I´ve been diagnosed with MS since 2007, and a couple of months ago took the neck scan (having heard about this), in hope they´d find blockages there, but to my disappointment they found nothing. No abnormalities of bloodflow, narrowings or blockages. Everything seemed ok there. Back to square one. I sincerely hope for a cure for this shitty condition, but this one didn´t seem to be it. At least for me. I´m a male 37.
@2008IQ what type have you got? RR MS? you never said ,all MS is different and yes there are a lot with MS but no CCSVI, I am still being investigated you may still have it but not in the Neck
@gekiryudojo Ive had 2 different diagnoses from 2 different docs. 1st one told me it was PP MS, since I´ve never had clear relapses or remissions, the worsening has been generally progressive. The 2nd doc interviewed me again, and changed the diagnosis to (sorry I´m not sure about the right terms in english) "the wave type" of MS. Took Betaferon first, now Tysabri. Using a cain. Scanning my spinal area or feet for blockages (my suggestion) would be "a waste of your money", the doc said.
@2008IQ yeah i know how that feels... but im 17 :( just gotta keep fighting it though...!! together we stand strong ! and fight and fight and find a cure for everyone!!
Thank you for making the video. We are seeing history being made. Essential Health Clinic in Glasgow plan to bring Scanning to UK ?mid 2010.
Virginia Bottomley as Health Minister late 80's, gave set a precedent and pit IN WRITING that any treatment , including COMPLIMETARY is payable BY THE NHS if grounds are shown that there is benefit. I think that still stands actually. RADIO CLYDE's Tiger Tim SCOTLAND is going to Poland in March and proba.bly have a News Team to televise the event,
Hi, I am an MS'er. and I read with inrterest the stories.
The complexeties of MS mean that this is possibly one of the factors.
I am on LDN, with GREAT improvements, but this story remindes me that at the same time as I wentr onto LDN I was also onto Warferine as I had a DVT. Blood monitored every 6 weeks, to check 'viscosity' , does this fit in with the CCSVI idea??
Just read about a breakthrough here in the UK...needless to say that it looks like the health service and the doubters,will drag their feet ....not commiting to pulling out all the stops to help sufferers.
Lets hope that voices will be heard.
Am I a sufferer ? No....but there are so many people who are,and the number is growing, Best thing to do,is find a cure,and a reason ! Makes sence ! In the end the NHS will save money ! That will make then do something ......perhaps !
Find the best vascular surgeons in your area and show them the scientific articles. Ask them to monitor CCSVI and think about the number of MS patients who might want this therapy IF it is proven, as we suspect.
If you are brave, sign up for a proper clinical trial. It is critical for this to be a real cure, for it to stand the smell test.
I am very optimistic about CCSVI, and I wish the best to all fellow MSrs.
@cbschu My brother has MS and we are looking for a clinic or hospital where he can have the test (CCSVI) done, unfortunately, here in Canada they refuse to issue the test when required for MS treatment, our government ordered all clinics even privite institutions to refuse all CCSVI request (even if he has a doctor order). We are looking for a clinic in Plattsburgh NY to have the test done as this location is an hour drive for us . NEED HELP PLEASE THANK YOU.
Hi Thanks for your video, and all the information. I have such Hi hopes now.. and I am going in the morning to get my Tysabri. I will talk this all over with my Neurologist, here at USC in Ca. And I will Make a new video about my own findings. As USC is a cutting edge Research Hospital, and Hopefully I'll have some new news on CCSVI by Tomar evening. TTYL Violet.
I know of a Canadian with who went to Italy in the summer and Dr.Zamboni did the operation on him. He was in much pain before and walking with a cane. He says he now feels normal again, plays tennis and thanks God for the miracle. All of us must open our eyes & put preassure on the U.S. Government to stop this bs and get some results for our people in trouble.
I've have it Defiantly since 2001 and I think from 1995, CCSVI
is quite probably the cause As far as I'm concerned I had a Doppler ultrasound just over a week ago and the technionSonographer kept losing the left Jugular vain, and said it needs more investigation,
This makes me really sad.... It's a hard thing to have MS because you never know what can happen. By boyfriend was diagnosed when he was 16 and is now 23. he strugles having it, he try's to deny it and when I herd about the liberation treatment I Was Very excited! It will come soon if everyone express's how much we need it! keep ur hopes up!!!
I agree with that! If this is the cure or the ultimate treatment for MS. The pharmaceutical industry tends to loose Billions of dollars. Not millions. So don't go looking for any MS societies or Neurologists to go jumping on any band wagon soon.
