Hi everyone! Thank you all so so so much for taking the time to watch and comment on Tahli's video. She is now 4 years old and today she started at a special school's kindergarten program! She is about to get a wheelchair to assist us with taking her out and about as she is still quite floppy. She is happy and loves flowers, her horse and rainbows/colours. She very rarely is seen without a party dress or a dress-up.
We recently have been blessed with identical twin girls, which up until 4 weeks old were viewed as being normal. (12 weeks old now)
I found Ellie not breathing and with no pulse in the family car, after resuscitating her and having both of them admitted to hospital we found them to have severe Hypotonia.
My girls don't have much head movement and don't move their legs unless in the water.
We are young parents and are coming to terms with life with possibly disabled children.
Hi everyone! Thank you all so so so much for taking the time to watch and comment on Tahli's video. She is now 4 years old and today she started at a special school's kindergarten program! She is about to get a wheelchair to assist us with taking her out and about as she is still quite floppy. She is happy and loves flowers, her horse and rainbows/colours. She very rarely is seen without a party dress or a dress-up.
Hello! Our wonderful 20 month old daughter also has epilepsy, global delay and hypotonia. She has PT, special education and speech therapy. Like your daughter she sees a host of specialists. All of her blood work, genetic screenings, MRI, PET scan, EEG and spinal taps have come back normal. I am always wondering if everything will be ok. She is so happy and continues to make progress at her own pace, but I am so anxious to know that she will be alright. Will she walk, talk and be able to commu
My Step daughter is 10 & has GDD, she is doing an excellent
job in her high needs class at her special needs school, you & your family are doing a great job I really believe that having a pony & swimming on top of love
& support is what makes a big difference for her, & it looks like it has had the same effect on your beautiful girl too. Well Done to you all.
my son is 3 also has GDD, he cant walk and talk any word, he cant stand w/o any guide that he can hold on to, i wonder why doctors cant trace where this illness came from, im longing to see my child walking by himself, youre daughter was so blessed.
wow, your little baby girl is so precious. you are so blessed and so is she. your video is very touching. we wish her all the best and your family as well with all the courage and support you need. May God bless you all.
I'm so sorry, I keep trying to reply to you all and it keeps timing out, deleting and messing up the page. So thank you all for sharing your stories, its why I decided to share Tahli's story. The Drs basically gave up on her, but she has proven them wrong! We did get the results of her genetic test which indicate that she also has a genetic issue going on. which was difficult to hear, but we move on for her. I posted a video response with her in it, check it out! Also if you want INBOX and chat!
@82llewkram My son Lucas who is 3,5 years old has global development delay too. In September this year we did a Hyperbaric oxygen treatment (HBOT) in thailnd, and 76 hours later we have tremendous results. Nowdays I see improvments everyday, it really did and are doing a lot for my son. I got to know about HBOT in July this year.
Wow did this video "speek" to me. My son has also been diagnosed with GDD and Epilepsy. He met his milestones at nearly the same times your daughter did - yet everyone has told me all along that he isn't really THAT delayed. It took a month in the hospital due to a seizure that led to respiratory failure at 10 mths to finally get him the help he needed. He's 23 months now, attending Early Intervention and making great improvements - but has a long way to go. Does Tahli still have seizures?
my son is 3 and has GDD but he's still not wallking yet:( started therapy only at 2 and half years old:( gog for therapy still. not too sur if he can walk:( glad yr daughter can walkl.
Many thoughts and prayers that your son will be walking soon. A friend of mine had a similar situation and he walked just prior to his 3rd Birthday. I hope that the early intervention helps you all : )
Many thoughts and prayers that your son will be walking soon. A friend of mine had a similar situation and he walked just prior to his 3rd Birthday. I hope that the early intervention helps you all : )
What a totally amazing video and how inspiring! I have a 17month old daughter who has been diagnosed with global developmental delay and hypotonia. She is just trying to crawl at the moment and didn't sit up until she was 10 months. I have had to fight to get her help and will keep doing so. Would love to speak with you about all the work you have been doing with your daughter.
