OMG, I couldn't hold my tears. Is it ok for me to post this on my Facebook wall just to spread the word. Keep up the faith N surely, a cure would be found one day. May his gentle soul RIP.
Man, I just found out someone I know is diagnosed with ALS, and I was dumbfounded.
This story is truly touching. It's remarkable that after 10 years, they had a child. I admit I cried. For anyone interested in reading clinical trials, you can check them out at "ClinicalTrials.gov"
my moms boyfriend has just been diagnostic with als and hes almost in the 2nd stage and i dont get y it happened to such a good man and i dont get why the meds are so much
We need your help to STOP ALS. Not raising awareness & funding ALS will not receive the research necessary to find a cure. It will continue to strike down every person.
We believe that Phase 2 drugs showing safety & efficacy, such as Dexpramipexole, & NP001, as well as off label wf10, should be made available to us through Compassionate Use Now. PLEASE SIGN THE Change.org PETITION. Corporate Citizens: Authorize and Make Available Compassionate Use Drugs for ALS Patients NOW!
My father passed away from ALS. My chiropractic mentor has had 3 patients with ALS become healed after specific scientific chiropractic adjustments on the atlas (first bone in the neck that surrounds the brain stem). By removing the interference off the brain stem, the symptoms slowly went away (took over 6 months of time and repetition with the adjustments). Every nerve in the body goes through the brain stem and the pressure there causes the nerves to atrophy over years of pressure!
My dad has ALS. I help my mother take care of him. I try to make it to his house every day to do his stretches and range of motion. But it's tearing me up as I see him degress daily. :( ALS is just horrible...
Amyotrophic Lateral Sclerosis (ALS) aka: Lou Gehrigh's disease, is a relentlessly progressive paralyzing disease - most patients die within 2-5 yrs.
ALS is a death sentence w/no end in sight & the only way to further push for research is to get the word out. There is no known cure for ALS, but you can easily bring a thousand people the seed of hope.
PLEASE HELP SPREAD PUBLIC AWARENESS IN THE FIGHT AGAINST ALS AND HELP STRIKE OUT AND DEFEAT ALS.
I'm sitting here with tears in my eyes. I'm a guy, 20 years old with veery bad self-confidence. I'm struggling with an ongoing depression but I have recently began to feel better and better. It's all in ones head. I need to think about positive things and you know what, it does help me alot. When I see this video I get sad. Sad because a very fine husband and father got this horrible desease. It is a reminder to really enjoy everything that is life. Everyday all the time! One day it is over...
Unfourtunatly ALS is a genetic disease meaning it progresses as you age so when ur brain tells your body to age it also tells your nerves to stop working so your brain as keeping you alive is also destructing your life. You cannot cure something like this without removing a vital piece of the brain. You can add stemcells but they will slowly deteriate as much as your original cells have.
@DRAGO6596 then why does it usually start at around 50 years old???thats super starnge it should be different for everyone and in most cases is but onset usually happenes right around 50 yrs or so...
@DRAGO6596 Dont listen to this crap. DRAGO doesnt know much. Only 1 to 10% of ALS are genetic link. You are CONTRADICTING yourself. How can you link age with genetic? ALS is loss of MOTOR neurons from CORTICOSPINAL tract down to the PNS. So what you said about - Removing a vital piece of the brain// LMFAO! Dude you just wasted my time.
I have just volunteered to help PALS. I want to help in the fight against this disease. I wish I had money to help in the research. I ask those who have, to support. Thank you.
The ALS Assoc did so much for my brother and my family right up to his death. He was given so many things to keep him in touch with the outside world which meant so much to him. Please donate what you can.
My father is named Tom also. He just began to have symptoms 3 months ago and is degenerating rapidly. I am trying to be brave but I am so terrified, because Dad needs to remain positive. All I know is that if I were the patient, I don't know what I would do. I hate the way the disease robs you of your physical abilities and leaves the mind intact
Deeper cannot one go.A swedish host from TV wrote a book about her remaining life.Marks of her daily.She had her book published after her death.In finnish it was called "Kuka voi airoitta soutaa".Her first name was Ulla-Carin.Sorry do not remember more.
damnit! can we please find a cure for this disease. I can't imagine how the body fails and the mind remains just as strong as ever. Bless you Tom and to all those families of/patients who have ALS!