We still might be a long way off on knowing what causes MS. In my own opinion I feel that we are born with it. Genetics has a lot to do with it. But this Liberation treatment seems to be the treatment or maybe even the cure that we have all been looking for. I feel that this is on the right track.
Well I had an ultrasound 2 days ago and guess what! there is something wrong with my left Jugular vain and it will need further investigation said the sonographer (she had difficulty seeing the left Jugular and there was something going on with it !) as for knowing what causes MS this is the first thing anyone has come up with for years
meanwhile instead of embracing it, people are content to pump any old crap into our veins to relieve the symptoms while others mill around worried about losing their Jobs that is the MS (tea and sympathy) society (who are not Doctors) and the neurologists who also have come up with Nil! in decades.
QED this is a time to wake up to the fact that Dr Zamboni
has done something big here nmore than the rest have done!
the impossible is sometimes easier than the difficult. never ever let your dreams die. it will be possible during our lifetime. God bless and keep the FAITH.
Call the National Multiple Sclerosis Society @ 1-800-344-4867 and tell them to put you on the interested party list and TELL OUR DOCTORS TO START SENDING THEIR PATIENTS FOR AN MRV AND AT LEAST START CHECKING FOR CCSVI! Please pass this along! Thay are taking names and numbers and stories!
Ive been to the Doctors this morning He had not heard of CCSVI and Dr. Zamboni yet. but he does now!, he was very intrigued and interested and open to the idea of stenosis in the Carotid arties, he mentioned that there had been something about a similar vascular problem in epilepsy that he had read,The upshot is I am to have a Doppler ultrasound ASAP to check it out and then to be referred to a vascular surgeon /consultant so the ball is now rolling I will keep you in formed
Its great to see your smile at the end my friend. Please keep me posted on this info. I am going to be praying for you to be able to get this done to help you. Each eve when I say the Rosary I say 10 Hail Mary's and one our father for you and Dom. This is such great news!!
The hope that you are feeling is currently being shared by thousand upon thousands of people that are getting exposure to Dr. Zamboni's Liberation Procedure.
Calling the BBC was an ingenius move and it shows that you are serious about getting the word out.
science AND the Bible show that if you speak POSITIVE things in your life it DOES change your health. Same token on the negative side. Speak negative and negative will manifest. SPEAK LIFE! =-)
one year later No Relapse No more Symptoms No more MS just living with the damage from before the liberation but I can deal with that! happy Days!
gekiryudojo 3 months ago
I am Liberated!!! and so is my Wife! on 15th 0ct! on the same Day in Nis Serbia
gekiryudojo 1 year ago
I will be treated on Oct 1/2010, people tell me not to get my hopes up but this give me hope. Thankyou.
mamadawnna 1 year ago
@mamadawnna thanks your welcome I am in Serbia Belgrade for 5 weeks and will be Liberated as well as my Wife soon! good luck to you!
gekiryudojo 1 year ago
@mamadawnna I am Liberated!!! and so is my Wife! on 15th 0ct! on the same Day in Nis Serbia
gekiryudojo 1 year ago
@mamadawnna thats all people has is hope never give up hope love april
AWDESIGNS8 1 year ago
Ms is so awful :( I hate the fog, the numbness the pain sooo much. But at least we have new hope Violet
violetmatthers 1 year ago
oin my group on facebook... ccsvi and the liberation treatment in the USA. help me fight
apsugovs32 1 year ago
I´ve been diagnosed with MS since 2007, and a couple of months ago took the neck scan (having heard about this), in hope they´d find blockages there, but to my disappointment they found nothing. No abnormalities of bloodflow, narrowings or blockages. Everything seemed ok there. Back to square one. I sincerely hope for a cure for this shitty condition, but this one didn´t seem to be it. At least for me. I´m a male 37.
2008IQ 1 year ago
@2008IQ what type have you got? RR MS? you never said ,all MS is different and yes there are a lot with MS but no CCSVI, I am still being investigated you may still have it but not in the Neck
gekiryudojo 1 year ago
@gekiryudojo Ive had 2 different diagnoses from 2 different docs. 1st one told me it was PP MS, since I´ve never had clear relapses or remissions, the worsening has been generally progressive. The 2nd doc interviewed me again, and changed the diagnosis to (sorry I´m not sure about the right terms in english) "the wave type" of MS. Took Betaferon first, now Tysabri. Using a cain. Scanning my spinal area or feet for blockages (my suggestion) would be "a waste of your money", the doc said.
