I also am a mom that has a 10 yr old child recently diagnosed with EE. The coughing and vomiting is terrible and she has developed shaking. Ericas color drains from her and she takes on a sickly looking yellowish color. She is 43lbs and wears a size 8. I am so grateful for these videos. They have helped family and friends understand what we are going through and makes them aware not to help her cheat on her diet.
My 11 y/o son was diagnosed with Eosinophilic Esophagitis in Oct 2010 after many years of unexplained vomiting. The scariest thing is that my son vomits at night, when he sleeps. When he was younger he wouldn't even wake up, & I spent many sleepless nights hoping he wouldn't choke on his own vomit! Thank you for this video. I think it will help people who don't live with this disease understand just what our kids are going through! From one mom to another...THANK YOU!!!
My son was diagnosed with Eosinopholic Gastroenteritis at age 17. At age 19 it traveled to his esophagus. He is limited to about 5 foods that he can consume. He is currently attending college to major in Nutrition. He plans on going to medical school to become a GI doctor. He wants to find a cure. There is a reason for why God has chosen him to be inflicted with such a horrific disease. Good luck Andrew in all you do! I love you!
I'm a mom of an eosinophilic kid. I can say that this video saved my life, my sanity, when nobody could believe, even myself. After that everything become clear and after an endoscopy, he was diagnosed.
my little boy thomas has eosinophilic collitus i thought i was on my own thank you for letting me know im not .The cakes of ice made me cry so much this is our life god bless all who have to enter this world in pain !!!!i love my boy please find a cure and make him better his mum Lisa x
Hi Lisa, I am English (living in Arizona). Been here 11 years. My 8 year old has EE (esophagus). I have the luxury of having UK and US doctor advice. Must admit US is more advanced. We have a strong support group, I feel very blessed. I've met kids younger and older with this disease. They are AMAZING! My heroes. Email anytime...we are going to Great Ormond St in summer next year...
I have Hyper EE. Mine first started when I was 28, I am currently 32. I am treated by The Mayo Clinic in Rochester. If you have any questions please feel free to message me and I will do my best to help as I have extensively dealt with EE first hand.
I am a teenager with both EE and recently diagnosed Eosinophilic gastroenterits that was misdiagnosed as crohns. docters are still puzzled some of complications i have suffured and are started to suspect that i may also have HES. life with a horrible stomach sucks. this video does a great job showing that.
thankyou for sharing this wonderful video...my 4yr old son has eosinophilic colitis thankfully he is in remisson..unfortunatly here in uk there is very little info on it and noone you speak to has even heard of it...
This is a wonderful video. I was wondering about eosinophilia in the blood because mom has a lot of eosinophilia in her blood. Something like 1400 in her blood and the maximum was 500 and the the doctor never said nothing to her about it. I was curious so I thought I would do my own research on it.
My 2 1/2 year old has Eosinophil Colitis and was diagnosed at 15 months. he is in remission now and we are thankful for every day. This video has helped up share what life is like with this disease to our friends and family. Thank you!
I have this disease and this is probably the most amazing video ive ever seen on youtube , not only about these disorders , but period. Thank you for it
This really is amazing- and tells so much with so few words. My friend's daughter has this disease, and it gave me a whole new perspective on what they're going through.
I came to see Jesse in the video. I have a son with celiac, multiple allergies and intolerances, immune deficiency, PDD-NOS, SID/SPD, formerly FTT but thankfully no longer. I was in tears by the time I saw the cakes. This video is beautiful, sad and powerful at the same time. Keep reaching out. People are listening, people are being helped, and miracles do happen.
I also am a mom that has a 10 yr old child recently diagnosed with EE. The coughing and vomiting is terrible and she has developed shaking. Ericas color drains from her and she takes on a sickly looking yellowish color. She is 43lbs and wears a size 8. I am so grateful for these videos. They have helped family and friends understand what we are going through and makes them aware not to help her cheat on her diet.
