<3 believed to have mito-saw at least one familar face in the vid and so grateful for the awareness you're spreading. J tube fed, wheelchair, IV fluids, central lines, sepsis, many battles inside one larger war.
My baby was diagnose when she was 3 moths old she was in the G.I unit hers is in her liver ..this was back in march of 2011 & she is know 6 months old and still fighting 6/21/11 for some reson god gave us these litlle angels i enjoy every day with my sweet baby girl ....
Me and my sister were born with mitochondrial disease. My sister lost her battle to Mitochondrial Disease on July 25th , 2010 at the age of 28 . I am hoping 1 day their will be a cure so no child has to die at such a young age from this disease.
I found this video from someones blog. I wanted to learn more and the little boy at 1 min. 51 seconds looks exactly like my son. I paused it and asked him who it was and he said "Me when I was a baby?" My other 3 all thought it was him.
I am going to research this, and hopefully I can help raise awareness. No parent or child, or person should have to suffer, and this video is tasteful, and informative. You did and excellent job. You did something great to help others.
Awesome video- very well done! I've seen so many of these - this one is VERY well done- excellent music, mito facts, photos- everything! Thank you!!! I lost my child to mito - my heart aches for all these families represented in this video - thank you!
Thank you for creating this montage and helping to create more awareness. There is a very sweet little boy in my life who has Leigh's Disease and there is so little awareness out there...
<3 believed to have mito-saw at least one familar face in the vid and so grateful for the awareness you're spreading. J tube fed, wheelchair, IV fluids, central lines, sepsis, many battles inside one larger war.
FlyinHyy 2 months ago
TThanks for the video well done my baby died at age 2 on Oct 15,2008 and now I might lose my 6 year old too :(
mrsjackiem28 7 months ago
Wonderful video, my son was diagnosed with Alpers Disease on monday and this video inspired me to keep up hope!!! Thank you.
goobersx3 7 months ago
Very well done. Thank you so much on behalf of my son who has mito. THANK YOU!
mikezeelen 7 months ago
My baby was diagnose when she was 3 moths old she was in the G.I unit hers is in her liver ..this was back in march of 2011 & she is know 6 months old and still fighting 6/21/11 for some reson god gave us these litlle angels i enjoy every day with my sweet baby girl ....
0909eg 8 months ago
this video reminds me of my son who lost the battle on Aug. 13th 2010 :( thank you for spred of awareness :)
dramaqueen4490 9 months ago
This video touches me so deep in the heart.
I am a mother and my heart goes to all of the sufferors and their families
DoraVieira1 1 year ago
Our daughter Audrey passed way at 6 from mito encythelopathy, thanks for the video.
audreybudda 1 year ago
Sorry, had to stop the video, too sad to watch.
somethinggoeshere1 1 year ago
Me and my sister made a video called Mito Sister's last year that we posted on youtube .Please watch it.
TheBne123456 1 year ago
Me and my sister were born with mitochondrial disease. My sister lost her battle to Mitochondrial Disease on July 25th , 2010 at the age of 28 . I am hoping 1 day their will be a cure so no child has to die at such a young age from this disease.
TheBne123456 1 year ago
I found this video from someones blog. I wanted to learn more and the little boy at 1 min. 51 seconds looks exactly like my son. I paused it and asked him who it was and he said "Me when I was a baby?" My other 3 all thought it was him.
I am going to research this, and hopefully I can help raise awareness. No parent or child, or person should have to suffer, and this video is tasteful, and informative. You did and excellent job. You did something great to help others.
MsDream76 1 year ago
Awesome video- very well done! I've seen so many of these - this one is VERY well done- excellent music, mito facts, photos- everything! Thank you!!! I lost my child to mito - my heart aches for all these families represented in this video - thank you!
RoswellMom 1 year ago
Beautifully done! Thank you so much for your efforts. This kind of presentation is what helps people really understand.
kynvi 1 year ago
Thank you for creating this montage and helping to create more awareness. There is a very sweet little boy in my life who has Leigh's Disease and there is so little awareness out there...
luxuriousmama 1 year ago
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luxuriousmama 1 year ago
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luxuriousmama 1 year ago
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luxuriousmama 1 year ago
Oh Amber, that was so touching. Thank you so much for sharing some information about this disease.
(HeatherSue from the Dis)
hkite 1 year ago