Care 4 Dystonia

[CherylSpeaksOut]

pics of people with dystona would be appropropriate, I have one of me so far, and LilOne has excellent one, unfortuantly i have lalot more than dysotnai. thx 4 spreading word to other links & some infomraiton, it is still helpful

[rooarcamun]

Hello, thank you for you feedback. I believe the world goes around with its eyes wide shut and it helps when we can really see the truth. This is a lovely video but I found that it just didnt geve me any real information. But having said that, it did send me to have a look at other links so I thank you for that. Regards Roo

[rooarcamun]

What is the link between all these flowers and dystonia? Organizations like this that supposedly represent people who have this disease should show the reality rather than mythologising the truth with pretty flowers and fancy words. As long as this kind of dishonesty exists nothing constructive will be done to assist the people who are affected by this debilitating disease.

[ResilientLilOne]

If You want to see the "Reality" of Dystonia check out my video's "Putting A Face On Dystonia" and "I Am Dystonia" And pass them on to Your family and friends because You never know who'll You'll be helping even if You Yourself do not have Dystonia as there are an estimated 10,000 people undiagnosed, meaning there are 10,000 people sufffering alone and that is so sad because they aren't alone, there are an estimated 300,000 in the US with Dystonia, 100,000 of those are childern.