Part 2. I had no idea what or how to blogg. Today, I sat long enough to figuire out how to do that. I started a blog page. ALS/Continuing Toms Dream. I hope to see a miracle from God. A miracle that will fullfill Toms Dream. To find a cure for ALS. Pass on the love and strength that I get from God. The hope and love that Tom lived for everyday, and my daughter and I continue to do so. We want to share that. Thank you, Jacquie
Hello everyone, this is Jacquie. I appologize for the LONG delay in responding. I had NO idea these comments were here. First of all, thank you for all the kind words. Secondly, my prayers and thoughts are with you all that are dealing with this dreadful disease. Since Tom passed over 5 years ago, I have worked for The ALS Association in CA for one year. Now I am solo. Not quite sure what to do about what I have experienced and know. Reading all this has inspired me.
My sister died last year, but otherwise than your husband she was full of fear. She died with horror in her eyes. It is helpful for me to see other people stand this cruel disease.
Astaxanthin (ASTA-ZAN-THIN), the "King of the carotenoids!"
The most potent Antioxidant available to prevent neuro degerative diseases.
I'm so excited about this natural health nutrient I heard from the Dr. Oz Show on TV on 1/18/11, when he interviewed famous/controversial holistic medicine Dr. Joseph Mercola. I will recommend it to all my friends And family and anyone interested.
I am so sorry you had to deal with this in your family. We had to deal with it in ours and I wish there was more I could do to help the people living with this disease. My brother had it and it was hard to watch the whole thing unfold. They are the biggest heros in my eyes.
I lost my brother to ALS Sunday December 5, 2010.My heart is broken....I know that he is no longer suffering in heaven. Thank you for this beautiful video
@PeopleNeed2LoveMore Thank you that means so much to me.I'm dealing with it one day at a time. I really need his wisdom right now. I'm having some trails. Thank you again for your kindness
Teozagar Many ALS patients are cared for at home till they die but many are left in hospitals and worse their are ALS patients begging to have nursing homes where they can get special care that normal nursing homes can't provide so many are left in hospita. see ''The Leonard Florence Center For Living" "ALS Adult Center For Living" These patients don't have family willing to care for them so they are begging to have specialty care nursing. I am a disabled professional fundraiser
I am a nursing student and i am studying ALS right now. This video was very heart touching and I have learned a lot from your video! I envy your family, god bless.
my dad was just diagnosed 3 days ago...I'm sixteen and I have a little sister and brother. Its hard to think about the future at this point, and its even harder to see that my brother at 10 still does not completely understand. This video reassured me whatever happens its going to turn out ok. Thank you for this so much and please keep my dad and my family in your prayers.
Thank you for bringing this video:to all of us. It shows us what this disease is about and how debilitating it is for the patient as well as the family to bear it. It certainly took courage & love to make his last few days conforted & blessed. It is with tears in my eyes that I write this, because my mother was just diagnosed w/what I suspected already and I hate it. I just hope I can make her last living years most memorable for her as you did & with God's help + THIS BEAST WILL BE BEATEN!
I know this pain of loss, and I have lost 3 that were very close to me. My own brother was very painful as it is for so many. My heart goes out to all, and it's sad because it takes so many good people when they have so much to live for. May God be with you all.
i searched for this on here because my husband fears that he will get this. His hands shake all the time, and he has weakness in his left leg. I hope they find a cure. RIP Tom.
Thank you for posting this video. Tom left as a champion and greatly loved and respected for the man he was and the good sport. He and his wife were a perfect match because they are both champions. We don`t have to look far to see someone with greater challenges than our own. Thanks for Tom and his wife showing others how to be good sports and winners. There is no diseases in heaven, no tears, no sorrow, only love.
I was thinking of a cure, and I thought, what about exposing the body to high temperatures for a long ammount of time to kill off any bacteria or virus. Maybe a Steam Room at 40 Degrees, Hot yes, but it might just work. Because any bacteria dies at above 37 Degrees.
