Living with LAM

[julqw2]

my best friend was diagnosed with LAm recently, I'm devastated, I'm trying not to show her my emotions, (she doesn't need to see it) but it's hard. I'm hoping on the scientific breakthrough and sooner drug availability. It's sad that insurance companies are not very supportive with this. But please hang in there, I'm praying for all of you!

[morningview612]

Hello. My name is Laurie and I too have LAM. I was diagnosed in 2000 when I was 19 years old, due to a collapsed lung. Since then I've had many more collapses(7 in total) and a number of surgeries. I am now 27 and I'm completely oxygen dependent. Over the years, my pulmonary doc told me that my lung function was slowly deteriorating. At my last appointment, last month, I was told that I'm down to 30% lung function. Everyday is a struggle but I do my best to not let it interfere with my happiness

[SK8terGuy19]

i know a 27 yr old that is suffering with LAM. I know that if is was not for her son, she would have committed suicide. her son is the only person that is keeping her alive. i know that she is in a lot of pain because she talks to me about it all the time. i dont know what i would do when she passes. it will hurt me deeply. THIS IS NO JOKE. THIS IS A VERY SERIOUS DISEASE!!! THERE IS NO CURE FOR THIS.

[sorrycando]

What wonderful strong women!! They are an inspiration to all of us!!! There has to be a cure found!!