My cousin gave birth to a daughter who had this.Her husband told her to get rid of "it" else he would divorce her.She decided to keep the baby so it led to her divorce.She can not get re-married because everyone wants to ditch the baby.Its a sad fucked up world we live in.
I am 32 years old i was born with abnormal spina bifida after 22 of my age and start losing control of my bladder . using cathter since ,but cant stop me do any thing ,but ....
trying to get my son to use the toilot is hard he rather go in the diper then try he's 10 and im trying to teach him to use the toilot, any advice would help...
I was born in 1981 with Spina Bifida. Given the fact that the doctors told my mom that if I lived at all, I would be a vegetable and mentally retarded, I am happy to report that I am about to turn 30 years old, live on my own, am working on a degree in Psychology, and have an IQ in the 130s, Yes, life gets rough but I have a good life! My disability doesn't make me less of a person or less deserving of having a life, it just makes me different.....like everyone else.
Also, we have since learned that folic acid should be increased six months before conception. Please do not wait until you are pregnant, especially if there is a high incidence of SB in your family. Must admit...of our five children, Ben has been our greatest blessing and least pain-in-the-neck. It's not what you have, it's what you do with it!
My son Ben has Spina Bifida Occulta. Of his five lower lumbar, one extremely malformed and one barely there. Affects bowel and bladder; not toilet trained until 9 (no sensation). His gait is lumbering; shorter stature. Autistic but higher functioning; written and expressive learning disorder. Ears smaller and set lower on head. The info re: folic acid came out when he was six months old. There are other cases of SB in my husband's family. Ben is 25, red head and great attitude and sense of humor
Thank you for making this video. My niece was born today and she has Spinda Bifida. I'm pretty sure they said it was the third kind. I don't know much on her condition right now, but I'm trying to learn all I can. God has a plan for this beautiful little girl (:
i have a freind who has spina bifida. one time when i was sitting next to her during her physical therapy i remember seeing these bumps. but seeing this video i know what type she has...thanks for the video btw. i now know what it really looks like on the inside.
I'm 19 years old with lipomeningocele, L4-S1. I can't feel anything from my waist down but can walk short distances. Otherwise, I use my chair to get around. I try not to let it take over my body and tell me I can't do something. Don't let it happen to you. Find some good friends and do what everyone else does. It doesn't have to be who you are.
i had spina bifida meningocele. i had surgery at 5 days old. after that my spine had to be keept still in a plaster form for some months. now i have a perfect life and the single thing that can show i had this illnes is a little whole on my back where the sac was.
I really love how you put this presentation together. All the facts were accurate and very informative. I wish I had seen something like this when I learned my daughter had Spina Bifida 13 years ago.
many people don't know what folic acid is it's really achamed. I've heard that even antidepressants can cause these horrible birth defects.
A good prenatal vitamins is Jamieson
planetemonde 1 month ago
Very nice. Thanks!
aimanazlan90 3 months ago
My cousin gave birth to a daughter who had this.Her husband told her to get rid of "it" else he would divorce her.She decided to keep the baby so it led to her divorce.She can not get re-married because everyone wants to ditch the baby.Its a sad fucked up world we live in.
a55kika18 4 months ago
I am 32 years old i was born with abnormal spina bifida after 22 of my age and start losing control of my bladder . using cathter since ,but cant stop me do any thing ,but ....
kurda979 5 months ago
trying to get my son to use the toilot is hard he rather go in the diper then try he's 10 and im trying to teach him to use the toilot, any advice would help...
thericky863 6 months ago
You guys that have come up with this vid are welcome here in Canada any day of the week.