I will INbox you with my email if you wish to talk about it further, always happy to help if I can!!
It is sad that we as parents have to fight and fight to give our children the best chance in life. Someone once called Tahli "high needs" and my response was that I was caring for her no differently than I would have with my other daughter.
Fantastic news that she is crawling! A freind of mine's little one with GDD walked just prior to third Birthday!
deepeshbb, keep the faith. My daughter did not crawl until she was almost 17 months old and didn't walk until she was 26 months old. Get him in Early Intervention and keep working with him and never give up. You can do it.
Beauitiful child. May God bless her and give her lot of happiness in life. My Son is 1.5 years old is also suffering from Epilepsy and Global Delay Development. He got his neck holding when he was 1.3 years old. Still he can not sit on his own. Even can't crawl. In his MRI nothing was found. I dont know why god gives such prooblem to childrens.
Lots of hugs and prayers to you as you find your way through it all. I spent a lot of time asking myself why God would do this, but I have faith that our children choose us, rather than we choose them.
Lots of hugs and prayers to you as you find your way through it all. I spent a lot of time asking myself why God would do this, but I have faith that our children choose us, rather than we choose them.
Oh my gosh, your daughter is beautiful!! I can't tell you how much she reminds me of my daughter. My daughter Brooke is also 3 and has Global Developmental Delays and Encephalopathy. I know how you feel and want so badly to give your amazing daughter every advantage and the chance to explore every part of her world. Your doing a great job and thank you for posting this video. It helps to know I am not alone.
my grandson has this...he is almost 3--he's my heart...he dosn't speak either...he too has hypotonia and global developmental delay...on top of sever sensory issues...normal birth..no issues afterwards(sp)...still following clues..trying to solve the mystery..WHY? Sweet, sweet baby!
It is often a challenge to wonder WHY? : ( I spent many hours wondering why Tahli was like how she was... but at the end of the day she is a beautiful little girl who we love to bits!
Your daughter is beautiful. I was very touched by your video. My son is 7.5 months old. We are just starting our journey with hypotonia and nystagmus with neurology appts, MRIs, and Early Intervention to assess the cause and plan of action for our little guy.
I just recently started working at a school for children with special needs, Many of them with GDD.. Every single one of them has stolen my heart. You've had to of been so strong to get this far, you are the kind of person in this world we should all look up to. Tahli is absolutly gorgeous.!!
Tahli is lovely! Blessings to your family.
I am sibling, aunt and family friend of individuals with developmental disorders
(not GDD).
marysueeasteregg 4 months ago
hi , thanks for the video, she is very cute
How is your daughter now? how is she development going?
the reason I asked is because mine has some sort of delays but we dont know what itis yet.
thanks
R
radvinka 9 months ago
shes such an angel..God Bless her and your family.
333pinkitty 10 months ago
Hi everyone! Thank you all so so so much for taking the time to watch and comment on Tahli's video. She is now 4 years old and today she started at a special school's kindergarten program! She is about to get a wheelchair to assist us with taking her out and about as she is still quite floppy. She is happy and loves flowers, her horse and rainbows/colours. She very rarely is seen without a party dress or a dress-up.
Much love to all special families out there xx
82llewkram 1 year ago
We recently have been blessed with identical twin girls, which up until 4 weeks old were viewed as being normal. (12 weeks old now)
I found Ellie not breathing and with no pulse in the family car, after resuscitating her and having both of them admitted to hospital we found them to have severe Hypotonia.
My girls don't have much head movement and don't move their legs unless in the water.