It would be life threatening but I'm sure it could work with precedure.
so many people don't know when they see a PALS... hate that even I used to think they had some other issue; were slow, etc. education & awareness is so important.
I hope everyone learns how live & love from this story....My mom passed In Dec. from ALS. She was the 5th person in our family, so all of us are learning to value every day because ALS will probably continue to strike us unless a cure is found. Please support this foundation!!
OMG, I couldn't hold my tears. Is it ok for me to post this on my Facebook wall just to spread the word. Keep up the faith N surely, a cure would be found one day. May his gentle soul RIP.
adamski03able 8 hours ago
Man, I just found out someone I know is diagnosed with ALS, and I was dumbfounded.
This story is truly touching. It's remarkable that after 10 years, they had a child. I admit I cried. For anyone interested in reading clinical trials, you can check them out at "ClinicalTrials.gov"
Rest in peace Tom. The family is beautiful.
goingplaces11 6 days ago
my moms boyfriend has just been diagnostic with als and hes almost in the 2nd stage and i dont get y it happened to such a good man and i dont get why the meds are so much
JSchlongMasterDong 2 weeks ago
This has been flagged as spam show
We need your help to STOP ALS. Not raising awareness & funding ALS will not receive the research necessary to find a cure. It will continue to strike down every person.
We believe that Phase 2 drugs showing safety & efficacy, such as Dexpramipexole, & NP001, as well as off label wf10, should be made available to us through Compassionate Use Now. PLEASE SIGN THE Change.org PETITION. Corporate Citizens: Authorize and Make Available Compassionate Use Drugs for ALS Patients NOW!
BEAT ALS!!!
RAINBOWLIZY333 1 month ago
My father passed away from ALS. My chiropractic mentor has had 3 patients with ALS become healed after specific scientific chiropractic adjustments on the atlas (first bone in the neck that surrounds the brain stem). By removing the interference off the brain stem, the symptoms slowly went away (took over 6 months of time and repetition with the adjustments). Every nerve in the body goes through the brain stem and the pressure there causes the nerves to atrophy over years of pressure!
cmcmahan29 3 months ago
My dad has ALS. I help my mother take care of him. I try to make it to his house every day to do his stretches and range of motion. But it's tearing me up as I see him degress daily. :( ALS is just horrible...
AcidBong 3 months ago
This has been flagged as spam show
Amyotrophic Lateral Sclerosis (ALS) aka: Lou Gehrigh's disease, is a relentlessly progressive paralyzing disease - most patients die within 2-5 yrs.
ALS is a death sentence w/no end in sight & the only way to further push for research is to get the word out. There is no known cure for ALS, but you can easily bring a thousand people the seed of hope.
PLEASE HELP SPREAD PUBLIC AWARENESS IN THE FIGHT AGAINST ALS AND HELP STRIKE OUT AND DEFEAT ALS.
RAINBOWLIZY333 3 months ago
I'm sitting here with tears in my eyes. I'm a guy, 20 years old with veery bad self-confidence. I'm struggling with an ongoing depression but I have recently began to feel better and better. It's all in ones head. I need to think about positive things and you know what, it does help me alot. When I see this video I get sad. Sad because a very fine husband and father got this horrible desease. It is a reminder to really enjoy everything that is life. Everyday all the time! One day it is over...
Spyflugan91 3 months ago
@Spyflugan91 Same for me i'm depressed about it. We'll all have to enter that stage sooner or later. To be honest the clock is my only concern.
revolutionaryivankov 2 months ago
@ChronicFatigueSyn yup G W Bush blocked stem cell research his whole presidency...hopefully that is changing now with new leadership..
TubeTrollster 4 months ago
Unfourtunatly ALS is a genetic disease meaning it progresses as you age so when ur brain tells your body to age it also tells your nerves to stop working so your brain as keeping you alive is also destructing your life. You cannot cure something like this without removing a vital piece of the brain. You can add stemcells but they will slowly deteriate as much as your original cells have.
DRAGO6596 4 months ago
@DRAGO6596 then why does it usually start at around 50 years old???thats super starnge it should be different for everyone and in most cases is but onset usually happenes right around 50 yrs or so...
