My brother has MS.Drug companies know they will lose BILLIONS and BILLIONS of dollars if Zamboni's treatment works., and Governments get a big piece of the pie.That being said: how many doctors across North America(including the ones that did the study in Buffalo) are "paid off" by the drug companies to shoot down this amazing discovery or to give false trail results????They are doing it already,but are very careful so it doesn't look too obvious.
I am heading out the door soon to see my neurologist. I am going to try to at least be scheduled for a scan. So far I have had no luck with getting my doctors to send me for a test. Again thanks for your videos!
Unfortunately, my doctors still are not sending me for a scan. They keep saying that I will have to wait for it to be done here. They say that I have to go to Buffalo or wait until it is covered by my insurance and it is done here. I hopefully will be going to see an MS specialist. Maybe something good will come out of that. Take care, Bill
Just seen your video Kerri and that's wonderful news. I'm really happy for you. Look forward to hearing who the radiographer is when you are able to make it public. I'm also in Vic.
WTG!!!! Great video and don't worry about the quality. The messag is what's most important. Just have a look at my quality videos lol........ I still can't figure out the delay in my voice.
So Happy for you!!!!! I understand the feeling of ...What's next????? This is where we have to patient and not lose focus!!!!! You are so much further ahead than 6 months ago. Do let us know any updates. Lots of people are watching.
No probs Jamie. I knew you were talking to me! Yes I do agree, I don't want to rush into anything until we know for sure the best way to go with it. Thanks Kerri
Hi Kerri! I am so happy for you!!!! You got to find a very nice person that listened to you too and that did a good job looking for the right things! This is really the time for being hopeful! You can start think about the next step when you are ready to. I am so glad that you were able to take a step forward and find this out! Keep us up to date! We are cheering for you! :)
yes I also get that strange numb feeling from the bottom of the left side of my front neck around my left cheek and brain fog on the left side and Tinitus in my left ear oh yes I have a plaque on the left side of my brain that affected my right arm and leg
Funny you say all that Trev. I get TN in the left side of my jaw right into my teeth and also considerable right side weakness. It does make me wonder now. Feel free to use use my video - it's all 'out there' anyway. K
Kerri!!! xoxo WOW.... proof in the pudding, or the neck I guess in this case? ;)
I'm glad to hear that by stroke of luck, you were imaged and they found this correlation. As you're in Aus, I'm thinking they'll be more accepting and open of this finding and go forward with it.
So happy for you to get some answers in this dreadful disease. You look so positive and happy!! :)
Actually I don't think it was luck.... I'd like to think it was divine providence! Being in Australia I find new treatments lag the rest of the world. In this case though, I believe we have Aussie reps who have been in contact with Zamboni and the US teams. I am happy and a little scared to be honest... Kx
It's ok to be scared, it's a new thing! Keep in mind when they showed the W5 show of a young girl having the procedure done, she was awake and eyes open. Plus, think of how many have had this type of balloon surgery for much, much more complex situations (veins in the brain, for example). I'm sure you'll do just fine :) You'll know what to do when the time comes, and we'll all be behind you 110%
I KNEW IT! I was so busy yesterday I missed this my left is also narrowed but with all the relapses you have had that makes sense if you dont mind I would like to use some of this video in a mega video go show the MS society that there is proof of CCSVI Good on ya mate!
I did respond to this but not sure if it posted... Yes - the next step will be to see a more specialised radiographer to check out my other veins more closely as this was a doppler on the jugulars only. Thanks for all your work on this Mark. Kerri x
Hi!! I am so happy for you :) I'm really excited. Its nice there is someone there that can actually do this someone correctly. :) I'm new to this community but happy to be among you. By the way, if you can get a CD with the pictures on it, you can do a print screen and do a slide of it. :)
Congratulations! I would be so relieved. I hope someday I can get this done.