We are young parents and are coming to terms with life with possibly disabled children.
dory4014 9 months ago
Hi everyone! Thank you all so so so much for taking the time to watch and comment on Tahli's video. She is now 4 years old and today she started at a special school's kindergarten program! She is about to get a wheelchair to assist us with taking her out and about as she is still quite floppy. She is happy and loves flowers, her horse and rainbows/colours. She very rarely is seen without a party dress or a dress-up.
Much love to all special families out there xx
82llewkram 1 year ago
Do you ever feel this way? Your montage gives me hope! Thank you for this gift.
bwparker72 1 year ago
Hello! Our wonderful 20 month old daughter also has epilepsy, global delay and hypotonia. She has PT, special education and speech therapy. Like your daughter she sees a host of specialists. All of her blood work, genetic screenings, MRI, PET scan, EEG and spinal taps have come back normal. I am always wondering if everything will be ok. She is so happy and continues to make progress at her own pace, but I am so anxious to know that she will be alright. Will she walk, talk and be able to commu
bwparker72 1 year ago
My Step daughter is 10 & has GDD, she is doing an excellent
job in her high needs class at her special needs school, you & your family are doing a great job I really believe that having a pony & swimming on top of love
& support is what makes a big difference for her, & it looks like it has had the same effect on your beautiful girl too. Well Done to you all.
emmacuppa 1 year ago
my son is 3 also has GDD, he cant walk and talk any word, he cant stand w/o any guide that he can hold on to, i wonder why doctors cant trace where this illness came from, im longing to see my child walking by himself, youre daughter was so blessed.
rmor77 1 year ago
wow, your little baby girl is so precious. you are so blessed and so is she. your video is very touching. we wish her all the best and your family as well with all the courage and support you need. May God bless you all.
ediann 1 year ago
I'm so sorry, I keep trying to reply to you all and it keeps timing out, deleting and messing up the page. So thank you all for sharing your stories, its why I decided to share Tahli's story. The Drs basically gave up on her, but she has proven them wrong! We did get the results of her genetic test which indicate that she also has a genetic issue going on. which was difficult to hear, but we move on for her. I posted a video response with her in it, check it out! Also if you want INBOX and chat!
82llewkram 1 year ago
@82llewkram My son Lucas who is 3,5 years old has global development delay too. In September this year we did a Hyperbaric oxygen treatment (HBOT) in thailnd, and 76 hours later we have tremendous results. Nowdays I see improvments everyday, it really did and are doing a lot for my son. I got to know about HBOT in July this year.
carlssonaustralia 1 year ago
@82llewkram Check out HBOT, worked for my son.
carlssonaustralia 1 year ago
Wow did this video "speek" to me. My son has also been diagnosed with GDD and Epilepsy. He met his milestones at nearly the same times your daughter did - yet everyone has told me all along that he isn't really THAT delayed. It took a month in the hospital due to a seizure that led to respiratory failure at 10 mths to finally get him the help he needed. He's 23 months now, attending Early Intervention and making great improvements - but has a long way to go. Does Tahli still have seizures?
kristencurrent 1 year ago
my son is 3 and has GDD but he's still not wallking yet:( started therapy only at 2 and half years old:( gog for therapy still. not too sur if he can walk:( glad yr daughter can walkl.
fear4bia 1 year ago
@fear4bia
Many thoughts and prayers that your son will be walking soon. A friend of mine had a similar situation and he walked just prior to his 3rd Birthday. I hope that the early intervention helps you all : )
82llewkram 1 year ago
@fear4bia
Many thoughts and prayers that your son will be walking soon. A friend of mine had a similar situation and he walked just prior to his 3rd Birthday. I hope that the early intervention helps you all : )
82llewkram 1 year ago
Dear 82llewkram
What a totally amazing video and how inspiring! I have a 17month old daughter who has been diagnosed with global developmental delay and hypotonia. She is just trying to crawl at the moment and didn't sit up until she was 10 months. I have had to fight to get her help and will keep doing so. Would love to speak with you about all the work you have been doing with your daughter.
msjlall01 1 year ago
@msjlall01
I will INbox you with my email if you wish to talk about it further, always happy to help if I can!!