TrollRaper69 4 months ago
@DRAGO6596 Dont listen to this crap. DRAGO doesnt know much. Only 1 to 10% of ALS are genetic link. You are CONTRADICTING yourself. How can you link age with genetic? ALS is loss of MOTOR neurons from CORTICOSPINAL tract down to the PNS. So what you said about - Removing a vital piece of the brain// LMFAO! Dude you just wasted my time.
piccololiang 3 months ago
I have just volunteered to help PALS. I want to help in the fight against this disease. I wish I had money to help in the research. I ask those who have, to support. Thank you.
samansepehr 4 months ago
yahoo? anyone? anyone?
SloshTownLIVE 5 months ago
yeah ..Intelligent Design
jamesxoxbond 7 months ago
@jamesxoxbond fuck off
volunteernation16 5 months ago
The ALS Assoc did so much for my brother and my family right up to his death. He was given so many things to keep him in touch with the outside world which meant so much to him. Please donate what you can.
PIRTEKM3 7 months ago
EEEEEEWWWWWW R.I.P TOMMY I HOPE THIS IS CURED LOL
BossMonty 7 months ago
This has been flagged as spam show
ALS may shorten life, it does not have to destroy it. Please do not despair!
In an unprecedented breakthrough, a compound has been discovered that promotes the growth of new mitochondria structures within aging cells!
Google:
Life Extension Magazine February 2011 Our Aging Mitochondria
Pyrroloquinoline Quinone Stimulates Mitochondrial Biogenesis.
RAINBOWLIZY333 7 months ago
My father is named Tom also. He just began to have symptoms 3 months ago and is degenerating rapidly. I am trying to be brave but I am so terrified, because Dad needs to remain positive. All I know is that if I were the patient, I don't know what I would do. I hate the way the disease robs you of your physical abilities and leaves the mind intact
katsonya 8 months ago
most diseases have a cure...but most cures are simple and cheap leaving no income for pharmeceuticals.
JennelleBelle 9 months ago
ALS is doing all they can to find a cure. Is ALS trying to find the cause?
cowdrey5367 9 months ago
Deeper cannot one go.A swedish host from TV wrote a book about her remaining life.Marks of her daily.She had her book published after her death.In finnish it was called "Kuka voi airoitta soutaa".Her first name was Ulla-Carin.Sorry do not remember more.
Kunniatonpaskiainen 8 months ago
this disease is awfulll it can happen to anyone. japan or china should have find a cure for this in 2011.
xzaxx 9 months ago
Where Can I buy this video?
frandualmeida 9 months ago
Your a classy fabulous lady....
funkyflights 10 months ago
damnit! can we please find a cure for this disease. I can't imagine how the body fails and the mind remains just as strong as ever. Bless you Tom and to all those families of/patients who have ALS!
kendrat199 10 months ago 2
Part 2. I had no idea what or how to blogg. Today, I sat long enough to figuire out how to do that. I started a blog page. ALS/Continuing Toms Dream. I hope to see a miracle from God. A miracle that will fullfill Toms Dream. To find a cure for ALS. Pass on the love and strength that I get from God. The hope and love that Tom lived for everyday, and my daughter and I continue to do so. We want to share that. Thank you, Jacquie
62JFrench 11 months ago 2
Hello everyone, this is Jacquie. I appologize for the LONG delay in responding. I had NO idea these comments were here. First of all, thank you for all the kind words. Secondly, my prayers and thoughts are with you all that are dealing with this dreadful disease. Since Tom passed over 5 years ago, I have worked for The ALS Association in CA for one year. Now I am solo. Not quite sure what to do about what I have experienced and know. Reading all this has inspired me.
62JFrench 11 months ago 3
Mrs French ,part 2
Tom was very unlucky to have ALS but he was very lucky to have you who took
care of him.
I was shocked that a horror movie where 6 people were murdered by the oldest
son and the 2 nd family who bought the house lived the horrors and only was
able to sell book and movie for only $300,000.
I heard the nursing home cost $38,000,000. to build. May I ask
I hope you did not get only $300,000. fo for the movie and book.
