I think this should be on tv or they should make movie about marfan syndrome the people who have this you guys are handsome and beautiful the things you do is awsome and good luck and merry chirstmas and happy new year. charlie singh not charlie sheen
Very True, Sizzlez, and rparker, 3 out of the 7 brothers I was part of were affected, a family wide malady which was devastating. Thank you for you comments, and if you need more information or support with Marfan Syndrome be sure to visit Marfan.org.
I do hope they can get this program on Public Television. So very many of those who have Marfan's are depressed, and awareness will help them. Understanding will help them. Acceptance will help them. My grandson is 6 and has already had eye surgery because his lenses have displaced because of Marfans. He has a long road ahead of him. I want everyone to see this movie so they understand what these people are dealing with.
I think this should be on tv or they should make movie about marfan syndrome the people who have this you guys are handsome and beautiful the things you do is awsome and good luck and merry chirstmas and happy new year. charlie singh not charlie sheen
gpgsingh12 2 months ago
Very True, Sizzlez, and rparker, 3 out of the 7 brothers I was part of were affected, a family wide malady which was devastating. Thank you for you comments, and if you need more information or support with Marfan Syndrome be sure to visit Marfan.org.
All the best.
John
ciccseven 3 months ago
I do hope they can get this program on Public Television. So very many of those who have Marfan's are depressed, and awareness will help them. Understanding will help them. Acceptance will help them. My grandson is 6 and has already had eye surgery because his lenses have displaced because of Marfans. He has a long road ahead of him. I want everyone to see this movie so they understand what these people are dealing with.
sizzlez1963 7 months ago
My younger brother and I have this malady
rparker0 1 year ago