We are happy to have you among us :o) I didn't get a CD but will likely have more scans ahead and will try and do so. I hope everyone can get this done very soon. I hope even more than we can have a treatment that will change the course of our futures! Kerri
Funny thing about that sensation is that I thought everyone had that kind of thing, the more I talk to people the more I discover how common it is. I only just realised that it only happens on one side and though - ok now that is weird. Neuro's never ask about these things. Also sometimes I feel like my heart gets a 'rush' for no reason (normally when lying down). Weird. Still practising my triangle btw ;o) Kx
I have been to my docs and the hospital over the last 2 months after every week or 2 with this neck pain and all they say is take steroids it sounds like a flare up/nerve pain. also i get alot of presure in my head like my head is gonna explode..
i see my neuro and ms nurse next month and im taking my baseball bat with me, because its my way or the highway :0)
keep practicing that triangle, when u have mastered it send me the audio file :0)
Thanks Andrea. I know, my head is spinning a little more than normal!! Time to have a relaxing weekend I think. Yes - I am looking forward to the vid too! Kerri x
Hi Susan, I know big news! *victory dancing* Hey nice to have heard your voice the other day ;o) We certainly had a go of ripping up the town, managed to entertain a number of Melbournians around town in the process! Kerri x
Morning kez! I slept like the dead too, only just getting up now. Lost that beautiful camera? Hope not, there's precious footage there! Well done, it's a funny thing to get excited about, having a problem identified, but that is half the battle. Mandy.
No just a web cam - I think someone in this house knows where it is. I still have our precious work which I have watched again today and laughed all the way thru! Now on to the editing table it goes! Love you girl xxxx
Holy shit! sorry, that is all I can say at the moment. Thanks for a direct and extremely informative video. I will be watching this space! Speak soon,
This has been flagged as spam show
My brother has MS.Drug companies know they will lose BILLIONS and BILLIONS of dollars if Zamboni's treatment works., and Governments get a big piece of the pie.That being said: how many doctors across North America(including the ones that did the study in Buffalo) are "paid off" by the drug companies to shoot down this amazing discovery or to give false trail results????They are doing it already,but are very careful so it doesn't look too obvious.
kodiak1966 1 year ago
Wow, that is awesome news (in a weird way). That means you fit the mold of this new theory. I am happy for you. I excited for you!
wisdaniel 1 year ago
@wisdaniel Hey this is old news now! I had the balloon angioplasty 7 weeks ago. Check my channel for latest vid :o)
kezzcass 1 year ago
no sorry , the scne that i am going to do he is on my had . dopler i did befor .
amalia
51amalia 2 years ago
i am going to do the same in 3 weeks
having a colestrol test tomorrow . my doctor is going to the alfred to tolke to the doctor who did the operation on MS patient .
i geve him
all the articles printed . lookse very interesting !
i feel good aout him
good luck !
amalia
51amalia 2 years ago
i am going tomorrow !!
see the doctor .. realy crazy to think that he can do it over night .. i am hopeing for somthing good .
amalia
51amalia 2 years ago
That is excellent!!!!!!! Please let me know what the doc says! I have the procedure on Thursday this week - will post again on Friday. Kerri
kezzcass 2 years ago
hi Kerri
have you done the open artery yet ?
i hope you are well !
amalia
51amalia 2 years ago
who is this Doctor that can do it ???
i am going to see Dr Peter Blombery
on 42 The Avenue Winddsor he is the best , not saying that he is familiar with MS and CCSVI .. amalia
51amalia 2 years ago
i am very positive after visit my GP yesterday
i have 60 % blockeg ... my mum had 90 % on here right one . i will fight to do it !!!
amalia
51amalia 2 years ago
i will tell you all about nxt week !
amalia
51amalia 2 years ago
you can email me if you wont on maliweis@hotmail
amalia
51amalia 2 years ago
hi
my name is amalia and live in melbourne i hvae
had the scan and my right artery in my neck is blocked by 50% i am going to see a specialist on the 9 of march ...to discuusset with him
i am looking forward to that day
god luck for you
amalia
51amalia 2 years ago
That is great that you are seeing a specialist. I hope you go well. Please let me know how you go. Kerri
kezzcass 2 years ago
very good news indeed ! thank you for the information my aussie friend ! wishing you all the best from canada 1
salchaw 2 years ago
Thanks for the video.
I am heading out the door soon to see my neurologist. I am going to try to at least be scheduled for a scan. So far I have had no luck with getting my doctors to send me for a test. Again thanks for your videos!