The391956 11 months ago
Mrs French you are a very sweet lady to stay with Tom and
ALS and paying for his care. This guy who ended in the
very nice nursing home you movie mind games funded
he was lucky to be in such a nice nursing home with
medicaid and a girlfriend who dumped him since he
considered himself lucky to be in a nice nursing home.
You are very sweet to donate the money to the nursing
home for ALS and MS patients.
Tom was so lucky to have you with such a big heart
keeping him at home.
The391956 11 months ago
My sister died last year, but otherwise than your husband she was full of fear. She died with horror in her eyes. It is helpful for me to see other people stand this cruel disease.
With love to other als-struck people.
Trixie287 1 year ago
What Cause This Condition?? Is It Like Multiple Slerosis??
RiPcOrDz83 1 year ago
@RiPcOrDz83 it's basicly the death of your nervous system ( they control your muscles) i believe. But no one know's why as far as i know.
wlbowles1 11 months ago
This has been flagged as spam show
Astaxanthin (ASTA-ZAN-THIN), the "King of the carotenoids!"
The most potent Antioxidant available to prevent neuro degerative diseases.
I'm so excited about this natural health nutrient I heard from the Dr. Oz Show on TV on 1/18/11, when he interviewed famous/controversial holistic medicine Dr. Joseph Mercola. I will recommend it to all my friends And family and anyone interested.
For sale in natural food stores.
GOD BLESS...
RAINBOWLIZY333 1 year ago
I am sorry for your loss. My husband passes away in October. What happened to ther movie? Is it available for purchase?
48jj 1 year ago
I am sorry for your loss. My husband passes away in October. What happened to ther movie? Is it available for purchase?
48jj 1 year ago
I am so sorry you had to deal with this in your family. We had to deal with it in ours and I wish there was more I could do to help the people living with this disease. My brother had it and it was hard to watch the whole thing unfold. They are the biggest heros in my eyes.
CharleneEannel 1 year ago
@CharleneEannel go to google and search for walk to defeat ALS and join, raise money for the ALS research foundation.
wlbowles1 11 months ago
My husband just got diagnosed with probable als :0( this is an amazing story ty so much for sharing this.
PeopleNeed2LoveMore 1 year ago
I don't know why we have to have these awful and
costly illnesses, why can't we just die when our
bodies are worn out. Just why not die peacefully
without a long disabling or painfull illness.
The391956 1 year ago
I lost my brother to ALS Sunday December 5, 2010.My heart is broken....I know that he is no longer suffering in heaven. Thank you for this beautiful video
searching4quiet 1 year ago 2
@searching4quiet wishful thinking will only get you so far.
nakallo 1 year ago
@searching4quiet so very deeply sorry for you loss
PeopleNeed2LoveMore 1 year ago
@PeopleNeed2LoveMore Thank you that means so much to me.I'm dealing with it one day at a time. I really need his wisdom right now. I'm having some trails. Thank you again for your kindness
searching4quiet 1 year ago
I am asking ALS victims on computers and ALS
family(s)- caretakers.
What does the ALS victims prefur To Be At Home
and cared for or A ALS Sub-Acute Care Nursing Home
I want to know what you prefur
I want to know how many ALS victims are left in the
Hospital to live on a vent, does it happen a lot,
because family must work at jobs. or is it for
other reasons like need vent and can only get it
in the Hospital?
The391956 1 year ago
larbacmc1 1 year ago
Love love this vid. So touching.
SusanitaMarquez 1 year ago
I am a nursing student and i am studying ALS right now. This video was very heart touching and I have learned a lot from your video! I envy your family, god bless.
kakasstang 1 year ago
GOOD BLESS
gaskin97 1 year ago
wow very touching very sad
thank you so much for sharing
silentfades 1 year ago
That's such an amazing story.