2008IQ 1 year ago
@2008IQ yeah i know how that feels... but im 17 :( just gotta keep fighting it though...!! together we stand strong ! and fight and fight and find a cure for everyone!!
together we stand STRONG !! X
shenzycacy 1 year ago
Thank you for making the video. We are seeing history being made. Essential Health Clinic in Glasgow plan to bring Scanning to UK ?mid 2010.
Virginia Bottomley as Health Minister late 80's, gave set a precedent and pit IN WRITING that any treatment , including COMPLIMETARY is payable BY THE NHS if grounds are shown that there is benefit. I think that still stands actually. RADIO CLYDE's Tiger Tim SCOTLAND is going to Poland in March and proba.bly have a News Team to televise the event,
kevin4apenny 2 years ago
Thanks for the heads up!
gekiryudojo 2 years ago
Hi, I am an MS'er. and I read with inrterest the stories.
The complexeties of MS mean that this is possibly one of the factors.
I am on LDN, with GREAT improvements, but this story remindes me that at the same time as I wentr onto LDN I was also onto Warferine as I had a DVT. Blood monitored every 6 weeks, to check 'viscosity' , does this fit in with the CCSVI idea??
well I am not stopping either treatment to see.
Terl
terl47 2 years ago 2
Just read about a breakthrough here in the UK...needless to say that it looks like the health service and the doubters,will drag their feet ....not commiting to pulling out all the stops to help sufferers.
Lets hope that voices will be heard.
Am I a sufferer ? No....but there are so many people who are,and the number is growing, Best thing to do,is find a cure,and a reason ! Makes sence ! In the end the NHS will save money ! That will make then do something ......perhaps !
bucks8789 2 years ago
the Doctor said that my neurologist could put my on the Drugs
1 in a 1000 chance of dieing from them and 30% effective and £30k a year 24 people died last year from Tysabri
$28400 per year!!!! the liberation treatment costs $14000 from poland and cures you!!!!!
gekiryudojo 2 years ago
Find the best vascular surgeons in your area and show them the scientific articles. Ask them to monitor CCSVI and think about the number of MS patients who might want this therapy IF it is proven, as we suspect.
If you are brave, sign up for a proper clinical trial. It is critical for this to be a real cure, for it to stand the smell test.
I am very optimistic about CCSVI, and I wish the best to all fellow MSrs.
cbschu 2 years ago
@cbschu My brother has MS and we are looking for a clinic or hospital where he can have the test (CCSVI) done, unfortunately, here in Canada they refuse to issue the test when required for MS treatment, our government ordered all clinics even privite institutions to refuse all CCSVI request (even if he has a doctor order). We are looking for a clinic in Plattsburgh NY to have the test done as this location is an hour drive for us . NEED HELP PLEASE THANK YOU.
maude16100 1 year ago
Hi Thanks for your video, and all the information. I have such Hi hopes now.. and I am going in the morning to get my Tysabri. I will talk this all over with my Neurologist, here at USC in Ca. And I will Make a new video about my own findings. As USC is a cutting edge Research Hospital, and Hopefully I'll have some new news on CCSVI by Tomar evening. TTYL Violet.
violetmatthers 2 years ago
Google "inclined bed therapy" for ms.
Or check out my video on this subject.
Kind regards
Andrew
AndrewKFletcher 2 years ago
I know of a Canadian with who went to Italy in the summer and Dr.Zamboni did the operation on him. He was in much pain before and walking with a cane. He says he now feels normal again, plays tennis and thanks God for the miracle. All of us must open our eyes & put preassure on the U.S. Government to stop this bs and get some results for our people in trouble.
gerredward 2 years ago 7
Thanks for the comment!
gekiryudojo 2 years ago
yea i second your comment but that shit is not going to happen coz people are 2 greedy 2 much
mcoolle 2 years ago
I am sorry to hear you have MS but hang in there. Keep doing your research. Looks like you have some good info
suthrnchick 2 years ago
I've have it Defiantly since 2001 and I think from 1995, CCSVI
is quite probably the cause As far as I'm concerned I had a Doppler ultrasound just over a week ago and the technionSonographer kept losing the left Jugular vain, and said it needs more investigation,
gekiryudojo 2 years ago
, I have a large plaque on the left side of my brain had optic neuritis in the left eye 3 times, tinnitus in the left ear
The relapse this year affected my right arm and leg that is controlled by the left hemisphere I could go on but it doesnt take a genius to realise
gekiryudojo 2 years ago
that there is a correlation, I never told her to look pacifically at the left jugular she found it! the rest makes sense to me
gekiryudojo 2 years ago
This makes me really sad.... It's a hard thing to have MS because you never know what can happen. By boyfriend was diagnosed when he was 16 and is now 23. he strugles having it, he try's to deny it and when I herd about the liberation treatment I Was Very excited! It will come soon if everyone express's how much we need it! keep ur hopes up!!!
