Added: 3 years ago
From: lightdigga
Views: 3,352
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  • I hope that people will understand we need to get federal funding for genetics. With more stories and people coming out we can strengthen our positioning towards getting aa cure. Simply understood and hopfully this will be worked on. I too feel for you - I don't know you but had to go through the same losing a daughter to this. Thank you for sharing yourself to help others.

  • i was pregnant and i did the thalasemia test, and we found out that the baby had beta thalasemia major, and it was very sad for me and my husband,coz i was 6 months pregnant.... i had to do abortion,... it was sad, and im still sad.... :(

  • i'm sorry for your loss.

  • sad.......because im also a thalasemia major..

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