JanuaryBaby37 2 weeks ago
Great video for a horrible disease. It has totally changed our family. It is hard on everyone. God Bless these children.
kelldog20 9 months ago
this is a great video although i cryed,its a frightening reality and there isnt enough known about this in the UK.
fab24505 11 months ago
My 11 y/o son was diagnosed with Eosinophilic Esophagitis in Oct 2010 after many years of unexplained vomiting. The scariest thing is that my son vomits at night, when he sleeps. When he was younger he wouldn't even wake up, & I spent many sleepless nights hoping he wouldn't choke on his own vomit! Thank you for this video. I think it will help people who don't live with this disease understand just what our kids are going through! From one mom to another...THANK YOU!!!
jswihart06 1 year ago
My son was diagnosed with Eosinopholic Gastroenteritis at age 17. At age 19 it traveled to his esophagus. He is limited to about 5 foods that he can consume. He is currently attending college to major in Nutrition. He plans on going to medical school to become a GI doctor. He wants to find a cure. There is a reason for why God has chosen him to be inflicted with such a horrific disease. Good luck Andrew in all you do! I love you!
tiffany123459 1 year ago
I'm a mom of an eosinophilic kid. I can say that this video saved my life, my sanity, when nobody could believe, even myself. After that everything become clear and after an endoscopy, he was diagnosed.
fmartinellij 1 year ago
my little boy thomas has eosinophilic collitus i thought i was on my own thank you for letting me know im not .The cakes of ice made me cry so much this is our life god bless all who have to enter this world in pain !!!!i love my boy please find a cure and make him better his mum Lisa x
0869dancer 2 years ago
Hi Lisa, I am English (living in Arizona). Been here 11 years. My 8 year old has EE (esophagus). I have the luxury of having UK and US doctor advice. Must admit US is more advanced. We have a strong support group, I feel very blessed. I've met kids younger and older with this disease. They are AMAZING! My heroes. Email anytime...we are going to Great Ormond St in summer next year...
myfab2boys 2 years ago
such a powerful video!
jakivalensilauper 2 years ago
my friends son was recently diagnosed with this disorder.. this video was beautifuly done.
erins2ndbaby 2 years ago
I have Hyper EE. Mine first started when I was 28, I am currently 32. I am treated by The Mayo Clinic in Rochester. If you have any questions please feel free to message me and I will do my best to help as I have extensively dealt with EE first hand.
jetblack2123 2 years ago
I am a teenager with both EE and recently diagnosed Eosinophilic gastroenterits that was misdiagnosed as crohns. docters are still puzzled some of complications i have suffured and are started to suspect that i may also have HES. life with a horrible stomach sucks. this video does a great job showing that.
Missfrekles17 2 years ago
thankyou for sharing this wonderful video...my 4yr old son has eosinophilic colitis thankfully he is in remisson..unfortunatly here in uk there is very little info on it and noone you speak to has even heard of it...
nadiainkster 2 years ago
This is a wonderful video. I was wondering about eosinophilia in the blood because mom has a lot of eosinophilia in her blood. Something like 1400 in her blood and the maximum was 500 and the the doctor never said nothing to her about it. I was curious so I thought I would do my own research on it.
mostacioli1982 3 years ago
My 2 1/2 year old has Eosinophil Colitis and was diagnosed at 15 months. he is in remission now and we are thankful for every day. This video has helped up share what life is like with this disease to our friends and family. Thank you!
Jiggywhit 3 years ago
I have this disease and this is probably the most amazing video ive ever seen on youtube , not only about these disorders , but period. Thank you for it
ens517 3 years ago
This really is amazing- and tells so much with so few words. My friend's daughter has this disease, and it gave me a whole new perspective on what they're going through.
Thank you.
talithaarise 4 years ago
I came to see Jesse in the video. I have a son with celiac, multiple allergies and intolerances, immune deficiency, PDD-NOS, SID/SPD, formerly FTT but thankfully no longer. I was in tears by the time I saw the cakes. This video is beautiful, sad and powerful at the same time. Keep reaching out. People are listening, people are being helped, and miracles do happen.
braethane 4 years ago