'm terrified to pass it along to them it would break my heart to see them made fun of the way I was
Great video, but I have to agree with MrLukehear. I was researching NF2 and this vid was suggested. And I like the song behind it, no need to make it more upbeat! :)
could you please change the title of this video as it looks like it is about NF2 and it is being tagged in the videos for NF2 specifically. maybe if you changed it to NF part 2 it will be more clear ..
I don't get it... what is wrong with these??
StopTheVenusians 4 weeks ago
I HAVE NF it was hard growing up but now i have come to live with it take it a day at a time wow other people have it way worse than me
yslas1870 1 month ago
@u2bonolover1023 it's the same to me. I'm 14 now and don't want my children to get it from me. (I have NF1). I have medical exams, and doctors to see... over and over. I pisses me off and makes me bad because I'm the only one in my family to have it, and maybe my children or grandchildren will have it...
LucksterMFerPeepNCo 1 month ago
@LucksterMFerPeepNCo i feel you yoe it pisses me off too but life goes on all we can do is make the best of it
yslas1870 1 month ago
@yslas1870 We have no choice. except living life in its fullest and enjoy everyday
LucksterMFerPeepNCo 1 month ago
I have nf no one in my family had it I was screwed over I guess I have a very mild case all I have are spots but I'm 23 and someday wish to have kids I'm terrified to pass it along to them it would break my heart to see them made fun of the way I was
u2bonolover1023 2 months ago
I have NF 1 along with Hydrocephalus but doe’s it really only take one voice NO ONE CAN HERE MINE, and I am sick of it;
ReturnToSender83 2 months ago
with all these conditions what gives the right for one person to say to a nf type 1 or 2 ur not normal no one is normal everyone is different
ls4ever999 7 months ago 2
Great video, but I have to agree with MrLukehear. I was researching NF2 and this vid was suggested. And I like the song behind it, no need to make it more upbeat! :)
iggykat33 9 months ago
I have NF1
alwaysgrandmasgirl 11 months ago
could you please change the title of this video as it looks like it is about NF2 and it is being tagged in the videos for NF2 specifically. maybe if you changed it to NF part 2 it will be more clear ..
MrLukehear 1 year ago
Great video!
MrTheWitt 1 year ago
lovely video
MONIQUEIJ 1 year ago