Take care,
Bill
tazscott14 2 years ago
Thanks Bill, how did you go at being schedule for that scan?? Thanks for watching and keep well, Kerri
kezzcass 2 years ago
Hi Kerri,
Unfortunately, my doctors still are not sending me for a scan. They keep saying that I will have to wait for it to be done here. They say that I have to go to Buffalo or wait until it is covered by my insurance and it is done here. I hopefully will be going to see an MS specialist. Maybe something good will come out of that. Take care, Bill
tazscott14 2 years ago
we wish you all the best !
salchaw 2 years ago
Thank you very much :o)
kezzcass 2 years ago
Kerri,
Sounds promising. Thanks for the info and for the laughs too.
Helen
MsWobblehead 2 years ago
Yeah - let's wait and see... Kx
kezzcass 2 years ago
Just seen your video Kerri and that's wonderful news. I'm really happy for you. Look forward to hearing who the radiographer is when you are able to make it public. I'm also in Vic.
Thanks, Rick
rickileeway 2 years ago
G'day Rick, no secret (just don't want to publicly say names without permission). I have sent you a message. Kerri
kezzcass 2 years ago
Kerri... :-D Great news...I think. Keep us updated! Tori
ToriUTK 2 years ago
Will do, hope you are keeping well Tori. xx
kezzcass 2 years ago
Hi Jerri,
WTG!!!! Great video and don't worry about the quality. The messag is what's most important. Just have a look at my quality videos lol........ I still can't figure out the delay in my voice.
So Happy for you!!!!! I understand the feeling of ...What's next????? This is where we have to patient and not lose focus!!!!! You are so much further ahead than 6 months ago. Do let us know any updates. Lots of people are watching.
Take Care
Jamie
mackierojo 2 years ago
Sorry I'm so excited I have trouble typing some times lol.... Kerri my apologies
mackierojo 2 years ago
No probs Jamie. I knew you were talking to me! Yes I do agree, I don't want to rush into anything until we know for sure the best way to go with it. Thanks Kerri
kezzcass 2 years ago
Hi Kerri! I am so happy for you!!!! You got to find a very nice person that listened to you too and that did a good job looking for the right things! This is really the time for being hopeful! You can start think about the next step when you are ready to. I am so glad that you were able to take a step forward and find this out! Keep us up to date! We are cheering for you! :)
Have a wonderful day and take care,
Angela
angelusa73 2 years ago
Thanks Angela, you certainly inspired me to keep following this through. Yes, one step at a time now. Kerri x
kezzcass 2 years ago
You are a sweet and kind friend! :)
angelusa73 2 years ago
yes I also get that strange numb feeling from the bottom of the left side of my front neck around my left cheek and brain fog on the left side and Tinitus in my left ear oh yes I have a plaque on the left side of my brain that affected my right arm and leg
gekiryudojo 2 years ago
Funny you say all that Trev. I get TN in the left side of my jaw right into my teeth and also considerable right side weakness. It does make me wonder now. Feel free to use use my video - it's all 'out there' anyway. K
kezzcass 2 years ago
Kerri!!! xoxo WOW.... proof in the pudding, or the neck I guess in this case? ;)
I'm glad to hear that by stroke of luck, you were imaged and they found this correlation. As you're in Aus, I'm thinking they'll be more accepting and open of this finding and go forward with it.
So happy for you to get some answers in this dreadful disease. You look so positive and happy!! :)
dmplaura 2 years ago
Hi Laura :o)
Actually I don't think it was luck.... I'd like to think it was divine providence! Being in Australia I find new treatments lag the rest of the world. In this case though, I believe we have Aussie reps who have been in contact with Zamboni and the US teams. I am happy and a little scared to be honest... Kx
kezzcass 2 years ago
It's ok to be scared, it's a new thing! Keep in mind when they showed the W5 show of a young girl having the procedure done, she was awake and eyes open. Plus, think of how many have had this type of balloon surgery for much, much more complex situations (veins in the brain, for example). I'm sure you'll do just fine :) You'll know what to do when the time comes, and we'll all be behind you 110%
dmplaura 2 years ago
Thanks Laura :o) Well I am not rushing into anything. Hope you are keeping well. Hugs Kerri
kezzcass 2 years ago
I KNEW IT! I was so busy yesterday I missed this my left is also narrowed but with all the relapses you have had that makes sense if you dont mind I would like to use some of this video in a mega video go show the MS society that there is proof of CCSVI Good on ya mate!
gekiryudojo 2 years ago
Judy, Judy... We all hope the best will come out of that :)
MikalinaJ 2 years ago
Two things.
