Trotz MS (Multiple Sklerose) zum Frauenlauf!

[wissenschafftwissen]

Hi Steve,

as promised, here is the link to the video with subtitles:

As far as i know she had a bad collapse in 2006/07 after interferon. Then she started Tysabri and took part in the Vienna Women's Run in 08 for the first time. That means from Jan 07 to June 08 about 18 infusions (once every four weeks). But she also worked hard on herself!

I never heard of T. being prescriped for cd here, but if that would come here: great! wishing u all the best

[wissenschafftwissen]

Ich vetrstehe leider deine Frage nicht genau - maybe you could ask in english?

[7mumfred7]

I dont know what Mr. Wendell is asking you, but if your English is good, could you please add "Captions" in English to the video, so that we understand what is being stated ?

And are you the MS patient, or a journalist ? If you are the MS patient, then please let us know how your are doing - still very well, I sincerely hope.....

Thanks and Good Luck !

Steve

[wissenschafftwissen]

Hi Steve,

I'm not a journalist, I'm a friend of the woman in the video. Today I wrote to the producer, I hope she'll send me an english version of the video. Of course I'll post it then, so just check back from time to time. At the moment Hannelore is planning to set up a self-help group, as she has no internet so far it's not that easy to contact her. I'll let you know the contact details as soon as she gets connected to the net. She's doing great, still no new attacks.

best wishes

[wissenschafftwissen]

Oh: the video is about her having ms for 10 years. she almost had to order a wheelchair, but thanks to her new therapy she managed to take part in the viennese women's run.

Hope to get the english version soon,

best wishes

[7mumfred7]

Well I am so glad for her. And good of you to post this, it brings "proof" to other MSers.

May I ask how many infusions did it take for her to improve noticeably ?

BEST,

Steve

[wissenschafftwissen]

Hi Steve,

well, after the first infusion she had no attacks for more than half of a year. After that there was - as far as I know - only one.

Which therapy do you get?

Concerning the english video version: I'll get the link today.

All the best

[7mumfred7]

I was wondering how many infusions did it take for her walking (or running !) to improve ? There are some MSers from Europe on YouTube and of course they all hope for normal walking conditions.

Myself I am a candidate for Tysabri - but I do not have MS ! Instead I have Crohn's Disease, for which it was authorized in the USA last year. Fortunately for 18 months now I feel OK (no painful inflammation or loss of function), even though I am not on a DMD of any kind.

o:)

Steve

[wendell3308]

Warum nicht jemand mit MS sprechen, dass Tysabri hilft Ihrem Körper mehr Stammzellen in Ihrem Blut?

Gibt es niemand, der versteht das?