My granddaughter, Kylie, had several bones fuse, hers was in a Triangle shape, Strong Hospital did her surgery at 10 months old, Kylie suffered a stroke in utero. Please view her video "Kylie's Journey" , that I have sent in response to yours & her progress in videos. Kylie still has a porencephalic cyst on her brain stem that we have been told cannot be removed and "extra fluid" in her brain, but no shunts are necessary the doctors stated. We are looking for other opinions/answers. Thank You.
My granddaughter, Kylie, had several bones fuse, hers was in a Triangle shape, Strong Hospital did her surgery at 10 months old, Kylie suffered a stroke in utero. Please view her video "Kylie's Journey" , that I have sent in response to yours & her progress in videos. Kylie still has a porencephalic cyst on her brain stem that we have been told cannot be removed and "extra fluid" in her brain, but no shunts are necessary the doctors stated. We are looking for other opinions/answers. Thank You.
CountrybyAudrey 8 months ago