Great video. I am very happy to see that they are figuring out why your MS has been causing so much trouble.
It seems your strictures are quite defined!
the doctor looking into arteries needs to look into veins because that is where the problem is.
The first step is finding it. That step is done for you. next step is LIBERATION.
I cannot wait for you to be liberated Kerri.
God bless.
Mark
irishbear76 2 years ago
I did respond to this but not sure if it posted... Yes - the next step will be to see a more specialised radiographer to check out my other veins more closely as this was a doppler on the jugulars only. Thanks for all your work on this Mark. Kerri x
kezzcass 2 years ago
Hi!! I am so happy for you :) I'm really excited. Its nice there is someone there that can actually do this someone correctly. :) I'm new to this community but happy to be among you. By the way, if you can get a CD with the pictures on it, you can do a print screen and do a slide of it. :)
Congratulations! I would be so relieved. I hope someday I can get this done.
hugs,
Judy
donotconcede 2 years ago
Hi Judy,
We are happy to have you among us :o) I didn't get a CD but will likely have more scans ahead and will try and do so. I hope everyone can get this done very soon. I hope even more than we can have a treatment that will change the course of our futures! Kerri
kezzcass 2 years ago
Wow thats amazing.. I always have a sluggish feeling and pain on the right hand side of my neck.
thank you
omario
omexmc80 2 years ago
Funny thing about that sensation is that I thought everyone had that kind of thing, the more I talk to people the more I discover how common it is. I only just realised that it only happens on one side and though - ok now that is weird. Neuro's never ask about these things. Also sometimes I feel like my heart gets a 'rush' for no reason (normally when lying down). Weird. Still practising my triangle btw ;o) Kx
kezzcass 2 years ago
I have been to my docs and the hospital over the last 2 months after every week or 2 with this neck pain and all they say is take steroids it sounds like a flare up/nerve pain. also i get alot of presure in my head like my head is gonna explode..
i see my neuro and ms nurse next month and im taking my baseball bat with me, because its my way or the highway :0)
keep practicing that triangle, when u have mastered it send me the audio file :0)
Omario
omexmc80 2 years ago
Can't wait to hear what happens next! Posted a comment on the facebook page.
Looking forward to the video of you and Amanda :-)
MSVlogSupport 2 years ago
Thanks Andrea. I know, my head is spinning a little more than normal!! Time to have a relaxing weekend I think. Yes - I am looking forward to the vid too! Kerri x
kezzcass 2 years ago
That is big news Kerri! I pray someday getting the tests and the treatment we will be telling stories of joy! So you two ripped up the town Aye!
Sounds like it was a fun outting!
Best Susan
ThePennygirl 2 years ago
Hi Susan, I know big news! *victory dancing* Hey nice to have heard your voice the other day ;o) We certainly had a go of ripping up the town, managed to entertain a number of Melbournians around town in the process! Kerri x
kezzcass 2 years ago
I'm so happy for your results. You are so wonderful, and you deserve all the best,
Love, Astrid
Prissie28 2 years ago
Thanks Astrid, I think all of us deserve the very best! Love to you. Kerri
kezzcass 2 years ago
Morning kez! I slept like the dead too, only just getting up now. Lost that beautiful camera? Hope not, there's precious footage there! Well done, it's a funny thing to get excited about, having a problem identified, but that is half the battle. Mandy.
missalgernon 2 years ago
No just a web cam - I think someone in this house knows where it is. I still have our precious work which I have watched again today and laughed all the way thru! Now on to the editing table it goes! Love you girl xxxx
kezzcass 2 years ago
Holy shit! sorry, that is all I can say at the moment. Thanks for a direct and extremely informative video. I will be watching this space! Speak soon,
Marlo
xxxxxxx
ps- I have a huge smile on my face right now.
teslagirlM 2 years ago
I am smiling too - looks like we are on track for that party in August! ;o) Love to you! xxxxxxx
kezzcass 2 years ago
wow how interesting. Keep us posted.
Christine
christinedavi 2 years ago
Will do - thanks Christine. x
kezzcass 2 years ago