"Dear Sec Sebelius, Dear Director Collins" Bedroom Video Campaign (9/7/10)

[RosaBlueHere]

I love your one woman protest! Love this letter from bed too. You are brave. Thank you.

[jimijamesh]

great video!

[revday13]

I'm in. Your Greek chorus is perfect!

Blessings.

[cfscue1]

So cute!!

[eanestor]

This is sooooo great! It was both educational, serious, clear (with the writing boards) AND funny :-) Although I know all too well what this video will have cost you in terms of suffering the consequences of spending so much energy, I couldn't stop smiling :-) Your family is GREAT to support you in that way! Some didn't like their singing, well ... I DID! But most importantly: your message will hopefully come accross MANY people who don't know anything about our illness

[eanestor]

This is sooooo great! It was both educational, serious, clear (with the writing boards) AND funny :-) Although I know all too well what this video will have cost you in terms of suffering the consequences of spending so much energy, I couldn't stop smiling :-) Your family is GREAT to support you in that way! Some didn't like their singing, well ... I DID! But most importantly: your message will hopefully come accross MANY people who don't know anything about our illness.

[dutchywoof]

That was GREAT! I know it took a lot of effort for you to put this together. I know this for I am a fellow patient. Thanks to you and to your wonderful friends for taking the initiative. I am definitely emailing HHS and NIH.

[kathykolb]

Great Job!  Thanks for doing this.

[dragonfly111cute]

thanks! I sure hope this works!

[88rebar]

I thought the ladies did a good job. But I think we should all make videos with very bad singing. Then we can tell them when they fund clinical trials, we'll stop the bad singing! lol

[knightbrucie]

Go dude, give it to them! You need to get yourself some better backing singers tho, that made me want to throw myself off that bridge! Seriously tho, i wouldn't give this illness to my worst enemy. Get well soon from one m.e. sufferer to another!

[CFSDemo]

@knightbrucie

HEY, that's my family you are talking about. I feel very lucky to have had their support for the 2 decades I have been very very sick! And, I love their singing! Thank you, my family, for your love and support.

[ElisabethBry]

This is great - you're great Rivka - thanks so much.

Elisabeth

[edittubev]

Excellent video. Clinical trails now!!!!