My uncle died of ALS... its so sad, but so amazing how they go through it <3
twistt 1 year ago
amazing story.
lilmrsraja 1 year ago
WOW She is sooooo STRONG!!!! =]
nat3500 1 year ago
Thank you for the video. My sister was just diagnosed with the beast. I am still looking for information
yellowrose255 1 year ago
my dad was just diagnosed 3 days ago...I'm sixteen and I have a little sister and brother. Its hard to think about the future at this point, and its even harder to see that my brother at 10 still does not completely understand. This video reassured me whatever happens its going to turn out ok. Thank you for this so much and please keep my dad and my family in your prayers.
gamegeek007 1 year ago
Thank you for bringing this video:to all of us. It shows us what this disease is about and how debilitating it is for the patient as well as the family to bear it. It certainly took courage & love to make his last few days conforted & blessed. It is with tears in my eyes that I write this, because my mother was just diagnosed w/what I suspected already and I hate it. I just hope I can make her last living years most memorable for her as you did & with God's help + THIS BEAST WILL BE BEATEN!
RAINBOWLIZY333 1 year ago
What a beautiful story. You're an amazing person. We have to find a cure.
SusanitaMarquez 1 year ago
I know this pain of loss, and I have lost 3 that were very close to me. My own brother was very painful as it is for so many. My heart goes out to all, and it's sad because it takes so many good people when they have so much to live for. May God be with you all.
AtlantaMobileProd 1 year ago
i searched for this on here because my husband fears that he will get this. His hands shake all the time, and he has weakness in his left leg. I hope they find a cure. RIP Tom.
lilpeach714 1 year ago 8
@lilpeach714
i hope your husband has something else
als is the worst disease their is
The391956 1 year ago
@lilpeach714 Could it be the early stages of parkinson's?
romancese23 1 year ago
@lilpeach714
I hope your husband has something else because my
Grandma died of ALS, it is the worst illness their is.
The391956 1 year ago
@lilpeach714 How is your husband now? was he diagnosed with als? Hands shaking is not a symptom of this disease, but it is of Parkinson, for example.
SusanitaMarquez 11 months ago
@lilpeach714 Did he end up having it?
cobolt13 2 months ago
My uncle was diagnosed at around the same age as Tom. He is still fighting it..Lets hope that their will be a cure soon.. RIP Tom
Jadedbylife 1 year ago
Thank you for posting this video. Tom left as a champion and greatly loved and respected for the man he was and the good sport. He and his wife were a perfect match because they are both champions. We don`t have to look far to see someone with greater challenges than our own. Thanks for Tom and his wife showing others how to be good sports and winners. There is no diseases in heaven, no tears, no sorrow, only love.
Jessecraft1954 2 years ago 7
Brilliant story.
I was thinking of a cure, and I thought, what about exposing the body to high temperatures for a long ammount of time to kill off any bacteria or virus. Maybe a Steam Room at 40 Degrees, Hot yes, but it might just work. Because any bacteria dies at above 37 Degrees.
It would be life threatening but I'm sure it could work with precedure.
PS30WNS200 2 years ago
@PS30WNS200 It's not a virus or bacteria but a neurodegenerative disease
MrSpitFace 1 year ago
Thank you.
marmadukesing 2 years ago
she is an amazing human.. just.. the way she spoke.. i dont know.. simply amazing story.
summerlover0810 2 years ago
Thank you & bless you.
so many people don't know when they see a PALS... hate that even I used to think they had some other issue; were slow, etc. education & awareness is so important.
As one PALS friend puts it: "everyday is a gift"
Hope i get to see Mind Games sometime.
chilinsnOball 2 years ago
Thank you for sharing this video. After seeing this, I will live life to its fullest :)
DMTS915 2 years ago
Thats just beautiful, I hope that u guys are well
Live life to the fullest.
sueyking 2 years ago
I hope everyone learns how live & love from this story....My mom passed In Dec. from ALS. She was the 5th person in our family, so all of us are learning to value every day because ALS will probably continue to strike us unless a cure is found. Please support this foundation!!
advosue 3 years ago
that was truely a great story it' is sad thoe well it's sad how so many people die and suffer with this desease and one i know of Stephen hawking
McGoogan07 3 years ago
such a beautiful and life-affirming story. thank you for sharing something so personal and profoundly affecting.
angryniggah 3 years ago
Excellent. Thank you!
2Tip 3 years ago