Added: 2 years ago
From: DonKCalder
Views: 1,503
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  • Good watching you! I have my reservations about CCSVI, but do like the theory..... I am about to shift from Avonex onto Tysabri so here's hoping 2010 will be good for me too! Tracey x

  • I think you are right, "2010 is going to be a good year." I am thinking about switching from Avonex to Tysabri, so I followed your videos through your journey. I think I will try it while I wait for the CCSVI research to be completed in Buffalo, NY. Someone recommended an artery cleanse to me. I haven't noticd a change yet, but it's worth a try while I wait for the Liberation Treatment. Thanks for the videos. They were very helpful.

  • Congrats on your 21st Tysabri infusion. Intensive aerobic exercise as soon as possible after your infusion will help mobilize even more stem cells into your blood. While studies show 6 to 7 fold improvements in stem cell mobilization with Ty, increased blood flow helps get those stem cells out of the bone marrow. Continued health with whatever MS therapy u choose.

  • Since learning about CCSVI I also went on aspirin strait away, however adding water, or horse chestnuts is something I hadn't thought about, thanks for the tips. Also rigorous exercise might be a good idea as athletic hearts tend to push blood through arteries with greater force. I am also lucky I've been on a low saturated fat diet since my MS diagnosis which I think also would help prevent blood clots.

  • One more time, SO VERY VERY GOOD!!! Too much water gave me an increased fiblirilation...

  • Tell Dr Spira at the Sydney POW

  • Good for you mate, we'll get to the bottom of it.

  • I totally agree with you, Don! This is going to be a big year for us! MS needs to watch out! haha :)

    Best wishes to you in 2010!

  • I have always thought my issues were heart related as well. To the point, my doctor ordered a heart monitor.

    Damaged veins cause circulation issues.

    Circulation issues cause less oxygen to the brain.

    Less oxygen in the brain causes brain fog, extreme fatigue, dizziness, weakness, shortness of breath, high blood pressure, low blood pressure, heart palpitations, headaches, tingling, on and on...

    Just google low oxygen in the brain.

    It really makes sense!

    Thanks for the video.

  • Great Video Don,

    I have had since my first relapse very bad neck spasticity. It feel like my head and neck is being pulled back and I feel like my brain isn't getting enough oxegen.

    Was in a head on car accident when I was 16 that cause whiplash then had a bad ice skating acccident that slammed me head and twisted my neck when i was 17.

    Makes you wonder if any of these things caused damage to the viens in our necks?

    I do drink tons of water and take supplements.

    Thanks,

    Andrea

  • Yes, me too with this hit, my head and suffered a whiplash type effect then "bingo" 2 weeks later Optic Neuritis - I posted this as a comment on Trev in the UKs site. Come off whilst waterskiing way back where I twisted my neck as well.

  • Fantastic vid Don, I have been talking to people about some of these things. Esp the heart stuff. I am on Tysabri also - but sadly not stable :( I thought about the water thing too and have been drinking more - seems logical. Fortunately my Neuro seems interested. I am totally with you with the Aussie group - I was thinking about setting up a page myself so was thrilled to see you have done it! Top job Kerri

  • thanks everyone... i am taking 100mg Aspirin and Horse chestnut,

    One thing to is that we are told by neuro's to have Aspirin two week about we get on a plane to stop clots. so why are we not told to have them all the time?

    i did hear about that rick.. my neuro is at the Royal Melbourne and i will be seeing him on the 29th but i don't suffer that much pain to need in.. but i really hope it works for people that do tho...

  • Thanks for the great video Don,

    What is the aspirin and supplements that you are taking? I didn't catch what you said. I have spent the last 10+ years doing things to better myself without taking all the drugs. I have been on Avonex for 13 years, but that is all for the drugs that I have taken. A lot of the things that you mentioned sound so familiar.

    Take care,

    Bill

  • I agree Don. I think 2010 will be a break-through year for CCSVI. I, too, will continue to take Tysabri until I get the vein stints.

  • Hi Don, nice to see you back again. Sounds like a good idea about taking asprin. Might try it. I'm seeing my doc some time this week so I'll be pressing him about info on CCSVI. Think it's a good idea you have about sharing info about which neurologists are accepting of this and whether we can be tested etc. Did you hear that there's a neuro at the Royal Melbourne Hosp. who's applying to make medical marijuana (sativex) available to MS patients in Vic.

    Take care, Rick.

  • Great Don hope soon we are getting tested

    ,take the same stuff like you + lots of Fish Oil to fight the the Arthritis and the inflammation and have to say it mad a different in the way I walk 3 table spoon in the morning and 3 in the evening good stuff

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