RobSmith123456 6 months ago
I was born in 1981 with Spina Bifida. Given the fact that the doctors told my mom that if I lived at all, I would be a vegetable and mentally retarded, I am happy to report that I am about to turn 30 years old, live on my own, am working on a degree in Psychology, and have an IQ in the 130s, Yes, life gets rough but I have a good life! My disability doesn't make me less of a person or less deserving of having a life, it just makes me different.....like everyone else.
prplepokadotcow 7 months ago 5
Great job!! I am studying for an exam tomorrow and it was really helpful to see this, rather than just read about it!!
jmcrob1 10 months ago
Also, we have since learned that folic acid should be increased six months before conception. Please do not wait until you are pregnant, especially if there is a high incidence of SB in your family. Must admit...of our five children, Ben has been our greatest blessing and least pain-in-the-neck. It's not what you have, it's what you do with it!
caroljohnson168 11 months ago
My son Ben has Spina Bifida Occulta. Of his five lower lumbar, one extremely malformed and one barely there. Affects bowel and bladder; not toilet trained until 9 (no sensation). His gait is lumbering; shorter stature. Autistic but higher functioning; written and expressive learning disorder. Ears smaller and set lower on head. The info re: folic acid came out when he was six months old. There are other cases of SB in my husband's family. Ben is 25, red head and great attitude and sense of humor
caroljohnson168 11 months ago
I know a little girl with Spinal Bifida.She had surgery when she was born.She is now one of the happiest toddlers I know.
frylok69 1 year ago
@frylok69 theres no l..its spinabifida not spinalbifida
LaWLF4iL 1 year ago
@LaWLF4iL My mistake.Ty.
frylok69 11 months ago
@frylok69 my cuz has it
LaWLF4iL 11 months ago
Am myself a Spina Bifida patient .... Just turned 35. IQ well above the average and yes, life gets rough but I REFUSE to die !
RobSmith123456 1 year ago 14
5 * * * * *
SalimaFerchichi 1 year ago
Thank you for making this video. My niece was born today and she has Spinda Bifida. I'm pretty sure they said it was the third kind. I don't know much on her condition right now, but I'm trying to learn all I can. God has a plan for this beautiful little girl (:
abn1002 1 year ago
gooooooooooooooooooooood
babak1380 1 year ago
I actually suffer from spina bifida. I am also legally blind. Is it possible that the spina bifida caused my blindness?
Gdayguy36 1 year ago
@Gdayguy36
Anything is possible although it is unlikely given that the lesion has to be well below the optic nerve.
RobSmith123456 1 year ago
i have a freind who has spina bifida. one time when i was sitting next to her during her physical therapy i remember seeing these bumps. but seeing this video i know what type she has...thanks for the video btw. i now know what it really looks like on the inside.
Gameboykd 1 year ago
I was born with spina bifida occulta. My heart goes out to all with spina bifida of any type.
bigbikerboy88 1 year ago
I'm 19 years old with lipomeningocele, L4-S1. I can't feel anything from my waist down but can walk short distances. Otherwise, I use my chair to get around. I try not to let it take over my body and tell me I can't do something. Don't let it happen to you. Find some good friends and do what everyone else does. It doesn't have to be who you are.
BrittanyYoungxDuckie 1 year ago
Good video.....very explanatory!
Lima547 1 year ago
i wish my mom took folic acid lol im 18 and paralyzed and one day im hoping to walk but god mite not want me 2
lilrebel213 1 year ago
@lilrebel213 Aww. Folic acid doesn't always help. My mom took it and I was still born with it.
BrittanyYoungxDuckie 1 year ago
Folic Acid can help prevent having a kid with it. Eat enough eggs should do the trick.
MrPerfect77 1 year ago
nobody says or know why that happens....!!!!!!!!
i had a baby with s.b. and nobody can answer why that happen
mariagika 1 year ago
im 31 years old and have it but i dnt let it stop me trust me dnt let it stop u
70127able 2 years ago 9
My brother has Spina Bifida!!!!
fireflies7891 2 years ago
I just found out today our son has SB
AiresQX4 2 years ago
Im so sorry
My heart goes out to you
misscharliebrown123 2 years ago
i had spina bifida meningocele. i had surgery at 5 days old. after that my spine had to be keept still in a plaster form for some months. now i have a perfect life and the single thing that can show i had this illnes is a little whole on my back where the sac was.
TheIamioana 2 years ago
Im glad to hear how normal you have got :)
All best wishes
Gudi
DoubleGud 2 years ago
thanks, excellent presentation, hope you got an A!
mosc7fm3 2 years ago
I really love how you put this presentation together. All the facts were accurate and very informative. I wish I had seen something like this when I learned my daughter had Spina Bifida 13 years ago.
TeshaOne 2 years ago