It is sad that we as parents have to fight and fight to give our children the best chance in life. Someone once called Tahli "high needs" and my response was that I was caring for her no differently than I would have with my other daughter.
Fantastic news that she is crawling! A freind of mine's little one with GDD walked just prior to third Birthday!
82llewkram 1 year ago
deepeshbb, keep the faith. My daughter did not crawl until she was almost 17 months old and didn't walk until she was 26 months old. Get him in Early Intervention and keep working with him and never give up. You can do it.
Brianna2412 1 year ago
@Brianna2412
What an amazing story!!! I agree, Early Intervention makes a HUGE difference...
82llewkram 1 year ago
Beauitiful child. May God bless her and give her lot of happiness in life. My Son is 1.5 years old is also suffering from Epilepsy and Global Delay Development. He got his neck holding when he was 1.3 years old. Still he can not sit on his own. Even can't crawl. In his MRI nothing was found. I dont know why god gives such prooblem to childrens.
DEEPESHBB 2 years ago
@DEEPESHBB
Lots of hugs and prayers to you as you find your way through it all. I spent a lot of time asking myself why God would do this, but I have faith that our children choose us, rather than we choose them.
82llewkram 1 year ago
@DEEPESHBB
Lots of hugs and prayers to you as you find your way through it all. I spent a lot of time asking myself why God would do this, but I have faith that our children choose us, rather than we choose them.
82llewkram 1 year ago
I love this video! It's good to see this cute baby trying her best to learn how to face the world.
LastPrince17 2 years ago
Thank you!!! She's lmost 3.5 now, this video was done for her 3rd Birthday and she is going great guns!
82llewkram 1 year ago
Oh my gosh, your daughter is beautiful!! I can't tell you how much she reminds me of my daughter. My daughter Brooke is also 3 and has Global Developmental Delays and Encephalopathy. I know how you feel and want so badly to give your amazing daughter every advantage and the chance to explore every part of her world. Your doing a great job and thank you for posting this video. It helps to know I am not alone.
Brianna2412 2 years ago
my grandson has this...he is almost 3--he's my heart...he dosn't speak either...he too has hypotonia and global developmental delay...on top of sever sensory issues...normal birth..no issues afterwards(sp)...still following clues..trying to solve the mystery..WHY? Sweet, sweet baby!
yankeegurl62 2 years ago
It is often a challenge to wonder WHY? : ( I spent many hours wondering why Tahli was like how she was... but at the end of the day she is a beautiful little girl who we love to bits!
I wish your Grandson and your family well! <3
82llewkram 2 years ago
you have a beautiful daughter and family may your life always be blessed with happiness
MELISSA3536 2 years ago
Thank you very much Meliisa, may your life also be blessed : )
82llewkram 2 years ago
Your daughter is beautiful. I was very touched by your video. My son is 7.5 months old. We are just starting our journey with hypotonia and nystagmus with neurology appts, MRIs, and Early Intervention to assess the cause and plan of action for our little guy.
karskaren 2 years ago 2
I just recently started working at a school for children with special needs, Many of them with GDD.. Every single one of them has stolen my heart. You've had to of been so strong to get this far, you are the kind of person in this world we should all look up to. Tahli is absolutly gorgeous.!!
karajade91 2 years ago 3
Thank you so much for watching my video and taking the time to comment, I appreciate it so much!
They definantly are special little people, and special people who take the time to get to know them for who they are, not what they are.
I wish you all the best in your new career!!!
82llewkram 2 years ago
i was so touched by your video. your daughter is so lovely (:
mentholathumwooha 2 years ago 6
Thank you so much for your lovely comment <3
82llewkram 2 years ago
@mentholathumwooha Thank you so much!!
82llewkram 1 year ago
Thank you very much for watching and taking the time to comment : )
82llewkram 2 years ago