missmackenzie1 2 years ago
I agree with that! If this is the cure or the ultimate treatment for MS. The pharmaceutical industry tends to loose Billions of dollars. Not millions. So don't go looking for any MS societies or Neurologists to go jumping on any band wagon soon.
notapplicable66 2 years ago
We still might be a long way off on knowing what causes MS. In my own opinion I feel that we are born with it. Genetics has a lot to do with it. But this Liberation treatment seems to be the treatment or maybe even the cure that we have all been looking for. I feel that this is on the right track.
notapplicable66 2 years ago
Well I had an ultrasound 2 days ago and guess what! there is something wrong with my left Jugular vain and it will need further investigation said the sonographer (she had difficulty seeing the left Jugular and there was something going on with it !) as for knowing what causes MS this is the first thing anyone has come up with for years
that makes sense, oh and Works!!!
gekiryudojo 2 years ago
meanwhile instead of embracing it, people are content to pump any old crap into our veins to relieve the symptoms while others mill around worried about losing their Jobs that is the MS (tea and sympathy) society (who are not Doctors) and the neurologists who also have come up with Nil! in decades.
QED this is a time to wake up to the fact that Dr Zamboni
has done something big here nmore than the rest have done!
gekiryudojo 2 years ago
the impossible is sometimes easier than the difficult. never ever let your dreams die. it will be possible during our lifetime. God bless and keep the FAITH.
joevenditti 2 years ago 2
Call the National Multiple Sclerosis Society @ 1-800-344-4867 and tell them to put you on the interested party list and TELL OUR DOCTORS TO START SENDING THEIR PATIENTS FOR AN MRV AND AT LEAST START CHECKING FOR CCSVI! Please pass this along! Thay are taking names and numbers and stories!
9gabbycats 2 years ago 5
Thank you Trevor! One of the best videos! Keep up the fight!
Take care,
Bill
tazscott14 2 years ago 2
My next one is in full production and is all information :) just a few short hours to go!
gekiryudojo 2 years ago
What a great video!
Thank you for making this video because it helped a lot and it gave us hope!
Hugs,
Angela
angelusa73 2 years ago
Watch the Video in the info Box it takes about 30 second to load but is worth it!!!!!!!!
gekiryudojo 2 years ago
Thank you, Trevor! I will watch it!
angelusa73 2 years ago
Ive been to the Doctors this morning He had not heard of CCSVI and Dr. Zamboni yet. but he does now!, he was very intrigued and interested and open to the idea of stenosis in the Carotid arties, he mentioned that there had been something about a similar vascular problem in epilepsy that he had read,The upshot is I am to have a Doppler ultrasound ASAP to check it out and then to be referred to a vascular surgeon /consultant so the ball is now rolling I will keep you in formed
Trev
gekiryudojo 2 years ago
Great video and I loved that smile!
Now have a pint for me :-)
Andrea
MSVlogSupport 2 years ago
Its great to see your smile at the end my friend. Please keep me posted on this info. I am going to be praying for you to be able to get this done to help you. Each eve when I say the Rosary I say 10 Hail Mary's and one our father for you and Dom. This is such great news!!
ironfisteagleclaw 2 years ago
Great video!!!!!!!!
The hope that you are feeling is currently being shared by thousand upon thousands of people that are getting exposure to Dr. Zamboni's Liberation Procedure.
Calling the BBC was an ingenius move and it shows that you are serious about getting the word out.
God bless you, man.
Mark
irishbear76 2 years ago 2
I'll be praying for your health
StrengthFromAbove83 2 years ago 2
science AND the Bible show that if you speak POSITIVE things in your life it DOES change your health. Same token on the negative side. Speak negative and negative will manifest. SPEAK LIFE! =-)
StrengthFromAbove83 2 years ago
Rate Dude we need to get this out! Thanks Trev
gekiryudojo 2 years ago
gekiryudojo check out HKINTHEUK vids on CCSVI.
Or join our action group here in the UK if you really want to make a difference:
B0dgeIT 2 years ago
please , we are all hopefull abt the breakthrough but don't bring in the bible into this. NO to religious pitches.
this is abt ms and ccsvi, and religion may offend other ms sufferers who are of different faiths
astronautsandwitch 2 years ago